Evaluation of an adapted virtual training for master trainers of the WHO Caregiver Skills Training Program during the COVID-19 pandemic / Afiqah YUSUF ; Hannah PICKARD ; Pamela DIXON ; Andy SHIH ; Stephanie SHIRE ; Andrew PICKLES ; Mayada ELSABBAGH in Autism, 28-2 (February 2024)  

Public ISBD [article]  inAutism > 28-2 (February 2024) . - p.510?514 Titre : Evaluation of an adapted virtual training for master trainers of the WHO Caregiver Skills Training Program during the COVID-19 pandemic Type de document : texte imprimé Auteurs : Afiqah YUSUF, Auteur ; Hannah PICKARD, Auteur ; Pamela DIXON, Auteur ; Andy SHIH, Auteur ; Stephanie SHIRE, Auteur ; Andrew PICKLES, Auteur ; Mayada ELSABBAGH, Auteur Article en page(s) : p.510?514 Mots-clés : community interventions  neurodevelopmental disorders  parent-mediated intervention  remote training  scoring reliability Index. décimale : PER Périodiques Résumé : Significant barriers to training have been introduced by the COVID-19 pandemic, limiting in-person professional activities resulting in the development of the novel remote training. We developed and evaluated a remote training approach for master trainers of the Caregiver Skills Training Program. Master trainers support community practitioners, who in turn deliver the Caregiver Skills Training program to caregivers of children with developmental delays or disabilities. The aim of this study was to evaluate the remote training of master trainers on Caregiver Skills Training Program. Twelve out of the 19 practitioners who enrolled in the training completed the study. The training consisted of a 5-day in-person session completed prior to the pandemic, followed by supporting participants? ability to identify Caregiver Skills Training Program strategies through supported coding of seven video recordings over 7 weekly meetings and group discussions and ended with participants independently coding a set of 10 videos for Caregiver Skills Training Program strategies. We found that master trainers? scoring reliability varied over 7 weeks of supported coding. All but one participant reached moderate or good independent scoring reliability despite a lack of ability to practice the Caregiver Skills Training Program strategies with children due to the pandemic. Taken together, our findings illustrate the feasibility and value of remote training approaches in implementing interventions. Lay Abstract The COVID-19 pandemic interrupted in-person professional activities. We developed and evaluated a remote training approach for master trainers of the Caregiver Skills Training Program. Master trainers support community practitioners, who in turn deliver the Caregiver Skills Training Program to caregivers of children with developmental delays or disabilities. The Caregiver Skills Training Program teaches caregivers how to use strategies to enhance learning and interactions during everyday play and home activities and routines with their child. The aim of this study was to evaluate the remote training of master trainers on Caregiver Skills Training Program. Twelve out of the 19 practitioners who enrolled in the training completed the study. The training consisted of a 5-day in-person session completed prior to the pandemic, followed by supporting participants? ability to identify Caregiver Skills Training Program strategies through coding of video recordings over 7 weekly meetings and group discussions and ended with participants independently coding a set of 10 videos for Caregiver Skills Training Program strategies. We found all but one participant was able to reliably identify Caregiver Skills Training Program strategies from video recordings despite a lack of ability to practice the Caregiver Skills Training Program strategies with children due to the pandemic. Taken together, our findings illustrate the feasibility and value of remote training approaches in implementing interventions. En ligne : https://dx.doi.org/10.1177/13623613231173758 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 [article] Evaluation of an adapted virtual training for master trainers of the WHO Caregiver Skills Training Program during the COVID-19 pandemic [texte imprimé] / Afiqah YUSUF, Auteur ; Hannah PICKARD, Auteur ; Pamela DIXON, Auteur ; Andy SHIH, Auteur ; Stephanie SHIRE, Auteur ; Andrew PICKLES, Auteur ; Mayada ELSABBAGH, Auteur . - p.510?514. in Autism > 28-2 (February 2024) . - p.510?514 Mots-clés : community interventions  neurodevelopmental disorders  parent-mediated intervention  remote training  scoring reliability Index. décimale : PER Périodiques Résumé : Significant barriers to training have been introduced by the COVID-19 pandemic, limiting in-person professional activities resulting in the development of the novel remote training. We developed and evaluated a remote training approach for master trainers of the Caregiver