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Auteur Julie L. DANIELS |
Documents disponibles écrits par cet auteur (22)
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Racial and ethnic disparities in the co-occurrence of intellectual disability and autism: Impact of incorporating measures of adaptive functioning / Sarah M. FURNIER in Autism Research, 17-3 (March 2024)
[article]
Titre : Racial and ethnic disparities in the co-occurrence of intellectual disability and autism: Impact of incorporating measures of adaptive functioning Type de document : Texte imprimé et/ou numérique Auteurs : Sarah M. FURNIER, Auteur ; Ronald GANGNON, Auteur ; Julie L. DANIELS, Auteur ; Susan ELLIS WEISMER, Auteur ; Cy NADLER, Auteur ; Karen PAZOL, Auteur ; Nuri M. REYES, Auteur ; Steven ROSENBERG, Auteur ; Eric RUBENSTEIN, Auteur ; Lisa D. WIGGINS, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Maureen S. DURKIN, Auteur Article en page(s) : p.650-667 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Intellectual disability (ID) commonly co-occurs in children with autism. Although diagnostic criteria for ID require impairments in both cognitive and adaptive functioning, most population-based estimates of the frequency of co-occurring ID in children with autism-including studies of racial and ethnic disparities in co-occurring autism and ID-base the definition of ID solely on cognitive scores. The goal of this analysis was to examine the effect of including both cognitive and adaptive behavior criteria on estimates of co-occurring ID in a well-characterized sample of 2- to 5-year-old children with autism. Participants included 3264 children with research or community diagnoses of autism enrolled in the population-based Study to Explore Early Development (SEED) phases 1-3. Based only on Mullen Scales of Early Learning (MSEL) composite cognitive scores, 62.9% (95% confidence interval [CI]: 61.1, 64.7%) of children with autism were estimated to have co-occurring ID. After incorporating Vineland Adaptive Behavior Scales, Second Edition (VABS-II) composite or domains criteria, co-occurring ID estimates were reduced to 38.0% (95% CI: 36.2, 39.8%) and 45.0% (95% CI: 43.1, 46.9%), respectively. The increased odds of meeting ID criteria observed for non-Hispanic (NH) Black and Hispanic children relative to NH White children when only MSEL criteria were used were substantially reduced, though not eliminated, after incorporating VABS-II criteria and adjusting for selected socioeconomic variables. This study provides evidence for the importance of considering adaptive behavior as well as socioeconomic disadvantage when describing racial and ethnic disparities in co-occurring ID in epidemiologic studies of autism. En ligne : https://doi.org/10.1002/aur.3107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525
in Autism Research > 17-3 (March 2024) . - p.650-667[article] Racial and ethnic disparities in the co-occurrence of intellectual disability and autism: Impact of incorporating measures of adaptive functioning [Texte imprimé et/ou numérique] / Sarah M. FURNIER, Auteur ; Ronald GANGNON, Auteur ; Julie L. DANIELS, Auteur ; Susan ELLIS WEISMER, Auteur ; Cy NADLER, Auteur ; Karen PAZOL, Auteur ; Nuri M. REYES, Auteur ; Steven ROSENBERG, Auteur ; Eric RUBENSTEIN, Auteur ; Lisa D. WIGGINS, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Maureen S. DURKIN, Auteur . - p.650-667.
