
- <Centre d'Information et de documentation du CRA Rhône-Alpes
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du CRA Rhône-Alpes
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Auteur Pamela DIXON
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Auteur(s) ayant un renvoi vers celui-ci :
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Documents disponibles écrits par cet auteur (6)
Faire une suggestion Affiner la rechercheEvaluation of an adapted virtual training for master trainers of the WHO Caregiver Skills Training Program during the COVID-19 pandemic / Afiqah YUSUF ; Hannah PICKARD ; Pamela DIXON ; Andy SHIH ; Stephanie SHIRE ; Andrew PICKLES ; Mayada ELSABBAGH in Autism, 28-2 (February 2024)
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[article]
Titre : Evaluation of an adapted virtual training for master trainers of the WHO Caregiver Skills Training Program during the COVID-19 pandemic Type de document : texte imprimé Auteurs : Afiqah YUSUF, Auteur ; Hannah PICKARD, Auteur ; Pamela DIXON, Auteur ; Andy SHIH, Auteur ; Stephanie SHIRE, Auteur ; Andrew PICKLES, Auteur ; Mayada ELSABBAGH, Auteur Article en page(s) : p.510?514 Mots-clés : community interventions neurodevelopmental disorders parent-mediated intervention remote training scoring reliability Index. décimale : PER Périodiques Résumé : Significant barriers to training have been introduced by the COVID-19 pandemic, limiting in-person professional activities resulting in the development of the novel remote training. We developed and evaluated a remote training approach for master trainers of the Caregiver Skills Training Program. Master trainers support community practitioners, who in turn deliver the Caregiver Skills Training program to caregivers of children with developmental delays or disabilities. The aim of this study was to evaluate the remote training of master trainers on Caregiver Skills Training Program. Twelve out of the 19 practitioners who enrolled in the training completed the study. The training consisted of a 5-day in-person session completed prior to the pandemic, followed by supporting participants? ability to identify Caregiver Skills Training Program strategies through supported coding of seven video recordings over 7 weekly meetings and group discussions and ended with participants independently coding a set of 10 videos for Caregiver Skills Training Program strategies. We found that master trainers? scoring reliability varied over 7 weeks of supported coding. All but one participant reached moderate or good independent scoring reliability despite a lack of ability to practice the Caregiver Skills Training Program strategies with children due to the pandemic. Taken together, our findings illustrate the feasibility and value of remote training approaches in implementing interventions. Lay Abstract The COVID-19 pandemic interrupted in-person professional activities. We developed and evaluated a remote training approach for master trainers of the Caregiver Skills Training Program. Master trainers support community practitioners, who in turn deliver the Caregiver Skills Training Program to caregivers of children with developmental delays or disabilities. The Caregiver Skills Training Program teaches caregivers how to use strategies to enhance learning and interactions during everyday play and home activities and routines with their child. The aim of this study was to evaluate the remote training of master trainers on Caregiver Skills Training Program. Twelve out of the 19 practitioners who enrolled in the training completed the study. The training consisted of a 5-day in-person session completed prior to the pandemic, followed by supporting participants? ability to identify Caregiver Skills Training Program strategies through coding of video recordings over 7 weekly meetings and group discussions and ended with participants independently coding a set of 10 videos for Caregiver Skills Training Program strategies. We found all but one participant was able to reliably identify Caregiver Skills Training Program strategies from video recordings despite a lack of ability to practice the Caregiver Skills Training Program strategies with children due to the pandemic. Taken together, our findings illustrate the feasibility and value of remote training approaches in implementing interventions. En ligne : https://dx.doi.org/10.1177/13623613231173758 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519
in Autism > 28-2 (February 2024) . - p.510?514[article] Evaluation of an adapted virtual training for master trainers of the WHO Caregiver Skills Training Program during the COVID-19 pandemic [texte imprimé] / Afiqah YUSUF, Auteur ; Hannah PICKARD, Auteur ; Pamela DIXON, Auteur ; Andy SHIH, Auteur ; Stephanie SHIRE, Auteur ; Andrew PICKLES, Auteur ; Mayada ELSABBAGH, Auteur . - p.510?514.
