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Validating the Revised Illness Perception Questionnaire as a Measure of Parent Perceptions of Autism Spectrum Disorder / S. S. MIRE in Journal of Autism and Developmental Disorders, 48-5 (May 2018)
[article]
Titre : Validating the Revised Illness Perception Questionnaire as a Measure of Parent Perceptions of Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : S. S. MIRE, Auteur ; T. D. TOLAR, Auteur ; Christie M. BREWTON, Auteur ; N. S. RAFF, Auteur ; S. L. MCKEE, Auteur Article en page(s) : p.1761-1779 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Factor analysis Ipq-r Multidimensional item response theory Parent perceptions Index. décimale : PER Périodiques Résumé : The illness perception questionnaire (IPQ) and its revision (IPQ-R) measure perceptions about health-related diagnoses and the influence of cognitions on coping. In this study, the factor structure of a version revised for use with autism spectrum disorder (ASD) was investigated with a sample of parents (n = 361) whose children have ASD. Subsequently, multidimensional item response theory was used to evaluate item and subscale properties. Results indicated items from five of the seven IPQ-R-ASD scales loaded as expected, though subscales related to control were not distinct. Additionally, parents' response patterns were evaluated and discussed. Use of this measure in ASD-focused research may enhance understanding of how parents' cognitions of their child's ASD impacts treatment selection, treatment implementation, and overall family well-being. En ligne : http://dx.doi.org/10.1007/s10803-017-3442-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=355
in Journal of Autism and Developmental Disorders > 48-5 (May 2018) . - p.1761-1779[article] Validating the Revised Illness Perception Questionnaire as a Measure of Parent Perceptions of Autism Spectrum Disorder [Texte imprimé et/ou numérique] / S. S. MIRE, Auteur ; T. D. TOLAR, Auteur ; Christie M. BREWTON, Auteur ; N. S. RAFF, Auteur ; S. L. MCKEE, Auteur . - p.1761-1779.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-5 (May 2018) . - p.1761-1779
Mots-clés : Autism spectrum disorder Factor analysis Ipq-r Multidimensional item response theory Parent perceptions Index. décimale : PER Périodiques Résumé : The illness perception questionnaire (IPQ) and its revision (IPQ-R) measure perceptions about health-related diagnoses and the influence of cognitions on coping. In this study, the factor structure of a version revised for use with autism spectrum disorder (ASD) was investigated with a sample of parents (n = 361) whose children have ASD. Subsequently, multidimensional item response theory was used to evaluate item and subscale properties. Results indicated items from five of the seven IPQ-R-ASD scales loaded as expected, though subscales related to control were not distinct. Additionally, parents' response patterns were evaluated and discussed. Use of this measure in ASD-focused research may enhance understanding of how parents' cognitions of their child's ASD impacts treatment selection, treatment implementation, and overall family well-being. En ligne : http://dx.doi.org/10.1007/s10803-017-3442-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=355 Correlates of Attachment Perceptions in Parents of Children with Autism Spectrum Disorders / Sabrina J. GOODMAN in Journal of Autism and Developmental Disorders, 42-10 (October 2012)
[article]
Titre : Correlates of Attachment Perceptions in Parents of Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Sabrina J. GOODMAN, Auteur ; David S. GLENWICK, Auteur Année de publication : 2012 Article en page(s) : p.2056-2066 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders Attachment Parenting stress Parent cognitions Parent perceptions Index. décimale : PER Périodiques Résumé : This study explored the relationship between parents’ perceptions of their child’s attachment to them and parents’ own affective attachment to their child, as well the relationship of these constructs to parenting stress, parent-rated child functional impairment, and parenting sense of competence. Mothers (n = 76) and fathers (n = 30) of children ages 2–10 with autism spectrum disorders participated. Overall, parents’ affective attachment to their child was more consistently related to other aspects of their parenting experiences than were their perceptions of their child’s attachment to them. Also, perceptions of child-to-parent attachment were related to other aspects of parenting for fathers more than for mothers. Implications for parenting interventions and future research, such as longitudinal investigations, are discussed. En ligne : http://dx.doi.org/10.1007/s10803-012-1453-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=180
in Journal of Autism and Developmental Disorders > 42-10 (October 2012) . - p.2056-2066[article] Correlates of Attachment Perceptions in Parents of Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Sabrina J. GOODMAN, Auteur ; David S. GLENWICK, Auteur . - 2012 . - p.2056-2066.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 42-10 (October 2012) . - p.2056-2066
