A multi-constituent qualitative examination of facilitators and barriers to caregiver coaching for autistic children in publicly funded early intervention / Jordan ALBRIGHT in Autism, 29-1 (January 2025)  

Public ISBD [article]  inAutism > 29-1 (January 2025) . - p.130-142 Titre : A multi-constituent qualitative examination of facilitators and barriers to caregiver coaching for autistic children in publicly funded early intervention Type de document : texte imprimé Auteurs : Jordan ALBRIGHT, Auteur ; Jacqueline A. SHINALL, Auteur ; Liza TOMCZUK, Auteur ; Rebecca E. STEWART, Auteur ; David S. MANDELL, Auteur ; Aubyn C. STAHMER, Auteur ; Rinad S. BEIDAS, Auteur ; Melanie PELLECCHIA, Auteur Article en page(s) : p.130-142 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  interventions-psychosocial/behavioral  preschool children  qualitative research Index. décimale : PER Périodiques Résumé : Caregiver coaching is an evidence-based practice for autistic children that is poorly implemented in community-based early intervention. Previous studies have identified factors that influence implementation of caregiver coaching in early intervention; however, multi-informant (e.g., caregiver, provider, leadership) qualitative research is lacking. As such, the purpose of this study was to simultaneously examine the perspectives of caregivers and early intervention providers and agency leaders for triangulation of perceived barriers and facilitators to caregiver coaching in community-based early intervention. Interviews with 36 providers, 6 agency leaders, and 20 caregivers of autistic children were conducted. We used qualitative thematic analysis to identify barriers and facilitators, which we then mapped onto the Consolidated Framework for Implementation Research post hoc. Several themes emerged, including at the outer setting level (i.e., COVID-19 pandemic), inner setting level (i.e., caregiver views toward telehealth), individual characteristic level (i.e., caregiver attitudes toward coaching, caregivers concerns preventing progress, caregiver expectations regarding services, caregiver stress), and implementation process level (i.e., caregiver and provider collaboration, caregiver and provider relationship, caregivers coordinating services, caregiver involvement, provider flexibility). We offer suggestions for implementation strategies that will increase adoption of caregiver coaching in early intervention for autistic children and their families.Lay AbstractCaregiver coaching is an evidence-based practice for young autistic children, but it is not widely used in community-based early intervention services. Previous research has explored why caregiver coaching is not widespread in early intervention, but only from the perspective of early intervention providers. Caregivers, providers, and administrators are all involved in the decision of whether to use caregiver coaching in early intervention. Therefore, it is important to include all perspectives in research regarding this practice. In this study we interviewed 20 caregivers of autistic children, 36 early intervention providers, and 6 administrators from early intervention agencies and asked questions about their perspectives regarding the use of caregiver coaching in early intervention. We did this to figure out what factors help and hinder the use of caregiver coaching in this setting and to see how caregivers, providers, and administrators agreed or disagreed on these factors. All participants agreed that caregivers' attitudes and expectations can influence whether caregiver coaching is used. In addition, all participants agreed that when caregivers and providers collaborate and have a strong working relationship, it can facilitate the use of caregiver coaching in early intervention. Other factors, such as caregiver stress and provider flexibility were also discussed. Based on these findings, we suggest strategies that can be used to possibly increase the use of caregiver coaching in early intervention for autistic children and their families. En ligne : https://dx.doi.org/10.1177/13623613241272993 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544 [article] A multi-constituent qualitative examination of facilitators and barriers to caregiver coaching for autistic children in publicly funded early intervention [texte imprimé] / Jordan ALBRIGHT, Auteur ; Jacqueline A. SHINALL, Auteur ; Liza TOMCZUK, Auteur ; Rebecca E. STEWART, Auteur ; David S. MANDELL, Auteur ; Aubyn C. STAHMER, Auteur ; Rinad S. BEIDAS, Auteur ; Melanie PELLECCHIA, Auteur . - p.130-142. Langues : Anglais (eng) in Autism > 29-1 (January 2025) . - p.130-142 Mots-clés : autism spectrum disorders  interventions-psychosocial/behavioral  preschool children  qualitative research Index. décimale : PER Périodiques Résumé : Caregiver coaching is an evidence-based practice for autistic children that is poorly implemented in community-based early intervention. Previous studies have identified factors that influence implementation of caregiver coaching in early intervention; however, multi-informant (e.g., caregiver, provider, leadership) qualitative research is lacking. As such, the purpose of this study was to simultaneously examine the perspectives of caregivers and early intervention providers and agency leaders for triangulation of perceived barriers and facilitators to caregiver coaching in community-based early intervention. Interviews with 36 providers, 6 agency leaders, and 20 caregivers of autistic children were conducted. We used qualitative thematic analysis to identify barriers and facilitators, which we then mapped onto the Consolidated Framework for Implementation Research post hoc. Several themes emerged, including at the outer setting level (i.e., COVID-19 pandemic), inner setting level (i.e., caregiver views toward telehealth), individual characteristic level (i.e., caregiver attitudes toward coaching, caregivers concerns preventing progress, caregiver expectations regarding services, caregiver stress), and implementation process level (i.e., caregiver and provider collaboration, caregiver and provider relationship, caregivers coordinating services, caregiver involvement, provider flexibility). We offer suggestions for implementation strategies that will increase adoption of caregiver coaching in early intervention for autistic children and their families.Lay AbstractCaregiver coaching is an evidence-based practice for young autistic children, but it is not widely used in community-based early intervention services. Previous research has explored why caregiver coaching is not widespread in early intervention, but only from the perspective of early intervention providers. Caregivers, providers, and administrators are all involved in the decision of whether to use caregiver coaching in early intervention. Therefore, it is important to include all perspectives in research regarding this practice. In this study we interviewed 20 caregivers of autistic children, 36 early intervention providers, and 6 administrators from early intervention agencies and asked questions about their perspectives regarding the use of caregiver coaching in early intervention. We did this to figure out what factors help and hinder the use of caregiver coaching in this setting and to see how caregivers, providers, and administrators agreed or disagreed on these factors. All participants agreed that caregivers' attitudes and expectations can influence whether caregiver coaching is used. In addition, all participants agreed that when caregivers and providers collaborate and have a strong working relationship, it can facilitate the use of caregiver coaching in early intervention. Other factors, such as caregiver stress and provider flexibility were also discussed. Based on these findings, we suggest strategies that can be used to possibly increase the use of caregiver coaching in early intervention for autistic children and their families. En ligne : https://dx.doi.org/10.1177/13623613241272993 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544

