Enhancing Diagnostic Follow-up and Care Coordination for Children with Autism in a Busy Resident Continuity Clinic: Leveraging the Electronic Health Record / Laleh BAHRAMI in Journal of Autism and Developmental Disorders, 55-3 (March 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.904-912 Titre : Enhancing Diagnostic Follow-up and Care Coordination for Children with Autism in a Busy Resident Continuity Clinic: Leveraging the Electronic Health Record Type de document : texte imprimé Auteurs : Laleh BAHRAMI, Auteur ; Cara T. MILLER, Auteur ; Holly MILLER, Auteur ; Kathryn L. CARLSON, Auteur ; Tori FOSTER, Auteur ; Abhinaya GANESH, Auteur ; David JOHNSON, Auteur ; Barron L. PATTERSON, Auteur ; Jeffrey F. HINE, Auteur Article en page(s) : p.904-912 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : A high-quality primary care clinic should provide clear action points and important care coordination for a child receiving a new diagnosis of autism spectrum disorder (ASD). Unfortunately, a substantial proportion of caregivers report little-to-no post-diagnosis support from their home clinics and primary care providers often report lack of training and resources in providing these supports. En ligne : https://doi.org/10.1007/s10803-024-06253-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548 [article] Enhancing Diagnostic Follow-up and Care Coordination for Children with Autism in a Busy Resident Continuity Clinic: Leveraging the Electronic Health Record [texte imprimé] / Laleh BAHRAMI, Auteur ; Cara T. MILLER, Auteur ; Holly MILLER, Auteur ; Kathryn L. CARLSON, Auteur ; Tori FOSTER, Auteur ; Abhinaya GANESH, Auteur ; David JOHNSON, Auteur ; Barron L. PATTERSON, Auteur ; Jeffrey F. HINE, Auteur . - p.904-912. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.904-912 Index. décimale : PER Périodiques Résumé : A high-quality primary care clinic should provide clear action points and important care coordination for a child receiving a new diagnosis of autism spectrum disorder (ASD). Unfortunately, a substantial proportion of caregivers report little-to-no post-diagnosis support from their home clinics and primary care providers often report lack of training and resources in providing these supports. En ligne : https://doi.org/10.1007/s10803-024-06253-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548

Identifying the unique determinants influencing rural families" engagement with an existing tele-assessment approach for autism identification: A qualitative study / Tori FOSTER ; Kemberlee BONNET ; Anna Kathleen SPITLER ; David SCHLUNDT ; Zachary WARREN in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1458-1468 Titre : Identifying the unique determinants influencing rural families" engagement with an existing tele-assessment approach for autism identification: A qualitative study Type de document : texte imprimé Auteurs : Tori FOSTER, Auteur ; Kemberlee BONNET, Auteur ; Anna Kathleen SPITLER, Auteur ; David SCHLUNDT, Auteur ; Zachary WARREN, Auteur Article en page(s) : p.1458-1468 Langues : Anglais (eng) Mots-clés : autism  health disparities  rural  tele-assessment Index. décimale : PER Périodiques Résumé : Accurate identification of autism is a pressing challenge for rural, medically underserved communities. Tele-assessment could address some barriers to care by increasing access to expert diagnosticians, but questions remain regarding how best to implement these approaches. To gather community input regarding rural families" perceptions and use of tele-assessment for autism identification, we conducted four focus groups with caregivers of children with autism (n = 22) and community service providers (n = 10) living and working in rural areas in the Southeast region of the United States. An iterative inductive/deductive approach guided qualitative data analysis. Coding reflected four core attitudes central to community perceptions, including (1) questions surrounding the validity (scientific legitimacy) of tele-mediated autism assessment; (2) level of trust in the evaluation process in general (and tele-assessment specifically); (3) beliefs about the feasibility of tele-assessment; and (4) concerns related to privacy. These attitudes and beliefs are influenced by determinants at multiple levels and stages, highlighting the need to adapt the existing tele-assessment approach by embedding implementation strategies that support multiple actors at each stage. This work identifies important targets for ensuring equitable access to tele-assessment for rural families.Lay abstract It is often difficult for families in rural communities to access autism evaluations for their children when they have concerns. Tele-assessment could make it easier for them to see specialists who give autism diagnoses, but we still need to figure out the best way to carry out these approaches. To understand how rural families view tele-assessment, as well as barriers they may face, we held focus groups with caregivers of children with autism and local service providers in the Southeastern United States. We met with 22 caregivers and 10 providers. We analyzed the discussions and found four key attitudes: (1) questions about whether autism assessment can really be done online; (2) level of trust in