Skills Training Program. Master trainers support community practitioners, who in turn deliver the Caregiver Skills Training program to caregivers of children with developmental delays or disabilities. The aim of this study was to evaluate the remote training of master trainers on Caregiver Skills Training Program. Twelve out of the 19 practitioners who enrolled in the training completed the study. The training consisted of a 5-day in-person session completed prior to the pandemic, followed by supporting participants? ability to identify Caregiver Skills Training Program strategies through supported coding of seven video recordings over 7 weekly meetings and group discussions and ended with participants independently coding a set of 10 videos for Caregiver Skills Training Program strategies. We found that master trainers? scoring reliability varied over 7 weeks of supported coding. All but one participant reached moderate or good independent scoring reliability despite a lack of ability to practice the Caregiver Skills Training Program strategies with children due to the pandemic. Taken together, our findings illustrate the feasibility and value of remote training approaches in implementing interventions. Lay Abstract The COVID-19 pandemic interrupted in-person professional activities. We developed and evaluated a remote training approach for master trainers of the Caregiver Skills Training Program. Master trainers support community practitioners, who in turn deliver the Caregiver Skills Training Program to caregivers of children with developmental delays or disabilities. The Caregiver Skills Training Program teaches caregivers how to use strategies to enhance learning and interactions during everyday play and home activities and routines with their child. The aim of this study was to evaluate the remote training of master trainers on Caregiver Skills Training Program. Twelve out of the 19 practitioners who enrolled in the training completed the study. The training consisted of a 5-day in-person session completed prior to the pandemic, followed by supporting participants? ability to identify Caregiver Skills Training Program strategies through coding of video recordings over 7 weekly meetings and group discussions and ended with participants independently coding a set of 10 videos for Caregiver Skills Training Program strategies. We found all but one participant was able to reliably identify Caregiver Skills Training Program strategies from video recordings despite a lack of ability to practice the Caregiver Skills Training Program strategies with children due to the pandemic. Taken together, our findings illustrate the feasibility and value of remote training approaches in implementing interventions. En ligne : https://dx.doi.org/10.1177/13623613231173758 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519

Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children's Health 2016 / Arun KARPUR in Journal of Autism and Developmental Disorders, 49-4 (April 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1652-1664 Titre : Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children's Health 2016 Type de document : texte imprimé Auteurs : Arun KARPUR, Auteur ; Angela LELLO, Auteur ; Thomas W. FRAZIER, Auteur ; Pamela J. DIXON, Auteur ; Andy J. SHIH, Auteur Article en page(s) : p.1652-1664 Langues : Anglais (eng) Mots-clés : Andersen's Behavioral Model  Autism Spectrum Disorders (ASD)  Health disparities  Unmet health care needs Index. décimale : PER Périodiques Résumé : Utilizing the 2016 National Survey of Children's Health, this study illustrates that children with ASD have nearly 4 times higher odds of unmet health care needs compared to children without disabilities, whereas children with other disabilities had nearly 2 times higher odds of unmet health care needs compared to children without disabilities. Applying Andersen's Behavioral Model of health care utilization, this study estimates that enabling factors (e.g., access to health insurance, quality of health insurance, access to family-centered care, family-level stress, exposure to adverse childhood experiences, and parental employment) improved prediction of regression model for unmet health care needs by 150%. Policy and program implications are discussed and a new framework for responding to observed disparities is discussed. En ligne : https://dx.doi.org/10.1007/s10803-018-3862-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388 [article] Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children's Health 2016 [texte imprimé] / Arun KARPUR, Auteur ; Angela LELLO, Auteur ; Thomas W. FRAZIER, Auteur ; Pamela J. DIXON, Auteur ; Andy J. SHIH, Auteur . - p.1652-1664. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1652-1664 Mots-clés : Andersen's Behavioral Model  Autism Spectrum Disorders (ASD)  Health disparities  Unmet health care needs Index. décimale : PER Périodiques Résumé : Utilizing the 2016 National Survey of Children's Health, this study illustrates that children with ASD have nearly 4 times higher odds of unmet health care needs compared to children without disabilities, whereas children with other disabilities had nearly 2 times higher odds of unmet health care needs compared to children without disabilities. Applying Andersen's Behavioral Model of health care utilization, this study estimates that enabling factors (e.g., access to health insurance, quality of health insurance, access to family-centered care, family-level stress, exposure to adverse childhood experiences, and parental employment) improved prediction of regression model for unmet health care needs by 150%. Policy and program implications are discussed and a new framework for responding to observed disparities is discussed. En ligne : https://dx.doi.org/10.1007/s10803-018-3862-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388

Outcomes of the World Health Organization’s Caregiver Skills Training Program for Eritrean and Ethiopian parents of autistic children in the United States / Sarah DABABNAH in Autism, 29-12 (December 2025)  

Public ISBD [article]  inAutism > 29-12 (December 2025) . - p.2941-2954 Titre : Outcomes of the World Health Organization’s Caregiver Skills Training Program for Eritrean and Ethiopian parents of autistic children in the United States Type de document : texte imprimé Auteurs : Sarah DABABNAH, Auteur ; Waganesh A. ZELEKE, Auteur ; Yoonzie CHUNG, Auteur ; Rachel ANTWI ADJEI, Auteur ; Pamela DIXON, Auteur ; Erica SALOMONE, Auteur Article en page(s) : p.2941-2954 Langues : Anglais (eng) Mots-clés : autism  Caregiver Skills Training  early intervention  Eritrea  Ethiopia  immigrants  parent-mediated autism intervention  telehealth  World Health Organization  neurodevelopmental conditions  developmental delays  developmental disabilities Index. décimale : PER Périodiques Résumé : Autism intervention research has not adequately addressed the needs of Black autistic children and their families, particularly those who are also immigrants to the United States. The World Health Organization designed Caregiver Skills Training (CST), a parent-mediated intervention intended to improve child social communication and behavior, to fill in the global gap of services for caregivers of young children with autism and other neurodevelopmental conditions. While CST has been implemented in Ethiopia, it has not been evaluated for Ethiopian and Eritrean immigrant families in the United States. This single-arm pilot study of CST investigated pre- and post-intervention changes in parent and child outcomes within a sample of 25 mothers of autistic children (ages 2-9 years) in Maryland, Washington, DC, and Virginia. Eritrean and Ethiopian facilitators delivered CST remotely to five parent groups. We used Wilcoxon signed-rank tests and found statistically significant improvements in parents' knowledge, skills, self-efficacy, depression, and empowerment, as well as child communication, sociability, and sensory/cognitive awareness. There were no statistically significant changes in parents' anxiety, stress, and coping, nor some subscales of the empowerment and child outcome measures. We conclude CST is a promising intervention for Ethiopian and Eritrean immigrant families in the United States. Randomized controlled trials are needed to confirm study findings.Lay abstract Autism intervention research has often not included Black autistic children and families, including those who are also immigrants to the United States. The World Health Organization designed Caregiver Skills Training (CST) because there are not enough services for caregivers of young children with autism and other neurodevelopmental conditions. CST is an intervention in which parents receive information on how to support their own and their children’s needs in nine group and three individual sessions. While CST has been adapted and piloted in Ethiopia, it has not been evaluated for Ethiopian and Eritrean immigrant families in the United States. In this study, five groups with a total of 25 mothers of autistic children (ages 2-9 years) all received CST from Eritrean and Ethiopian facilitators on Zoom. The participants completed surveys about themselves and their autistic children before and after they completed CST. We found that parents' knowledge, skills, self-efficacy, depression, and empowerment, as well as their children’s communication, sociability, and sensory/cognitive awareness improved after they completed CST. We did not find changes in some areas we measured, such as parents' anxiety, stress, and coping. We believe that CST might be a promising intervention for Ethiopian and Eritrean immigrant families in the United States. We recommend that more research should