Considerations of the built environment for autistic individuals: A review of the literature / Melissa H. BLACK in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1904-1915 Titre : Considerations of the built environment for autistic individuals: A review of the literature Type de document : texte imprimé Auteurs : Melissa H. BLACK, Auteur ; Sarah MCGARRY, Auteur ; Lynn CHURCHILL, Auteur ; Emily D'ARCY, Auteur ; Julia DALGLEISH, Auteur ; Isabelle NASH, Auteur ; Alisala JONES, Auteur ; Tin Yan TSE, Auteur ; Jane GIBSON, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.1904-1915 Langues : Anglais (eng) Mots-clés : Humans  Autistic Disorder  Autism Spectrum Disorder  Built Environment  Noise  architecture  design  interior  sensory  space Index. décimale : PER Périodiques Résumé : Factors related to the interiors of buildings, including the layout of rooms, colours, smells, noises, temperature, ventilation, colour and clutter, among other things, can change the way we interact with our environment and the people around us. Autistic individuals can have differences in processing sensory information and may find aspects of the built environment (BE) over-whelming and difficult to navigate. We reviewed the existing literature exploring the BE and autism. This study found that it is possible to make changes to the BE to create more inclusive and friendly environments for everyone, including autistic individuals. Findings from this study provide clear recommendations that can be used by interior designers, architects, builders, and clinical practitioners to make a positive difference. Key recommendations include using simple spatial layouts, compartmentalising and zoning spaces into specific activity sections and providing retreat spaces. The thoughtful placement of windows and blinds and the installation of dimmable lights, for example, will allow users to manage or reduce sensory over-stimulation caused by lights. Similarly, we recommend creating soundproofing and sound absorbent materials to reduce background noise and sound levels. We also recommend using neutral or simple colour palettes and restrained use of patterns. Finally, and most importantly, the BE needs to be flexible and adaptable to meet the unique needs of each person. This study provides a starting point for design guidelines and recommendations towards making a difference to the everyday experiences of the interiors of buildings. En ligne : http://dx.doi.org/10.1177/13623613221102753 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Considerations of the built environment for autistic individuals: A review of the literature [texte imprimé] / Melissa H. BLACK, Auteur ; Sarah MCGARRY, Auteur ; Lynn CHURCHILL, Auteur ; Emily D'ARCY, Auteur ; Julia DALGLEISH, Auteur ; Isabelle NASH, Auteur ; Alisala JONES, Auteur ; Tin Yan TSE, Auteur ; Jane GIBSON, Auteur ; Sven BÖLTE, Auteur . - p.1904-1915. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1904-1915 Mots-clés : Humans  Autistic Disorder  Autism Spectrum Disorder  Built Environment  Noise  architecture  design  interior  sensory  space Index. décimale : PER Périodiques Résumé : Factors related to the interiors of buildings, including the layout of rooms, colours, smells, noises, temperature, ventilation, colour and clutter, among other things, can change the way we interact with our environment and the people around us. Autistic individuals can have differences in processing sensory information and may find aspects of the built environment (BE) over-whelming and difficult to navigate. We reviewed the existing literature exploring the BE and autism. This study found that it is possible to make changes to the BE to create more inclusive and friendly environments for everyone, including autistic individuals. Findings from this study provide clear recommendations that can be used by interior designers, architects, builders, and clinical practitioners to make a positive difference. Key recommendations include using simple spatial layouts, compartmentalising and zoning spaces into specific activity sections and providing retreat spaces. The thoughtful placement of windows and blinds and the installation of dimmable lights, for example, will allow users to manage or reduce sensory over-stimulation caused by lights. Similarly, we recommend creating soundproofing and sound absorbent materials to reduce background noise and sound levels. We also recommend using neutral or simple colour palettes and restrained use of patterns. Finally, and most importantly, the BE needs to be flexible and adaptable to meet the unique needs of each person. This study provides a starting point for design guidelines and recommendations towards making a difference to the everyday experiences of the interiors of buildings. En ligne : http://dx.doi.org/10.1177/13623613221102753 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Content validation of common measures of functioning for young children against the International Classification of Functioning, Disability and Health and Code and Core Sets relevant to neurodevelopmental conditions / Emily D'ARCY in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.928-939 Titre : Content validation of common measures of functioning for young children against the International Classification of Functioning, Disability and Health and Code and Core Sets relevant to neurodevelopmental conditions Type de document : texte imprimé Auteurs : Emily D'ARCY, Auteur ; Kerry WALLACE, Auteur ; Angela CHAMBERLAIN, Auteur ; Kiah EVANS, Auteur ; Benjamin