Mots-clés : Autism spectrum disorders Attachment Parenting stress Parent cognitions Parent perceptions Index. décimale : PER Périodiques Résumé : This study explored the relationship between parents’ perceptions of their child’s attachment to them and parents’ own affective attachment to their child, as well the relationship of these constructs to parenting stress, parent-rated child functional impairment, and parenting sense of competence. Mothers (n = 76) and fathers (n = 30) of children ages 2–10 with autism spectrum disorders participated. Overall, parents’ affective attachment to their child was more consistently related to other aspects of their parenting experiences than were their perceptions of their child’s attachment to them. Also, perceptions of child-to-parent attachment were related to other aspects of parenting for fathers more than for mothers. Implications for parenting interventions and future research, such as longitudinal investigations, are discussed. En ligne : http://dx.doi.org/10.1007/s10803-012-1453-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=180 Parental Perceptions and Child Emotional and Behavioral Problems in Autism / J. L. HANEY in Journal of Autism and Developmental Disorders, 48-1 (January 2018)
[article]
Titre : Parental Perceptions and Child Emotional and Behavioral Problems in Autism Type de document : Texte imprimé et/ou numérique Auteurs : J. L. HANEY, Auteur ; L. HOUSER, Auteur ; J. A. CULLEN, Auteur Article en page(s) : p.12-27 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Child behavior problems Parent perceptions Pathways Survey Sdq Index. décimale : PER Périodiques Résumé : Emotional and behavioral difficulties in children with autism often present problems for families seeking appropriate treatment interventions. Using data from the 2011 Survey of Pathways to Diagnosis and Services, ordinal logistic regression models were used to examine the association between parental perceptions about autism and their reports of child emotional and behavioral problems. Results showed that parents who attributed their child's autism to environmental factors, experienced emotional upset or confusion about autism, or perceived the condition to be pervasive or burdensome, were more likely to reported clinically significant emotional and behavioral difficulties. Findings suggest that support services must consider parent perceptions when developing interventions to assist with children's emotional and behavioral challenges. Implications for practice and research are discussed. En ligne : https://doi.org/10.1007/s10803-017-3288-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=336
in Journal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.12-27[article] Parental Perceptions and Child Emotional and Behavioral Problems in Autism [Texte imprimé et/ou numérique] / J. L. HANEY, Auteur ; L. HOUSER, Auteur ; J. A. CULLEN, Auteur . - p.12-27.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.12-27
Mots-clés : Autism spectrum disorder Child behavior problems Parent perceptions Pathways Survey Sdq Index. décimale : PER Périodiques Résumé : Emotional and behavioral difficulties in children with autism often present problems for families seeking appropriate treatment interventions. Using data from the 2011 Survey of Pathways to Diagnosis and Services, ordinal logistic regression models were used to examine the association between parental perceptions about autism and their reports of child emotional and behavioral problems. Results showed that parents who attributed their child's autism to environmental factors, experienced emotional upset or confusion about autism, or perceived the condition to be pervasive or burdensome, were more likely to reported clinically significant emotional and behavioral difficulties. Findings suggest that support services must consider parent perceptions when developing interventions to assist with children's emotional and behavioral challenges. Implications for practice and research are discussed. En ligne : https://doi.org/10.1007/s10803-017-3288-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=336 Emergence of Autism Spectrum Disorder in Children from Simplex Families: Relations to Parental Perceptions of Etiology / Robin P. GOIN-KOCHEL in Journal of Autism and Developmental Disorders, 45-5 (May 2015)
[article]
Titre : Emergence of Autism Spectrum Disorder in Children from Simplex Families: Relations to Parental Perceptions of Etiology Type de document : Texte imprimé et/ou numérique Auteurs : Robin P. GOIN-KOCHEL, Auteur ; Sarah S. MIRE, Auteur ; Allison G. DEMPSEY, Auteur Article en page(s) : p.1451-1463 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Regression Parent perceptions Simons Simplex Collection Index. décimale : PER Périodiques Résumé : Current research describes a four-category scheme of Autism Spectrum Disorder (ASD) onset: early, regressive, plateau, delay + regression. To replicate prevalence of different onset types, ASD onset (per the Autism Diagnostic Interview—Revised) was examined in a large North American sample; for a subset, parents’ causal beliefs were ascertained via the Revised Illness Perception Questionnaire to examine potential associations with ASD-onset types. Onset rates were similar across samples, with a slightly higher proportion of children in the subsample categorized with regression. Top-rated causes of ASD were genetics, brain structure, will of God, toxins in vaccines, and environmental pollution. Parents reporting regression more often believed that toxins in vaccines caused ASD. Influences on treatment selection and broader public-health ramifications are discussed. En ligne : http://dx.doi.org/10.1007/s10803-014-2310-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=259
