Anxiety in people diagnosed with autism and intellectual disability: Recognition and phenomenology / Sissel Berge HELVERSCHOU in Research in Autism Spectrum Disorders, 5-1 (January-March 2011)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 5-1 (January-March 2011) . - p.377-387 Titre : Anxiety in people diagnosed with autism and intellectual disability: Recognition and phenomenology Type de document : Texte imprimé et/ou numérique Auteurs : Sissel Berge HELVERSCHOU, Auteur ; Harald MARTINSEN, Auteur Année de publication : 2011 Article en page(s) : p.377-387 Langues : Anglais (eng) Mots-clés : Autism Intellectual-disability Anxiety-disorders Psychiatric-disorders Adults Index. décimale : PER Périodiques Résumé : Anxiety seems to occur frequently in individuals with autism, but varying prevalence estimates indicate uncertainties in identifying anxiety, especially in those with intellectual disability (ID). The present study explores the recognition of anxiety symptoms and aims to provide suggestions for the assessment of anxiety in individuals with autism and ID. Two separate samples, a community sample of 62 individuals and a clinical sample of 9 individuals, were assessed with anxiety items from a screening checklist. Each item's scores were analyzed. In addition, in the clinical sample, checklist results were compared with clinical assessments. The results indicate that anxiety can be recognized by symptoms similar to those in non-autistic individuals, but signs of physiological arousal seem difficult to recognize in this population. The results imply inclusion of general adjustment problems in order to identify individuals with anxiety problems by using a checklist. For diagnostic purposes, the use of an individual anxiety assessment seems indicated. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.05.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=111 [article] Anxiety in people diagnosed with autism and intellectual disability: Recognition and phenomenology [Texte imprimé et/ou numérique] / Sissel Berge HELVERSCHOU, Auteur ; Harald MARTINSEN, Auteur . - 2011 . - p.377-387. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 5-1 (January-March 2011) . - p.377-387 Mots-clés : Autism Intellectual-disability Anxiety-disorders Psychiatric-disorders Adults Index. décimale : PER Périodiques Résumé : Anxiety seems to occur frequently in individuals with autism, but varying prevalence estimates indicate uncertainties in identifying anxiety, especially in those with intellectual disability (ID). The present study explores the recognition of anxiety symptoms and aims to provide suggestions for the assessment of anxiety in individuals with autism and ID. Two separate samples, a community sample of 62 individuals and a clinical sample of 9 individuals, were assessed with anxiety items from a screening checklist. Each item's scores were analyzed. In addition, in the clinical sample, checklist results were compared with clinical assessments. The results indicate that anxiety can be recognized by symptoms similar to those in non-autistic individuals, but signs of physiological arousal seem difficult to recognize in this population. The results imply inclusion of general adjustment problems in order to identify individuals with anxiety problems by using a checklist. For diagnostic purposes, the use of an individual anxiety assessment seems indicated. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.05.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=111

