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Improving Early Identification and Access to Diagnosis of Autism Spectrum Disorder in Toddlers in a Culturally Diverse Community with the Rapid Interactive screening Test for Autism in Toddlers / R. CHOUEIRI in Journal of Autism and Developmental Disorders, 51-11 (November 2021)
[article]
Titre : Improving Early Identification and Access to Diagnosis of Autism Spectrum Disorder in Toddlers in a Culturally Diverse Community with the Rapid Interactive screening Test for Autism in Toddlers Type de document : Texte imprimé et/ou numérique Auteurs : R. CHOUEIRI, Auteur ; A. LINDENBAUM, Auteur ; M. RAVI, Auteur ; W. ROBSKY, Auteur ; J. FLAHIVE, Auteur ; W. GARRISON, Auteur Article en page(s) : p.3937-3945 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis Autistic Disorder Checklist Child, Preschool Humans Infant Mass Screening Access Autism Community Cultural diversity Early intervention Interactive RITA-T (Rapid Interactive Screening Test of Autism in Toddlers) Screening Toddlers Underserved screening Test for Autism in Toddlers (RITA-T) with a collaboration with Early Intervention (EI) to improve early identification and access of toddlers to diagnosis and thus to treatment. We have since then replicated this work to other EI Programs and further developed the model. This work was presented as a poster at the International Meeting for Autism Research in Montreal (2019), and in RITA-T training workshops locally, in the US or internationally. All authors have reviewed the manuscript and agree to its contents. All authors, except Dr.Choueiri, do not report any conflict of interest with respect to the material. Index. décimale : PER Périodiques Résumé : The objective of this study was to test a screening model that employs the Rapid Interactive Screening Test for Autism in Toddlers (RITA-T), in an underserved community to improve ASD detection. We collaborated with a large Early Intervention (EI) program and trained 4 providers reliably on the RITA-T. Toddlers received the Modified Checklist for Autism in Toddlers (MCHAT-R/F), the RITA-T, developmental and autism testing, and a best-estimate clinical diagnosis. Eighty-One toddlers were enrolled: 57 with ASD and 24 with Developmental Delay (DD) non-ASD. Wait-time for diagnosis was on average 6 weeks. The RITA-T correlated highly with autism measures and EI staff integrated this model easily. The RITA-T significantly improved the identification and wait time for ASD in this underserved community. En ligne : http://dx.doi.org/10.1007/s10803-020-04851-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454
in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.3937-3945[article] Improving Early Identification and Access to Diagnosis of Autism Spectrum Disorder in Toddlers in a Culturally Diverse Community with the Rapid Interactive screening Test for Autism in Toddlers [Texte imprimé et/ou numérique] / R. CHOUEIRI, Auteur ; A. LINDENBAUM, Auteur ; M. RAVI, Auteur ; W. ROBSKY, Auteur ; J. FLAHIVE, Auteur ; W. GARRISON, Auteur . - p.3937-3945.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.3937-3945“On the Sidelines”: Access to Autism-Related Services in the West Bank / Sarah DABABNAH in Journal of Autism and Developmental Disorders, 45-12 (December 2015)
[article]