in Autism > 28-2 (February 2024) . - p.510?514
Mots-clés : community interventions neurodevelopmental disorders parent-mediated intervention remote training scoring reliability Index. décimale : PER Périodiques Résumé : Significant barriers to training have been introduced by the COVID-19 pandemic, limiting in-person professional activities resulting in the development of the novel remote training. We developed and evaluated a remote training approach for master trainers of the Caregiver Skills Training Program. Master trainers support community practitioners, who in turn deliver the Caregiver Skills Training program to caregivers of children with developmental delays or disabilities. The aim of this study was to evaluate the remote training of master trainers on Caregiver Skills Training Program. Twelve out of the 19 practitioners who enrolled in the training completed the study. The training consisted of a 5-day in-person session completed prior to the pandemic, followed by supporting participants? ability to identify Caregiver Skills Training Program strategies through supported coding of seven video recordings over 7 weekly meetings and group discussions and ended with participants independently coding a set of 10 videos for Caregiver Skills Training Program strategies. We found that master trainers? scoring reliability varied over 7 weeks of supported coding. All but one participant reached moderate or good independent scoring reliability despite a lack of ability to practice the Caregiver Skills Training Program strategies with children due to the pandemic. Taken together, our findings illustrate the feasibility and value of remote training approaches in implementing interventions. Lay Abstract The COVID-19 pandemic interrupted in-person professional activities. We developed and evaluated a remote training approach for master trainers of the Caregiver Skills Training Program. Master trainers support community practitioners, who in turn deliver the Caregiver Skills Training Program to caregivers of children with developmental delays or disabilities. The Caregiver Skills Training Program teaches caregivers how to use strategies to enhance learning and interactions during everyday play and home activities and routines with their child. The aim of this study was to evaluate the remote training of master trainers on Caregiver Skills Training Program. Twelve out of the 19 practitioners who enrolled in the training completed the study. The training consisted of a 5-day in-person session completed prior to the pandemic, followed by supporting participants? ability to identify Caregiver Skills Training Program strategies through coding of video recordings over 7 weekly meetings and group discussions and ended with participants independently coding a set of 10 videos for Caregiver Skills Training Program strategies. We found all but one participant was able to reliably identify Caregiver Skills Training Program strategies from video recordings despite a lack of ability to practice the Caregiver Skills Training Program strategies with children due to the pandemic. Taken together, our findings illustrate the feasibility and value of remote training approaches in implementing interventions. En ligne : https://dx.doi.org/10.1177/13623613231173758 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children's Health 2016 / Arun KARPUR in Journal of Autism and Developmental Disorders, 49-4 (April 2019)
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Titre : Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children's Health 2016 Type de document : texte imprimé Auteurs : Arun KARPUR, Auteur ; Angela LELLO, Auteur ; Thomas W. FRAZIER, Auteur ; Pamela J. DIXON, Auteur ; Andy J. SHIH, Auteur Article en page(s) : p.1652-1664 Langues : Anglais (eng) Mots-clés : Andersen's Behavioral Model Autism Spectrum Disorders (ASD) Health disparities Unmet health care needs Index. décimale : PER Périodiques Résumé : Utilizing the 2016 National Survey of Children's Health, this study illustrates that children with ASD have nearly 4 times higher odds of unmet health care needs compared to children without disabilities, whereas children with other disabilities had nearly 2 times higher odds of unmet health care needs compared to children without disabilities. Applying Andersen's Behavioral Model of health care utilization, this study estimates that enabling factors (e.g., access to health insurance, quality of health insurance, access to family-centered care, family-level stress, exposure to adverse childhood experiences, and parental employment) improved prediction of regression model for unmet health care needs by 150%. Policy and program implications are discussed and a new framework for responding to observed disparities is discussed. En ligne : https://dx.doi.org/10.1007/s10803-018-3862-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388
in Journal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1652-1664[article] Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children's Health 2016 [texte imprimé] / Arun KARPUR, Auteur ; Angela LELLO, Auteur ; Thomas W. FRAZIER, Auteur ; Pamela J. DIXON, Auteur ; Andy J. SHIH, Auteur . - p.1652-1664.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1652-1664
