Centre d'Information et de documentation du CRA Rhône-Alpes
CRA
Informations pratiques
-
Adresse
Centre d'information et de documentation
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexHoraires
Lundi au Vendredi
9h00-12h00 13h30-16h00Contact
Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Résultat de la recherche
2 recherche sur le mot-clé 'Misconception'
Affiner la recherche Générer le flux rss de la recherche
Partager le résultat de cette recherche Faire une suggestion
Diagnostic and Therapeutic Misconception: Parental Expectations and Perspectives Regarding Genetic Testing for Developmental Disorders / I. TREMBLAY in Journal of Autism and Developmental Disorders, 49-1 (January 2019)
[article]
Titre : Diagnostic and Therapeutic Misconception: Parental Expectations and Perspectives Regarding Genetic Testing for Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : I. TREMBLAY, Auteur ; S. GRONDIN, Auteur ; A. M. LABERGE, Auteur ; D. COUSINEAU, Auteur ; L. CARMANT, Auteur ; A. ROWAN, Auteur ; A. JANVIER, Auteur Article en page(s) : p.363-375 Langues : Anglais (eng) Mots-clés : Array comparative genomic hybridization (aCGH) Autism spectrum disorder Chromosomal microarray (CMA) testing Genetic testing Global developmental delay Misconception Index. décimale : PER Périodiques Résumé : Parents' understanding/expectations regarding genetic testing for children with developmental disorders were explored. Within a month of testing, interviews were conducted with 57 parents. Many (74%) could not recall the nature of testing. Parents expected genetic testing to have positive impacts for the child (93%) and the family (98%), mainly to find the etiology and/or an intervention. Many parents (40%) reported not knowing their child's clinical diagnosis. They expected genetic testing would establish the diagnosis. Parents anticipated potential negative impacts of testing for children (78%) and families (87%), mainly finding another illness or not finding potential interventions. Abnormal results explaining the disorder were found in 9% of children. In summary, genetic results for developmental disorders are unlikely to meet parental expectations. En ligne : http://dx.doi.org/10.1007/s10803-018-3768-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=377
in Journal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.363-375[article] Diagnostic and Therapeutic Misconception: Parental Expectations and Perspectives Regarding Genetic Testing for Developmental Disorders [Texte imprimé et/ou numérique] / I. TREMBLAY, Auteur ; S. GRONDIN, Auteur ; A. M. LABERGE, Auteur ; D. COUSINEAU, Auteur ; L. CARMANT, Auteur ; A. ROWAN, Auteur ; A. JANVIER, Auteur . - p.363-375.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.363-375
Mots-clés : Array comparative genomic hybridization (aCGH) Autism spectrum disorder Chromosomal microarray (CMA) testing Genetic testing Global developmental delay Misconception Index. décimale : PER Périodiques Résumé : Parents' understanding/expectations regarding genetic testing for children with developmental disorders were explored. Within a month of testing, interviews were conducted with 57 parents. Many (74%) could not recall the nature of testing. Parents expected genetic testing to have positive impacts for the child (93%) and the family (98%), mainly to find the etiology and/or an intervention. Many parents (40%) reported not knowing their child's clinical diagnosis. They expected genetic testing would establish the diagnosis. Parents anticipated potential negative impacts of testing for children (78%) and families (87%), mainly finding another illness or not finding potential interventions. Abnormal results explaining the disorder were found in 9% of children. In summary, genetic results for developmental disorders are unlikely to meet parental expectations. En ligne : http://dx.doi.org/10.1007/s10803-018-3768-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=377 A grassroots investigation of ASD knowledge and stigma among teachers in Luang Prabang, Lao PDR / Hui Min LOW in Research in Autism Spectrum Disorders, 80 (February 2021)
[article]
Titre : A grassroots investigation of ASD knowledge and stigma among teachers in Luang Prabang, Lao PDR Type de document : Texte imprimé et/ou numérique Auteurs : Hui Min LOW, Auteur ; Tze Peng WONG, Auteur ; Lay Wah LEE, Auteur ; Somchay MAKESAVANH, Auteur ; Bountheing VONGSOUANGTHAM, Auteur ; Vikate PHANNALATH, Auteur ; Somphet SAN, Auteur ; Aznan CHE AHMAD, Auteur ; Ann Sien Sut LEE, Auteur Article en page(s) : p.101694 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Knowledge Stigma Teachers Lao PDR Misconception Low and middle income countries Inclusion Index. décimale : PER Périodiques Résumé : Background Teachers are important resource personnel in a low-middle income country. Understanding teachers’ knowledge on ASD is critical as teachers act as the knowledge broadcasters and the agents of social change and development in a community. Objective This study sought to conduct a grassroots investigation of ASD knowledge and stigma among preschool and primary school teachers in Luang Prabang, a Northern Province in the Lao’s People Democratic Republic (Lao PDR). Method Paper and pen surveys were conducted with teachers recruited from the Provincial Department of Education in Luang Prabang, the Lao PDR. One hundred and eighty teachers participated in the study by completing the Lao language translated version of Autism Stigma and Knowledge Questionnaire (ASK-Q). Results The findings revealed a much lower knowledge level among the Laotian teachers as compared to past ASK-Q findings from other countries, indicating the Lao PDR teachers’ lack of readiness to support young children with ASD in the local schools. Conclusions ASK-Q was shown as instrumental in investigating ASD knowledge and stigma at the grassroots level in the targeted community, in which the findings contributed a clear direction for knowledge transfer and mobilization in a low-middle income country. En ligne : https://doi.org/10.1016/j.rasd.2020.101694 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438
in Research in Autism Spectrum Disorders > 80 (February 2021) . - p.101694[article] A grassroots investigation of ASD knowledge and stigma among teachers in Luang Prabang, Lao PDR [Texte imprimé et/ou numérique] / Hui Min LOW, Auteur ; Tze Peng WONG, Auteur ; Lay Wah LEE, Auteur ; Somchay MAKESAVANH, Auteur ; Bountheing VONGSOUANGTHAM, Auteur ; Vikate PHANNALATH, Auteur ; Somphet SAN, Auteur ; Aznan CHE AHMAD, Auteur ; Ann Sien Sut LEE, Auteur . - p.101694.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 80 (February 2021) . - p.101694
Mots-clés : Autism Spectrum Disorder Knowledge Stigma Teachers Lao PDR Misconception Low and middle income countries Inclusion Index. décimale : PER Périodiques Résumé : Background Teachers are important resource personnel in a low-middle income country. Understanding teachers’ knowledge on ASD is critical as teachers act as the knowledge broadcasters and the agents of social change and development in a community. Objective This study sought to conduct a grassroots investigation of ASD knowledge and stigma among preschool and primary school teachers in Luang Prabang, a Northern Province in the Lao’s People Democratic Republic (Lao PDR). Method Paper and pen surveys were conducted with teachers recruited from the Provincial Department of Education in Luang Prabang, the Lao PDR. One hundred and eighty teachers participated in the study by completing the Lao language translated version of Autism Stigma and Knowledge Questionnaire (ASK-Q). Results The findings revealed a much lower knowledge level among the Laotian teachers as compared to past ASK-Q findings from other countries, indicating the Lao PDR teachers’ lack of readiness to support young children with ASD in the local schools. Conclusions ASK-Q was shown as instrumental in investigating ASD knowledge and stigma at the grassroots level in the targeted community, in which the findings contributed a clear direction for knowledge transfer and mobilization in a low-middle income country. En ligne : https://doi.org/10.1016/j.rasd.2020.101694 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438