Adults with Autism Prefer Person-First Language in Dutch: A Cross-Country Study / Annabel D. NIJHOF ; Jan R. WIERSEMA in Journal of Autism and Developmental Disorders, 55-6 (June 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-6 (June 2025) . - p.2027-2033 Titre : Adults with Autism Prefer Person-First Language in Dutch: A Cross-Country Study Type de document : texte imprimé Auteurs : Annabel D. NIJHOF, Auteur ; Jan R. WIERSEMA, Auteur Article en page(s) : p.2027-2033 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The correct language to refer to someone with a diagnosis of autism spectrum disorder has received a lot of attention in recent years. Studies in English-speaking countries found a main identity-first language (IFL) preference (e.g. autistic person) opposed to a person-first language preference (PFL) (e.g. person with autism) among adults with autism. However, a recent study conducted in a Dutch-speaking country (the Netherlands) reported a PFL preference (Buijsman et al., 2023). The goal of the current study was to gain insights into language preferences in two Dutch-speaking countries and, in contrast to previous studies, give participants the option to indicate not having a specific language preference. In the current study, we asked 414 Dutch-speaking adults with autism, living either in Belgium or the Netherlands, to fill in an online questionnaire about their language preference. We found that over half of the participants had a PFL preference (54%), followed by having no preference (27%). Only 14% of them had an IFL preference, and 5% proposed another term. Having more years of education was identified as a predictor for having an IFL preference when compared to a PFL preference, while being older predicted having no preference compared to a PFL preference. The majority of Dutch-speaking adults with autism showed a PFL preference, which is in contrast to findings from English-speaking countries, but in accord with a recent study conducted in the Netherlands (Buijsman et al., 2023). Implications of this finding for language use are discussed. En ligne : https://doi.org/10.1007/s10803-023-06192-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Adults with Autism Prefer Person-First Language in Dutch: A Cross-Country Study [texte imprimé] / Annabel D. NIJHOF, Auteur ; Jan R. WIERSEMA, Auteur . - p.2027-2033. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-6 (June 2025) . - p.2027-2033 Index. décimale : PER Périodiques Résumé : The correct language to refer to someone with a diagnosis of autism spectrum disorder has received a lot of attention in recent years. Studies in English-speaking countries found a main identity-first language (IFL) preference (e.g. autistic person) opposed to a person-first language preference (PFL) (e.g. person with autism) among adults with autism. However, a recent study conducted in a Dutch-speaking country (the Netherlands) reported a PFL preference (Buijsman et al., 2023). The goal of the current study was to gain insights into language preferences in two Dutch-speaking countries and, in contrast to previous studies, give participants the option to indicate not having a specific language preference. In the current study, we asked 414 Dutch-speaking adults with autism, living either in Belgium or the Netherlands, to fill in an online questionnaire about their language preference. We found that over half of the participants had a PFL preference (54%), followed by having no preference (27%). Only 14% of them had an IFL preference, and 5% proposed another term. Having more years of education was identified as a predictor for having an IFL preference when compared to a PFL preference, while being older predicted having no preference compared to a PFL preference. The majority of Dutch-speaking adults with autism showed a PFL preference, which is in contrast to findings from English-speaking countries, but in accord with a recent study conducted in the Netherlands (Buijsman et al., 2023). Implications of this finding for language use are discussed. En ligne : https://doi.org/10.1007/s10803-023-06192-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Adults with autism’s communication preferences with others with and without autism: A mixed-methods study / Hannah DE LAET in Research in Autism, 131 (March 2026)  