MILBOURN, Auteur ; Sven BÖLTE, Auteur ; Andrew J.O. WHITEHOUSE, Auteur ; Sonya GIRDLER, Auteur Article en page(s) : p.928-939 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Child  Child, Preschool  Disabled Persons  Family  Humans  International Classification of Functioning, Disability and Health  Neurodevelopmental Disorders/diagnosis  adaptive behavior  attention-deficit/hyperactivity disorder  autism spectrum disorders  behavioral measurement  cerebral palsy  content validity  developmental delay  functioning Index. décimale : PER Périodiques Résumé : Young children who have developmental delay, autism, or other neurodevelopmental conditions can have difficulties doing things in different areas of their life. What they can and cannot do is called their level of functioning. There are lots of assessment measures that aim to assess functioning. But, we are not sure if these measures assess all the things we need to know about these children's functioning. Other research has identified lists of items (codes) that need to be assessed to understand functioning for young children with different neurodevelopmental conditions fully. These lists include body functions (the things a child's body or brain can do), activities and participation (the activities and tasks a child does) and environmental factors (parts of the environment that can influence functioning). In this study, we looked at the items from these lists assessed by different functioning measures to see how they compared to what should be assessed. The measures that we looked at covered 21%-57% of all the codes and 19%-63% of the codes for lists specific to different conditions. Most of the measures focused on activity and participation codes, and they rarely assessed environmental factors. Knowing which codes and how much of the lists the measures assess can help researchers, clinicians and policymakers to choose measures that are more appropriate for young children with neurodevelopmental conditions. En ligne : https://dx.doi.org/10.1177/13623613211036809 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Content validation of common measures of functioning for young children against the International Classification of Functioning, Disability and Health and Code and Core Sets relevant to neurodevelopmental conditions [texte imprimé] / Emily D'ARCY, Auteur ; Kerry WALLACE, Auteur ; Angela CHAMBERLAIN, Auteur ; Kiah EVANS, Auteur ; Benjamin MILBOURN, Auteur ; Sven BÖLTE, Auteur ; Andrew J.O. WHITEHOUSE, Auteur ; Sonya GIRDLER, Auteur . - p.928-939. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.928-939 Mots-clés : Autism Spectrum Disorder  Child  Child, Preschool  Disabled Persons  Family  Humans  International Classification of Functioning, Disability and Health  Neurodevelopmental Disorders/diagnosis  adaptive behavior  attention-deficit/hyperactivity disorder  autism spectrum disorders  behavioral measurement  cerebral palsy  content validity  developmental delay  functioning Index. décimale : PER Périodiques Résumé : Young children who have developmental delay, autism, or other neurodevelopmental conditions can have difficulties doing things in different areas of their life. What they can and cannot do is called their level of functioning. There are lots of assessment measures that aim to assess functioning. But, we are not sure if these measures assess all the things we need to know about these children's functioning. Other research has identified lists of items (codes) that need to be assessed to understand functioning for young children with different neurodevelopmental conditions fully. These lists include body functions (the things a child's body or brain can do), activities and participation (the activities and tasks a child does) and environmental factors (parts of the environment that can influence functioning). In this study, we looked at the items from these lists assessed by different functioning measures to see how they compared to what should be assessed. The measures that we looked at covered 21%-57% of all the codes and 19%-63% of the codes for lists specific to different conditions. Most of the measures focused on activity and participation codes, and they rarely assessed environmental factors. Knowing which codes and how much of the lists the measures assess can help researchers, clinicians and policymakers to choose measures that are more appropriate for young children with neurodevelopmental conditions. En ligne : https://dx.doi.org/10.1177/13623613211036809 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Get it right, make it easy, see it all: Viewpoints of autistic individuals and parents of autistic individuals about the autism diagnostic process in Australia / Emily D'ARCY in Research in Autism Spectrum Disorders, 85 (July 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 85 (July 2021) . - 101792 Titre : Get it right, make it easy, see it all: Viewpoints of autistic individuals and parents of autistic individuals about the autism diagnostic process in Australia Type de document : texte imprimé Auteurs : Emily D'ARCY, Auteur ; Sonya GIRDLER, Auteur ; Marita FALKMER, Auteur ; Torbjörn FALKMER, Auteur ; Andrew J.O. WHITEHOUSE, Auteur ; John WRAY, Auteur ; Valsamma EAPEN, Auteur ; Kiah EVANS, Auteur Article en page(s) : 101792 Langues : Anglais (eng) Mots-clés : ASD  Diagnosis  Consumer perspective  Assessment Index. décimale : PER Périodiques Résumé : Background The clinical process for being evaluated for an autism diagnosis is often time consuming and stressful