Langues : Anglais (eng)
in Autism Research > 17-3 (March 2024) . - p.650-667
Index. décimale : PER Périodiques Résumé : Abstract Intellectual disability (ID) commonly co-occurs in children with autism. Although diagnostic criteria for ID require impairments in both cognitive and adaptive functioning, most population-based estimates of the frequency of co-occurring ID in children with autism-including studies of racial and ethnic disparities in co-occurring autism and ID-base the definition of ID solely on cognitive scores. The goal of this analysis was to examine the effect of including both cognitive and adaptive behavior criteria on estimates of co-occurring ID in a well-characterized sample of 2- to 5-year-old children with autism. Participants included 3264 children with research or community diagnoses of autism enrolled in the population-based Study to Explore Early Development (SEED) phases 1-3. Based only on Mullen Scales of Early Learning (MSEL) composite cognitive scores, 62.9% (95% confidence interval [CI]: 61.1, 64.7%) of children with autism were estimated to have co-occurring ID. After incorporating Vineland Adaptive Behavior Scales, Second Edition (VABS-II) composite or domains criteria, co-occurring ID estimates were reduced to 38.0% (95% CI: 36.2, 39.8%) and 45.0% (95% CI: 43.1, 46.9%), respectively. The increased odds of meeting ID criteria observed for non-Hispanic (NH) Black and Hispanic children relative to NH White children when only MSEL criteria were used were substantially reduced, though not eliminated, after incorporating VABS-II criteria and adjusting for selected socioeconomic variables. This study provides evidence for the importance of considering adaptive behavior as well as socioeconomic disadvantage when describing racial and ethnic disparities in co-occurring ID in epidemiologic studies of autism. En ligne : https://doi.org/10.1002/aur.3107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525 Relationships between multiple births and autism spectrum disorders, cerebral palsy, and intellectual disabilities: autism and developmental disabilities monitoring (ADDM) network - 2002 surveillance year / Kim VAN NAARDEN BRAUN in Autism Research, 1-5 (October 2008)
[article]
Titre : Relationships between multiple births and autism spectrum disorders, cerebral palsy, and intellectual disabilities: autism and developmental disabilities monitoring (ADDM) network - 2002 surveillance year Type de document : Texte imprimé et/ou numérique Auteurs : Kim VAN NAARDEN BRAUN, Auteur ; Li-Ching LEE, Auteur ; Joyce S. NICHOLAS, Auteur ; Russell S. KIRBY, Auteur ; Ellen GIARELLI, Auteur ; Maureen DURKIN, Auteur ; Laura A. SCHIEVE, Auteur ; Jennifer A. PINTO-MARTIN, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Julie L. DANIELS, Auteur Année de publication : 2008 Article en page(s) : p.266-274 Langues : Anglais (eng) Mots-clés : developmental-disabilities multiple-births autism-spectrum-disorders intellectual-disabilities cerebral-palsy Index. décimale : PER Périodiques Résumé : Since the 1970s, the prevalence of multiple births (MBs) in the United States has increased significantly. This has been attributed, in large part, to iatrogenic MBs resulting from infertility treatments that include ovulation stimulation. A past study has indicated that children from MBs have an increased prevalence of cerebral palsy (CP). Other studies also have suggested an association between MBs and intellectual disabilities (ID) and autism spectrum disorders (ASDs); however, results have been inconsistent. From the Autism and Developmental Disabilities Monitoring (ADDM) Network, a surveillance project among several US populations, we obtained MB estimates among children born in 1994 and classified by 8 years of age as having: an ASD (n=1,626 total children from 11 sites; 50 born as part of an MB); CP (n=302 total children from 3 sites; 25 born as part of an MB); or ID (n=1,195 total children from 3 sites; 45 born as part of an MB). All three MB estimates were notably higher than age-adjusted expected estimates of naturally conceived MBs derived from 1971 US natality data. However, when MB estimates from the ADDM Network were compared with expected MB estimates derived from 1994 natality data for the states corresponding to the relevant ADDM Network sites, we observed no association with ASDs (observed/expected=1.08 [0.78-1.38]), a moderate, but not statistically significant association with ID (observed/expected=1.34 [0.95-1.73]), and a strong association with CP (observed/expected=2.96 [1.80-4.12]). Further investigation of specific types of MBs (natural vs. iatrogenic) is warranted. En ligne : http://dx.doi.org/10.1002/aur.41 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=933
in Autism Research > 1-5 (October 2008) . - p.266-274[article] Relationships between multiple births and autism spectrum disorders, cerebral palsy, and intellectual disabilities: autism and developmental disabilities monitoring (ADDM) network - 2002 surveillance year [Texte imprimé et/ou numérique] / Kim VAN NAARDEN BRAUN, Auteur ; Li-Ching LEE, Auteur ; Joyce S. NICHOLAS, Auteur ; Russell S. KIRBY, Auteur ; Ellen GIARELLI, Auteur ; Maureen DURKIN, Auteur ; Laura A. SCHIEVE, Auteur ; Jennifer A. PINTO-MARTIN, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Julie L. DANIELS, Auteur . - 2008 . - p.266-274.
