Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers / Sharmila VAZ in Research in Autism Spectrum Disorders, 84 (June 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 84 (June 2021) . - 101765 Titre : Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Sharmila VAZ, Auteur ; Allyson THOMSON, Auteur ; Belinda CUOMO, Auteur ; Torbjörn FALKMER, Auteur ; Angela CHAMBERLAIN, Auteur ; Melissa H. BLACK, Auteur Article en page(s) : 101765 Langues : Anglais (eng) Mots-clés : Autism  Child  Disability  Family  Routine  Intellectual disability Index. décimale : PER Périodiques Résumé : Background Having a child on the autism spectrum (AS) is known to impact caregiver quality of life (QoL), time use, and stress. A co-occurring diagnosis of intellectual disability (ID) is common among children on the autism spectrum, with ID itself impacting caregiver outcomes. Method This study sought to understand how co-occurring ID in children on the autism spectrum may influence caregiver-related outcomes. Secondary analysis of survey data from caregivers of 278 children on the autism spectrum with (n?=?62) and without (n?=?216) co-occurring ID was conducted, exploring impacts on caregiver QoL, stress, coping, and time-use. Results Univariate analysis showed that caregivers of children on the autism spectrum with co-occurring ID reported greater levels of stress due to core symptoms and co-occurring physical conditions, and had different time use patterns then caregivers of children on the autism spectrum without co-occurring ID. Multivariate analysis, however, showed that caregivers of children on the autism spectrum with and without co-occurring ID differed only in the time they spent preparing meals, socialising with friends and accessing in-home respite care. Conclusions The presence of co-occurring ID in children on the autism spectrum had limited impacts on caregiver-related outcomes. Families of children across the entire AS require adequate supports. En ligne : https://doi.org/10.1016/j.rasd.2021.101765 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446 [article] Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers [Texte imprimé et/ou numérique] / Sharmila VAZ, Auteur ; Allyson THOMSON, Auteur ; Belinda CUOMO, Auteur ; Torbjörn FALKMER, Auteur ; Angela CHAMBERLAIN, Auteur ; Melissa H. BLACK, Auteur . - 101765. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 84 (June 2021) . - 101765 Mots-clés : Autism  Child  Disability  Family  Routine  Intellectual disability Index. décimale : PER Périodiques Résumé : Background Having a child on the autism spectrum (AS) is known to impact caregiver quality of life (QoL), time use, and stress. A co-occurring diagnosis of intellectual disability (ID) is common among children on the autism spectrum, with ID itself impacting caregiver outcomes. Method This study sought to understand how co-occurring ID in children on the autism spectrum may influence caregiver-related outcomes. Secondary analysis of survey data from caregivers of 278 children on the autism spectrum with (n?=?62) and without (n?=?216) co-occurring ID was conducted, exploring impacts on caregiver QoL, stress, coping, and time-use. Results Univariate analysis showed that caregivers of children on the autism spectrum with co-occurring ID reported greater levels of stress due to core symptoms and co-occurring physical conditions, and had different time use patterns then caregivers of children on the autism spectrum without co-occurring ID. Multivariate analysis, however, showed that caregivers of children on the autism spectrum with and without co-occurring ID differed only in the time they spent preparing meals, socialising with friends and accessing in-home respite care. Conclusions The presence of co-occurring ID in children on the autism spectrum had limited impacts on caregiver-related outcomes. Families of children across the entire AS require adequate supports. En ligne : https://doi.org/10.1016/j.rasd.2021.101765 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446