Applicability and Psychometric Properties of General Mental Health Assessment Tools in Autistic People: A Systematic Review / Arvid Nikolai KILDAHL ; Sabine KAISER ; Brynhildur AXELSDOTTIR ; Michael G. AMAN ; Sissel Berge HELVERSCHOU in Journal of Autism and Developmental Disorders, 55-5 (May 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-5 (May 2025) . - p.1713-1726 Titre : Applicability and Psychometric Properties of General Mental Health Assessment Tools in Autistic People: A Systematic Review Type de document : Texte imprimé et/ou numérique Auteurs : Arvid Nikolai KILDAHL, Auteur ; Sabine KAISER, Auteur ; Brynhildur AXELSDOTTIR, Auteur ; Michael G. AMAN, Auteur ; Sissel Berge HELVERSCHOU, Auteur Article en page(s) : p.1713-1726 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : In recent years, there has been a proliferation of instruments for assessing mental health (MH) among autistic people. This study aimed to review the psychometric properties of broadband instruments used to assess MH problems among autistic people. In accordance with the PRISMA guidelines (PROSPERO: CRD42022316571) we searched the APA PsycINFO via Ovid, Ovid MEDLINE, Ovid Embase and the Web of Science via Clarivate databases from 1980 to March 2022, with an updated search in January 2024, to identify very recent empirical studies. Independent reviewers evaluated the titles and abstracts of the retrieved records (n = 11,577) and full-text articles (n = 1000). Data were extracted from eligible studies, and the quality of the included papers was appraised. In all, 164empirical articles reporting on 35 instruments were included. The review showed variable evidence of reliability and validity of the various instruments. Among the instruments reported in more than one study, the Aberrant Behavior Checklist had consistently good or excellent psychometric evidence. The reliability and validity of other instruments, including: the Developmental Behavior Checklist, Emotion Dysregulation Inventory, Eyberg Child Behavior Inventory, Autism Spectrum Disorder-Comorbid for Children Scale, and Psychopathology in Autism Checklist, were less documented. There is a need for a greater evidence-base for MH assessment tools for autistic people. En ligne : https://doi.org/10.1007/s10803-024-06324-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=554 [article] Applicability and Psychometric Properties of General Mental Health Assessment Tools in Autistic People: A Systematic Review [Texte imprimé et/ou numérique] / Arvid Nikolai KILDAHL, Auteur ; Sabine KAISER, Auteur ; Brynhildur AXELSDOTTIR, Auteur ; Michael G. AMAN, Auteur ; Sissel Berge HELVERSCHOU, Auteur . - p.1713-1726. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-5 (May 2025) . - p.1713-1726 Index. décimale : PER Périodiques Résumé : In recent years, there has been a proliferation of instruments for assessing mental health (MH) among autistic people. This study aimed to review the psychometric properties of broadband instruments used to assess MH problems among autistic people. In accordance with the PRISMA guidelines (PROSPERO: CRD42022316571) we searched the APA PsycINFO via Ovid, Ovid MEDLINE, Ovid Embase and the Web of Science via Clarivate databases from 1980 to March 2022, with an updated search in January 2024, to identify very recent empirical studies. Independent reviewers evaluated the titles and abstracts of the retrieved records (n = 11,577) and full-text articles (n = 1000). Data were extracted from eligible studies, and the quality of the included papers was appraised. In all, 164empirical articles reporting on 35 instruments were included. The review showed variable evidence of reliability and validity of the various instruments. Among the instruments reported in more than one study, the Aberrant Behavior Checklist had consistently good or excellent psychometric evidence. The reliability and validity of other instruments, including: the Developmental Behavior Checklist, Emotion Dysregulation Inventory, Eyberg Child Behavior Inventory, Autism Spectrum Disorder-Comorbid for Children Scale, and Psychopathology in Autism Checklist, were less documented. There is a need for a greater evidence-base for MH assessment tools for autistic people. En ligne : https://doi.org/10.1007/s10803-024-06324-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=554

Assessment of anxiety and behavior disorders among autistic children and youths with intellectual and developmental disabilities / Einar Røshol HEIERVANG ; Børge MATHIASSEN ; Michael G. AMAN ; Sabine KAISER ; Sissel Berge HELVERSCHOU in Research in Autism, 121-122 (March-April 2025)  

