A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies / Sarah S. MIRE in Journal of Autism and Developmental Disorders, 54-6 (June 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2307-2321 Titre : A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies Type de document : texte imprimé Auteurs : Sarah S. MIRE, Auteur ; Dieu M. TRUONG, Auteur ; Georgina J. SAKYI, Auteur ; Mycah L. AYALA-BRITTAIN, Auteur ; Jelisa D. BOYKIN, Auteur ; Christian M. STEWART, Auteur ; Fre’Dasia DANIELS, Auteur ; Brenda DURAN, Auteur ; Scarlett GARDNER, Auteur ; Alexandra M. BARTH, Auteur ; Georgette RICHARDSON, Auteur ; Shannon L. MCKEE, Auteur Article en page(s) : p.2307-2321 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Underrepresentation of socioeconomically, culturally, and/or linguistically diverse (SCLD) children with neurodevelopmental disorders (NDD) and their families has become a focal point for researchers. This systematic review aimed to identify researchers' strategies for recruiting and retaining SCLD families of children with NDD, published between 1993 and 2018. One hundred twenty-six articles were included, and study samples were categorized as "High SCLD" and "Low SCLD". Chi-square tests of independence were used to determine associations between sample composition (i.e., High/Low SCLD sample) and study characteristics reported. Significant associations were found between sample composition and studies that explicitly stated intention to recruit SCLD families, 2(1) = 12.70, p < .001, Phi = 0.38 (moderate); and for studies that reported the following participant characteristics: language, 2(1) = 29.58, p < .001, Phi = 0.48 (moderate-to-large); and race/ethnicity+SES+language, 2(1) = 19.26, p <. 001, Phi = 0.39 (moderate). However, associations were not found between recruitment and retention approaches and whether studies included High SCLD or Low SCLD samples. Further study of NDD researchers' recruitment and retention approaches that successfully include SCLD families is needed. En ligne : https://doi.org/10.1007/s10803-023-05968-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies [texte imprimé] / Sarah S. MIRE, Auteur ; Dieu M. TRUONG, Auteur ; Georgina J. SAKYI, Auteur ; Mycah L. AYALA-BRITTAIN, Auteur ; Jelisa D. BOYKIN, Auteur ; Christian M. STEWART, Auteur ; Fre’Dasia DANIELS, Auteur ; Brenda DURAN, Auteur ; Scarlett GARDNER, Auteur ; Alexandra M. BARTH, Auteur ; Georgette RICHARDSON, Auteur ; Shannon L. MCKEE, Auteur . - p.2307-2321. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2307-2321 Index. décimale : PER Périodiques Résumé : Underrepresentation of socioeconomically, culturally, and/or linguistically diverse (SCLD) children with neurodevelopmental disorders (NDD) and their families has become a focal point for researchers. This systematic review aimed to identify researchers' strategies for recruiting and retaining SCLD families of children with NDD, published between 1993 and 2018. One hundred twenty-six articles were included, and study samples were categorized as "High SCLD" and "Low SCLD". Chi-square tests of independence were used to determine associations between sample composition (i.e., High/Low SCLD sample) and study characteristics reported. Significant associations were found between sample composition and studies that explicitly stated intention to recruit SCLD families, 2(1) = 12.70, p < .001, Phi = 0.38 (moderate); and for studies that reported the following participant characteristics: language, 2(1) = 29.58, p < .001, Phi = 0.48 (moderate-to-large); and race/ethnicity+SES+language, 2(1) = 19.26, p <. 001, Phi = 0.39 (moderate). However, associations were not found between recruitment and retention approaches and whether studies included High SCLD or Low SCLD samples. Further study of NDD researchers' recruitment and retention approaches that successfully include SCLD families is needed. En ligne : https://doi.org/10.1007/s10803-023-05968-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

Validating the Revised Illness Perception Questionnaire as a Measure of Parent Perceptions of Autism Spectrum Disorder / Sarah S. MIRE in Journal of Autism and Developmental Disorders, 48-5 (May 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-5 (May 2018) . - p.1761-1779 Titre : Validating the Revised Illness Perception Questionnaire as a Measure of Parent Perceptions of Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Sarah S. MIRE, Auteur ; Tammy D. TOLAR, Auteur ; Christie M. BREWTON, Auteur ; Natalie S. RAFF, Auteur ; Shannon L. MCKEE, Auteur Article en page(s) : p.1761-1779 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Factor analysis  Ipq-r  Multidimensional item response theory  Parent perceptions Index. décimale : PER Périodiques Résumé : The illness perception questionnaire (IPQ) and its revision (IPQ-R) measure perceptions about health-related diagnoses and the influence of cognitions on coping. In this study, the factor structure of a version revised for use with autism spectrum disorder (ASD) was investigated with a sample of parents (n = 361) whose children have ASD. Subsequently, multidimensional item response theory was used to evaluate item and subscale properties. Results indicated items from five of the seven IPQ-R-ASD scales loaded as expected, though subscales related to control were not distinct. Additionally, parents' response patterns were evaluated and discussed. Use of this measure in ASD-focused research may enhance understanding of how parents' cognitions of their child's ASD impacts treatment selection, treatment implementation, and overall family well-being. En ligne : http://dx.doi.org/10.1007/s10803-017-3442-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=355 [article] Validating the Revised Illness Perception Questionnaire as a Measure of Parent Perceptions of Autism Spectrum Disorder [texte imprimé] / Sarah S. MIRE, Auteur ; Tammy D. TOLAR, Auteur ; Christie M. BREWTON, Auteur ; Natalie S. RAFF, Auteur ; Shannon L. MCKEE, Auteur . - p.1761-1779. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-5 (May 2018) . - p.1761-1779 Mots-clés : Autism spectrum disorder  Factor analysis  Ipq-r  Multidimensional item response theory  Parent perceptions Index. décimale : PER Périodiques Résumé : The illness perception questionnaire (IPQ) and its revision (IPQ-R) measure perceptions about health-related diagnoses and the influence of cognitions on coping. In this study, the factor structure of a version revised for use with autism spectrum disorder (ASD) was investigated with a sample of parents (n = 361) whose children have ASD. Subsequently, multidimensional item response theory was used to evaluate item and subscale properties. Results indicated items from five of the seven IPQ-R-ASD scales loaded as expected, though subscales related to control were not distinct. Additionally, parents' response patterns were evaluated and discussed. Use of this measure in ASD-focused research may enhance understanding of how parents' cognitions of their child's ASD impacts treatment selection, treatment implementation, and overall family well-being. En ligne : http://dx.doi.org/10.1007/s10803-017-3442-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=355

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