Mots-clés : Andersen's Behavioral Model Autism Spectrum Disorders (ASD) Health disparities Unmet health care needs Index. décimale : PER Périodiques Résumé : Utilizing the 2016 National Survey of Children's Health, this study illustrates that children with ASD have nearly 4 times higher odds of unmet health care needs compared to children without disabilities, whereas children with other disabilities had nearly 2 times higher odds of unmet health care needs compared to children without disabilities. Applying Andersen's Behavioral Model of health care utilization, this study estimates that enabling factors (e.g., access to health insurance, quality of health insurance, access to family-centered care, family-level stress, exposure to adverse childhood experiences, and parental employment) improved prediction of regression model for unmet health care needs by 150%. Policy and program implications are discussed and a new framework for responding to observed disparities is discussed. En ligne : https://dx.doi.org/10.1007/s10803-018-3862-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388 Outcomes of the World Health Organization’s Caregiver Skills Training Program for Eritrean and Ethiopian parents of autistic children in the United States / Sarah DABABNAH in Autism, 29-12 (December 2025)
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Titre : Outcomes of the World Health Organization’s Caregiver Skills Training Program for Eritrean and Ethiopian parents of autistic children in the United States Type de document : texte imprimé Auteurs : Sarah DABABNAH, Auteur ; Waganesh A. ZELEKE, Auteur ; Yoonzie CHUNG, Auteur ; Rachel ANTWI ADJEI, Auteur ; Pamela DIXON, Auteur ; Erica SALOMONE, Auteur Article en page(s) : p.2941-2954 Langues : Anglais (eng) Mots-clés : autism Caregiver Skills Training early intervention Eritrea Ethiopia immigrants parent-mediated autism intervention telehealth World Health Organization neurodevelopmental conditions developmental delays developmental disabilities Index. décimale : PER Périodiques Résumé : Autism intervention research has not adequately addressed the needs of Black autistic children and their families, particularly those who are also immigrants to the United States. The World Health Organization designed Caregiver Skills Training (CST), a parent-mediated intervention intended to improve child social communication and behavior, to fill in the global gap of services for caregivers of young children with autism and other neurodevelopmental conditions. While CST has been implemented in Ethiopia, it has not been evaluated for Ethiopian and Eritrean immigrant families in the United States. This single-arm pilot study of CST investigated pre- and post-intervention changes in parent and child outcomes within a sample of 25 mothers of autistic children (ages 2-9 years) in Maryland, Washington, DC, and Virginia. Eritrean and Ethiopian facilitators delivered CST remotely to five parent groups. We used Wilcoxon signed-rank tests and found statistically significant improvements in parents' knowledge, skills, self-efficacy, depression, and empowerment, as well as child communication, sociability, and sensory/cognitive awareness. There were no statistically significant changes in parents' anxiety, stress, and coping, nor some subscales of the empowerment and child outcome measures. We conclude CST is a promising intervention for Ethiopian and Eritrean immigrant families in the United States. Randomized controlled trials are needed to confirm study findings.Lay abstract Autism intervention research has often not included Black autistic children and families, including those who are also immigrants to the United States. The World Health Organization designed Caregiver Skills Training (CST) because there are not enough services for caregivers of young children with autism and other neurodevelopmental conditions. CST is an intervention in which parents receive information on how to support their own and their children’s needs in nine group and three individual sessions. While CST has been adapted and piloted in Ethiopia, it has not been evaluated for Ethiopian and Eritrean immigrant families in the United States. In this study, five groups with a total of 25 mothers of autistic children (ages 2-9 years) all received CST from Eritrean and Ethiopian facilitators on Zoom. The participants completed surveys about themselves and their autistic children before and after they completed CST. We found that parents' knowledge, skills, self-efficacy, depression, and empowerment, as well as their children’s communication, sociability, and sensory/cognitive awareness improved after they completed CST. We did not find changes in some areas we measured, such as parents' anxiety, stress, and coping. We believe that CST might be a promising intervention for Ethiopian and Eritrean immigrant families in the United States. We recommend that more research should be done to confirm what we found in this study. En ligne : https://dx.doi.org/10.1177/13623613251351345 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=571
in Autism > 29-12 (December 2025) . - p.2941-2954[article] Outcomes of the World Health Organization’s Caregiver Skills Training Program for Eritrean and Ethiopian parents of autistic children in the United States [texte imprimé] / Sarah DABABNAH, Auteur ; Waganesh A. ZELEKE, Auteur ; Yoonzie CHUNG, Auteur ; Rachel ANTWI ADJEI, Auteur ; Pamela DIXON, Auteur ; Erica SALOMONE, Auteur . - p.2941-2954.