be done to confirm what we found in this study. En ligne : https://dx.doi.org/10.1177/13623613251351345 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=571 [article] Outcomes of the World Health Organization’s Caregiver Skills Training Program for Eritrean and Ethiopian parents of autistic children in the United States [texte imprimé] / Sarah DABABNAH, Auteur ; Waganesh A. ZELEKE, Auteur ; Yoonzie CHUNG, Auteur ; Rachel ANTWI ADJEI, Auteur ; Pamela DIXON, Auteur ; Erica SALOMONE, Auteur . - p.2941-2954. Langues : Anglais (eng) in Autism > 29-12 (December 2025) . - p.2941-2954 Mots-clés : autism  Caregiver Skills Training  early intervention  Eritrea  Ethiopia  immigrants  parent-mediated autism intervention  telehealth  World Health Organization  neurodevelopmental conditions  developmental delays  developmental disabilities Index. décimale : PER Périodiques Résumé : Autism intervention research has not adequately addressed the needs of Black autistic children and their families, particularly those who are also immigrants to the United States. The World Health Organization designed Caregiver Skills Training (CST), a parent-mediated intervention intended to improve child social communication and behavior, to fill in the global gap of services for caregivers of young children with autism and other neurodevelopmental conditions. While CST has been implemented in Ethiopia, it has not been evaluated for Ethiopian and Eritrean immigrant families in the United States. This single-arm pilot study of CST investigated pre- and post-intervention changes in parent and child outcomes within a sample of 25 mothers of autistic children (ages 2-9 years) in Maryland, Washington, DC, and Virginia. Eritrean and Ethiopian facilitators delivered CST remotely to five parent groups. We used Wilcoxon signed-rank tests and found statistically significant improvements in parents' knowledge, skills, self-efficacy, depression, and empowerment, as well as child communication, sociability, and sensory/cognitive awareness. There were no statistically significant changes in parents' anxiety, stress, and coping, nor some subscales of the empowerment and child outcome measures. We conclude CST is a promising intervention for Ethiopian and Eritrean immigrant families in the United States. Randomized controlled trials are needed to confirm study findings.Lay abstract Autism intervention research has often not included Black autistic children and families, including those who are also immigrants to the United States. The World Health Organization designed Caregiver Skills Training (CST) because there are not enough services for caregivers of young children with autism and other neurodevelopmental conditions. CST is an intervention in which parents receive information on how to support their own and their children’s needs in nine group and three individual sessions. While CST has been adapted and piloted in Ethiopia, it has not been evaluated for Ethiopian and Eritrean immigrant families in the United States. In this study, five groups with a total of 25 mothers of autistic children (ages 2-9 years) all received CST from Eritrean and Ethiopian facilitators on Zoom. The participants completed surveys about themselves and their autistic children before and after they completed CST. We found that parents' knowledge, skills, self-efficacy, depression, and empowerment, as well as their children’s communication, sociability, and sensory/cognitive awareness improved after they completed CST. We did not find changes in some areas we measured, such as parents' anxiety, stress, and coping. We believe that CST might be a promising intervention for Ethiopian and Eritrean immigrant families in the United States. We recommend that more research should be done to confirm what we found in this study. En ligne : https://dx.doi.org/10.1177/13623613251351345 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=571

Training and pilot implementation of the World Health Organization?s caregiver skills training program in Egypt / Alaa IBRAHIM ; Afiqah YUSUF ; Eman GABER ; Hadeer ELSHAFEY ; Heba W. KOTB ; Mayada ELSABBAGH ; Sherine RAMZY ; Stephanie ESKANDER ; Andrea THEIS ; Aya ELSHERIF ; Pamela DIXON in Research in Autism, 127 (September 2025)  

