Expanding quality of life assessment for autistic adults in mid- to late-life: Measure development and validation / Hannah E. VINER in Research in Autism, 135 (July 2026)  

Public ISBD [article]  inResearch in Autism > 135 (July 2026) . - 202933 Titre : Expanding quality of life assessment for autistic adults in mid- to late-life: Measure development and validation Type de document : texte imprimé Auteurs : Hannah E. VINER, Auteur ; Philipp SISCHKA, Auteur ; Holly RADFORD, Auteur ; Anna E. KORNADT, Auteur Année de publication : 2026 Article en page(s) : 202933 Langues : Anglais (eng) Mots-clés : Autism  PCA  Neurodiversity  Questionnaire development  Ageing  Quality of life Index. décimale : PER Périodiques Résumé : Background and objectives Quality of life (QoL) has been identified as a key research priority by the autism community. Previous qualitative research has highlighted autism-specific QoL domains which are not captured by existing QoL measures. Accurately measuring QoL across the lifespan is essential to providing appropriate support and services which enhance QoL and ageing experiences. This study aimed to develop and validate a novel Quality of Life for Autistic Adults (QoL-AA) measure reflecting these underrepresented or absent domains. Research design and methods A total of 407 autistic adults aged 40–76 years from the United Kingdom, Germany, and Luxembourg completed an online questionnaire including 15 new QoL items, established QoL questionnaires, and measures of mental health and loneliness. Results Principal Component Analysis identified three components: Accessibility and Acceptance, Interpersonal Connection and Support, and Control over Daily Life. As expected, these components correlated positively with existing QoL measures and negatively with mental health and loneliness measures. The components explained significant additional variance in depression, anxiety, perceived stress, and loneliness, beyond existing QoL measures. Individual components demonstrated differential associations with each outcome and can be used as independent modules. Discussion and implications The resulting QoL-AA measure, available in English, French, and German, provides initial validation of a tool addressing QoL domains identified as important by autistic adults in mid- to late-life, supporting a more comprehensive assessment of autistic adults’ QoL in later life. En ligne : https://doi.org/10.1016/j.reia.2026.202933 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 [article] Expanding quality of life assessment for autistic adults in mid- to late-life: Measure development and validation [texte imprimé] / Hannah E. VINER, Auteur ; Philipp SISCHKA, Auteur ; Holly RADFORD, Auteur ; Anna E. KORNADT, Auteur . - 2026 . - 202933. Langues : Anglais (eng) in Research in Autism > 135 (July 2026) . - 202933 Mots-clés : Autism  PCA  Neurodiversity  Questionnaire development  Ageing  Quality of life Index. décimale : PER Périodiques Résumé : Background and objectives Quality of life (QoL) has been identified as a key research priority by the autism community. Previous qualitative research has highlighted autism-specific QoL domains which are not captured by existing QoL measures. Accurately measuring QoL across the lifespan is essential to providing appropriate support and services which enhance QoL and ageing experiences. This study aimed to develop and validate a novel Quality of Life for Autistic Adults (QoL-AA) measure reflecting these underrepresented or absent domains. Research design and methods A total of 407 autistic adults aged 40–76 years from the United Kingdom, Germany, and Luxembourg completed an online questionnaire including 15 new QoL items, established QoL questionnaires, and measures of mental health and loneliness. Results Principal Component Analysis identified three components: Accessibility and Acceptance, Interpersonal Connection and Support, and Control over Daily Life. As expected, these components correlated positively with existing QoL measures and negatively with mental health and loneliness measures. The components explained significant additional variance in depression, anxiety, perceived stress, and loneliness, beyond existing QoL measures. Individual components demonstrated differential associations with each outcome and can be used as independent modules. Discussion and implications The resulting QoL-AA measure, available in English, French, and German, provides initial validation of a tool addressing QoL domains identified as important by autistic adults in mid- to late-life, supporting a more comprehensive assessment of autistic adults’ QoL in later life. En ligne : https://doi.org/10.1016/j.reia.2026.202933 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588

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