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Parental Beliefs About Causes of Autism Spectrum Disorder: An Investigation of a Research Measure Using Principal Component Analysis / Christie M. BREWTON in Research in Autism Spectrum Disorders, 87 (September 2021)
[article]
Titre : Parental Beliefs About Causes of Autism Spectrum Disorder: An Investigation of a Research Measure Using Principal Component Analysis Type de document : Texte imprimé et/ou numérique Auteurs : Christie M. BREWTON, Auteur ; Sarah S. MIRE, Auteur ; Tammy D. TOLAR, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Milena A. KELLER-MARGULIS, Auteur ; Kimberly D. SCHOGER, Auteur ; Morgan M. MCNEEL, Auteur Article en page(s) : 101825 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Parental perceptions Etiology IPQ-R-ASD Principal component analysis Index. décimale : PER Périodiques Résumé : Background Parents’ perceptions about cause of autism spectrum disorder (ASD) influences their behaviors (e.g., treatment selection, vaccinations). The Revised Illness Perception Questionnaire for ASD (IPQ-R-ASD) offers a systematic way to measure parent parents’ perceptions of ASD cause, but further study is needed. Method Using principal component analysis (PCA), we investigated the factor structure of the IPQ-R-ASD Cause scale, which was administered online, in a sample of 326 North American parents (287 mothers [88 %], 39 fathers) raising children with confirmed ASD diagnoses. Results Six factors emerged on the Cause subscale and were labeled Personal Attributions, Parental Risk Factors, Environmental Risk Factors, Utero/Birth Stress, Biophysiological, and Metaphysical. Together, these factors accounted for a cumulative variance of 61.4 %. All items exceeded the minimum loading to be considered robust, and all but one loaded positively (i.e., “Will of God). Conclusions Understanding parental perceptions about the cause of their children’s ASD may help researchers and clinicians understand important aspects of raising a child with ASD, such as stress and coping responses, treatment selection and implementation, or shared decision-making about service use. Since measurement of causal beliefs is an important initial step in this direction, the current study is helpful in establishing the viability of a measure that may extend this line of research and, ultimately, the instrument’s clinical utility. En ligne : https://doi.org/10.1016/j.rasd.2021.101825 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458
in Research in Autism Spectrum Disorders > 87 (September 2021) . - 101825[article] Parental Beliefs About Causes of Autism Spectrum Disorder: An Investigation of a Research Measure Using Principal Component Analysis [Texte imprimé et/ou numérique] / Christie M. BREWTON, Auteur ; Sarah S. MIRE, Auteur ; Tammy D. TOLAR, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Milena A. KELLER-MARGULIS, Auteur ; Kimberly D. SCHOGER, Auteur ; Morgan M. MCNEEL, Auteur . - 101825.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 87 (September 2021) . - 101825
Mots-clés : Autism spectrum disorder Parental perceptions Etiology IPQ-R-ASD Principal component analysis Index. décimale : PER Périodiques Résumé : Background Parents’ perceptions about cause of autism spectrum disorder (ASD) influences their behaviors (e.g., treatment selection, vaccinations). The Revised Illness Perception Questionnaire for ASD (IPQ-R-ASD) offers a systematic way to measure parent parents’ perceptions of ASD cause, but further study is needed. Method Using principal component analysis (PCA), we investigated the factor structure of the IPQ-R-ASD Cause scale, which was administered online, in a sample of 326 North American parents (287 mothers [88 %], 39 fathers) raising children with confirmed ASD diagnoses. Results Six factors emerged on the Cause subscale and were labeled Personal Attributions, Parental Risk Factors, Environmental Risk Factors, Utero/Birth Stress, Biophysiological, and Metaphysical. Together, these factors accounted for a cumulative variance of 61.4 %. All items exceeded the minimum loading to be considered robust, and all but one loaded positively (i.e., “Will of God). Conclusions Understanding parental perceptions about the cause of their children’s ASD may help researchers and clinicians understand important aspects of raising a child with ASD, such as stress and coping responses, treatment selection and implementation, or shared decision-making about service use. Since measurement of causal beliefs is an important initial step in this direction, the current study is helpful in establishing the viability of a measure that may extend this line of research and, ultimately, the instrument’s clinical utility. En ligne : https://doi.org/10.1016/j.rasd.2021.101825 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 Understanding perceptions underlying the self-reported stress among parents of adolescents with autism spectrum disorder: Considerations for supporting families / Natalie S. RAFF in Research in Autism Spectrum Disorders, 84 (June 2021)
[article]