Cross-Cultural Adaptation to Australia of the KONTAKT© Social Skills Group Training Program for Youth with Autism Spectrum Disorder: A Feasibility Study / Bahareh AFSHARNEJAD in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4297-4316 Titre : Cross-Cultural Adaptation to Australia of the KONTAKT© Social Skills Group Training Program for Youth with Autism Spectrum Disorder: A Feasibility Study Type de document : Texte imprimé et/ou numérique Auteurs : Bahareh AFSHARNEJAD, Auteur ; Marita FALKMER, Auteur ; Melissa H. BLACK, Auteur ; Tasha ALACH, Auteur ; Fabian LENHARD, Auteur ; Anna FRIDELL, Auteur ; Christina COCO, Auteur ; Kelly MILNE, Auteur ; Nigel T. M. CHEN, Auteur ; Sven BÖLTE, Auteur ; Sonya GIRDLER, Auteur Article en page(s) : p.4297-4316 Langues : Anglais (eng) Mots-clés : Adolescents  Autism spectrum disorder  Cross-cultural adaptation  Feasibility  Kontakt©  Social skills group training  Social skills intervention Index. décimale : PER Périodiques Résumé : This study investigated the feasibility and cultural validity of KONTAKT©, a manualised social skills group training, in improving the social functioning of adolescents with autism spectrum disorder (ASD). KONTAKT© was delivered to 17 adolescents (m(age)?=?14.09, SD(age)?=?1.43; 70% male) with ASD over sixteen 90 min sessions. A pre-test post-test design evaluated changes in personally meaningful social goals, symptom severity, quality of life, interpersonal efficacy, social anxiety, loneliness, and facial emotion recognition at pre, post and 3 months follow-up. Focus groups were conducted post intervention. Findings indicate that KONTAKT© may support Australian adolescents with ASD in achieving their personally meaningful social goals. This study resulted in finalisation of KONTAKT© in preparation for evaluation of its efficacy in a randomised controlled trial (Australian New Zealand Clinical Registry (ANZCTR): ACTRN12617001117303, ClinicalTrials.gov: NCT03294668). En ligne : http://dx.doi.org/10.1007/s10803-020-04477-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 [article] Cross-Cultural Adaptation to Australia of the KONTAKT© Social Skills Group Training Program for Youth with Autism Spectrum Disorder: A Feasibility Study [Texte imprimé et/ou numérique] / Bahareh AFSHARNEJAD, Auteur ; Marita FALKMER, Auteur ; Melissa H. BLACK, Auteur ; Tasha ALACH, Auteur ; Fabian LENHARD, Auteur ; Anna FRIDELL, Auteur ; Christina COCO, Auteur ; Kelly MILNE, Auteur ; Nigel T. M. CHEN, Auteur ; Sven BÖLTE, Auteur ; Sonya GIRDLER, Auteur . - p.4297-4316. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4297-4316 Mots-clés : Adolescents  Autism spectrum disorder  Cross-cultural adaptation  Feasibility  Kontakt©  Social skills group training  Social skills intervention Index. décimale : PER Périodiques Résumé : This study investigated the feasibility and cultural validity of KONTAKT©, a manualised social skills group training, in improving the social functioning of adolescents with autism spectrum disorder (ASD). KONTAKT© was delivered to 17 adolescents (m(age)?=?14.09, SD(age)?=?1.43; 70% male) with ASD over sixteen 90 min sessions. A pre-test post-test design evaluated changes in personally meaningful social goals, symptom severity, quality of life, interpersonal efficacy, social anxiety, loneliness, and facial emotion recognition at pre, post and 3 months follow-up. Focus groups were conducted post intervention. Findings indicate that KONTAKT© may support Australian adolescents with ASD in achieving their personally meaningful social goals. This study resulted in finalisation of KONTAKT© in preparation for evaluation of its efficacy in a randomised controlled trial (Australian New Zealand Clinical Registry (ANZCTR): ACTRN12617001117303, ClinicalTrials.gov: NCT03294668). En ligne : http://dx.doi.org/10.1007/s10803-020-04477-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434

