Participatory systems mapping: Can this approach improve how services work for autistic people? / Megan FREETH in Autism, 30-2 (February 2026)  

Public ISBD [article]  inAutism > 30-2 (February 2026) . - p.263-268 Titre : Participatory systems mapping: Can this approach improve how services work for autistic people? Type de document : texte imprimé Auteurs : Megan FREETH, Auteur ; Daniel POOLE, Auteur ; Victoria NEWELL, Auteur ; Kelly SCARGILL, Auteur Article en page(s) : p.263-268 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251399656 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=578 [article] Participatory systems mapping: Can this approach improve how services work for autistic people? [texte imprimé] / Megan FREETH, Auteur ; Daniel POOLE, Auteur ; Victoria NEWELL, Auteur ; Kelly SCARGILL, Auteur . - p.263-268. Langues : Anglais (eng) in Autism > 30-2 (February 2026) . - p.263-268 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251399656 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=578

A Pilot Evaluation of a Web-Based Intervention Aiming to Improve Employer Confidence in Hiring Autistic People / Marianne DAY in Autism, 30-11 (November 2026)  

Public ISBD [article]  inAutism > 30-11 (November 2026) . - p.2848-2862 Titre : A Pilot Evaluation of a Web-Based Intervention Aiming to Improve Employer Confidence in Hiring Autistic People Type de document : texte imprimé Auteurs : Marianne DAY, Auteur ; Chantelle WOOD, Auteur ; Elizabeth CORKER, Auteur ; Nick PEARSON, Auteur ; Kelly SCARGILL, Auteur ; Megan FREETH, Auteur Article en page(s) : p.2848-2862 Langues : Anglais (eng) Mots-clés : autism  employment  hiring  workplace adjustments  co-production  digital intervention Index. décimale : PER Périodiques Résumé : Autistic people are underrepresented in the workforce. Reasons for this include insufficient employer knowledge about autism and poor suitability of employment environments and practices. This pre-registered single-arm pre-post pilot trial aimed to assess the acceptability and usability of a set of co-developed web-based resources aimed at employers, the Autism Work Access Resource for Employers (AWARE) toolkit. We designed the resources to improve employer confidence and knowledge in relation to employing Autistic people and to give them a set of practical materials to enhance the inclusivity of their hiring processes. We asked 20 employers who were currently responsible for managing recruitment activities/processes in their organisations to engage with the AWARE toolkit for 1-hr over a 2-week period. Results indicated that employers found the toolkit to be highly acceptable, and rated usability as ‘excellent’. Preliminary indicators of efficacy showed that employers experienced less worry about hiring Autistic people and gained greater knowledge of workplace adjustments by using the toolkit. This study demonstrates the promise of quick-reference resources as part of the solution towards improving access to high-quality employment opportunities for Autistic people.Lay Abstract Autistic people are often underrepresented in employment. In the United Kingdom, only around 3 in 10 Autistic people are currently employed. Barriers to employment include a lack of knowledge among employers about autism, and a lack of understanding about workplace adjustments. Traditional hiring practices, such as job interviews, can also be less accessible for Autistic people. To address these barriers to employment for Autistic people, the researchers have developed a web-based intervention called the AWARE (Autism Work Access Resource for Employers) toolkit. These resources were designed to improve employer knowledge about autism and reasonable adjustments, and to provide resources which can be used in the workplace. The resources include information, links to resources and guidance, checklists and templates which can be downloaded, and videos of employers and Autistic employees talking about their employment experiences. This pilot trial recorded data from 20 employers who were responsible for hiring processes in their