Assessing need in school-aged children with an autism spectrum disorder / Hilary K. BROWN in Research in Autism Spectrum Disorders, 4-4 (October-December 2010)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 4-4 (October-December 2010) . - p.539-547 Titre : Assessing need in school-aged children with an autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Hilary K. BROWN, Auteur ; Elizabeth KELLEY, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Duncan HUNTER, Auteur Année de publication : 2010 Article en page(s) : p.539-547 Langues : Anglais (eng) Mots-clés : Autism-spectrum-disorders Needs-assessment Perceived-need Service-use Functional-independence Index. décimale : PER Périodiques Résumé : The assessment of support needs of children with an autism spectrum disorder and their families has been hindered by the ambiguity surrounding the definition of need and the lack of a conceptual framework to guide investigations. This paper examines two major approaches to measuring need and discusses their appropriateness for use in autism. We focus on school-aged children, because of the relative lack of research in this area and the challenges of measuring need in children with an autism spectrum disorder in this age group. A conceptual framework, which explores parents’ perceived need, is proposed. We suggest that the child's adaptive skills and challenging behaviors will be important in predicting the extent of the parent's perceived unmet need. En ligne : http://dx.doi.org/10.1016/j.rasd.2009.12.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=102 [article] Assessing need in school-aged children with an autism spectrum disorder [Texte imprimé et/ou numérique] / Hilary K. BROWN, Auteur ; Elizabeth KELLEY, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Duncan HUNTER, Auteur . - 2010 . - p.539-547. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 4-4 (October-December 2010) . - p.539-547 Mots-clés : Autism-spectrum-disorders Needs-assessment Perceived-need Service-use Functional-independence Index. décimale : PER Périodiques Résumé : The assessment of support needs of children with an autism spectrum disorder and their families has been hindered by the ambiguity surrounding the definition of need and the lack of a conceptual framework to guide investigations. This paper examines two major approaches to measuring need and discusses their appropriateness for use in autism. We focus on school-aged children, because of the relative lack of research in this area and the challenges of measuring need in children with an autism spectrum disorder in this age group. A conceptual framework, which explores parents’ perceived need, is proposed. We suggest that the child's adaptive skills and challenging behaviors will be important in predicting the extent of the parent's perceived unmet need. En ligne : http://dx.doi.org/10.1016/j.rasd.2009.12.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=102

Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs / Hilary K. BROWN in Journal of Autism and Developmental Disorders, 41-10 (October 2011)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 41-10 (October 2011) . - p.1291-1302 Titre : Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs Type de document : Texte imprimé et/ou numérique Auteurs : Hilary K. BROWN, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Duncan HUNTER, Auteur ; Elizabeth KELLEY, Auteur ; Virginie COBIGO, Auteur ; Miu LAM, Auteur Année de publication : 2011 Article en page(s) : p.1291-1302 Langues : Anglais (eng) Mots-clés : Autism  Unmet need  Functional independence  Impact on family Index. décimale : PER Périodiques Résumé : High demand has resulted in gaps in autism service provision. Our objective was to explore the association between children’s functioning and parents’ perceived unmet needs. We conducted a cross-sectional study of 97 families of school-aged children with an autism spectrum disorder. Log binomial regression was used to examine the relative risk for unmet need. Families of children with high functional independence had lower unmet need than families of children with moderate functional independence (RR = 0.81, 95% CI = 0.67-0.99). Those who experienced greater impact of the child’s disability had greater unmet need (RR = 1.22, 95% CI = 1.03–1.45). The child’s functioning and its impact on the family provide insight into unmet need which may inform service planning. En ligne : http://dx.doi.org/10.1007/s10803-010-1148-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=143 [article] Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs [Texte imprimé et/ou numérique] / Hilary K. BROWN, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Duncan HUNTER, Auteur ; Elizabeth KELLEY, Auteur ; Virginie COBIGO, Auteur ; Miu LAM, Auteur . - 2011 . - p.1291-1302. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 41-10 (October 2011) . - p.1291-1302 Mots-clés : Autism  Unmet need  Functional independence  Impact on family Index. décimale : PER Périodiques Résumé : High demand has resulted in gaps in autism service provision. Our objective was to explore the association between children’s functioning and parents’ perceived unmet needs. We conducted a cross-sectional study of 97 families of school-aged children with an autism spectrum disorder. Log binomial regression was used to examine the relative risk for unmet need. Families of children with high functional independence had lower unmet need than families of children with moderate functional independence (RR = 0.81, 95% CI = 0.67-0.99). Those who experienced greater impact of the child’s disability had greater unmet need (RR = 1.22, 95% CI = 1.03–1.45). The child’s functioning and its impact on the family provide insight into unmet need which may inform service planning. En ligne : http://dx.doi.org/10.1007/s10803-010-1148-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=143

