'If I don?t Do It, I?m Out of Rhythm and I Can?t Focus As Well': Positive and Negative Adult Interpretations of Therapies Aimed at 'Fixing' Their Restricted and Repetitive Behaviours in Childhood / Lynne MCCORMACK in Journal of Autism and Developmental Disorders, 53-9 (September 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-9 (September 2023) . - p.3435-3448 Titre : 'If I don?t Do It, I?m Out of Rhythm and I Can?t Focus As Well': Positive and Negative Adult Interpretations of Therapies Aimed at 'Fixing' Their Restricted and Repetitive Behaviours in Childhood Type de document : texte imprimé Auteurs : Lynne MCCORMACK, Auteur ; Sze Wing WONG, Auteur ; Linda E. CAMPBELL, Auteur Article en page(s) : p.3435-3448 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Restricted and repetitive behaviours (RRBs) are observed in many children presenting with characteristics of autism and are frequently the targets of psychological interventions. This study used Interpretative Phenomenological Analysis (IPA) to identify positive and negative interpretations from four young adults who received behavioural interventions in their childhood designed to 'fix' RRBs. Two superordinate themes were identified: (1) Doubt, stigma and being fixed according to others, and (2) Embracing Authenticity. They highlighted juxtaposed positions from exclusion, rejection, criticism, and self-doubt in childhood, to rejecting societal censure and embracing authentic growth in adult life. As adults, though the participants recognised themselves as neurologically different from others, they redefined themselves through a lens of neurodiversity, and therefore as not needing to be fixed. En ligne : https://doi.org/10.1007/s10803-022-05644-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511 [article] 'If I don?t Do It, I?m Out of Rhythm and I Can?t Focus As Well': Positive and Negative Adult Interpretations of Therapies Aimed at 'Fixing' Their Restricted and Repetitive Behaviours in Childhood [texte imprimé] / Lynne MCCORMACK, Auteur ; Sze Wing WONG, Auteur ; Linda E. CAMPBELL, Auteur . - p.3435-3448. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-9 (September 2023) . - p.3435-3448 Index. décimale : PER Périodiques Résumé : Restricted and repetitive behaviours (RRBs) are observed in many children presenting with characteristics of autism and are frequently the targets of psychological interventions. This study used Interpretative Phenomenological Analysis (IPA) to identify positive and negative interpretations from four young adults who received behavioural interventions in their childhood designed to 'fix' RRBs. Two superordinate themes were identified: (1) Doubt, stigma and being fixed according to others, and (2) Embracing Authenticity. They highlighted juxtaposed positions from exclusion, rejection, criticism, and self-doubt in childhood, to rejecting societal censure and embracing authentic growth in adult life. As adults, though the participants recognised themselves as neurologically different from others, they redefined themselves through a lens of neurodiversity, and therefore as not needing to be fixed. En ligne : https://doi.org/10.1007/s10803-022-05644-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511

The Importance of Understanding Individual Differences of Emotion Regulation Abilities in 22q11.2 Deletion Syndrome / Linda E. CAMPBELL in Journal of Autism and Developmental Disorders, 52-7 (July 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3076-3087 Titre : The Importance of Understanding Individual Differences of Emotion Regulation Abilities in 22q11.2 Deletion Syndrome Type de document : texte imprimé Auteurs : Linda E. CAMPBELL, Auteur ; L. SWAAB, Auteur ; E.E. FREEMAN, Auteur ; Lynne MCCORMACK, Auteur ; Tony J. SIMON, Auteur ; Kathleen ANGKUSTSIRI, Auteur ; Kathryn L. MCCABE, Auteur Article en page(s) : p.3076-3087 Langues : Anglais (eng) Mots-clés : Adolescent  Attention Deficit Disorder with Hyperactivity  Autism Spectrum Disorder  DiGeorge Syndrome/psychology  Emotional Regulation  Humans  Individuality  22q11DS  Attention-deficit/hyperactivity disorder  Emotion regulation  Externalizing disorder  Velo-cardio-facial syndrome Index. décimale : PER Périodiques Résumé : Chromosome 22q11.2 deletion syndrome (22q11DS) is characterised by a complex behavioural phenotype including anxiety, attention-deficit/hyperactivity disorder and psychosis. In the current study, we aimed at improving our understanding of the heterogeneity of behavioural characteristics in a group of 129 young people (aged 4-22) with a confirmed 22q11.2 microdeletion and 116 age and gender matched typically developing controls. Half the participants with 22q11DS had behaviour characterised by emotion dysregulation. A cluster analyses, of the participants with 22q11DS, revealed four groups characterised by intact emotion regulation; predominantly internalizing problems; both internalizing and externalizing problems; and predominantly externalizing difficulties. Importantly, it was found that young people with 22q11DS whose emotion dysregulation was characterised by externalizing problems had the poorest levels of functioning. As our understanding of 22q11DS improves, it is becoming increasingly clear that we need a better understanding of how individual differences and psychosocial factors contribute to, and interact with one another, to result in the observable individual differences in the 22q11DS behavioural phenotype. En ligne : http://dx.doi.org/10.1007/s10803-021-05172-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 [article] The Importance of Understanding Individual Differences of Emotion Regulation Abilities in 22q11.2 Deletion Syndrome [texte imprimé] / Linda E. CAMPBELL, Auteur ; L. SWAAB, Auteur ; E.E. FREEMAN, Auteur ; Lynne MCCORMACK, Auteur ; Tony J. SIMON, Auteur ; Kathleen ANGKUSTSIRI, Auteur ; Kathryn L. MCCABE, Auteur . - p.3076-3087. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3076-3087 Mots-clés : Adolescent  Attention Deficit Disorder with Hyperactivity  Autism Spectrum Disorder  DiGeorge Syndrome/psychology  Emotional Regulation  Humans  Individuality  22q11DS  Attention-deficit/hyperactivity disorder  Emotion regulation  Externalizing disorder  Velo-cardio-facial syndrome Index. décimale : PER Périodiques Résumé : Chromosome 22q11.2 deletion syndrome (22q11DS) is characterised by a complex behavioural phenotype including anxiety, attention-deficit/hyperactivity disorder and psychosis. In the current study, we aimed at improving our understanding of the heterogeneity of behavioural characteristics in a group of 129 young people (aged 4-22) with a confirmed 22q11.2 microdeletion and 116 age and gender matched typically developing controls. Half the participants with 22q11DS had behaviour characterised by emotion dysregulation. A cluster analyses, of the participants with 22q11DS, revealed four groups characterised by intact emotion regulation; predominantly internalizing problems; both internalizing and externalizing problems; and predominantly externalizing difficulties. Importantly, it was found that young people with 22q11DS whose emotion dysregulation was characterised by externalizing problems had the poorest levels of functioning. As our understanding of 22q11DS improves, it is becoming increasingly clear that we need a better understanding of how individual differences and psychosocial factors contribute to, and interact with one another, to result in the observable individual differences in the 22q11DS behavioural phenotype. En ligne : http://dx.doi.org/10.1007/s10803-021-05172-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477

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