Langues : Anglais (eng)
in Autism Research > 1-5 (October 2008) . - p.266-274
Mots-clés : developmental-disabilities multiple-births autism-spectrum-disorders intellectual-disabilities cerebral-palsy Index. décimale : PER Périodiques Résumé : Since the 1970s, the prevalence of multiple births (MBs) in the United States has increased significantly. This has been attributed, in large part, to iatrogenic MBs resulting from infertility treatments that include ovulation stimulation. A past study has indicated that children from MBs have an increased prevalence of cerebral palsy (CP). Other studies also have suggested an association between MBs and intellectual disabilities (ID) and autism spectrum disorders (ASDs); however, results have been inconsistent. From the Autism and Developmental Disabilities Monitoring (ADDM) Network, a surveillance project among several US populations, we obtained MB estimates among children born in 1994 and classified by 8 years of age as having: an ASD (n=1,626 total children from 11 sites; 50 born as part of an MB); CP (n=302 total children from 3 sites; 25 born as part of an MB); or ID (n=1,195 total children from 3 sites; 45 born as part of an MB). All three MB estimates were notably higher than age-adjusted expected estimates of naturally conceived MBs derived from 1971 US natality data. However, when MB estimates from the ADDM Network were compared with expected MB estimates derived from 1994 natality data for the states corresponding to the relevant ADDM Network sites, we observed no association with ASDs (observed/expected=1.08 [0.78-1.38]), a moderate, but not statistically significant association with ID (observed/expected=1.34 [0.95-1.73]), and a strong association with CP (observed/expected=2.96 [1.80-4.12]). Further investigation of specific types of MBs (natural vs. iatrogenic) is warranted. En ligne : http://dx.doi.org/10.1002/aur.41 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=933 The Broad Autism Phenotype Questionnaire: Prevalence and Diagnostic Classification / Noah J. SASSON in Autism Research, 6-2 (April 2013)
[article]
Titre : The Broad Autism Phenotype Questionnaire: Prevalence and Diagnostic Classification Type de document : Texte imprimé et/ou numérique Auteurs : Noah J. SASSON, Auteur ; Kristen S. L. LAM, Auteur ; Debra CHILDRESS, Auteur ; Morgan PARLIER, Auteur ; Julie L. DANIELS, Auteur ; Joseph PIVEN, Auteur Année de publication : 2013 Article en page(s) : p.134-143 Langues : Anglais (eng) Mots-clés : autism Broad Autism Phenotype assessment prevalence genetics Index. décimale : PER Périodiques Résumé : The Broad Autism Phenotype Questionnaire (BAPQ) was administered to a large community-based sample of biological parents of children with autism (PCAs) and comparison parents (CPs) (n?=?1,692). Exploratory factor analysis and internal consistency parameters confirmed a robust three-factor structure of the BAPQ, corresponding to the proposed aloof, pragmatic language and rigidity subscales. Based upon the distribution of Broad Autism Phenotype (BAP) features in the general population, new normative cutoff values for BAPQ subscales were established that provide increased specificity relative to those previously reported, and thus enhance the utility of the BAPQ for diagnostically classifying the BAP. These cutoffs were also used to estimate prevalence of the BAP and its three components, with rates ranging between 14–23% for PCAs and between 5–9% for CPs. Analysis of patterns of BAP characteristics within family members revealed that BAP features were more likely to co-occur in PCAs relative to CPs. Collectively, these findings extend the utility of the BAPQ and provide additional evidence that it is an efficient and reliable tool for disaggregating the heterogeneity of autism through the identification of meaningful subgroups of parents. En ligne : http://dx.doi.org/10.1002/aur.1272 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=199
in Autism Research > 6-2 (April 2013) . - p.134-143[article] The Broad Autism Phenotype Questionnaire: Prevalence and Diagnostic Classification [Texte imprimé et/ou numérique] / Noah J. SASSON, Auteur ; Kristen S. L. LAM, Auteur ; Debra CHILDRESS, Auteur ; Morgan PARLIER, Auteur ; Julie L. DANIELS, Auteur ; Joseph PIVEN, Auteur . - 2013 . - p.134-143.