Public ISBD [article]  inResearch in Autism > 121-122 (March-April 2025) . - 202550 Titre : Assessment of anxiety and behavior disorders among autistic children and youths with intellectual and developmental disabilities Type de document : Texte imprimé et/ou numérique Auteurs : Einar Røshol HEIERVANG, Auteur ; Børge MATHIASSEN, Auteur ; Michael G. AMAN, Auteur ; Sabine KAISER, Auteur ; Sissel Berge HELVERSCHOU, Auteur Article en page(s) : 202550 Langues : Anglais (eng) Mots-clés : Adolescence  Assessment  Autism  Childhood  Measure  Mental health disorder Index. décimale : PER Périodiques Résumé : Background There is a debate regarding the use of instruments that were originally developed for neurotypical populations and subsequently applied to neurodiverse populations. One concern is the risk of downplaying the complex presentation of mental health (MH) symptoms in individuals who are neurodiverse. In this study, we sought to explore MH disorder construct convergence across broad-band instruments developed for people with autism (ASD) or developmental disabilities (IDDs) (i.e., ASD/IDD instruments) and a non-ASD/IDD instrument based on established diagnostic taxonomy. Methods In total, 121 children with IDDs (full scale IQ M =80.8, SD=20.6), including those with ASD, participated. The conceptual overlap between emotional and behavioral subscales from the Developmental Behavior Checklist (DBC), Aberrant Behavior Checklist (ABC), and Psychopathology in Autism Checklist (PAC), on the one hand and emotional and behavioral diagnoses derived from the Developmental and Well-Being Assessment interview (DAWBA), on the other hand, was examined. Results Subscales from the DBC, ABC, and PAC showed adequate and good correspondence with anxiety disorders and oppositional conduct disorder diagnoses, respectively, derived from the DAWBA. There were meaningful correlations between lower adaptive communication skills/IQ and ASD/IDD instrument subscales reflecting stereotyped and repetitive motor movements, pica, and self-injurious behavior. Conclusion The ASD/IDD tools showed acceptable MH disorder construct convergence with a non-ASD/IDD diagnostic interview. As they perform well, instruments developed for people with ASD/IDD should be given priority in initial MH assessments. En ligne : https://doi.org/10.1016/j.reia.2025.202550 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] Assessment of anxiety and behavior disorders among autistic children and youths with intellectual and developmental disabilities [Texte imprimé et/ou numérique] / Einar Røshol HEIERVANG, Auteur ; Børge MATHIASSEN, Auteur ; Michael G. AMAN, Auteur ; Sabine KAISER, Auteur ; Sissel Berge HELVERSCHOU, Auteur . - 202550. Langues : Anglais (eng) in Research in Autism > 121-122 (March-April 2025) . - 202550 Mots-clés : Adolescence  Assessment  Autism  Childhood  Measure  Mental health disorder Index. décimale : PER Périodiques Résumé : Background There is a debate regarding the use of instruments that were originally developed for neurotypical populations and subsequently applied to neurodiverse populations. One concern is the risk of downplaying the complex presentation of mental health (MH) symptoms in individuals who are neurodiverse. In this study, we sought to explore MH disorder construct convergence across broad-band instruments developed for people with autism (ASD) or developmental disabilities (IDDs) (i.e., ASD/IDD instruments) and a non-ASD/IDD instrument based on established diagnostic taxonomy. Methods In total, 121 children with IDDs (full scale IQ M =80.8, SD=20.6), including those with ASD, participated. The conceptual overlap between emotional and behavioral subscales from the Developmental Behavior Checklist (DBC), Aberrant Behavior Checklist (ABC), and Psychopathology in Autism Checklist (PAC), on the one hand and emotional and behavioral diagnoses derived from the Developmental and Well-Being Assessment interview (DAWBA), on the other hand, was examined. Results Subscales from the DBC, ABC, and PAC showed adequate and good correspondence with anxiety disorders and oppositional conduct disorder diagnoses, respectively, derived from the DAWBA. There were meaningful correlations between lower adaptive communication skills/IQ and ASD/IDD instrument subscales reflecting stereotyped and repetitive motor movements, pica, and self-injurious behavior. Conclusion The ASD/IDD tools showed acceptable MH disorder construct convergence with a non-ASD/IDD diagnostic interview. As they perform well, instruments developed for people with ASD/IDD should be given priority in initial MH assessments. En ligne : https://doi.org/10.1016/j.reia.2025.202550 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