in Journal of Autism and Developmental Disorders > 45-5 (May 2015) . - p.1451-1463[article] Emergence of Autism Spectrum Disorder in Children from Simplex Families: Relations to Parental Perceptions of Etiology [Texte imprimé et/ou numérique] / Robin P. GOIN-KOCHEL, Auteur ; Sarah S. MIRE, Auteur ; Allison G. DEMPSEY, Auteur . - p.1451-1463.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-5 (May 2015) . - p.1451-1463
Mots-clés : Autism Spectrum Disorder Regression Parent perceptions Simons Simplex Collection Index. décimale : PER Périodiques Résumé : Current research describes a four-category scheme of Autism Spectrum Disorder (ASD) onset: early, regressive, plateau, delay + regression. To replicate prevalence of different onset types, ASD onset (per the Autism Diagnostic Interview—Revised) was examined in a large North American sample; for a subset, parents’ causal beliefs were ascertained via the Revised Illness Perception Questionnaire to examine potential associations with ASD-onset types. Onset rates were similar across samples, with a slightly higher proportion of children in the subsample categorized with regression. Top-rated causes of ASD were genetics, brain structure, will of God, toxins in vaccines, and environmental pollution. Parents reporting regression more often believed that toxins in vaccines caused ASD. Influences on treatment selection and broader public-health ramifications are discussed. En ligne : http://dx.doi.org/10.1007/s10803-014-2310-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=259 Children with Autism Spectrum Disorders in Low-Resource Settings: Reported Experiences and Needs of Parents in Mongolia / J. D. LEE in Journal of Autism and Developmental Disorders, 51-10 (October 2021)
[article]
Titre : Children with Autism Spectrum Disorders in Low-Resource Settings: Reported Experiences and Needs of Parents in Mongolia Type de document : Texte imprimé et/ou numérique Auteurs : J. D. LEE, Auteur ; H. MEADAN, Auteur Article en page(s) : p.3586-3599 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Autistic Disorder Child Humans Mongolia Parents Children with autism Low-resource settings Parent perceptions Index. décimale : PER Périodiques Résumé : Although it is well-documented that families of children with autism in developed nations report hardships, few researchers have focused on families who live in less-developed, low-resource settings. Using five focus groups with 30 parents of children with autism in Mongolia, a low- resource setting, the purpose of this study was to provide detailed accounts of their experiences, challenges, and needs. Participants reported severe challenges related to raising their children with autism in their country. Parents shared barriers related to the limited availability of services and support, exacerbated financial burdens, and a lack of enforcement of relevant laws. Parents also shared their perceived needs including more services for their children, more sustainable training and coaching programs for parents, and parents' collective advocacy. En ligne : http://dx.doi.org/10.1007/s10803-020-04818-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3586-3599[article] Children with Autism Spectrum Disorders in Low-Resource Settings: Reported Experiences and Needs of Parents in Mongolia [Texte imprimé et/ou numérique] / J. D. LEE, Auteur ; H. MEADAN, Auteur . - p.3586-3599.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3586-3599
Mots-clés : Autism Spectrum Disorder Autistic Disorder Child Humans Mongolia Parents Children with autism Low-resource settings Parent perceptions Index. décimale : PER Périodiques Résumé : Although it is well-documented that families of children with autism in developed nations report hardships, few researchers have focused on families who live in less-developed, low-resource settings. Using five focus groups with 30 parents of children with autism in Mongolia, a low- resource setting, the purpose of this study was to provide detailed accounts of their experiences, challenges, and needs. Participants reported severe challenges related to raising their children with autism in their country. Parents shared barriers related to the limited availability of services and support, exacerbated financial burdens, and a lack of enforcement of relevant laws. Parents also shared their perceived needs including more services for their children, more sustainable training and coaching programs for parents, and parents' collective advocacy. En ligne : http://dx.doi.org/10.1007/s10803-020-04818-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453