Langues : Anglais (eng)
in Autism Research > 6-2 (April 2013) . - p.134-143
Mots-clés : autism Broad Autism Phenotype assessment prevalence genetics Index. décimale : PER Périodiques Résumé : The Broad Autism Phenotype Questionnaire (BAPQ) was administered to a large community-based sample of biological parents of children with autism (PCAs) and comparison parents (CPs) (n?=?1,692). Exploratory factor analysis and internal consistency parameters confirmed a robust three-factor structure of the BAPQ, corresponding to the proposed aloof, pragmatic language and rigidity subscales. Based upon the distribution of Broad Autism Phenotype (BAP) features in the general population, new normative cutoff values for BAPQ subscales were established that provide increased specificity relative to those previously reported, and thus enhance the utility of the BAPQ for diagnostically classifying the BAP. These cutoffs were also used to estimate prevalence of the BAP and its three components, with rates ranging between 14–23% for PCAs and between 5–9% for CPs. Analysis of patterns of BAP characteristics within family members revealed that BAP features were more likely to co-occur in PCAs relative to CPs. Collectively, these findings extend the utility of the BAPQ and provide additional evidence that it is an efficient and reliable tool for disaggregating the heterogeneity of autism through the identification of meaningful subgroups of parents. En ligne : http://dx.doi.org/10.1002/aur.1272 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=199 The Broader Autism Phenotype in Mothers is Associated with Increased Discordance Between Maternal-Reported and Clinician-Observed Instruments that Measure Child Autism Spectrum Disorder / Eric RUBENSTEIN in Journal of Autism and Developmental Disorders, 47-10 (October 2017)
[article]
Titre : The Broader Autism Phenotype in Mothers is Associated with Increased Discordance Between Maternal-Reported and Clinician-Observed Instruments that Measure Child Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Eric RUBENSTEIN, Auteur ; Rebecca EDMONDSON PRETZEL, Auteur ; Gayle C. WINDHAM, Auteur ; Laura A. SCHIEVE, Auteur ; Lisa D. WIGGINS, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; Andrew F. OLSHAN, Auteur ; Annie G. HOWARD, Auteur ; Brian W. PENCE, Auteur ; Lisa YOUNG, Auteur ; Julie L. DANIELS, Auteur Article en page(s) : p.3253-3266 Langues : Anglais (eng) Mots-clés : Autism Diagnostic Interview-Revised Autism Diagnostic Observation Schedule Autism spectrum disorder Broader autism phenotype Instrument discordance Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) diagnosis relies on parent-reported and clinician-observed instruments. Sometimes, results between these instruments disagree. The broader autism phenotype (BAP) in parent-reporters may be associated with discordance. Study to Explore Early Development data (N?=?712) were used to address whether mothers with BAP and children with ASD or non-ASD developmental disabilities were more likely than mothers without BAP to ‘over-’ or ‘under-report’ child ASD on ASD screeners or interviews compared with clinician observation or overall impression. Maternal BAP was associated with a child meeting thresholds on a maternal-reported screener or maternal interview when clinician ASD instruments or impressions did not (risk ratios: 1.30 to 2.85). Evidence suggests acknowledging and accounting for reporting discordances may be important when diagnosing ASD. En ligne : https://doi.org/10.1007/s10803-017-3248-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319
in Journal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.3253-3266[article] The Broader Autism Phenotype in Mothers is Associated with Increased Discordance Between Maternal-Reported and Clinician-Observed Instruments that Measure Child Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Eric RUBENSTEIN, Auteur ; Rebecca EDMONDSON PRETZEL, Auteur ; Gayle C. WINDHAM, Auteur ; Laura A. SCHIEVE, Auteur ; Lisa D. WIGGINS, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; Andrew F. OLSHAN, Auteur ; Annie G. HOWARD, Auteur ; Brian W. PENCE, Auteur ; Lisa YOUNG, Auteur ; Julie L. DANIELS, Auteur . - p.3253-3266.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.3253-3266
Mots-clés : Autism Diagnostic Interview-Revised Autism Diagnostic Observation Schedule Autism spectrum disorder Broader autism phenotype Instrument discordance Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) diagnosis relies on parent-reported and clinician-observed instruments. Sometimes, results between these instruments disagree. The broader autism phenotype (BAP) in parent-reporters may be associated with discordance. Study to Explore Early Development data (N?=?712) were used to address whether mothers with BAP and children with ASD or non-ASD developmental disabilities were more likely than mothers without BAP to ‘over-’ or ‘under-report’ child ASD on ASD screeners or interviews compared with clinician observation or overall impression. Maternal BAP was associated with a child meeting thresholds on a maternal-reported screener or maternal interview when clinician ASD instruments or impressions did not (risk ratios: 1.30 to 2.85). Evidence suggests acknowledging and accounting for reporting discordances may be important when diagnosing ASD. En ligne : https://doi.org/10.1007/s10803-017-3248-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319 The prevalence of gluten free diet use among preschool children with autism spectrum disorder / Eric RUBENSTEIN in Autism Research, 11-1 (January 2018)
[article]
