Empowering through service: Creating a community of support for parents of black autistic individuals / Lauren QUETSCH ; Juan LEMUS in Research in Autism, 123 (May 2025)  

Public ISBD [article]  inResearch in Autism > 123 (May 2025) . - 202551 Titre : Empowering through service: Creating a community of support for parents of black autistic individuals Type de document : Texte imprimé et/ou numérique Auteurs : Lauren QUETSCH, Auteur ; Juan LEMUS, Auteur Article en page(s) : 202551 Langues : Anglais (eng) Mots-clés : Support  Culture  Black caregivers  Autism Index. décimale : PER Périodiques Résumé : Background To date, the autism literature has narrated the tumultuous experiences of Black caregivers of autistic individuals as they navigate receiving care for their child (e.g., racism, fear, isolation). Less clinical attention has been paid toward creating interventions and support for Black caregivers of autistic youth that leverage their cultural strengths. The present study explored if participation in a culturally-informed support group led to changes in caregiver empowerment and stress. Method To address this gap, we piloted a 5-session virtual support group for caregivers raising Black autistic individuals (N = 7) that incorporated story-telling, communalism, and collectivistic service-driven activities centered around better care for Black autistic individuals. A mixed-methods design was used to assess changes in parental stress, empowerment, healing of racial trauma, and satisfaction of the support group. Results By the end of the support group, caregivers demonstrated significant reductions in parental stress, (t (5) = 4.716, p = .003) and gains in perceived empowerment (t (6) = ?2.230, p = .034). Qualitative findings highlighted the areas of the support group that contributed to caregiver satisfaction (e.g., connection, solution-focused components). Time was noted as a prominent barrier. Conclusion The study provided preliminary evidence that utilizing a culturally responsive approach to developing a support group could potentially contribute toward reducing caregiver stress, increasing empowerment, and promoting racial trauma resilience among caregivers raising Black autistic youth. En ligne : https://doi.org/10.1016/j.reia.2025.202551 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] Empowering through service: Creating a community of support for parents of black autistic individuals [Texte imprimé et/ou numérique] / Lauren QUETSCH, Auteur ; Juan LEMUS, Auteur . - 202551. Langues : Anglais (eng) in Research in Autism > 123 (May 2025) . - 202551 Mots-clés : Support  Culture  Black caregivers  Autism Index. décimale : PER Périodiques Résumé : Background To date, the autism literature has narrated the tumultuous experiences of Black caregivers of autistic individuals as they navigate receiving care for their child (e.g., racism, fear, isolation). Less clinical attention has been paid toward creating interventions and support for Black caregivers of autistic youth that leverage their cultural strengths. The present study explored if participation in a culturally-informed support group led to changes in caregiver empowerment and stress. Method To address this gap, we piloted a 5-session virtual support group for caregivers raising Black autistic individuals (N = 7) that incorporated story-telling, communalism, and collectivistic service-driven activities centered around better care for Black autistic individuals. A mixed-methods design was used to assess changes in parental stress, empowerment, healing of racial trauma, and satisfaction of the support group. Results By the end of the support group, caregivers demonstrated significant reductions in parental stress, (t (5) = 4.716, p = .003) and gains in perceived empowerment (t (6) = ?2.230, p = .034). Qualitative findings highlighted the areas of the support group that contributed to caregiver satisfaction (e.g., connection, solution-focused components). Time was noted as a prominent barrier. Conclusion The study provided preliminary evidence that utilizing a culturally responsive approach to developing a support group could potentially contribute toward reducing caregiver stress, increasing empowerment, and promoting racial trauma resilience among caregivers raising Black autistic youth. En ligne : https://doi.org/10.1016/j.reia.2025.202551 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