Titre : “On the Sidelines”: Access to Autism-Related Services in the West Bank Type de document : Texte imprimé et/ou numérique Auteurs : Sarah DABABNAH, Auteur ; Kathleen BULSON, Auteur Article en page(s) : p.4124-4134 Langues : Anglais (eng) Mots-clés : Autism ASD West Bank Palestinians Caregivers Access Index. décimale : PER Périodiques Résumé : We examined access to autism-related services among Palestinians (N = 24) raising children with autism spectrum disorder (ASD) in the West Bank. Using qualitative methods, we identified five primary interview themes. Poor screening, diagnostic, and psychoeducational practices were prevalent, as parents reported service providers minimized parental concerns and communicated ineffectively with the caregivers regarding treatment options. Geographic barriers and financial burdens prevented many families from seeking or maintaining services. Limited service availability was a dominant barrier: parents reported limited or denied access to education, community-based services, and ASD-specific interventions. Consequently, several families noted their children did not receive any services whatsoever. Research, practices and policies to address the shortage of services for children with ASD are urgently needed in the West Bank. En ligne : http://dx.doi.org/10.1007/s10803-015-2538-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=274
in Journal of Autism and Developmental Disorders > 45-12 (December 2015) . - p.4124-4134[article] “On the Sidelines”: Access to Autism-Related Services in the West Bank [Texte imprimé et/ou numérique] / Sarah DABABNAH, Auteur ; Kathleen BULSON, Auteur . - p.4124-4134.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-12 (December 2015) . - p.4124-4134
Mots-clés : Autism ASD West Bank Palestinians Caregivers Access Index. décimale : PER Périodiques Résumé : We examined access to autism-related services among Palestinians (N = 24) raising children with autism spectrum disorder (ASD) in the West Bank. Using qualitative methods, we identified five primary interview themes. Poor screening, diagnostic, and psychoeducational practices were prevalent, as parents reported service providers minimized parental concerns and communicated ineffectively with the caregivers regarding treatment options. Geographic barriers and financial burdens prevented many families from seeking or maintaining services. Limited service availability was a dominant barrier: parents reported limited or denied access to education, community-based services, and ASD-specific interventions. Consequently, several families noted their children did not receive any services whatsoever. Research, practices and policies to address the shortage of services for children with ASD are urgently needed in the West Bank. En ligne : http://dx.doi.org/10.1007/s10803-015-2538-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=274 Barriers to healthcare for Australian autistic adults / Georgia BRUCE ; Janelle WEISE ; Caroline J. MILLS ; Julian N. TROLLOR ; Kristy COXON in Autism, 28-2 (February 2024)
[article]
Titre : Barriers to healthcare for Australian autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Georgia BRUCE, Auteur ; Janelle WEISE, Auteur ; Caroline J. MILLS, Auteur ; Julian N. TROLLOR, Auteur ; Kristy COXON, Auteur Article en page(s) : p.301?315 Mots-clés : access adult autism autistic healthcare Index. décimale : PER Périodiques Résumé : Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Healthcare Checklist Short-Form (BHC). A total of 263 autistic and 70 non-autistic individuals completed the BHC. On average, autistic adults reported more barriers to healthcare (4.58) than non-autistic adults (0.76). Gender diversity, higher levels of generalised anxiety, greater global disability and less satisfaction with social support contributed to the experience of barriers to healthcare in autistic participants in regression modelling. Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults. Lay abstract This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge. En ligne : https://dx.doi.org/10.1177/13623613231168444 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519
in Autism > 28-2 (February 2024) . - p.301?315[article] Barriers to healthcare for Australian autistic adults [Texte imprimé et/ou numérique] / Georgia BRUCE, Auteur ; Janelle WEISE, Auteur ; Caroline J. MILLS, Auteur ; Julian N. TROLLOR, Auteur ; Kristy COXON, Auteur . - p.301?315.