Dépistage, évaluation et diagnostic des troubles du spectre de l'autisme chez les enfants en bas âge / Jennifer NACHSHEN  

Public ISBD Titre : Dépistage, évaluation et diagnostic des troubles du spectre de l'autisme chez les enfants en bas âge : Guide des pratiques exemplaires canadiennes Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer NACHSHEN, Auteur ; Shari JOSEPH, Auteur ; Ellen RISHIKOF, Auteur ; Ingrid E. SLADECZEK, Auteur ; Mandy STEIMAN, Auteur ; Lee TIDMARSH, Auteur ; Nancy TREPANIER, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Eric FOMBONNE, Auteur ; Peter SZATMARI, Auteur ; Alexa MARTIN-STOREY, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Angela CORNICK, Auteur ; Rosemary A. CONDILLAC, Auteur ; Nathalie GARCIN, Auteur ; Katherine MOXNESS, Auteur ; Yves TREMBLAY, Auteur ; Paula HUTCHINSON, Auteur ; Anne LACHANCE, Auteur ; Martine BEAURIVAGE, Auteur ; Marlene BREITENBACH, Auteur ; Susan E. BRYSON, Auteur ; Jake BURACK, Auteur ; Christine CARON, Auteur ; Paula RUTTLE, Auteur Editeur : Ville Mont Royal [Canada] : Fondation Miriam Année de publication : 2008 Importance : 95 p. Présentation : ill. Format : 21cm x 29,7cm x 0,6cm Note générale : Bibliogr. Langues : Français (fre) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques En ligne : http://www.interteddi.ca/projet-pratiques-exemplaires/handbook_french.pdf Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=101 Dépistage, évaluation et diagnostic des troubles du spectre de l'autisme chez les enfants en bas âge : Guide des pratiques exemplaires canadiennes [Texte imprimé et/ou numérique] / Jennifer NACHSHEN, Auteur ; Shari JOSEPH, Auteur ; Ellen RISHIKOF, Auteur ; Ingrid E. SLADECZEK, Auteur ; Mandy STEIMAN, Auteur ; Lee TIDMARSH, Auteur ; Nancy TREPANIER, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Eric FOMBONNE, Auteur ; Peter SZATMARI, Auteur ; Alexa MARTIN-STOREY, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Angela CORNICK, Auteur ; Rosemary A. CONDILLAC, Auteur ; Nathalie GARCIN, Auteur ; Katherine MOXNESS, Auteur ; Yves TREMBLAY, Auteur ; Paula HUTCHINSON, Auteur ; Anne LACHANCE, Auteur ; Martine BEAURIVAGE, Auteur ; Marlene BREITENBACH, Auteur ; Susan E. BRYSON, Auteur ; Jake BURACK, Auteur ; Christine CARON, Auteur ; Paula RUTTLE, Auteur . - Ville Mont Royal [Canada] : Fondation Miriam, 2008 . - 95 p. : ill. ; 21cm x 29,7cm x 0,6cm. Bibliogr. Langues : Français (fre) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques En ligne : http://www.interteddi.ca/projet-pratiques-exemplaires/handbook_french.pdf Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=101

Exemplaires (1)

Code-barres	Cote	Support	Localisation	Section	Disponibilité
DOC0001201	AUT-B MIR	Livre	Centre d'Information et de Documentation du CRA Rhône-Alpes	AUT - L'Autisme	Disponible

Identification of Pediatric Autism Spectrum Disorder Cases Using Health Administrative Data / Celeste D. BICKFORD in Autism Research, 13-3 (March 2020)  