Langues : Anglais (eng)
in Autism > 29-12 (December 2025) . - p.2941-2954
Mots-clés : autism Caregiver Skills Training early intervention Eritrea Ethiopia immigrants parent-mediated autism intervention telehealth World Health Organization neurodevelopmental conditions developmental delays developmental disabilities Index. décimale : PER Périodiques Résumé : Autism intervention research has not adequately addressed the needs of Black autistic children and their families, particularly those who are also immigrants to the United States. The World Health Organization designed Caregiver Skills Training (CST), a parent-mediated intervention intended to improve child social communication and behavior, to fill in the global gap of services for caregivers of young children with autism and other neurodevelopmental conditions. While CST has been implemented in Ethiopia, it has not been evaluated for Ethiopian and Eritrean immigrant families in the United States. This single-arm pilot study of CST investigated pre- and post-intervention changes in parent and child outcomes within a sample of 25 mothers of autistic children (ages 2-9 years) in Maryland, Washington, DC, and Virginia. Eritrean and Ethiopian facilitators delivered CST remotely to five parent groups. We used Wilcoxon signed-rank tests and found statistically significant improvements in parents' knowledge, skills, self-efficacy, depression, and empowerment, as well as child communication, sociability, and sensory/cognitive awareness. There were no statistically significant changes in parents' anxiety, stress, and coping, nor some subscales of the empowerment and child outcome measures. We conclude CST is a promising intervention for Ethiopian and Eritrean immigrant families in the United States. Randomized controlled trials are needed to confirm study findings.Lay abstract Autism intervention research has often not included Black autistic children and families, including those who are also immigrants to the United States. The World Health Organization designed Caregiver Skills Training (CST) because there are not enough services for caregivers of young children with autism and other neurodevelopmental conditions. CST is an intervention in which parents receive information on how to support their own and their children’s needs in nine group and three individual sessions. While CST has been adapted and piloted in Ethiopia, it has not been evaluated for Ethiopian and Eritrean immigrant families in the United States. In this study, five groups with a total of 25 mothers of autistic children (ages 2-9 years) all received CST from Eritrean and Ethiopian facilitators on Zoom. The participants completed surveys about themselves and their autistic children before and after they completed CST. We found that parents' knowledge, skills, self-efficacy, depression, and empowerment, as well as their children’s communication, sociability, and sensory/cognitive awareness improved after they completed CST. We did not find changes in some areas we measured, such as parents' anxiety, stress, and coping. We believe that CST might be a promising intervention for Ethiopian and Eritrean immigrant families in the United States. We recommend that more research should be done to confirm what we found in this study. En ligne : https://dx.doi.org/10.1177/13623613251351345 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=571 Scoping review: Facilitators, barriers, and cultural adaptations in the caregiver skills training program for children with developmental concerns / Cecilia MONTIEL-NAVA in Autism, 30-3 (March 2026)
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Titre : Scoping review: Facilitators, barriers, and cultural adaptations in the caregiver skills training program for children with developmental concerns Type de document : texte imprimé Auteurs : Cecilia MONTIEL-NAVA, Auteur ; Maria C. MONTENEGRO, Auteur ; Ana C. RAMIREZ, Auteur ; Victoria VILLARREAL, Auteur ; Lucia MURILLO CHACKO, Auteur ; Pamela DIXON, Auteur ; Sarah DABABNAH, Auteur Article en page(s) : p.668-681 Langues : Anglais (eng) Mots-clés : autism cultural adaptation developmental disabilities parent-mediated interventions task-shifting Index. décimale : PER Périodiques Résumé : Autism interventions are predominantly developed in high-income countries, limiting access for families in low- and middle-income countries due to systemic, cultural, and logistical barriers. The Caregiver Skills Training program aims to address this disparity by equipping caregivers with practical skills. This scoping review examines the cultural adaptations, facilitators, and barriers to the implementation of Caregiver Skills Training, focusing on its accessibility, feasibility, and acceptability. A comprehensive search of ERIC, PsycINFO, PubMed, and Web of Science identified eligible studies that reported cultural or linguistic adaptations of Caregiver Skills Training. Forward searches and manual reference checks supplemented the review. Data were extracted using the Cultural Adaptation Checklist framework and analyzed for patterns in adaptation, training, barriers, and facilitators. Seventeen studies across Asia, Africa, Europe, and North America highlighted diverse adaptations in language, content, and delivery methods. Facilitators included community partnerships and task-shifting with non-specialists, while barriers involved logistical challenges, stigma, and resource constraints. Caregiver Skills Training’s flexible, culturally responsive framework makes it a viable model for scaling autism interventions globally. Tailored adaptations and strong support systems for facilitators are essential to overcoming systemic challenges and ensuring equitable access in low- and middle-income countries.Lay abstract How the Caregiver Skills Training Program Helps Families WorldwideThe Caregiver Skills Training program was designed to help families of children with autism and other developmental challenges in low-resource settings. Caregiver Skills Training empowers parents and caregivers by teaching them practical strategies to improve their child’s communication, social interaction, and daily living skills. This program is unique because it does not require a formal diagnosis and is designed to be delivered by trained non-specialists, such as community health workers. A review of 17 studies from different countries examined how the Caregiver Skills Training program was adapted to fit the cultural and practical needs of families in each region. For example, materials were translated, simplified, and paired with visual aids to help parents with lower literacy levels. Non-specialist facilitators helped make the program more accessible, and online or hybrid delivery methods increased participation during the COVID-19 pandemic. However, challenges remain. Families often face barriers like limited transportation, stigma, and lack of Internet access, which can prevent them from fully participating in the program. Facilitators also need more training and support to maintain program quality. Despite these obstacles, Caregiver Skills Training shows promise as a global solution to bridge the gap in autism care, especially in underserved communities. This review highlights the importance of adapting programs like Caregiver Skills Training to meet the unique needs of families worldwide, ensuring that every child has the opportunity to thrive, regardless of where they live. En ligne : https://dx.doi.org/10.1177/13623613251406399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=582
in Autism > 30-3 (March 2026) . - p.668-681[article] Scoping review: Facilitators, barriers, and cultural adaptations in the caregiver skills training program for children with developmental concerns [texte imprimé] / Cecilia MONTIEL-NAVA, Auteur ; Maria C. MONTENEGRO, Auteur ; Ana C. RAMIREZ, Auteur ; Victoria VILLARREAL, Auteur ; Lucia MURILLO CHACKO, Auteur ; Pamela DIXON, Auteur ; Sarah DABABNAH, Auteur . - p.668-681.