Disembedding performance and eye gaze behavior of adolescents with Autism Spectrum Disorder / Melissa H. BLACK in Research in Autism Spectrum Disorders, 66 (October 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 66 (October 2019) . - p.101417 Titre : Disembedding performance and eye gaze behavior of adolescents with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Melissa H. BLACK, Auteur ; Sharmila VAZ, Auteur ; Richard PARSONS, Auteur ; Torbjörn FALKMER, Auteur ; Julia S. Y. TANG, Auteur ; Susan MORRIS, Auteur ; Hoe LEE, Auteur ; Marita FALKMER, Auteur Article en page(s) : p.101417 Langues : Anglais (eng) Mots-clés : Eye tracking  Local bias  Weak central coherence  Enhanced perceptual functioning Index. décimale : PER Périodiques Résumé : Background Atypical visual perception in individuals with Autism Spectrum Disorders (ASD) may contribute to superiority in disembedding tasks. Gaze behavior has provided some insights in to mechanisms underlying this purported superiority in children, however evidence is limited and requires additional investigation. Method The performance and gaze behavior of 27 adolescents with ASD and 27 matched typically developing (TD) peers were examined during the Figure Ground Subtest of the Test of Visual Perception Skills-third edition (TVPS-3). Results Compared to their TD counterparts, adolescents with ASD were no different in accuracy, however, had a longer response time. Differences in gaze behavior were also observed, characterized by adolescents with ASD spending less time viewing the incorrect and target figures, and spending a greater proportion of time viewing irrelevant areas of the stimuli compared to TD adolescents. Conclusions Results suggest that while altered visual perception was observed, this did not contribute to superiority in disembedding tasks in adolescents with ASD. Future research is required to elucidate conditions under which altered visual perception may contribute to behavioral superiority. En ligne : https://doi.org/10.1016/j.rasd.2019.101417 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404 [article] Disembedding performance and eye gaze behavior of adolescents with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Melissa H. BLACK, Auteur ; Sharmila VAZ, Auteur ; Richard PARSONS, Auteur ; Torbjörn FALKMER, Auteur ; Julia S. Y. TANG, Auteur ; Susan MORRIS, Auteur ; Hoe LEE, Auteur ; Marita FALKMER, Auteur . - p.101417. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 66 (October 2019) . - p.101417 Mots-clés : Eye tracking  Local bias  Weak central coherence  Enhanced perceptual functioning Index. décimale : PER Périodiques Résumé : Background Atypical visual perception in individuals with Autism Spectrum Disorders (ASD) may contribute to superiority in disembedding tasks. Gaze behavior has provided some insights in to mechanisms underlying this purported superiority in children, however evidence is limited and requires additional investigation. Method The performance and gaze behavior of 27 adolescents with ASD and 27 matched typically developing (TD) peers were examined during the Figure Ground Subtest of the Test of Visual Perception Skills-third edition (TVPS-3). Results Compared to their TD counterparts, adolescents with ASD were no different in accuracy, however, had a longer response time. Differences in gaze behavior were also observed, characterized by adolescents with ASD spending less time viewing the incorrect and target figures, and spending a greater proportion of time viewing irrelevant areas of the stimuli compared to TD adolescents. Conclusions Results suggest that while altered visual perception was observed, this did not contribute to superiority in disembedding tasks in adolescents with ASD. Future research is required to elucidate conditions under which altered visual perception may contribute to behavioral superiority. En ligne : https://doi.org/10.1016/j.rasd.2019.101417 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404