Public ISBD [article]  inResearch in Autism > 127 (September 2025) . - p.202659 Titre : Training and pilot implementation of the World Health Organization?s caregiver skills training program in Egypt Type de document : texte imprimé Auteurs : Alaa IBRAHIM, Auteur ; Afiqah YUSUF, Auteur ; Eman GABER, Auteur ; Hadeer ELSHAFEY, Auteur ; Heba W. KOTB, Auteur ; Mayada ELSABBAGH, Auteur ; Sherine RAMZY, Auteur ; Stephanie ESKANDER, Auteur ; Andrea THEIS, Auteur ; Aya ELSHERIF, Auteur ; Pamela DIXON, Auteur Article en page(s) : p.202659 Langues : Anglais (eng) Mots-clés : Caregiver skills training  World Health Organization  Early intervention  Egypt  Autism  Health inequities  Parenting  Neurodevelopment  Developmental delay  Developmental disabilities Index. décimale : PER Périodiques En ligne : https://doi.org/10.1016/j.reia.2025.202659 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567 [article] Training and pilot implementation of the World Health Organization?s caregiver skills training program in Egypt [texte imprimé] / Alaa IBRAHIM, Auteur ; Afiqah YUSUF, Auteur ; Eman GABER, Auteur ; Hadeer ELSHAFEY, Auteur ; Heba W. KOTB, Auteur ; Mayada ELSABBAGH, Auteur ; Sherine RAMZY, Auteur ; Stephanie ESKANDER, Auteur ; Andrea THEIS, Auteur ; Aya ELSHERIF, Auteur ; Pamela DIXON, Auteur . - p.202659. Langues : Anglais (eng) in Research in Autism > 127 (September 2025) . - p.202659 Mots-clés : Caregiver skills training  World Health Organization  Early intervention  Egypt  Autism  Health inequities  Parenting  Neurodevelopment  Developmental delay  Developmental disabilities Index. décimale : PER Périodiques En ligne : https://doi.org/10.1016/j.reia.2025.202659 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567

World Health Organisation-Caregiver Skills Training (WHO-CST) Program: Feasibility of Delivery by Non-Specialist Providers in Real-world Urban Settings in India / Koyeli SENGUPTA in Journal of Autism and Developmental Disorders, 53-4 (April 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1444-1461 Titre : World Health Organisation-Caregiver Skills Training (WHO-CST) Program: Feasibility of Delivery by Non-Specialist Providers in Real-world Urban Settings in India Type de document : texte imprimé Auteurs : Koyeli SENGUPTA, Auteur ; Henal SHAH, Auteur ; Subharati GHOSH, Auteur ; Disha SANGHVI, Auteur ; Sanchita MAHADIK, Auteur ; Allauki DANI, Auteur ; Oshin DESHMUKH, Auteur ; Laura PACIONE, Auteur ; Pamela DIXON, Auteur ; Erica SALOMONE, Auteur ; Chiara SERVILI, Auteur ; WHO CST TEAM, Auteur Article en page(s) : p.1444-1461 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The World Health Organization-Caregiver Skills Training Program, a parent-mediated early intervention facilitated by non-specialist providers piloted in urban India was evaluated using mixed-methods for feasibility and effects on child and caregiver outcomes. Caregivers (n=22) of children (2-9 years) with social-communication delays participated in a single-group pre-post study. High rates of caregiver attendance, improved caregiver fidelity, and facilitator competency suggested program feasibility. Caregivers voiced acceptability of various intervention-components. The intervention was associated with improved caregiver-reported skills and knowledge (p< 0.00), reduction in stress (p=0.03), improved child developmental outcomes on communication and social interaction (p< 0.00), and adaptive behaviors (p< 0.00). Challenges about logistics and availability of time were highlighted. Implications of results in resource-poor settings and recommendations for future feasibility trials are discussed. En ligne : https://doi.org/10.1007/s10803-021-05367-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] World Health Organisation-Caregiver Skills Training (WHO-CST) Program: Feasibility of Delivery by Non-Specialist Providers in Real-world Urban Settings in India [texte imprimé] / Koyeli SENGUPTA, Auteur ; Henal SHAH, Auteur ; Subharati GHOSH, Auteur ; Disha SANGHVI, Auteur ; Sanchita MAHADIK, Auteur ; Allauki DANI, Auteur ; Oshin DESHMUKH, Auteur ; Laura PACIONE, Auteur ; Pamela DIXON, Auteur ; Erica SALOMONE, Auteur ; Chiara SERVILI, Auteur ; WHO CST TEAM, Auteur . - p.1444-1461. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1444-1461 Index. décimale : PER Périodiques Résumé : The World Health Organization-Caregiver Skills Training Program, a parent-mediated early intervention facilitated by non-specialist providers piloted in urban India was evaluated using mixed-methods for feasibility and effects on child and caregiver outcomes. Caregivers (n=22) of children (2-9 years) with social-communication delays participated in a single-group pre-post study. High rates of caregiver attendance, improved caregiver fidelity, and facilitator competency suggested program feasibility. Caregivers voiced acceptability of various intervention-components. The intervention was associated with improved caregiver-reported skills and knowledge (p< 0.00), reduction in stress (p=0.03), improved child developmental outcomes on communication and social interaction (p< 0.00), and adaptive behaviors (p< 0.00). Challenges about logistics and availability of time were highlighted. Implications of results in resource-poor settings and recommendations for future feasibility trials are discussed. En ligne : https://doi.org/10.1007/s10803-021-05367-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

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