Brief Report: Recruitment and Retention of Minority Children for Autism Research / Irina ZAMORA in Journal of Autism and Developmental Disorders, 46-2 (February 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.698-703 Titre : Brief Report: Recruitment and Retention of Minority Children for Autism Research Type de document : Texte imprimé et/ou numérique Auteurs : Irina ZAMORA, Auteur ; Marian E. WILLIAMS, Auteur ; Marcia HIGAREDA, Auteur ; Barbara Y. WHEELER, Auteur ; Pat LEVITT, Auteur Année de publication : 2016 Article en page(s) : p.698-703 Langues : Anglais (eng) Mots-clés : Minorités  Autism spectrum disorder  Recruitment  Latino  Genetic research Index. décimale : PER Périodiques Résumé : Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1–17, 2002; Kelly et al. in J Nat Med Assoc 97:777–783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. http://orwh.od.nih.gov/research/inclusion/reports.asp , 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5–17 years, with ASD; 82.5 % of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing. En ligne : http://dx.doi.org/10.1007/s10803-015-2603-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280 [article] Brief Report: Recruitment and Retention of Minority Children for Autism Research [Texte imprimé et/ou numérique] / Irina ZAMORA, Auteur ; Marian E. WILLIAMS, Auteur ; Marcia HIGAREDA, Auteur ; Barbara Y. WHEELER, Auteur ; Pat LEVITT, Auteur . - 2016 . - p.698-703. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.698-703 Mots-clés : Minorités  Autism spectrum disorder  Recruitment  Latino  Genetic research Index. décimale : PER Périodiques Résumé : Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1–17, 2002; Kelly et al. in J Nat Med Assoc 97:777–783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. http://orwh.od.nih.gov/research/inclusion/reports.asp , 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5–17 years, with ASD; 82.5 % of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing. En ligne : http://dx.doi.org/10.1007/s10803-015-2603-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280

How sex of children with autism spectrum disorders and access to treatment services relates to parental stress / Irina ZAMORA in Autism Research and Treatment, 2014 (2014)  

Public ISBD [article]  inAutism Research and Treatment > 2014 (2014) Titre : How sex of children with autism spectrum disorders and access to treatment services relates to parental stress Type de document : Texte imprimé et/ou numérique Auteurs : Irina ZAMORA, Auteur ; E. K. HARLEY, Auteur ; S. A. GREEN, Auteur ; K. SMITH, Auteur ; M. D. KIPKE, Auteur Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) experience higher levels of stress in comparison to parents of neurotypical children and consequently are more susceptible to negative health and social outcomes (Dunn et al., 2001). However, less is known about how individual child characteristics impact stress levels in parents of children with ASD. In this study, we examined the relationship between individual characteristics (i.e., sex) of children with ASD and parental stress. Access to comprehensive treatment services was also examined as a contributing factor to parental stress. Parenting stress was higher for parents of girls than for parents of boys, and for parents of girls (but not boys) fewer services predicted higher parental distress. Findings highlight the importance of providing parents of girls with ASD with more tailored support. En ligne : http://dx.doi.org/10.1155/2014/721418 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=332 [article] How sex of children with autism spectrum disorders and access to treatment services relates to parental stress [Texte imprimé et/ou numérique] / Irina ZAMORA, Auteur ; E. K. HARLEY, Auteur ; S. A. GREEN, Auteur ; K. SMITH, Auteur ; M. D. KIPKE, Auteur. Langues : Anglais (eng) in Autism Research and Treatment > 2014 (2014) Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) experience higher levels of stress in comparison to parents of neurotypical children and consequently are more susceptible to negative health and social outcomes (Dunn et al., 2001). However, less is known about how individual child characteristics impact stress levels in parents of children with ASD. In this study, we examined the relationship between individual characteristics (i.e., sex) of children with ASD and parental stress. Access to comprehensive treatment services was also examined as a contributing factor to parental stress. Parenting stress was higher for parents of girls than for parents of boys, and for parents of girls (but not boys) fewer services predicted higher parental distress. Findings highlight the importance of providing parents of girls with ASD with more tailored support. En ligne : http://dx.doi.org/10.1155/2014/721418 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=332

The Incredible Years® parent training intervention for Latino children on the autism spectrum / Irina ZAMORA in Good Autism Practice - GAP, 17-1 (May 2016)

Public ISBD [article]  inGood Autism Practice - GAP > 17-1 (May 2016) . - p.6-14 Titre : The Incredible Years® parent training intervention for Latino children on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Irina ZAMORA, Auteur ; Eliza K HARLEY, Auteur ; Bradley O HUDSON, Auteur Année de publication : 2016 Article en page(s) : p.6-14 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Irina Zamora is a Psychologist and Assistant Professor of Clinical Pediatrics at the USC University Center for Excellence in Developmental Disabilities (UCEDD) in Las Angeles, California. This is the first of two papers on the Incredible Years parent training intervention in this issue of the Good Autism Practice Journal. Here, the authors explore the use of this intervention in a community setting, and in a different culture — the Latino culture. Many interventions are designed and piloted in a controlled laboratory setting, and do not take into account the impact of culture and language. This paper is a good example of the work involved in adapting interventions ta the needs of those receiving them, and highlights some important points to bear in mmd when supporting people from other cultures. This is also relevant to us in the United Kingdom, where many cultures live close together. Different communities have different family dynamics, different ways of communication, and may not be receptive ta interventions and advice delivered by people outside of their community. This paper reminds us to be mindful of the background of those we support, and to find ways of reaching communities that may not be getting the support they need. The editors are interested in other submissions on this topic, particularly from groups working in different communities in the UK. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=289 [article] The Incredible Years® parent training intervention for Latino children on the autism spectrum [Texte imprimé et/ou numérique] / Irina ZAMORA, Auteur ; Eliza K HARLEY, Auteur ; Bradley O HUDSON, Auteur . - 2016 . - p.6-14. Langues : Anglais (eng) in Good Autism Practice - GAP > 17-1 (May 2016) . - p.6-14 Index. décimale : PER Périodiques Résumé : Irina Zamora is a Psychologist and Assistant Professor of Clinical Pediatrics at the USC University Center for Excellence in Developmental Disabilities (UCEDD) in Las Angeles, California. This is the first of two papers on the Incredible Years parent training intervention in this issue of the Good Autism Practice Journal. Here, the authors explore the use of this intervention in a community setting, and in a different culture — the Latino culture. Many interventions are designed and piloted in a controlled laboratory setting, and do not take into account the impact of culture and language. This paper is a good example of the work involved in adapting interventions ta the needs of those receiving them, and highlights some important points to bear in mmd when supporting people from other cultures. This is also relevant to us in the United Kingdom, where many cultures live close together. Different communities have different family dynamics, different ways of communication, and may not be receptive ta interventions and advice delivered by people outside of their community. This paper reminds us to be mindful of the background of those we support, and to find ways of reaching communities that may not be getting the support they need. The editors are interested in other submissions on this topic, particularly from groups working in different communities in the UK. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=289

---

1 (1 - 3 / 3)