Langues : Anglais (eng)
in Autism > 30-3 (March 2026) . - p.668-681
Mots-clés : autism cultural adaptation developmental disabilities parent-mediated interventions task-shifting Index. décimale : PER Périodiques Résumé : Autism interventions are predominantly developed in high-income countries, limiting access for families in low- and middle-income countries due to systemic, cultural, and logistical barriers. The Caregiver Skills Training program aims to address this disparity by equipping caregivers with practical skills. This scoping review examines the cultural adaptations, facilitators, and barriers to the implementation of Caregiver Skills Training, focusing on its accessibility, feasibility, and acceptability. A comprehensive search of ERIC, PsycINFO, PubMed, and Web of Science identified eligible studies that reported cultural or linguistic adaptations of Caregiver Skills Training. Forward searches and manual reference checks supplemented the review. Data were extracted using the Cultural Adaptation Checklist framework and analyzed for patterns in adaptation, training, barriers, and facilitators. Seventeen studies across Asia, Africa, Europe, and North America highlighted diverse adaptations in language, content, and delivery methods. Facilitators included community partnerships and task-shifting with non-specialists, while barriers involved logistical challenges, stigma, and resource constraints. Caregiver Skills Training’s flexible, culturally responsive framework makes it a viable model for scaling autism interventions globally. Tailored adaptations and strong support systems for facilitators are essential to overcoming systemic challenges and ensuring equitable access in low- and middle-income countries.Lay abstract How the Caregiver Skills Training Program Helps Families WorldwideThe Caregiver Skills Training program was designed to help families of children with autism and other developmental challenges in low-resource settings. Caregiver Skills Training empowers parents and caregivers by teaching them practical strategies to improve their child’s communication, social interaction, and daily living skills. This program is unique because it does not require a formal diagnosis and is designed to be delivered by trained non-specialists, such as community health workers. A review of 17 studies from different countries examined how the Caregiver Skills Training program was adapted to fit the cultural and practical needs of families in each region. For example, materials were translated, simplified, and paired with visual aids to help parents with lower literacy levels. Non-specialist facilitators helped make the program more accessible, and online or hybrid delivery methods increased participation during the COVID-19 pandemic. However, challenges remain. Families often face barriers like limited transportation, stigma, and lack of Internet access, which can prevent them from fully participating in the program. Facilitators also need more training and support to maintain program quality. Despite these obstacles, Caregiver Skills Training shows promise as a global solution to bridge the gap in autism care, especially in underserved communities. This review highlights the importance of adapting programs like Caregiver Skills Training to meet the unique needs of families worldwide, ensuring that every child has the opportunity to thrive, regardless of where they live. En ligne : https://dx.doi.org/10.1177/13623613251406399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=582 Training and pilot implementation of the World Health Organization?s caregiver skills training program in Egypt / Alaa IBRAHIM ; Afiqah YUSUF ; Eman GABER ; Hadeer ELSHAFEY ; Heba W. KOTB ; Mayada ELSABBAGH ; Sherine RAMZY ; Stephanie ESKANDER ; Andrea THEIS ; Aya ELSHERIF ; Pamela DIXON in Research in Autism, 127 (September 2025)
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World Health Organisation-Caregiver Skills Training (WHO-CST) Program: Feasibility of Delivery by Non-Specialist Providers in Real-world Urban Settings in India / Koyeli SENGUPTA in Journal of Autism and Developmental Disorders, 53-4 (April 2023)
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