organisation. These employers interacted with the web resources and then provided feedback. This showed that it was practical to use the toolkit, that employers liked the resources and that employers reported higher knowledge and lower worry after using the resources. The study shows that providing quick, practical and easy-to-use resources could be an effective way of improving employment opportunities for Autistic people by improving employer knowledge and confidence to provide more inclusive working environments. En ligne : https://dx.doi.org/10.1177/13623613261480736 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595 [article] A Pilot Evaluation of a Web-Based Intervention Aiming to Improve Employer Confidence in Hiring Autistic People [texte imprimé] / Marianne DAY, Auteur ; Chantelle WOOD, Auteur ; Elizabeth CORKER, Auteur ; Nick PEARSON, Auteur ; Kelly SCARGILL, Auteur ; Megan FREETH, Auteur . - p.2848-2862. Langues : Anglais (eng) in Autism > 30-11 (November 2026) . - p.2848-2862 Mots-clés : autism  employment  hiring  workplace adjustments  co-production  digital intervention Index. décimale : PER Périodiques Résumé : Autistic people are underrepresented in the workforce. Reasons for this include insufficient employer knowledge about autism and poor suitability of employment environments and practices. This pre-registered single-arm pre-post pilot trial aimed to assess the acceptability and usability of a set of co-developed web-based resources aimed at employers, the Autism Work Access Resource for Employers (AWARE) toolkit. We designed the resources to improve employer confidence and knowledge in relation to employing Autistic people and to give them a set of practical materials to enhance the inclusivity of their hiring processes. We asked 20 employers who were currently responsible for managing recruitment activities/processes in their organisations to engage with the AWARE toolkit for 1-hr over a 2-week period. Results indicated that employers found the toolkit to be highly acceptable, and rated usability as ‘excellent’. Preliminary indicators of efficacy showed that employers experienced less worry about hiring Autistic people and gained greater knowledge of workplace adjustments by using the toolkit. This study demonstrates the promise of quick-reference resources as part of the solution towards improving access to high-quality employment opportunities for Autistic people.Lay Abstract Autistic people are often underrepresented in employment. In the United Kingdom, only around 3 in 10 Autistic people are currently employed. Barriers to employment include a lack of knowledge among employers about autism, and a lack of understanding about workplace adjustments. Traditional hiring practices, such as job interviews, can also be less accessible for Autistic people. To address these barriers to employment for Autistic people, the researchers have developed a web-based intervention called the AWARE (Autism Work Access Resource for Employers) toolkit. These resources were designed to improve employer knowledge about autism and reasonable adjustments, and to provide resources which can be used in the workplace. The resources include information, links to resources and guidance, checklists and templates which can be downloaded, and videos of employers and Autistic employees talking about their employment experiences. This pilot trial recorded data from 20 employers who were responsible for hiring processes in their organisation. These employers interacted with the web resources and then provided feedback. This showed that it was practical to use the toolkit, that employers liked the resources and that employers reported higher knowledge and lower worry after using the resources. The study shows that providing quick, practical and easy-to-use resources could be an effective way of improving employment opportunities for Autistic people by improving employer knowledge and confidence to provide more inclusive working environments. En ligne : https://dx.doi.org/10.1177/13623613261480736 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595