Public ISBD [article]  inAutism Research > 13-3 (March 2020) . - p.456-463 Titre : Identification of Pediatric Autism Spectrum Disorder Cases Using Health Administrative Data Type de document : Texte imprimé et/ou numérique Auteurs : Celeste D. BICKFORD, Auteur ; Tim F. OBERLANDER, Auteur ; Nancy E. LANPHEAR, Auteur ; Whitney M. WEIKUM, Auteur ; Patricia A. JANSSEN, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Gillian E. HANLEY, Auteur Article en page(s) : p.456-463 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  diagnostic accuracy  health administrative data  validation Index. décimale : PER Périodiques Résumé : Administrative data are frequently used to identify Autism Spectrum Disorder (ASD) cases in epidemiological studies. However, validation studies on this mode of case ascertainment have lacked access to high-quality clinical diagnostic data and have not followed published reporting guidelines. We report on the diagnostic accuracy of using readily available health administrative data for pediatric ASD case ascertainment. The validation cohort included almost all the ASD-positive children born in British Columbia, Canada from April 1, 2000 to December 31, 2009 and consisted of 8,670 children in total. 4,079 ASD-positive and 2,787 ASD-negative children were identified using Autism Diagnostic Observation Schedule (ADOS) and Autism Diagnostic Interview-Revised (ADI-R) assessments done through the British Columbia Autism Assessment Network (BCAAN). An additional 1,804 ADOS/ADI-R assessed ASD-positive children were identified using Ministry of Education records. This prospectively collected clinical data (the diagnostic gold standard) was then linked to each child's physician billing and hospital discharge data. The diagnostic accuracy of 11 algorithms that used the administrative data to assign ASD case status was assessed. For all algorithms, high positive predictive values (PPVs) were observed alongside low values for other measures of diagnostic accuracy illustrating that PPVs alone are not an adequate measure of diagnostic accuracy. We show that British Columbia's health administrative data cannot reliably be used to discriminate between children with ASD and children with other developmental disorders. Utilizing these data may result in misclassification bias. Methodologically sound, region-specific validation studies are needed to support the use of administrative data for ASD case ascertainment. Autism Res 2020, 13: 456-463. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Health administrative data are frequently used to identify Autism Spectrum Disorder (ASD) cases for research purposes. However, previous validation studies on this sort of case identification have lacked access to high-quality clinical diagnostic data and have not followed published reporting guidelines. We show that British Columbia's health administrative data cannot reliably be used to discriminate between children with ASD and children with other developmental disorders. En ligne : http://dx.doi.org/10.1002/aur.2252 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421 [article] Identification of Pediatric Autism Spectrum Disorder Cases Using Health Administrative Data [Texte imprimé et/ou numérique] / Celeste D. BICKFORD, Auteur ; Tim F. OBERLANDER, Auteur ; Nancy E. LANPHEAR, Auteur ; Whitney M. WEIKUM, Auteur ; Patricia A. JANSSEN, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Gillian E. HANLEY, Auteur . - p.456-463. Langues : Anglais (eng) in Autism Research > 13-3 (March 2020) . - p.456-463 Mots-clés : Autism spectrum disorder  diagnostic accuracy  health administrative data  validation Index. décimale : PER Périodiques Résumé : Administrative data are frequently used to identify Autism Spectrum Disorder (ASD) cases in epidemiological studies. However, validation studies on this mode of case ascertainment have lacked access to high-quality clinical diagnostic data and have not followed published reporting guidelines. We report on the diagnostic accuracy of using readily available health administrative data for pediatric ASD case ascertainment. The validation cohort included almost all the ASD-positive children born in British Columbia, Canada from April 1, 2000 to December 31, 2009 and consisted of 8,670 children in total. 4,079 ASD-positive and 2,787 ASD-negative children were identified using Autism Diagnostic Observation Schedule (ADOS) and Autism Diagnostic Interview-Revised (ADI-R) assessments done through the British Columbia Autism Assessment Network (BCAAN). An additional 1,804 ADOS/ADI-R assessed ASD-positive children were identified using Ministry of Education records. This prospectively collected clinical data (the diagnostic gold standard) was then linked to each child's physician billing and hospital discharge data. The diagnostic accuracy of 11 algorithms that used the administrative data to assign ASD case status was assessed. For all algorithms, high positive predictive values (PPVs) were observed alongside low values for other measures of diagnostic accuracy illustrating that PPVs alone are not an adequate measure of diagnostic accuracy. We show that British Columbia's health administrative data cannot reliably be used to discriminate between children with ASD and children with other developmental disorders. Utilizing these data may result in misclassification bias. Methodologically sound, region-specific validation studies are needed to support the use of administrative data for ASD case ascertainment. Autism Res 2020, 13: 456-463. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Health administrative data are frequently used to identify Autism Spectrum Disorder (ASD) cases for research purposes. However, previous validation studies on this sort of case identification have lacked access to high-quality clinical diagnostic data and have not followed published reporting guidelines. We show that British Columbia's health administrative data cannot reliably be used to discriminate between children with ASD and children with other developmental disorders. En ligne : http://dx.doi.org/10.1002/aur.2252 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421