the evaluation process, especially tele-assessment; (3) beliefs about whether tele-assessment is practical for families; and (4) worries about privacy. These attitudes and beliefs are shaped by various factors at different stages, indicating that we need to improve tele-assessment by better supporting everyone involved at different stages of the tele-assessment process. This research highlights important areas for improvement to provide fair access to tele-assessment for rural families (e.g. creating education materials, conducting barrier counseling). En ligne : https://dx.doi.org/10.1177/13623613241307078 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Identifying the unique determinants influencing rural families" engagement with an existing tele-assessment approach for autism identification: A qualitative study [texte imprimé] / Tori FOSTER, Auteur ; Kemberlee BONNET, Auteur ; Anna Kathleen SPITLER, Auteur ; David SCHLUNDT, Auteur ; Zachary WARREN, Auteur . - p.1458-1468. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1458-1468 Mots-clés : autism  health disparities  rural  tele-assessment Index. décimale : PER Périodiques Résumé : Accurate identification of autism is a pressing challenge for rural, medically underserved communities. Tele-assessment could address some barriers to care by increasing access to expert diagnosticians, but questions remain regarding how best to implement these approaches. To gather community input regarding rural families" perceptions and use of tele-assessment for autism identification, we conducted four focus groups with caregivers of children with autism (n = 22) and community service providers (n = 10) living and working in rural areas in the Southeast region of the United States. An iterative inductive/deductive approach guided qualitative data analysis. Coding reflected four core attitudes central to community perceptions, including (1) questions surrounding the validity (scientific legitimacy) of tele-mediated autism assessment; (2) level of trust in the evaluation process in general (and tele-assessment specifically); (3) beliefs about the feasibility of tele-assessment; and (4) concerns related to privacy. These attitudes and beliefs are influenced by determinants at multiple levels and stages, highlighting the need to adapt the existing tele-assessment approach by embedding implementation strategies that support multiple actors at each stage. This work identifies important targets for ensuring equitable access to tele-assessment for rural families.Lay abstract It is often difficult for families in rural communities to access autism evaluations for their children when they have concerns. Tele-assessment could make it easier for them to see specialists who give autism diagnoses, but we still need to figure out the best way to carry out these approaches. To understand how rural families view tele-assessment, as well as barriers they may face, we held focus groups with caregivers of children with autism and local service providers in the Southeastern United States. We met with 22 caregivers and 10 providers. We analyzed the discussions and found four key attitudes: (1) questions about whether autism assessment can really be done online; (2) level of trust in the evaluation process, especially tele-assessment; (3) beliefs about whether tele-assessment is practical for families; and (4) worries about privacy. These attitudes and beliefs are shaped by various factors at different stages, indicating that we need to improve tele-assessment by better supporting everyone involved at different stages of the tele-assessment process. This research highlights important areas for improvement to provide fair access to tele-assessment for rural families (e.g. creating education materials, conducting barrier counseling). En ligne : https://dx.doi.org/10.1177/13623613241307078 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Measuring Developmental Delays: Comparison of Parent Report and Direct Testing / Sally OZONOFF in Journal of Autism and Developmental Disorders, 55-12 (December 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-12 (December 2025) . - p.4492-4498 Titre : Measuring Developmental Delays: Comparison of Parent Report and Direct Testing Type de document : texte imprimé Auteurs : Sally OZONOFF, Auteur ; Devon GANGI, Auteur ; Laura CORONA, Auteur ; Tori FOSTER, Auteur ; Monique Moore HILL, Auteur ; Makayla HONAKER, Auteur ; Shyeena MAQBOOL, Auteur ; Rachel NI, Auteur ; Amy NICHOLSON, Auteur ; Chandni PARIKH, Auteur ; Caitlin STONE, Auteur ; Anna Kathleen SPITLER, Auteur ; Amy SWANSON, Auteur ; Alison VEHORN, Auteur ; Liliana WAGNER, Auteur ; Amy WEITLAUF, Auteur ; Zachary WARREN, Auteur Article en page(s) : p.4492-4498 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Developmental assessment is part of a comprehensive autism evaluation. During in-person evaluations, developmental assessment is completed via direct testing by an examiner. In telehealth evaluations, developmental assessment relies on caregiver-report instruments. This study examined correspondence between caregiver report and direct testing of developmental skills. En ligne : https://doi.org/10.1007/s10803-024-06292-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=572 [article] Measuring Developmental Delays: Comparison of Parent Report and Direct Testing [texte imprimé] / Sally OZONOFF, Auteur ; Devon GANGI, Auteur ; Laura CORONA, Auteur ; Tori FOSTER, Auteur ; Monique Moore HILL, Auteur ; Makayla HONAKER, Auteur ; Shyeena MAQBOOL, Auteur ; Rachel NI, Auteur ; Amy NICHOLSON, Auteur ; Chandni PARIKH, Auteur ; Caitlin STONE, Auteur ; Anna Kathleen SPITLER, Auteur ; Amy SWANSON, Auteur ; Alison VEHORN, Auteur ; Liliana WAGNER, Auteur ; Amy WEITLAUF, Auteur ; Zachary WARREN, Auteur . - p.4492-4498. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-12 (December 2025) . - p.4492-4498 Index. décimale : PER Périodiques Résumé : Developmental assessment is part of a comprehensive autism evaluation. During in-person evaluations, developmental assessment is completed via direct testing by an examiner. In telehealth evaluations, developmental assessment relies on caregiver-report instruments. This study examined correspondence between caregiver report and direct testing of developmental skills. En ligne : https://doi.org/10.1007/s10803-024-06292-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=572

A Randomized Trial of the Accuracy of Novel Telehealth Instruments for the Assessment of Autism in Toddlers / Laura L. CORONA in Journal of Autism and Developmental Disorders, 54-6 (June 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2069-2080 Titre : A Randomized Trial of the Accuracy of Novel Telehealth Instruments for the Assessment of Autism in Toddlers Type de document : texte imprimé Auteurs : Laura L. CORONA, Auteur ; Liliana WAGNER, Auteur ; Madison HOOPER, Auteur ; Amy WEITLAUF, Auteur ; Tori FOSTER, Auteur ; Jeffrey F. HINE, Auteur ; Alexandra MICELI, Auteur ; Amy NICHOLSON, Auteur ; Caitlin STONE, Auteur ; Alison VEHORN, Auteur ; Zachary WARREN, Auteur Article en page(s) : p.2069-2080 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Purpose: Telemedicine approaches to autism (ASD) assessment have become increasingly common, yet few validated tools exist for this purpose. This study presents results from a clinical trial investigating two approaches to tele-assessment for ASD in toddlers. Methods: 144 children (29% female) between 17 and 36 months of age (mean = 2.5 years, SD = 0.33 years) completed tele-assessment using either the TELE-ASD-PEDS (TAP) or an experimental remote administration of the Screening Tool for Autism in Toddlers (STAT). All children then completed traditional in-person assessment with a blinded clinician, using the Mullen Scales of Early Learning (MSEL), Vineland Adaptive Behavior Scales, 3rd Edition (VABS-3), and Autism Diagnostic Observation Schedule (ADOS-2). Both tele-assessment and in-person assessment included a clinical interview with caregivers. Results: Results indicated diagnostic agreement for 92% of participants. Children diagnosed with ASD following in-person assessment who were missed by tele-assessment (n = 8) had lower scores on tele- and in-person ASD assessment tools. Children inaccurately identified as having ASD by tele-assessment (n = 3) were younger than other children and had higher developmental and adaptive behavior scores than children accurately diagnosed with ASD by tele-assessment. Diagnostic certainty was highest for children correctly identified as having ASD via tele-assessment. Clinicians and caregivers reported satisfaction with tele-assessment procedures. Conclusion: This work provides additional support for the use of tele-assessment for identification of ASD in toddlers, with both clinicians and families reporting broad acceptability. Continued development and refinement of tele-assessment procedures is recommended to optimize this approach for the needs of varying clinicians, families, and circumstances. En ligne : https://doi.org/10.1007/s10803-023-05908-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] A Randomized Trial of the Accuracy of Novel Telehealth Instruments for the Assessment of Autism in Toddlers [texte imprimé] / Laura L. CORONA, Auteur ; Liliana WAGNER, Auteur ; Madison HOOPER, Auteur ; Amy WEITLAUF, Auteur ; Tori FOSTER, Auteur ; Jeffrey F. HINE, Auteur ; Alexandra MICELI, Auteur ; Amy NICHOLSON, Auteur ; Caitlin STONE, Auteur ; Alison VEHORN, Auteur ; Zachary WARREN, Auteur . - p.2069-2080. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2069-2080 Index. décimale : PER Périodiques Résumé : Purpose: Telemedicine approaches to autism (ASD) assessment have become increasingly common, yet few validated tools exist for this purpose. This study presents results from a clinical trial investigating two approaches to tele-assessment for ASD in toddlers. Methods: 144 children (29% female) between 17 and 36 months of age (mean = 2.5 years, SD = 0.33 years) completed tele-assessment using either the TELE-ASD-PEDS (TAP) or an experimental remote administration of the Screening Tool for Autism in Toddlers (STAT). All children then completed traditional in-person assessment with a blinded clinician, using the Mullen Scales of Early Learning (MSEL), Vineland Adaptive Behavior Scales, 3rd Edition (VABS-3), and Autism Diagnostic Observation Schedule (ADOS-2). Both tele-assessment and in-person assessment included a clinical interview with caregivers. Results: Results indicated diagnostic agreement for 92% of participants. Children diagnosed with ASD following in-person assessment who were missed by tele-assessment (n = 8) had lower scores on tele- and in-person ASD assessment tools. Children inaccurately identified as having ASD by tele-assessment (n = 3) were younger than other children and had higher developmental and adaptive behavior scores than children accurately diagnosed with ASD by tele-assessment. Diagnostic certainty was highest for children correctly identified as having ASD via tele-assessment. Clinicians and caregivers reported satisfaction with tele-assessment procedures. Conclusion: This work provides additional support for the use of tele-assessment for identification of ASD in toddlers, with both clinicians and families reporting broad acceptability. Continued development and refinement of tele-assessment procedures is recommended to optimize this approach for the needs of varying clinicians, families, and circumstances. En ligne : https://doi.org/10.1007/s10803-023-05908-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

Screening Options in Autism Telediagnosis: Examination of TAP, M-CHAT-R, and DCI Concordance and Predictive Value in a Telediagnostic Model / Amy S. WEITLAUF in Journal of Autism and Developmental Disorders, 55-9 (September 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-9 (September 2025) . - p.3129-3139 Titre : Screening Options in Autism Telediagnosis: Examination of TAP, M-CHAT-R, and DCI Concordance and Predictive Value in a Telediagnostic Model Type de document : texte imprimé Auteurs : Amy S. WEITLAUF, Auteur ; Tori FOSTER, Auteur ; James C. SLAUGHTER, Auteur ; Mary FLECK, Auteur ; Jill HARRIS, Auteur ; Caroline N. COFFIELD, Auteur ; Kathleen SIMCOE, Auteur ; Jenny BAGGETT, Auteur ; Alacia STAINBROOK, Auteur ; Zachary E. WARREN, Auteur Article en page(s) : p.3129-3139 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Tele-assessment of autism in early childhood has increased. However, it is unclear how autism screening tools (M-CHAT-R, DCI) function as part of tele-assessment and relate to a commonly used tele-assessment instrument, the TAP. 361 families from a clinically referred sample of children (mean age: 27.63 months, sd = 4.86 months) completed the M-CHAT-R and DCI prior to a tele-assessment visit utilizing the TAP. Data was collected on demographic background, measure scores, and diagnostic outcome. No significant differences in measure scores or diagnostic findings emerged in age at referral, age group, age at diagnosis, or child sex, ethnicity, or racial background. The M-CHAT-R and DCI correlated strongly and positively. Older age was associated with lower risk scores on screening instruments. Children with autism had significantly higher scores on all screener and subdomain scores, with the exception of DCI Behavior. Subdomains of the DCI emerged as the strongest predictor of diagnostic outcome. Both the DCI total score and the M-CHAT-R significantly related to diagnostic outcome and TAP score in this tele-assessment model, regardless of child age or sex. Findings also support use of the DCI for children under 24 months of age. En ligne : https://doi.org/10.1007/s10803-024-06427-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566 [article] Screening Options in Autism Telediagnosis: Examination of TAP, M-CHAT-R, and DCI Concordance and Predictive Value in a Telediagnostic Model [texte imprimé] / Amy S. WEITLAUF, Auteur ; Tori FOSTER, Auteur ; James C. SLAUGHTER, Auteur ; Mary FLECK, Auteur ; Jill HARRIS, Auteur ; Caroline N. COFFIELD, Auteur ; Kathleen SIMCOE, Auteur ; Jenny BAGGETT, Auteur ; Alacia STAINBROOK, Auteur ; Zachary E. WARREN, Auteur . - p.3129-3139. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-9 (September 2025) . - p.3129-3139 Index. décimale : PER Périodiques Résumé : Tele-assessment of autism in early childhood has increased. However, it is unclear how autism screening tools (M-CHAT-R, DCI) function as part of tele-assessment and relate to a commonly used tele-assessment instrument, the TAP. 361 families from a clinically referred sample of children (mean age: 27.63 months, sd = 4.86 months) completed the M-CHAT-R and DCI prior to a tele-assessment visit utilizing the TAP. Data was collected on demographic background, measure scores, and diagnostic outcome. No significant differences in measure scores or diagnostic findings emerged in age at referral, age group, age at diagnosis, or child sex, ethnicity, or racial background. The M-CHAT-R and DCI correlated strongly and positively. Older age was associated with lower risk scores on screening instruments. Children with autism had significantly higher scores on all screener and subdomain scores, with the exception of DCI Behavior. Subdomains of the DCI emerged as the strongest predictor of diagnostic outcome. Both the DCI total score and the M-CHAT-R significantly related to diagnostic outcome and TAP score in this tele-assessment model, regardless of child age or sex. Findings also support use of the DCI for children under 24 months of age. En ligne : https://doi.org/10.1007/s10803-024-06427-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566

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