Semantic mapping reveals distinct patterns in descriptions of social relations in adults with autism spectrum disorder / Sean X. LUO in Autism Research, 9-8 (August 2016)  

Public ISBD [article]  inAutism Research > 9-8 (August 2016) . - p.846-853 Titre : Semantic mapping reveals distinct patterns in descriptions of social relations in adults with autism spectrum disorder Type de document : texte imprimé Auteurs : Sean X. LUO, Auteur ; Jacqueline A. SHINALL, Auteur ; Bradley S. PETERSON, Auteur ; Andrew J. GERBER, Auteur Article en page(s) : p.846-853 Langues : Anglais (eng) Mots-clés : machine learning  semantic web  autism spectrum disorder  latent semantic indexing  classification  small-world network Index. décimale : PER Périodiques Résumé : Adults with autism spectrum disorder (ASD) may describe other individuals differently compared with typical adults. In this study, we first asked participants to describe closely related individuals such as parents and close friends with 10 positive and 10 negative characteristics. We then used standard natural language processing methods to digitize and visualize these descriptions. The complex patterns of these descriptive sentences exhibited a difference in semantic space between individuals with ASD and control participants. Machine learning algorithms were able to automatically detect and discriminate between these two groups. Furthermore, we showed that these descriptive sentences from adults with ASD exhibited fewer connections as defined by word–word co-occurrences in descriptions, and these connections in words formed a less “small-world” like network. Autism Res 2016, 9: 846–853. © 2015 En ligne : http://dx.doi.org/10.1002/aur.1581 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=293 [article] Semantic mapping reveals distinct patterns in descriptions of social relations in adults with autism spectrum disorder [texte imprimé] / Sean X. LUO, Auteur ; Jacqueline A. SHINALL, Auteur ; Bradley S. PETERSON, Auteur ; Andrew J. GERBER, Auteur . - p.846-853. Langues : Anglais (eng) in Autism Research > 9-8 (August 2016) . - p.846-853 Mots-clés : machine learning  semantic web  autism spectrum disorder  latent semantic indexing  classification  small-world network Index. décimale : PER Périodiques Résumé : Adults with autism spectrum disorder (ASD) may describe other individuals differently compared with typical adults. In this study, we first asked participants to describe closely related individuals such as parents and close friends with 10 positive and 10 negative characteristics. We then used standard natural language processing methods to digitize and visualize these descriptions. The complex patterns of these descriptive sentences exhibited a difference in semantic space between individuals with ASD and control participants. Machine learning algorithms were able to automatically detect and discriminate between these two groups. Furthermore, we showed that these descriptive sentences from adults with ASD exhibited fewer connections as defined by word–word co-occurrences in descriptions, and these connections in words formed a less “small-world” like network. Autism Res 2016, 9: 846–853. © 2015 En ligne : http://dx.doi.org/10.1002/aur.1581 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=293

The emotional support plan: Feasibility trials of a brief, telehealth-based mobile intervention to support coping for autistic adults / Vanessa H. BAL in Autism, 28-4 (April 2024)  