Public ISBD [article]  inResearch in Autism > 131 (March 2026) . - 202814 Titre : Adults with autism’s communication preferences with others with and without autism: A mixed-methods study Type de document : texte imprimé Auteurs : Hannah DE LAET, Auteur ; Annabel D. NIJHOF, Auteur ; Jan R. WIERSEMA, Auteur Article en page(s) : 202814 Langues : Anglais (eng) Mots-clés : Autism  Double empathy problem  Interaction  Mixed-method study Index. décimale : PER Périodiques Résumé : While prevailing theories suggest social interaction difficulties are inherent to individuals with autism, the theory of the double empathy problem proposes that these difficulties result from a mismatch between neurologically different interaction partners. This theory also predicts less difficulty during interaction between individuals with autism. Existing studies enquiring the experiences of individuals with autism indeed suggest that they consider interaction with others with autism as easier. However, studies directly assessing experiences are scarce and often involve small sample sizes, warranting further investigation. In this study, adults with autism completed an online mixed-method questionnaire, consisting of 14 statements (N = 407) comparing various aspects of interaction between individuals with and without autism and six open-ended questions (N = 337). The statements revealed that adults with autism experienced all, except for one, aspects of communication to be better and easier with others who also have autism than with others who do not. The only aspect of communication they did not experience to be better was body language. The open-ended questions’ results mainly support the findings from the statements, but also provide additional nuance. Themes highlighted easier interactions between individuals with autism, characterized by mutual understanding and absence of judgment. Additionally, when they know someone also has autism, they feel less need to camouflage. However, some interaction difficulties were also noted. In conclusion, the experiences of adults with autism in our study align with the theory of the double empathy problem, however further systematic research is warranted to test this theory. En ligne : https://doi.org/10.1016/j.reia.2026.202814 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=581 [article] Adults with autism’s communication preferences with others with and without autism: A mixed-methods study [texte imprimé] / Hannah DE LAET, Auteur ; Annabel D. NIJHOF, Auteur ; Jan R. WIERSEMA, Auteur . - 202814. Langues : Anglais (eng) in Research in Autism > 131 (March 2026) . - 202814 Mots-clés : Autism  Double empathy problem  Interaction  Mixed-method study Index. décimale : PER Périodiques Résumé : While prevailing theories suggest social interaction difficulties are inherent to individuals with autism, the theory of the double empathy problem proposes that these difficulties result from a mismatch between neurologically different interaction partners. This theory also predicts less difficulty during interaction between individuals with autism. Existing studies enquiring the experiences of individuals with autism indeed suggest that they consider interaction with others with autism as easier. However, studies directly assessing experiences are scarce and often involve small sample sizes, warranting further investigation. In this study, adults with autism completed an online mixed-method questionnaire, consisting of 14 statements (N = 407) comparing various aspects of interaction between individuals with and without autism and six open-ended questions (N = 337). The statements revealed that adults with autism experienced all, except for one, aspects of communication to be better and easier with others who also have autism than with others who do not. The only aspect of communication they did not experience to be better was body language. The open-ended questions’ results mainly support the findings from the statements, but also provide additional nuance. Themes highlighted easier interactions between individuals with autism, characterized by mutual understanding and absence of judgment. Additionally, when they know someone also has autism, they feel less need to camouflage. However, some interaction difficulties were also noted. In conclusion, the experiences of adults with autism in our study align with the theory of the double empathy problem, however further systematic research is warranted to test this theory. En ligne : https://doi.org/10.1016/j.reia.2026.202814 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=581