for individuals and their caregivers. While experience of and satisfaction with the diagnostic process has been reviewed in the literature, few studies have directly investigated the viewpoints of individuals diagnosed with autism and caregivers of autistic individuals about what is important in the autism diagnostic process. Method A Q methodological design was employed to capture the subjective viewpoints about the diagnostic process of individuals on the autism spectrum and caregivers of autistic individuals. Thirty-eight participants responded to a set of 66 statements representing different aspects of the autism diagnostic process. Results The analysis identified three significant viewpoints: Get it Right, Make it Easy, and See it All. Participants reflected upon the importance of a comprehensive diagnostic assessment process, ease of diagnostic processes, and a holistic approach to autism diagnosis for autistic individuals and caregivers of autistic individuals. Conclusions The findings provide a consumer perspective that encourages reform of the current process for diagnosing autism in Australia, and an insight into what consumers are wanting from diagnostic services. This information is useful for policy-makers and service providers to create a more supportive and client-centred diagnostic process at all levels of service delivery. En ligne : https://doi.org/10.1016/j.rasd.2021.101792 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Get it right, make it easy, see it all: Viewpoints of autistic individuals and parents of autistic individuals about the autism diagnostic process in Australia [texte imprimé] / Emily D'ARCY, Auteur ; Sonya GIRDLER, Auteur ; Marita FALKMER, Auteur ; Torbjörn FALKMER, Auteur ; Andrew J.O. WHITEHOUSE, Auteur ; John WRAY, Auteur ; Valsamma EAPEN, Auteur ; Kiah EVANS, Auteur . - 101792. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 85 (July 2021) . - 101792 Mots-clés : ASD  Diagnosis  Consumer perspective  Assessment Index. décimale : PER Périodiques Résumé : Background The clinical process for being evaluated for an autism diagnosis is often time consuming and stressful for individuals and their caregivers. While experience of and satisfaction with the diagnostic process has been reviewed in the literature, few studies have directly investigated the viewpoints of individuals diagnosed with autism and caregivers of autistic individuals about what is important in the autism diagnostic process. Method A Q methodological design was employed to capture the subjective viewpoints about the diagnostic process of individuals on the autism spectrum and caregivers of autistic individuals. Thirty-eight participants responded to a set of 66 statements representing different aspects of the autism diagnostic process. Results The analysis identified three significant viewpoints: Get it Right, Make it Easy, and See it All. Participants reflected upon the importance of a comprehensive diagnostic assessment process, ease of diagnostic processes, and a holistic approach to autism diagnosis for autistic individuals and caregivers of autistic individuals. Conclusions The findings provide a consumer perspective that encourages reform of the current process for diagnosing autism in Australia, and an insight into what consumers are wanting from diagnostic services. This information is useful for policy-makers and service providers to create a more supportive and client-centred diagnostic process at all levels of service delivery. En ligne : https://doi.org/10.1016/j.rasd.2021.101792 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

"He Sees his Autism as a Strength, Not a Deficit Now": A Repeated Cross-Sectional Study Investigating the Impact of Strengths-Based Programs on Autistic Adolescents / Elinda Ai Lim LEE in Journal of Autism and Developmental Disorders, 54-5 (May 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-5 (May 2024) . - p.1656-1671 Titre : "He Sees his Autism as a Strength, Not a Deficit Now": A Repeated Cross-Sectional Study Investigating the Impact of Strengths-Based Programs on Autistic Adolescents Type de document : texte imprimé Auteurs : Elinda Ai Lim LEE, Auteur ; Melissa SCOTT, Auteur ; Melissa H. BLACK, Auteur ; Emily D'ARCY, Auteur ; Tele TAN, Auteur ; Louise SHEEHY, Auteur ; Sven BÖLTE, Auteur ; Sonya GIRDLER, Auteur Article en page(s) : p.1656-1671 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Recent studies have reported that strengths-based programs, leveraging autistic adolescents' abilities and interests, could improve their skills and facilitate social engagement. However, little is known about the long-term impact of strengths-based approaches. This study aimed to explore the long-term outcomes of community strengths-based programs designed to support autistic adolescents in developing interests and skills in Science, Technology, Engineering, Arts, and Mathematics (STEAM) and the factors influencing their participation in these programs. A repeated cross-sectional survey study over three years recruited 52 parents in 2018, 52 parents in 2019, and 38 parents in 2020. Results highlighted the positive impact of these programs on autistic adolescents' health and well-being, social relationships and interactions, self-confidence and self-esteem, sense of belonging, and activities and participation. Five key elements influencing participation included the enthusiasm of the participants, their self-perception, the approach of the programs, the learning environment, and the attitudes of the mentors. This study implies that strengths-based approaches to intervention and support for autistic adolescents in a supported environment are a social model solution that could potentially have positive participant outcomes. Findings from this study could provide a framework underpinning future strengths-based interventions. En ligne : https://doi.org/10.1007/s10803-022-05881-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] "He Sees his Autism as a Strength, Not a Deficit Now": A Repeated Cross-Sectional Study Investigating the Impact of Strengths-Based Programs on Autistic Adolescents [texte imprimé] / Elinda Ai Lim LEE, Auteur ; Melissa SCOTT, Auteur ; Melissa H. BLACK, Auteur ; Emily D'ARCY, Auteur ; Tele TAN, Auteur ; Louise SHEEHY, Auteur ; Sven BÖLTE, Auteur ; Sonya GIRDLER, Auteur . - p.1656-1671. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-5 (May 2024) . - p.1656-1671 Index. décimale : PER Périodiques Résumé : Recent studies have reported that strengths-based programs, leveraging autistic adolescents' abilities and interests, could improve their skills and facilitate social engagement. However, little is known about the long-term impact of strengths-based approaches. This study aimed to explore the long-term outcomes of community strengths-based programs designed to support autistic adolescents in developing interests and skills in Science, Technology, Engineering, Arts, and Mathematics (STEAM) and the factors influencing their participation in these programs. A repeated cross-sectional survey study over three years recruited 52 parents in 2018, 52 parents in 2019, and 38 parents in 2020. Results highlighted the positive impact of these programs on autistic adolescents' health and well-being, social relationships and interactions, self-confidence and self-esteem, sense of belonging, and activities and participation. Five key elements influencing participation included the enthusiasm of the participants, their self-perception, the approach of the programs, the learning environment, and the attitudes of the mentors. This study implies that strengths-based approaches to intervention and support for autistic adolescents in a supported environment are a social model solution that could potentially have positive participant outcomes. Findings from this study could provide a framework underpinning future strengths-based interventions. En ligne : https://doi.org/10.1007/s10803-022-05881-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

Reliability, Validity and Acceptability of the PEDI-CAT with ASD Scales for Australian Children and Youth on the Autism Spectrum / Emily D'ARCY ; Andrew J.O. WHITEHOUSE ; Kerry WALLACE ; Maya HAYDEN-EVANS ; Sonya GIRDLER ; Benjamin MILBOURN ; Sven BÖLTE ; Kiah EVANS in Journal of Autism and Developmental Disorders, 55-7 (July 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-7 (July 2025) . - p.2422-2435 Titre : Reliability, Validity and Acceptability of the PEDI-CAT with ASD Scales for Australian Children and Youth on the Autism Spectrum Type de document : texte imprimé Auteurs : Emily D'ARCY, Auteur ; Andrew J.O. WHITEHOUSE, Auteur ; Kerry WALLACE, Auteur ; Maya HAYDEN-EVANS, Auteur ; Sonya GIRDLER, Auteur ; Benjamin MILBOURN, Auteur ; Sven BÖLTE, Auteur ; Kiah EVANS, Auteur Article en page(s) : p.2422-2435 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The PEDI-CAT (ASD) is used to assess functioning of children and youth on the autism spectrum; however, current psychometric evidence is limited. This study aimed to explore the reliability, validity and acceptability of the PEDI-CAT (ASD) using a large Australian sample. En ligne : https://doi.org/10.1007/s10803-024-06366-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Reliability, Validity and Acceptability of the PEDI-CAT with ASD Scales for Australian Children and Youth on the Autism Spectrum [texte imprimé] / Emily D'ARCY, Auteur ; Andrew J.O. WHITEHOUSE, Auteur ; Kerry WALLACE, Auteur ; Maya HAYDEN-EVANS, Auteur ; Sonya GIRDLER, Auteur ; Benjamin MILBOURN, Auteur ; Sven BÖLTE, Auteur ; Kiah EVANS, Auteur . - p.2422-2435. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-7 (July 2025) . - p.2422-2435 Index. décimale : PER Périodiques Résumé : The PEDI-CAT (ASD) is used to assess functioning of children and youth on the autism spectrum; however, current psychometric evidence is limited. This study aimed to explore the reliability, validity and acceptability of the PEDI-CAT (ASD) using a large Australian sample. En ligne : https://doi.org/10.1007/s10803-024-06366-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

The Gestalt of functioning in autism revisited: First revision of the International Classification of Functioning, Disability and Health Core Sets / Lovisa ALEHAGEN ; Melissa H. BLACK ; John HASSLINGER ; Elina WESSMAN ; Karl LUNDIN REMNÉLIUS ; Peter B. MARSCHIK ; Emily D'ARCY ; Susanna CROWSON ; Megan FREETH ; Andreas SEIDEL ; Sonya GIRDLER ; Eric ZANDER in Autism, 28-9 (September 2024)  

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The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children / Emily D'ARCY in Journal of Autism and Developmental Disorders, 54-5 (May 2024)  

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Validating the International Classification of Functioning, Disability and Health Core Sets for Autism in a Sample of Australian School-Aged Children on the Spectrum / Maya HAYDEN-EVANS in Journal of Autism and Developmental Disorders, 55-4 (April 2024)  

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