"He Sees his Autism as a Strength, Not a Deficit Now": A Repeated Cross-Sectional Study Investigating the Impact of Strengths-Based Programs on Autistic Adolescents / Elinda Ai Lim LEE in Journal of Autism and Developmental Disorders, 54-5 (May 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-5 (May 2024) . - p.1656-1671 Titre : "He Sees his Autism as a Strength, Not a Deficit Now": A Repeated Cross-Sectional Study Investigating the Impact of Strengths-Based Programs on Autistic Adolescents Type de document : Texte imprimé et/ou numérique Auteurs : Elinda Ai Lim LEE, Auteur ; Melissa SCOTT, Auteur ; Melissa H. BLACK, Auteur ; Emily D?ARCY, Auteur ; Tele TAN, Auteur ; Louise SHEEHY, Auteur ; Sven BÖLTE, Auteur ; Sonya GIRDLER, Auteur Article en page(s) : p.1656-1671 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Recent studies have reported that strengths-based programs, leveraging autistic adolescents' abilities and interests, could improve their skills and facilitate social engagement. However, little is known about the long-term impact of strengths-based approaches. This study aimed to explore the long-term outcomes of community strengths-based programs designed to support autistic adolescents in developing interests and skills in Science, Technology, Engineering, Arts, and Mathematics (STEAM) and the factors influencing their participation in these programs. A repeated cross-sectional survey study over three years recruited 52 parents in 2018, 52 parents in 2019, and 38 parents in 2020. Results highlighted the positive impact of these programs on autistic adolescents' health and well-being, social relationships and interactions, self-confidence and self-esteem, sense of belonging, and activities and participation. Five key elements influencing participation included the enthusiasm of the participants, their self-perception, the approach of the programs, the learning environment, and the attitudes of the mentors. This study implies that strengths-based approaches to intervention and support for autistic adolescents in a supported environment are a social model solution that could potentially have positive participant outcomes. Findings from this study could provide a framework underpinning future strengths-based interventions. En ligne : https://doi.org/10.1007/s10803-022-05881-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] "He Sees his Autism as a Strength, Not a Deficit Now": A Repeated Cross-Sectional Study Investigating the Impact of Strengths-Based Programs on Autistic Adolescents [Texte imprimé et/ou numérique] / Elinda Ai Lim LEE, Auteur ; Melissa SCOTT, Auteur ; Melissa H. BLACK, Auteur ; Emily D?ARCY, Auteur ; Tele TAN, Auteur ; Louise SHEEHY, Auteur ; Sven BÖLTE, Auteur ; Sonya GIRDLER, Auteur . - p.1656-1671. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-5 (May 2024) . - p.1656-1671 Index. décimale : PER Périodiques Résumé : Recent studies have reported that strengths-based programs, leveraging autistic adolescents' abilities and interests, could improve their skills and facilitate social engagement. However, little is known about the long-term impact of strengths-based approaches. This study aimed to explore the long-term outcomes of community strengths-based programs designed to support autistic adolescents in developing interests and skills in Science, Technology, Engineering, Arts, and Mathematics (STEAM) and the factors influencing their participation in these programs. A repeated cross-sectional survey study over three years recruited 52 parents in 2018, 52 parents in 2019, and 38 parents in 2020. Results highlighted the positive impact of these programs on autistic adolescents' health and well-being, social relationships and interactions, self-confidence and self-esteem, sense of belonging, and activities and participation. Five key elements influencing participation included the enthusiasm of the participants, their self-perception, the approach of the programs, the learning environment, and the attitudes of the mentors. This study implies that strengths-based approaches to intervention and support for autistic adolescents in a supported environment are a social model solution that could potentially have positive participant outcomes. Findings from this study could provide a framework underpinning future strengths-based interventions. En ligne : https://doi.org/10.1007/s10803-022-05881-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