in Autism > 28-2 (February 2024) . - p.301?315
Mots-clés : access adult autism autistic healthcare Index. décimale : PER Périodiques Résumé : Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Healthcare Checklist Short-Form (BHC). A total of 263 autistic and 70 non-autistic individuals completed the BHC. On average, autistic adults reported more barriers to healthcare (4.58) than non-autistic adults (0.76). Gender diversity, higher levels of generalised anxiety, greater global disability and less satisfaction with social support contributed to the experience of barriers to healthcare in autistic participants in regression modelling. Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults. Lay abstract This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge. En ligne : https://dx.doi.org/10.1177/13623613231168444 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 Self-reported service needs and barriers reported by autistic adults: Differences by gender identity / Kaitlin H. KOFFER MILLER in Research in Autism Spectrum Disorders, 92 (April 2022)
[article]
Titre : Self-reported service needs and barriers reported by autistic adults: Differences by gender identity Type de document : Texte imprimé et/ou numérique Auteurs : Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Wei SONG, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 101916 Langues : Anglais (eng) Mots-clés : ASD Survey Service needs Service barriers Access Gender Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD) is a lifelong disorder that is diagnosed nearly four times as frequently in men than women. Gender distinctions are evolving beyond traditional man and woman binaries. It remains unclear if and how these distinctions may impact autistic individuals. The goal of this research was to examine reported service needs and barriers to accessing services among autistic adults by gender identity (man, woman, and other gender). Method Data were generated from a statewide needs assessment survey that included quantitative and qualitative data collection that identified the needs of autistic individuals of all ages and their family members and caregivers. Results The results of this study are among the first to document barriers to service access reported by autistic adults across men, women, and other gender adults. This study also found that other gender autistic adults were more likely to report unmet needs for counseling services than autistic men, and both autistic women and other gender adults in this sample reported multiple barriers to receiving needed services as compared to their male counterparts. Conclusions Both women and other gender adults were more likely to report multiple barriers to needed services than men including transportation and scheduling. This study is one of the largest to explore the service barriers of autistic adults by gender differences. En ligne : https://doi.org/10.1016/j.rasd.2022.101916 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458
in Research in Autism Spectrum Disorders > 92 (April 2022) . - 101916[article] Self-reported service needs and barriers reported by autistic adults: Differences by gender identity [Texte imprimé et/ou numérique] / Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Wei SONG, Auteur ; Lindsay L. SHEA, Auteur . - 101916.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 92 (April 2022) . - 101916
Mots-clés : ASD Survey Service needs Service barriers Access Gender Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD) is a lifelong disorder that is diagnosed nearly four times as frequently in men than women. Gender distinctions are evolving beyond traditional man and woman binaries. It remains unclear if and how these distinctions may impact autistic individuals. The goal of this research was to examine reported service needs and barriers to accessing services among autistic adults by gender identity (man, woman, and other gender). Method Data were generated from a statewide needs assessment survey that included quantitative and qualitative data collection that identified the needs of autistic individuals of all ages and their family members and caregivers. Results The results of this study are among the first to document barriers to service access reported by autistic adults across men, women, and other gender adults. This study also found that other gender autistic adults were more likely to report unmet needs for counseling services than autistic men, and both autistic women and other gender adults in this sample reported multiple barriers to receiving needed services as compared to their male counterparts. Conclusions Both women and other gender adults were more likely to report multiple barriers to needed services than men including transportation and scheduling. This study is one of the largest to explore the service barriers of autistic adults by gender differences. En ligne : https://doi.org/10.1016/j.rasd.2022.101916 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 Treated prevalence of and mental health services received by children and adolescents in 42 low-and-middle-income countries / Jodi MORRIS in Journal of Child Psychology and Psychiatry, 52-12 (December 2011)
[article]
Titre : Treated prevalence of and mental health services received by children and adolescents in 42 low-and-middle-income countries Type de document : Texte imprimé et/ou numérique Auteurs : Jodi MORRIS, Auteur ; Myron L. BELFER, Auteur ; Amy M. DANIELS, Auteur ; Alan J. FLISHER, Auteur ; Liesbet VILLE, Auteur ; Antonio LORA, Auteur ; Shekhar SAXENA, Auteur Année de publication : 2011 Article en page(s) : p.1239-1246 Langues : Anglais (eng) Mots-clés : Mental health services access treated prevalence low- and middle-income countries Index. décimale : PER Périodiques Résumé : Background: Little is known about the treated prevalence and services received by children and adolescents in low- and middle-income countries (LAMICs). The purpose of this study is to describe the characteristics and capacity of mental health services for children and adolescents in 42 LAMICs.
Methods: The World Health Organization Assessment Instrument for Mental Health Systems (WHO-AIMS), a 155-indicator instrument developed to assess key components of mental health service systems, was used to describe mental health services in 13 low, 24 lower-middle, and 5 upper-middle-income countries. Child and adolescent service indicators used in the analysis were drawn from Domains 2 (mental health services), 4 (human resources), and 5 (links with other sectors) of the WHO-AIMS instrument.