Public ISBD [article]  inAutism > 28-4 (April 2024) . - p.932-944 Titre : The emotional support plan: Feasibility trials of a brief, telehealth-based mobile intervention to support coping for autistic adults Type de document : texte imprimé Auteurs : Vanessa H. BAL, Auteur ; Annabelle M. MOURNET, Auteur ; Tori GLASCOCK, Auteur ; Jacqueline SHINALL, Auteur ; Gabrielle GUNIN, Auteur ; Nikita JADAV, Auteur ; Henry ZHANG, Auteur ; Emily BRENNAN, Auteur ; Emily ISTVAN, Auteur ; Evan M. KLEIMAN, Auteur Article en page(s) : p.932-944 Langues : Anglais (eng) Mots-clés : adults,autism spectrum disorders,interventions-psychosocial/behavioral Index. décimale : PER Périodiques Résumé : Difficulties regulating emotions during periods of distress may contribute to the high rates of co-occurring depression and anxiety in autistic adults. The emotional support plan (ESP) is a brief intervention designed to support autistic adults to use positive coping skills during periods of distress. Thirty-six autistic adults participated in studies to assess the acceptability of the ESP intervention to cope with stressors during the COVID-19 pandemic and postsecondary education and feasibility of the study design elements to inform future trials. Most participants reported using strategies from their ESP; 86%-89% reported the intervention had a positive impact on them and 67%-71% would recommend it to another person. Completion of weekly monitoring and outcome assessments were high; ecological momentary assessment was more variable. The current results provide preliminary support for the acceptability of the ESP intervention. Important insights were also gained to inform feasibility of the design to assess its potential efficacy in future studies. While further research is clearly needed, the brief nature of the ESP may provide benefit as a starting point for those who may be proactively seeking support to cope with anticipated stressors or those who would benefit from guidance to promote emotion regulation during stressful life events. Lay abstract Autistic adults may have difficulty coping during stressful periods, which could make them more vulnerable to depression and anxiety. We designed the emotional support plan (ESP) to help autistic people find ways to cope in stressful situations. Thirty-six autistic adults created an ESP and answered questions about their opinions of the ESP. Most autistic adults found the ESP to have a positive impact on them and many would recommend the ESP to another person. Feedback from autistic adults suggested ways that we might test the ESP in future studies. Overall, autistic adults in this study found the ESP to be useful and a worthwhile intervention to study more in the future. While more research is clearly needed, we hope that the brief nature of the ESP will make it helpful for autistic people who are trying to handle negative feelings during stressful life events. En ligne : https://dx.doi.org/10.1177/13623613231186035 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525 [article] The emotional support plan: Feasibility trials of a brief, telehealth-based mobile intervention to support coping for autistic adults [texte imprimé] / Vanessa H. BAL, Auteur ; Annabelle M. MOURNET, Auteur ; Tori GLASCOCK, Auteur ; Jacqueline SHINALL, Auteur ; Gabrielle GUNIN, Auteur ; Nikita JADAV, Auteur ; Henry ZHANG, Auteur ; Emily BRENNAN, Auteur ; Emily ISTVAN, Auteur ; Evan M. KLEIMAN, Auteur . - p.932-944. Langues : Anglais (eng) in Autism > 28-4 (April 2024) . - p.932-944 Mots-clés : adults,autism spectrum disorders,interventions-psychosocial/behavioral Index. décimale : PER Périodiques Résumé : Difficulties regulating emotions during periods of distress may contribute to the high rates of co-occurring depression and anxiety in autistic adults. The emotional support plan (ESP) is a brief intervention designed to support autistic adults to use positive coping skills during periods of distress. Thirty-six autistic adults participated in studies to assess the acceptability of the ESP intervention to cope with stressors during the COVID-19 pandemic and postsecondary education and feasibility of the study design elements to inform future trials. Most participants reported using strategies from their ESP; 86%-89% reported the intervention had a positive impact on them and 67%-71% would recommend it to another person. Completion of weekly monitoring and outcome assessments were high; ecological momentary assessment was more variable. The current results provide preliminary support for the acceptability of the ESP intervention. Important insights were also gained to inform feasibility of the design to assess its potential efficacy in future studies. While further research is clearly needed, the brief nature of the ESP may provide benefit as a starting point for those who may be proactively seeking support to cope with anticipated stressors or those who would benefit from guidance to promote emotion regulation during stressful life events. Lay abstract Autistic adults may have difficulty coping during stressful periods, which could make them more vulnerable to depression and anxiety. We designed the emotional support plan (ESP) to help autistic people find ways to cope in stressful situations. Thirty-six autistic adults created an ESP and answered questions about their opinions of the ESP. Most autistic adults found the ESP to have a positive impact on them and many would recommend the ESP to another person. Feedback from autistic adults suggested ways that we might test the ESP in future studies. Overall, autistic adults in this study found the ESP to be useful and a worthwhile intervention to study more in the future. While more research is clearly needed, we hope that the brief nature of the ESP will make it helpful for autistic people who are trying to handle negative feelings during stressful life events. En ligne : https://dx.doi.org/10.1177/13623613231186035 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525