Understanding the post-diagnostic support priorities of autistic adults in the United Kingdom: A co-produced modified Delphi study / Susanna CROWSON in Autism, 28-4 (April 2024)  

Public ISBD [article]  inAutism > 28-4 (April 2024) . - p.854-865 Titre : Understanding the post-diagnostic support priorities of autistic adults in the United Kingdom: A co-produced modified Delphi study Type de document : texte imprimé Auteurs : Susanna CROWSON, Auteur ; Daniel POOLE, Auteur ; Kelly SCARGILL, Auteur ; Megan FREETH, Auteur Article en page(s) : p.854-865 Langues : Anglais (eng) Mots-clés : adults,co-design,health services,participatory,post-diagnostic Index. décimale : PER Périodiques Résumé : Post-diagnostic support for autistic adults in the United Kingdom is geographically inequitable and, in general, considered inadequate. This results in autistic adults facing unnecessary challenges and wide-ranging poor outcomes. A modified Delphi study sought to establish autistic adults' priorities for optimal provision of post-diagnostic support. The study was co-designed with 10 autistic adults across a series of three online workshops. Forty-three autistic adults, who had received their diagnosis in adulthood, completed a series of three online questionnaires through which 153 support priorities were identified. In a fourth questionnaire round, completed by 139 autistic adults, 24 priorities reached or exceeded a consensus threshold of 80% agreement that the item specified an important element of post-diagnostic support. Participants ranked access to support where they live, training of professionals, support to process the impact of a late diagnosis, use of their preferred mode of contact and an individualised support plan as their key priorities for post-diagnostic support. The whole priority list provides a clear and practical articulation of what autistic adults want from post-diagnostic support. This should be used by policymakers and service providers in the United Kingdom to ensure that post-diagnostic support for autistic adults is fit for purpose. Lay abstract Autistic adults in the United Kingdom report that support for themselves and their peers is not suitable for their needs. There has been an increase in adults receiving an autism diagnosis, which many have reported as having a positive impact on their lives. However, the lack of support and understanding after diagnosis, combined with long wait times for an assessment to obtain a diagnosis and to access follow-on support, is having a negative impact on people?s lives. This study took place to find out what support autistic people need and want after receiving their diagnosis. It was co-designed with a group of 10 autistic adults which means that the researchers and group members collaboratively designed the research. For the study, 43 autistic adults, diagnosed aged 18 or older, completed three questionnaires. A fourth questionnaire followed that was completed by 139 autistic people who received their diagnosis in adulthood. These questionnaires aimed to help people identify their own priorities when it came to the support they would have liked to receive after being given their autism diagnosis. Participants ranked access to support where they live, training of professionals, support to process the impact of a late diagnosis, use of their preferred mode of contact and a personalised support plan as their top priorities. This demonstrates that local support is highly valued by autistic adults, as are well-trained professionals who offer a range of contact options, support to process a late-in-life autism diagnosis and help to develop and implement support plans. En ligne : https://dx.doi.org/10.1177/13623613231196805 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525 [article] Understanding the post-diagnostic support priorities of autistic adults in the United Kingdom: A co-produced modified Delphi study [texte imprimé] / Susanna CROWSON, Auteur ; Daniel POOLE, Auteur ; Kelly SCARGILL, Auteur ; Megan FREETH, Auteur . - p.854-865. Langues : Anglais (eng) in Autism > 28-4 (April 2024) . - p.854-865 Mots-clés : adults,co-design,health services,participatory,post-diagnostic Index. décimale : PER Périodiques Résumé : Post-diagnostic support for autistic adults in the United Kingdom is geographically inequitable and, in general, considered inadequate. This results in autistic adults facing unnecessary challenges and wide-ranging poor outcomes. A modified Delphi study sought to establish autistic adults' priorities for optimal provision of post-diagnostic support. The study was co-designed with 10 autistic adults across a series of three online workshops. Forty-three autistic adults, who had received their diagnosis in adulthood, completed a series of three online questionnaires through which 153 support priorities were identified. In a fourth questionnaire round, completed by 139 autistic adults, 24 priorities reached or exceeded a consensus threshold of 80% agreement that the item specified an important element of post-diagnostic support. Participants ranked access to support where they live, training of professionals, support to process the impact of a late diagnosis, use of their preferred mode of contact and an individualised support plan as their key priorities for post-diagnostic support. The whole priority list provides a clear and practical articulation of what autistic adults want from post-diagnostic support. This should be used by policymakers and service providers in the United Kingdom to ensure that post-diagnostic support for autistic adults is fit for purpose. Lay abstract Autistic adults in the United Kingdom report that support for themselves and their peers is not suitable for their needs. There has been an increase in adults receiving an autism diagnosis, which many have reported as having a positive impact on their lives. However, the lack of support and understanding after diagnosis, combined with long wait times for an assessment to obtain a diagnosis and to access follow-on support, is having a negative impact on people?s lives. This study took place to find out what support autistic people need and want after receiving their diagnosis. It was co-designed with a group of 10 autistic adults which means that the researchers and group members collaboratively designed the research. For the study, 43 autistic adults, diagnosed aged 18 or older, completed three questionnaires. A fourth questionnaire followed that was completed by 139 autistic people who received their diagnosis in adulthood. These questionnaires aimed to help people identify their own priorities when it came to the support they would have liked to receive after being given their autism diagnosis. Participants ranked access to support where they live, training of professionals, support to process the impact of a late diagnosis, use of their preferred mode of contact and a personalised support plan as their top priorities. This demonstrates that local support is highly valued by autistic adults, as are well-trained professionals who offer a range of contact options, support to process a late-in-life autism diagnosis and help to develop and implement support plans. En ligne : https://dx.doi.org/10.1177/13623613231196805 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525

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