Results: The median one-year treated prevalence for children and adolescents is 159 per 100,000 population compared to a treated prevalence of 664 per 100,000 for the adult population. Children and adolescents make up 12% of the patient population in mental health outpatient facilities and less than 6% in all other types of mental health facilities. Less than 1% of beds in inpatient facilities are reserved for children and adolescents. Training provided for mental health professionals on child and adolescent mental health is minimal, with less than 1% receiving refresher training. Most countries (76%) organize educational campaigns on child and adolescent mental health.
Conclusions: Mental health services for children and adolescents in low- and middle-income countries are extremely scarce and greatly limit access to appropriate care. Scaling up of services resources will be necessary in order to meet the objectives of the WHO Mental Health Gap Action (mhGAP) program which identifies increased services for the treatment of child mental disorders as a priority.En ligne : http://dx.doi.org/10.1111/j.1469-7610.2011.02409.x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=146
in Journal of Child Psychology and Psychiatry > 52-12 (December 2011) . - p.1239-1246[article] Treated prevalence of and mental health services received by children and adolescents in 42 low-and-middle-income countries [Texte imprimé et/ou numérique] / Jodi MORRIS, Auteur ; Myron L. BELFER, Auteur ; Amy M. DANIELS, Auteur ; Alan J. FLISHER, Auteur ; Liesbet VILLE, Auteur ; Antonio LORA, Auteur ; Shekhar SAXENA, Auteur . - 2011 . - p.1239-1246.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 52-12 (December 2011) . - p.1239-1246
Mots-clés : Mental health services access treated prevalence low- and middle-income countries Index. décimale : PER Périodiques Résumé : Background: Little is known about the treated prevalence and services received by children and adolescents in low- and middle-income countries (LAMICs). The purpose of this study is to describe the characteristics and capacity of mental health services for children and adolescents in 42 LAMICs.
Methods: The World Health Organization Assessment Instrument for Mental Health Systems (WHO-AIMS), a 155-indicator instrument developed to assess key components of mental health service systems, was used to describe mental health services in 13 low, 24 lower-middle, and 5 upper-middle-income countries. Child and adolescent service indicators used in the analysis were drawn from Domains 2 (mental health services), 4 (human resources), and 5 (links with other sectors) of the WHO-AIMS instrument.
Results: The median one-year treated prevalence for children and adolescents is 159 per 100,000 population compared to a treated prevalence of 664 per 100,000 for the adult population. Children and adolescents make up 12% of the patient population in mental health outpatient facilities and less than 6% in all other types of mental health facilities. Less than 1% of beds in inpatient facilities are reserved for children and adolescents. Training provided for mental health professionals on child and adolescent mental health is minimal, with less than 1% receiving refresher training. Most countries (76%) organize educational campaigns on child and adolescent mental health.
Conclusions: Mental health services for children and adolescents in low- and middle-income countries are extremely scarce and greatly limit access to appropriate care. Scaling up of services resources will be necessary in order to meet the objectives of the WHO Mental Health Gap Action (mhGAP) program which identifies increased services for the treatment of child mental disorders as a priority.En ligne : http://dx.doi.org/10.1111/j.1469-7610.2011.02409.x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=146 Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning From the Voices of Caregivers / Elizabeth R. CRAIS in Focus on Autism and Other Developmental Disabilities, 35-4 (December 2020)
PermalinkBrief Report: Preliminary Proposal of a Conceptual Model of a Digital Environment for Developing Mathematical Reasoning in Students with Autism Spectrum Disorders / Maria Isabel SANTOS in Journal of Autism and Developmental Disorders, 45-8 (August 2015)
PermalinkReferral, Assessment and Use of Screening Measures Related to Autism Spectrum Disorder at a Tertiary Hospital Setting / C. BERNIE in Journal of Autism and Developmental Disorders, 51-8 (August 2021)
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