The impact of measurement on clinical trials: Comparison of preliminary outcomes of a brief mobile intervention for autistic adults using multiple measurement approaches / Annabelle M. MOURNET in Autism Research, 17-2 (February 2024)  

Public ISBD [article]  inAutism Research > 17-2 (February 2024) . - p.432-442 Titre : The impact of measurement on clinical trials: Comparison of preliminary outcomes of a brief mobile intervention for autistic adults using multiple measurement approaches Type de document : texte imprimé Auteurs : Annabelle M. MOURNET, Auteur ; Gabrielle GUNIN, Auteur ; Jacqueline SHINALL, Auteur ; Emily BRENNAN, Auteur ; Nikita JADAV, Auteur ; Emily ISTVAN, Auteur ; Evan M. KLEIMAN, Auteur ; Vanessa H. BAL, Auteur Article en page(s) : p.432-442 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Initial studies of the emotional safety plan (ESP), a new, brief telehealth and mobile intervention to support autistic adults to cope with periods of distress, have reported feasibility and acceptability (Bal et al., 2023, Autism, 1-13). Herein we report the preliminary clinical outcomes of thirty-six autistic adults who developed a personalized ESP, with a specific interest in comparing "outcomes" demonstrated by different instruments and assessment frequencies in order to inform outcome measurement in future clinical trials. Comparison of pre-intervention baseline to post-monitoring outcome (pre-post) anxiety symptoms (Generalized Anxiety Disorder-7 [GAD-7]) and depressive symptoms (Patient Health Questionnaire-9 [PHQ-9]) revealed medium effect sizes for reduction in symptoms, though, low effect sizes were observed for pre-post Adult Self-report Anxiety and Depressive Problems scales and the Emotion Dysregulation Inventory Reactivity and Dysphoria scales. Weekly assessments showed an initial decrease in GAD-7 anxiety symptoms but no effect on weekly PHQ-9 depressive ratings. Ecological momentary assessment (EMA) data suggested that, when participants reported feeling sad or agitated and used the ESP, reduced negative feelings and increased positive states were reported in subsequent EMA. Perhaps not surprisingly, preliminary outcomes of these feasibility trials differed depending on measure chosen. Implications for the design of clinical trials are discussed. En ligne : https://doi.org/10.1002/aur.3095 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=522 [article] The impact of measurement on clinical trials: Comparison of preliminary outcomes of a brief mobile intervention for autistic adults using multiple measurement approaches [texte imprimé] / Annabelle M. MOURNET, Auteur ; Gabrielle GUNIN, Auteur ; Jacqueline SHINALL, Auteur ; Emily BRENNAN, Auteur ; Nikita JADAV, Auteur ; Emily ISTVAN, Auteur ; Evan M. KLEIMAN, Auteur ; Vanessa H. BAL, Auteur . - p.432-442. Langues : Anglais (eng) in Autism Research > 17-2 (February 2024) . - p.432-442 Index. décimale : PER Périodiques Résumé : Abstract Initial studies of the emotional safety plan (ESP), a new, brief telehealth and mobile intervention to support autistic adults to cope with periods of distress, have reported feasibility and acceptability (Bal et al., 2023, Autism, 1-13). Herein we report the preliminary clinical outcomes of thirty-six autistic adults who developed a personalized ESP, with a specific interest in comparing "outcomes" demonstrated by different instruments and assessment frequencies in order to inform outcome measurement in future clinical trials. Comparison of pre-intervention baseline to post-monitoring outcome (pre-post) anxiety symptoms (Generalized Anxiety Disorder-7 [GAD-7]) and depressive symptoms (Patient Health Questionnaire-9 [PHQ-9]) revealed medium effect sizes for reduction in symptoms, though, low effect sizes were observed for pre-post Adult Self-report Anxiety and Depressive Problems scales and the Emotion Dysregulation Inventory Reactivity and Dysphoria scales. Weekly assessments showed an initial decrease in GAD-7 anxiety symptoms but no effect on weekly PHQ-9 depressive ratings. Ecological momentary assessment (EMA) data suggested that, when participants reported feeling sad or agitated and used the ESP, reduced negative feelings and increased positive states were reported in subsequent EMA. Perhaps not surprisingly, preliminary outcomes of these feasibility trials differed depending on measure chosen. Implications for the design of clinical trials are discussed. En ligne : https://doi.org/10.1002/aur.3095 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=522

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