Titre : Understanding perceptions underlying the self-reported stress among parents of adolescents with autism spectrum disorder: Considerations for supporting families Type de document : Texte imprimé et/ou numérique Auteurs : Natalie S. RAFF, Auteur ; Sarah S. MIRE, Auteur ; Leslie FRANKEL, Auteur ; Samuel D. MCQUILLIN, Auteur ; Katherine LOVELAND, Auteur ; Andrew DAIRE, Auteur ; Stacey GREBE, Auteur ; Georgina ROSENBROCK, Auteur Article en page(s) : 101770 Langues : Anglais (eng) Mots-clés : Adolescents Autism spectrum disorder Family support IPQ-R-ASD Parenting stress Index. décimale : PER Périodiques Résumé : Background Parents raising adolescents with autism spectrum disorder (ASD) often report higher stress than other parents. The influence of parents’ internal, or cognitive, experiences (i.e., their own perceptions) on this elevated stress has yet to be explored. Addressing this gap may reveal opportunities for enhancing support for families by elucidating malleable targets for reducing parents’ self-reported stress and/or informing family-focused intervention. The Double ABCX Model of Family Adaptation is a framework for understanding how perceptions, social support, and personal resources (i.e., coping) may affect stress. Methods We examined parents’ perceptions about ASD, perceived support, and coping among 214 parents of adolescents with ASD. Regression analyses were used to explore whether these factors were associated with parenting stress among those raising adolescents with ASD. Moderation effects of positive coping on the relationship between parent perceptions and parenting stress were also explored. Results Parent perceptions about within family support, the extent of ASD symptom predictability, and treatment being able to ‘control’ ASD were related to parenting stress. However, positive coping did not moderate the relationship between these perceptions and parenting stress. Conclusions Study findings emphasize significant associations between specific parental perceptions and the self-reported stress among families of adolescents with ASD. Particularly important to parenting stress were how much parents’ perceived adequate support within the family, that treatment was useful for controlling their adolescent’s ASD, and that their adolescent’s symptoms were predictable. These findings suggest that the way parents think about their adolescents’ ASD and the adequacy of the support within their own families are associated with parenting stress, and therefore may serve as treatment targets for positively affecting whole family outcomes, as well as foundations for additional research. En ligne : https://doi.org/10.1016/j.rasd.2021.101770 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446
in Research in Autism Spectrum Disorders > 84 (June 2021) . - 101770[article] Understanding perceptions underlying the self-reported stress among parents of adolescents with autism spectrum disorder: Considerations for supporting families [Texte imprimé et/ou numérique] / Natalie S. RAFF, Auteur ; Sarah S. MIRE, Auteur ; Leslie FRANKEL, Auteur ; Samuel D. MCQUILLIN, Auteur ; Katherine LOVELAND, Auteur ; Andrew DAIRE, Auteur ; Stacey GREBE, Auteur ; Georgina ROSENBROCK, Auteur . - 101770.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 84 (June 2021) . - 101770
Mots-clés : Adolescents Autism spectrum disorder Family support IPQ-R-ASD Parenting stress Index. décimale : PER Périodiques Résumé : Background Parents raising adolescents with autism spectrum disorder (ASD) often report higher stress than other parents. The influence of parents’ internal, or cognitive, experiences (i.e., their own perceptions) on this elevated stress has yet to be explored. Addressing this gap may reveal opportunities for enhancing support for families by elucidating malleable targets for reducing parents’ self-reported stress and/or informing family-focused intervention. The Double ABCX Model of Family Adaptation is a framework for understanding how perceptions, social support, and personal resources (i.e., coping) may affect stress. Methods We examined parents’ perceptions about ASD, perceived support, and coping among 214 parents of adolescents with ASD. Regression analyses were used to explore whether these factors were associated with parenting stress among those raising adolescents with ASD. Moderation effects of positive coping on the relationship between parent perceptions and parenting stress were also explored. Results Parent perceptions about within family support, the extent of ASD symptom predictability, and treatment being able to ‘control’ ASD were related to parenting stress. However, positive coping did not moderate the relationship between these perceptions and parenting stress. Conclusions Study findings emphasize significant associations between specific parental perceptions and the self-reported stress among families of adolescents with ASD. Particularly important to parenting stress were how much parents’ perceived adequate support within the family, that treatment was useful for controlling their adolescent’s ASD, and that their adolescent’s symptoms were predictable. These findings suggest that the way parents think about their adolescents’ ASD and the adequacy of the support within their own families are associated with parenting stress, and therefore may serve as treatment targets for positively affecting whole family outcomes, as well as foundations for additional research. En ligne : https://doi.org/10.1016/j.rasd.2021.101770 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446