Titre : The prevalence of gluten free diet use among preschool children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Eric RUBENSTEIN, Auteur ; Laura A. SCHIEVE, Auteur ; Chyrise BRADLEY, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; Eric MOODY, Auteur ; Kathleen THOMAS, Auteur ; Julie L. DANIELS, Auteur Article en page(s) : p.185-193 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Our objective was to estimate prevalence of current or ever use of a gluten free diet (GFD) in children aged 30–68 months with autism spectrum disorder (ASD) and population controls (POP); and to identify characteristics associated with ever having used GFD among children with ASD. We used data from the Study to Explore Early Development (SEED), a multi?site, case?control study of children with ASD. Caregivers reported GFD use by their children through structured questionnaires about diet patterns, gastrointestinal (GI) issues, and ASD?specific treatments. Prevalence was estimated and compared using log?Poisson regression, adjusting for confounders. In children with ASD, we examined whether child or mother's GI conditions or child's phenotypic traits were associated with ever trying a GFD. In SEED, 71 children with ASD (11.1% prevalence after adjustment) were on a GFD at time of the study and 130 (20.4%) had ever used a GFD, a greater percentage than in POP children (N?=?11, 0.9% current use). Of current users with ASD, 50.7% had a dietary intervention that was prescribed by a medical professional. Among children with ASD, child GI conditions and developmental regression were positively and independently associated with having ever used a GFD. Current use and ever use of a GFD were prevalent in children with ASD identified in SEED. GFD usage was associated with GI issues and child phenotype. Clinicians may consider advising parents on how best to use these diets in the context of the child's GI presentation and current scientific knowledge about effectiveness in relation to ASD symptoms. Autism Res 2018, 11: 185–193. © 2017 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary Gluten free diets (GFDs) are commonly used as an alternative therapy for autism spectrum disorder (ASD); however, the effectiveness is still uncertain which makes it important to know who tries this type of diet. We found that one in five preschool aged children with ASD had ever used a GFD. Children with gastrointestinal conditions and developmental regression were more likely to have tried a GFD. En ligne : https://doi.org/10.1002/aur.1896 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=334
in Autism Research > 11-1 (January 2018) . - p.185-193[article] The prevalence of gluten free diet use among preschool children with autism spectrum disorder [Texte imprimé et/ou numérique] / Eric RUBENSTEIN, Auteur ; Laura A. SCHIEVE, Auteur ; Chyrise BRADLEY, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; Eric MOODY, Auteur ; Kathleen THOMAS, Auteur ; Julie L. DANIELS, Auteur . - p.185-193.
Langues : Anglais (eng)
in Autism Research > 11-1 (January 2018) . - p.185-193
Index. décimale : PER Périodiques Résumé : Our objective was to estimate prevalence of current or ever use of a gluten free diet (GFD) in children aged 30–68 months with autism spectrum disorder (ASD) and population controls (POP); and to identify characteristics associated with ever having used GFD among children with ASD. We used data from the Study to Explore Early Development (SEED), a multi?site, case?control study of children with ASD. Caregivers reported GFD use by their children through structured questionnaires about diet patterns, gastrointestinal (GI) issues, and ASD?specific treatments. Prevalence was estimated and compared using log?Poisson regression, adjusting for confounders. In children with ASD, we examined whether child or mother's GI conditions or child's phenotypic traits were associated with ever trying a GFD. In SEED, 71 children with ASD (11.1% prevalence after adjustment) were on a GFD at time of the study and 130 (20.4%) had ever used a GFD, a greater percentage than in POP children (N?=?11, 0.9% current use). Of current users with ASD, 50.7% had a dietary intervention that was prescribed by a medical professional. Among children with ASD, child GI conditions and developmental regression were positively and independently associated with having ever used a GFD. Current use and ever use of a GFD were prevalent in children with ASD identified in SEED. GFD usage was associated with GI issues and child phenotype. Clinicians may consider advising parents on how best to use these diets in the context of the child's GI presentation and current scientific knowledge about effectiveness in relation to ASD symptoms. Autism Res 2018, 11: 185–193. © 2017 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary Gluten free diets (GFDs) are commonly used as an alternative therapy for autism spectrum disorder (ASD); however, the effectiveness is still uncertain which makes it important to know who tries this type of diet. We found that one in five preschool aged children with ASD had ever used a GFD. Children with gastrointestinal conditions and developmental regression were more likely to have tried a GFD. En ligne : https://doi.org/10.1002/aur.1896 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=334 The Study to Explore Early Development (SEED): A Multisite Epidemiologic Study of Autism by the Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) Network / Diana SCHENDEL in Journal of Autism and Developmental Disorders, 42-10 (October 2012)
PermalinkWhen Father Doesn't Know Best: Selective Disagreement Between Self-Report and Informant Report of the Broad Autism Phenotype in Parents of a Child with Autism / Noah J. SASSON in Autism Research, 7-6 (December 2014)
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