Intact Neural Responding to Hearing One’s Own Name in Children with Autism / Rachida El KADDOURI in Journal of Autism and Developmental Disorders, 56-6 (June 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-6 (June 2026) . - p.2205-2218 Titre : Intact Neural Responding to Hearing One’s Own Name in Children with Autism Type de document : texte imprimé Auteurs : Rachida El KADDOURI, Auteur ; Annabel D. NIJHOF, Auteur ; Marcel BRASS, Auteur ; Jan R. WIERSEMA, Auteur Article en page(s) : p.2205-2218 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Diminished responding to one’s own name is one of the strongest and earliest predictors of autism. However, research on the neural correlates of this response in autism is scarce. Here we investigate neural responses to hearing the own name in school-aged children with and without autism. Thirty-four children with autism and 33 without autism (ages 7–13) were presented with three categories of names (own name, close other’s name and unknown other name) as task-irrelevant deviant stimuli in an auditory oddball paradigm, while EEG was recorded. In line with previous findings, parietal P3 amplitudes for the own name were enhanced compared with a close other’s name. Older children showed a stronger self-specific effect than younger children. However, this self-preferential effect was not different between groups, despite the fact that parents of children with autism reported significantly less own-name responsiveness in daily life. Neither the N1 component or SON negativity showed self-specific effects. In school-aged children, only the parietal P3 component, and not the N1 or SON negativity, appears to be enhanced for the own name as compared to a close other’s name. Age seems to have an effect on the own name modulation of the P3 amplitude, which may explain the relatively small overall effect size. Against expectations, groups did not differ on this self-specific effect. Further research into neural and behavioral responses to hearing one’s own name in autism, across different age groups, is warranted. En ligne : https://doi.org/10.1007/s10803-024-06701-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587 [article] Intact Neural Responding to Hearing One’s Own Name in Children with Autism [texte imprimé] / Rachida El KADDOURI, Auteur ; Annabel D. NIJHOF, Auteur ; Marcel BRASS, Auteur ; Jan R. WIERSEMA, Auteur . - p.2205-2218. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-6 (June 2026) . - p.2205-2218 Index. décimale : PER Périodiques Résumé : Diminished responding to one’s own name is one of the strongest and earliest predictors of autism. However, research on the neural correlates of this response in autism is scarce. Here we investigate neural responses to hearing the own name in school-aged children with and without autism. Thirty-four children with autism and 33 without autism (ages 7–13) were presented with three categories of names (own name, close other’s name and unknown other name) as task-irrelevant deviant stimuli in an auditory oddball paradigm, while EEG was recorded. In line with previous findings, parietal P3 amplitudes for the own name were enhanced compared with a close other’s name. Older children showed a stronger self-specific effect than younger children. However, this self-preferential effect was not different between groups, despite the fact that parents of children with autism reported significantly less own-name responsiveness in daily life. Neither the N1 component or SON negativity showed self-specific effects. In school-aged children, only the parietal P3 component, and not the N1 or SON negativity, appears to be enhanced for the own name as compared to a close other’s name. Age seems to have an effect on the own name modulation of the P3 amplitude, which may explain the relatively small overall effect size. Against expectations, groups did not differ on this self-specific effect. Further research into neural and behavioral responses to hearing one’s own name in autism, across different age groups, is warranted. En ligne : https://doi.org/10.1007/s10803-024-06701-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587

Self-Bias and Self-Related Mentalizing are Unaltered in Adolescents with Autism / Letizia AMODEO in Journal of Autism and Developmental Disorders, 56-6 (June 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-6 (June 2026) . - p.2339-2353 Titre : Self-Bias and Self-Related Mentalizing are Unaltered in Adolescents with Autism Type de document : texte imprimé Auteurs : Letizia AMODEO, Auteur ; Annabel D. NIJHOF, Auteur ; David M. WILLIAMS, Auteur ; Jan R. WIERSEMA, Auteur Article en page(s) : p.2339-2353 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The self is a multidimensional concept that can be represented at a pre-reflective (first-order) level, at a deeper, reflective level (second-order), or even at a meta-level (representing one’s own thoughts, i.e. self-related mentalizing). Since self-related processing and mentalizing are crucial for social cognition, both constructs have been researched in individuals with autism, who experience persistent socio-communicative difficulties. Some studies suggested autism-related reductions of the self-bias, i.e. tendency to preferentially process self-related content; while others observed a decreased ability to mentalize on one’s own thoughts in autism. However, prior research examined distinct levels of self-related processing in isolation, in the context of separate studies. En ligne : https://doi.org/10.1007/s10803-024-06705-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 [article] Self-Bias and Self-Related Mentalizing are Unaltered in Adolescents with Autism [texte imprimé] / Letizia AMODEO, Auteur ; Annabel D. NIJHOF, Auteur ; David M. WILLIAMS, Auteur ; Jan R. WIERSEMA, Auteur . - p.2339-2353. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-6 (June 2026) . - p.2339-2353 Index. décimale : PER Périodiques Résumé : The self is a multidimensional concept that can be represented at a pre-reflective (first-order) level, at a deeper, reflective level (second-order), or even at a meta-level (representing one’s own thoughts, i.e. self-related mentalizing). Since self-related processing and mentalizing are crucial for social cognition, both constructs have been researched in individuals with autism, who experience persistent socio-communicative difficulties. Some studies suggested autism-related reductions of the self-bias, i.e. tendency to preferentially process self-related content; while others observed a decreased ability to mentalize on one’s own thoughts in autism. However, prior research examined distinct levels of self-related processing in isolation, in the context of separate studies. En ligne : https://doi.org/10.1007/s10803-024-06705-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588