The changing prevalence of autism in three regions of Canada / Hélène OUELLETTE-KUNTZ in Journal of Autism and Developmental Disorders, 44-1 (January 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-1 (January 2014) . - p.120-136 Titre : The changing prevalence of autism in three regions of Canada Type de document : Texte imprimé et/ou numérique Auteurs : Hélène OUELLETTE-KUNTZ, Auteur ; Helen COO, Auteur ; Miu LAM, Auteur ; Marlene BREITENBACH, Auteur ; Paula E. HENNESSEY, Auteur ; Paulette D. JACKMAN, Auteur ; M. E. Suzanne LEWIS, Auteur ; Deborah DEWEY, Auteur ; François P. BERNIER, Auteur ; Amy M. CHUNG, Auteur Article en page(s) : p.120-136 Langues : Anglais (eng) Mots-clés : Autism  Surveillance  Canada  NEDSAC Index. décimale : PER Périodiques Résumé : In 2002/2003, the National Epidemiologic Database for the Study of Autism in Canada started capturing information on children diagnosed with autism in different regions of the country. Based on data collected through 2008 in Newfoundland and Labrador and 2010 in Prince Edward Island and Southeastern Ontario, the estimated average annual percent increases in prevalence among children 2–14 years of age ranged from 9.7 % (95 % CI 7.8–11.6) to 14.6 % (95 % CI 11.3–18.0). Differential in-migration and identification of previously undetected cases may have contributed in part to the increases observed, but we cannot rule out the possibility of a true increase in incidence, particularly given the lack of a leveling-off of prevalence among the 6- to 9-year olds. En ligne : http://dx.doi.org/10.1007/s10803-013-1856-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=220 [article] The changing prevalence of autism in three regions of Canada [Texte imprimé et/ou numérique] / Hélène OUELLETTE-KUNTZ, Auteur ; Helen COO, Auteur ; Miu LAM, Auteur ; Marlene BREITENBACH, Auteur ; Paula E. HENNESSEY, Auteur ; Paulette D. JACKMAN, Auteur ; M. E. Suzanne LEWIS, Auteur ; Deborah DEWEY, Auteur ; François P. BERNIER, Auteur ; Amy M. CHUNG, Auteur . - p.120-136. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-1 (January 2014) . - p.120-136 Mots-clés : Autism  Surveillance  Canada  NEDSAC Index. décimale : PER Périodiques Résumé : In 2002/2003, the National Epidemiologic Database for the Study of Autism in Canada started capturing information on children diagnosed with autism in different regions of the country. Based on data collected through 2008 in Newfoundland and Labrador and 2010 in Prince Edward Island and Southeastern Ontario, the estimated average annual percent increases in prevalence among children 2–14 years of age ranged from 9.7 % (95 % CI 7.8–11.6) to 14.6 % (95 % CI 11.3–18.0). Differential in-migration and identification of previously undetected cases may have contributed in part to the increases observed, but we cannot rule out the possibility of a true increase in incidence, particularly given the lack of a leveling-off of prevalence among the 6- to 9-year olds. En ligne : http://dx.doi.org/10.1007/s10803-013-1856-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=220

Trends in Autism Prevalence: Diagnostic Substitution Revisited / Helen COO in Journal of Autism and Developmental Disorders, 38-6 (July 2008)  

Permalink

Trends in Special Education Code Assignment for Autism: Implications for Prevalence Estimates / Hélène OUELLETTE-KUNTZ in Journal of Autism and Developmental Disorders, 37-10 (November 2007)  

Permalink

---

1 (1 - 7 / 7)