"I Met Someone Like Me!": Autistic Adolescents and Their Parents' Experience of the KONTAKT® Social Skills Group Training / Bahareh AFSHARNEJAD in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1458-1477 Titre : "I Met Someone Like Me!": Autistic Adolescents and Their Parents' Experience of the KONTAKT® Social Skills Group Training Type de document : Texte imprimé et/ou numérique Auteurs : Bahareh AFSHARNEJAD, Auteur ; Marita FALKMER, Auteur ; Tanya PICEN, Auteur ; Melissa H. BLACK, Auteur ; Tasha ALACH, Auteur ; Anna FRIDELL, Auteur ; Cristina COCO, Auteur ; Kelly MILNE, Auteur ; Jill PERRY, Auteur ; Sven BÖLTE, Auteur ; Sonya GIRDLER, Auteur Article en page(s) : p.1458-1477 Langues : Anglais (eng) Mots-clés : Adolescent  Autism Spectrum Disorder  Autistic Disorder/therapy  Communication  Humans  Parents  Social Skills  Adolescents  Autism  Intervention  Lived experience  Thematic analysis Index. décimale : PER Périodiques Résumé : This study captured the experiences of 35 autistic adolescents and their parents after completing a 16-session variant of social skills group training KONTAKT® (ACTRN12617001117303). Semi-structured interviews explored participants' and relatives' perceptions of KONTAKT® and associated social outcomes. Adolescents were classified as either high (HR, n=23) or low (LR, n=12) responders based on the primary outcome effects during the previous trial. Thematic analysis revealed that both HR and LR participants their parents were satisfied with KONTAKT®, noting consistent patterns of improvement in adolescents' social understanding, communication, relationships, and empowerment, although positive reports were more frequent among HR than LR groups. This study enhances the understanding of the impact of SSGT, which is key in improving their content, principles, and administration. En ligne : http://dx.doi.org/10.1007/s10803-021-05045-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] "I Met Someone Like Me!": Autistic Adolescents and Their Parents' Experience of the KONTAKT® Social Skills Group Training [Texte imprimé et/ou numérique] / Bahareh AFSHARNEJAD, Auteur ; Marita FALKMER, Auteur ; Tanya PICEN, Auteur ; Melissa H. BLACK, Auteur ; Tasha ALACH, Auteur ; Anna FRIDELL, Auteur ; Cristina COCO, Auteur ; Kelly MILNE, Auteur ; Jill PERRY, Auteur ; Sven BÖLTE, Auteur ; Sonya GIRDLER, Auteur . - p.1458-1477. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1458-1477 Mots-clés : Adolescent  Autism Spectrum Disorder  Autistic Disorder/therapy  Communication  Humans  Parents  Social Skills  Adolescents  Autism  Intervention  Lived experience  Thematic analysis Index. décimale : PER Périodiques Résumé : This study captured the experiences of 35 autistic adolescents and their parents after completing a 16-session variant of social skills group training KONTAKT® (ACTRN12617001117303). Semi-structured interviews explored participants' and relatives' perceptions of KONTAKT® and associated social outcomes. Adolescents were classified as either high (HR, n=23) or low (LR, n=12) responders based on the primary outcome effects during the previous trial. Thematic analysis revealed that both HR and LR participants their parents were satisfied with KONTAKT®, noting consistent patterns of improvement in adolescents' social understanding, communication, relationships, and empowerment, although positive reports were more frequent among HR than LR groups. This study enhances the understanding of the impact of SSGT, which is key in improving their content, principles, and administration. En ligne : http://dx.doi.org/10.1007/s10803-021-05045-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Motivation to participate in structured physical activity for autistic youth: A systematic scoping review / Michelle L. WONG in Autism, 28-10 (October 2024)  

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Multi-informant International Perspectives on the Facilitators and Barriers to Employment for Autistic Adults / Melissa H. BLACK in Autism Research, 13-7 (July 2020)  

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Success Factors Enabling Employment for Adults on the Autism Spectrum from Employers' Perspective / Jessica DREAVER in Journal of Autism and Developmental Disorders, 50-5 (May 2020)  

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"That impending dread sort of feeling": Experiences of social interaction from the perspectives of autistic adults / Melissa H. BLACK in Research in Autism Spectrum Disorders, 101 (March 2023)  

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The Gestalt of functioning in autism revisited: First revision of the International Classification of Functioning, Disability and Health Core Sets / Lovisa ALEHAGEN ; Melissa H. BLACK ; John HASSLINGER ; Elina WESSMAN ; Karl LUNDIN REMNÉLIUS ; Peter B. MARSCHIK ; Emily D?ARCY ; Susanna CROWSON ; Megan FREETH ; Andreas SEIDEL ; Sonya GIRDLER ; Eric ZANDER in Autism, 28-9 (September 2024)  

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The Methodological Quality and Intervention Fidelity of Randomised Controlled Trials Evaluating Social Skills Group Programs in Autistic Adolescents: A Systematic Review and Meta-analysis / Bahareh AFSHARNEJAD in Journal of Autism and Developmental Disorders, 54-4 (April 2024)  

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"We Can See a Bright Future": Parents' Perceptions of the Outcomes of Participating in a Strengths-Based Program for Adolescents with Autism Spectrum Disorder / Elinda Ai Lim LEE in Journal of Autism and Developmental Disorders, 50-9 (September 2020)  

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What Are You Worried About? Content and Extent of Worry in Autistic Adults / Melissa H. BLACK in Journal of Autism and Developmental Disorders, 54-5 (May 2024)  

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