Self-processing in individuals with autism spectrum disorder / Annabel D. NIJHOF in Autism Research, 12-11 (November 2019)  

Public ISBD [article]  inAutism Research > 12-11 (November 2019) . - p.1580-1584 Titre : Self-processing in individuals with autism spectrum disorder Type de document : texte imprimé Auteurs : Annabel D. NIJHOF, Auteur ; Geoffrey BIRD, Auteur Article en page(s) : p.1580-1584 Langues : Anglais (eng) Mots-clés : compensation  egocentric bias  self-processing  social cognition Index. décimale : PER Périodiques Résumé : Research attempting to explain the social difficulties observed in autism spectrum disorder has focused predominantly on difficulties understanding others, but there are indications that self-referential processing is also atypical in autism. For example, infants who later get an autism diagnosis show a reduced response when hearing their own name. In addition, research suggests that the self-bias (the tendency to preferentially process information when self-relevant) is smaller or absent in autism. However, findings are mixed: researchers are yet to clarify exactly those aspects of self-processing which are atypical in autism and in what way they are atypical. To gain further insight into these issues, future studies should focus on whether and how different aspects of self-processing are related in both neurotypical and autistic individuals. Furthermore, the (a)typical development of different aspects of the self, as well as the impact of the self on different domains of cognitive processing, deserves further attention, requiring studies with participants in a wide age range. Finally, the use of neural measures of self-processing will be invaluable, given the recent hypothesis that autistic individuals may learn to compensate for difficulties by relying on neural pathways which differ from those utilised by neurotypical individuals. Autism Res 2019, 1-5. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Research has indicated that individuals with autism spectrum disorder show differences in the processing of self-relevant information. However, as yet, exactly how self-processing differs in autism remains unknown. To further our understanding of the self in autism, future studies should focus on the relationship between different aspects of self-processing, investigating brain activity as well as behaviour, across a wide range of ages. En ligne : http://dx.doi.org/10.1002/aur.2200 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=411 [article] Self-processing in individuals with autism spectrum disorder [texte imprimé] / Annabel D. NIJHOF, Auteur ; Geoffrey BIRD, Auteur . - p.1580-1584. Langues : Anglais (eng) in Autism Research > 12-11 (November 2019) . - p.1580-1584 Mots-clés : compensation  egocentric bias  self-processing  social cognition Index. décimale : PER Périodiques Résumé : Research attempting to explain the social difficulties observed in autism spectrum disorder has focused predominantly on difficulties understanding others, but there are indications that self-referential processing is also atypical in autism. For example, infants who later get an autism diagnosis show a reduced response when hearing their own name. In addition, research suggests that the self-bias (the tendency to preferentially process information when self-relevant) is smaller or absent in autism. However, findings are mixed: researchers are yet to clarify exactly those aspects of self-processing which are atypical in autism and in what way they are atypical. To gain further insight into these issues, future studies should focus on whether and how different aspects of self-processing are related in both neurotypical and autistic individuals. Furthermore, the (a)typical development of different aspects of the self, as well as the impact of the self on different domains of cognitive processing, deserves further attention, requiring studies with participants in a wide age range. Finally, the use of neural measures of self-processing will be invaluable, given the recent hypothesis that autistic individuals may learn to compensate for difficulties by relying on neural pathways which differ from those utilised by neurotypical individuals. Autism Res 2019, 1-5. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Research has indicated that individuals with autism spectrum disorder show differences in the processing of self-relevant information. However, as yet, exactly how self-processing differs in autism remains unknown. To further our understanding of the self in autism, future studies should focus on the relationship between different aspects of self-processing, investigating brain activity as well as behaviour, across a wide range of ages. En ligne : http://dx.doi.org/10.1002/aur.2200 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=411

The psychological impact of the COVID-19 pandemic on adults with autism: a survey study across three countries / Danna OOMEN in Molecular Autism, 12 (2021)  

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