Autistic Characteristics in a Nationally Representative Clinical Sample of Adolescents Seeking Medical Gender-Affirming Treatment in Norway / Linda W. David ; Nina STENBERG ; Trond H. DISETH ; Sissel Berge HELVERSCHOU ; Cecilie Bjertness Nyquist ; Roald A. ØIEN ; Anne Waehre in Journal of Autism and Developmental Disorders, 55-1 (January 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.147-157 Titre : Autistic Characteristics in a Nationally Representative Clinical Sample of Adolescents Seeking Medical Gender-Affirming Treatment in Norway : Journal of Autism and Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Linda W. David, Auteur ; Nina STENBERG, Auteur ; Trond H. DISETH, Auteur ; Sissel Berge HELVERSCHOU, Auteur ; Cecilie Bjertness Nyquist, Auteur ; Roald A. ØIEN, Auteur ; Anne Waehre, Auteur Article en page(s) : p.147-157 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Several studies have reported on the intersection of autism and gender incongruence (GI) in clinical populations. This study aims to investigate autistic characteristics and registered autism spectrum diagnoses (ASD) in a clinical cohort of 83 adolescents referred to the National Gender Team for Children and Adolescents in Norway during 2020. En ligne : https://doi.org/10.1007/s10803-023-06181-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546 [article] Autistic Characteristics in a Nationally Representative Clinical Sample of Adolescents Seeking Medical Gender-Affirming Treatment in Norway : Journal of Autism and Developmental Disorders [Texte imprimé et/ou numérique] / Linda W. David, Auteur ; Nina STENBERG, Auteur ; Trond H. DISETH, Auteur ; Sissel Berge HELVERSCHOU, Auteur ; Cecilie Bjertness Nyquist, Auteur ; Roald A. ØIEN, Auteur ; Anne Waehre, Auteur . - p.147-157. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.147-157 Index. décimale : PER Périodiques Résumé : Several studies have reported on the intersection of autism and gender incongruence (GI) in clinical populations. This study aims to investigate autistic characteristics and registered autism spectrum diagnoses (ASD) in a clinical cohort of 83 adolescents referred to the National Gender Team for Children and Adolescents in Norway during 2020. En ligne : https://doi.org/10.1007/s10803-023-06181-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546

Correction To: Schizophrenia in Autistic People with Intellectual Disabilities. Treatment and Interventions / Trine Lise BAKKEN in Journal of Autism and Developmental Disorders, 54-10 (October 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3973-3973 Titre : Correction To: Schizophrenia in Autistic People with Intellectual Disabilities. Treatment and Interventions Type de document : Texte imprimé et/ou numérique Auteurs : Trine Lise BAKKEN, Auteur ; Jane Margrete Askeland HELLERUD, Auteur ; Arvid Nikolai KILDAHL, Auteur ; Ann Magritt SOLHEIM-INDERBERG, Auteur ; Oddbjørn HOVE, Auteur ; Sissel Berge HELVERSCHOU, Auteur Article en page(s) : p.3973-3973 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06430-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536 [article] Correction To: Schizophrenia in Autistic People with Intellectual Disabilities. Treatment and Interventions [Texte imprimé et/ou numérique] / Trine Lise BAKKEN, Auteur ; Jane Margrete Askeland HELLERUD, Auteur ; Arvid Nikolai KILDAHL, Auteur ; Ann Magritt SOLHEIM-INDERBERG, Auteur ; Oddbjørn HOVE, Auteur ; Sissel Berge HELVERSCHOU, Auteur . - p.3973-3973. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3973-3973 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06430-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536

Exploring the relationship between challenging behaviour and mental health disorder in autistic individuals with intellectual disabilities / Arvid Nikolai KILDAHL in Research in Autism Spectrum Disorders, 104 (June 2023)  

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General Measurement Tools for Assessing Mental Health Problems Among Children and Adolescents with an Intellectual Disability: A Systematic Review / Marianne BERG HALVORSEN in Journal of Autism and Developmental Disorders, 53-1 (January 2023)  

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Offending profiles of individuals with autism spectrum disorder: A study of all individuals with autism spectrum disorder examined by the forensic psychiatric service in Norway between 2000 and 2010 / Sissel Berge HELVERSCHOU in Autism, 19-7 (October 2015)  

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Post-traumatic stress disorder and experiences involving violence or sexual abuse in a clinical sample of autistic adults with intellectual disabilities: Prevalence and clinical correlates / Arvid Nikolai KILDAHL in Autism, 28-5 (May 2024)  

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The challenges of applying and assessing cognitive behavioural therapy for individuals on the autism spectrum in a clinical setting: a case study series / Sissel Berge HELVERSCHOU in Good Autism Practice - GAP, 14-1 (May 2013)

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The Psychopathology in Autism Checklist (PAC): A pilot study / Sissel Berge HELVERSCHOU in Research in Autism Spectrum Disorders, 3-1 (January 2009)  

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