Exploring Factors of Diagnostic Timing Among Black Autistic Youth / Harlee Onovbiona in Journal of Autism and Developmental Disorders, 55-4 (April 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-4 (April 2024) . - p.1438-1449 Titre : Exploring Factors of Diagnostic Timing Among Black Autistic Youth Type de document : Texte imprimé et/ou numérique Auteurs : Harlee Onovbiona, Auteur ; Lauren QUETSCH, Auteur ; Emily-Anne DEL ROSARIO, Auteur Article en page(s) : p.1438-1449 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The goal of the present study was to compare profiles among Black families of autistic youth who were identified Early (??2 years of age), Mid (age 3 or 4), and Delayed (??5 years of age) to better identify the characteristics that contribute to early ASD identification and delayed ASD identification. Black caregivers with autistic youth (N = 101) were divided into Early (N = 34), Mid (N = 39), and Delayed (N = 28) groups and compared on (a) the age at which signs of autism signs were first noticed, (b) wait times, (c) previous misdiagnoses rates, and (d) racial barriers experienced during the diagnostic process. The results revealed differences between the diagnostic profiles. Specifically, (a) Delayed families noticed the first signs of autism significantly later, (b) Early families had significantly smaller wait times between age of noticing signs of autism and age of receiving the diagnosis, (c) the odds of receiving a later or delayed autism diagnosis was nearly three times higher for caregivers who reported receiving a misdiagnosis, and (d) there were no significant differences in racial barriers experienced between Early, Mid, and Delayed families. Challenges in receiving a timely diagnosis remain for some Black autistic youth. To improve early identification for Black autistic youth who are at risk for receiving delayed diagnostic care, further research should examine factors and practices that improve autism knowledge among professionals and caregivers, enhance assessment practices, and integrate culturally responsive practices into assessment and screening procedures. En ligne : https://doi.org/10.1007/s10803-024-06283-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550 [article] Exploring Factors of Diagnostic Timing Among Black Autistic Youth [Texte imprimé et/ou numérique] / Harlee Onovbiona, Auteur ; Lauren QUETSCH, Auteur ; Emily-Anne DEL ROSARIO, Auteur . - p.1438-1449. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-4 (April 2024) . - p.1438-1449 Index. décimale : PER Périodiques Résumé : The goal of the present study was to compare profiles among Black families of autistic youth who were identified Early (??2 years of age), Mid (age 3 or 4), and Delayed (??5 years of age) to better identify the characteristics that contribute to early ASD identification and delayed ASD identification. Black caregivers with autistic youth (N = 101) were divided into Early (N = 34), Mid (N = 39), and Delayed (N = 28) groups and compared on (a) the age at which signs of autism signs were first noticed, (b) wait times, (c) previous misdiagnoses rates, and (d) racial barriers experienced during the diagnostic process. The results revealed differences between the diagnostic profiles. Specifically, (a) Delayed families noticed the first signs of autism significantly later, (b) Early families had significantly smaller wait times between age of noticing signs of autism and age of receiving the diagnosis, (c) the odds of receiving a later or delayed autism diagnosis was nearly three times higher for caregivers who reported receiving a misdiagnosis, and (d) there were no significant differences in racial barriers experienced between Early, Mid, and Delayed families. Challenges in receiving a timely diagnosis remain for some Black autistic youth. To improve early identification for Black autistic youth who are at risk for receiving delayed diagnostic care, further research should examine factors and practices that improve autism knowledge among professionals and caregivers, enhance assessment practices, and integrate culturally responsive practices into assessment and screening procedures. En ligne : https://doi.org/10.1007/s10803-024-06283-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550

Racial and Practical Barriers to Diagnostic and Treatment Services for Black Families of Autistic Youth: A Mixed-Method Exploration / Harlee Onovbiona in Journal of Autism and Developmental Disorders, 54-12 (December 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-12 (December 2024) . - p.4465-4480 Titre : Racial and Practical Barriers to Diagnostic and Treatment Services for Black Families of Autistic Youth: A Mixed-Method Exploration Type de document : Texte imprimé et/ou numérique Auteurs : Harlee Onovbiona, Auteur ; Lauren QUETSCH, Auteur ; Rebecca Bradley, Auteur Article en page(s) : p.4465-4480 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The present study explored the role race-related barriers and practical barriers to treatment participation play in treatment effectiveness and satisfaction among Black families with autistic youth using a mixed-method approach. In a sample of Black caregivers with autistic youth (N = 101), multiple regressions were conducted to examine the impact of reported racial and practical barriers on parental stress, treatment effectiveness, and treatment satisfaction. Caregivers provided further narratives on their experience navigating diagnostic and treatment services in qualitative interviews. The study demonstrated that Black caregivers of autistic youth are still encountering several racial and logistical barriers when seeking treatment and diagnostic services for their children. These barriers negatively impact caregiver stress and caregiver perceived treatment quality. Contrary to the barriers and stress experienced by Black caregivers, caregivers are generally satisfied with the treatments they are utilizing and find them helpful. The narratives told by caregivers further elucidate the tumultuous experiences of Black caregivers as they seek diagnostic and treatment services for their children. An experience that may be worsened by family, professional, and systemic barriers, and can be improved by advocacy, acceptance, peer and community support, and increased knowledge. Black families of autistic youth call for increased compassion, support, training, and humility among professionals who serve autistic youth. En ligne : https://doi.org/10.1007/s10803-023-06166-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540 [article] Racial and Practical Barriers to Diagnostic and Treatment Services for Black Families of Autistic Youth: A Mixed-Method Exploration [Texte imprimé et/ou numérique] / Harlee Onovbiona, Auteur ; Lauren QUETSCH, Auteur ; Rebecca Bradley, Auteur . - p.4465-4480. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-12 (December 2024) . - p.4465-4480 Index. décimale : PER Périodiques Résumé : The present study explored the role race-related barriers and practical barriers to treatment participation play in treatment effectiveness and satisfaction among Black families with autistic youth using a mixed-method approach. In a sample of Black caregivers with autistic youth (N = 101), multiple regressions were conducted to examine the impact of reported racial and practical barriers on parental stress, treatment effectiveness, and treatment satisfaction. Caregivers provided further narratives on their experience navigating diagnostic and treatment services in qualitative interviews. The study demonstrated that Black caregivers of autistic youth are still encountering several racial and logistical barriers when seeking treatment and diagnostic services for their children. These barriers negatively impact caregiver stress and caregiver perceived treatment quality. Contrary to the barriers and stress experienced by Black caregivers, caregivers are generally satisfied with the treatments they are utilizing and find them helpful. The narratives told by caregivers further elucidate the tumultuous experiences of Black caregivers as they seek diagnostic and treatment services for their children. An experience that may be worsened by family, professional, and systemic barriers, and can be improved by advocacy, acceptance, peer and community support, and increased knowledge. Black families of autistic youth call for increased compassion, support, training, and humility among professionals who serve autistic youth. En ligne : https://doi.org/10.1007/s10803-023-06166-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540

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