Centre d'Information et de documentation du CRA Rhône-Alpes
CRA
Informations pratiques
-
Adresse
Centre d'information et de documentation
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexHoraires
Lundi au Vendredi
9h00-12h00 13h30-16h00Contact
Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Résultat de la recherche
2 recherche sur le mot-clé 'Family life'
Affiner la recherche Générer le flux rss de la recherche
Partager le résultat de cette recherche Faire une suggestion
“It’s really unexplainable, but everyone here got it:” Analysis of an ASD sibling support group for emerging adults / Caitlin CALIO in Research in Autism Spectrum Disorders, 88 (October 2021)
[article]
Titre : “It’s really unexplainable, but everyone here got it:” Analysis of an ASD sibling support group for emerging adults Type de document : Texte imprimé et/ou numérique Auteurs : Caitlin CALIO, Auteur ; Ann HIGGINS-D’ALESSANDRO, Auteur Article en page(s) : 101857 Langues : Anglais (eng) Mots-clés : Autism Siblings TDS Family life Stigma Isolation Responsibility Index. décimale : PER Périodiques Résumé : Background While the basic and applied literature on people with autism continues to expand in helpful ways, including substantial research on their families, less research exists focused specifically on siblings, and little on older siblings during emerging adulthood. This study's intervention goal was to create a support group for emerging adults with siblings with autism and share their experiences, and then to determine whether they found the group meaningful and useful. The study's research goal was to gain a better understanding of the TDS’s perspectives on their own identity and development and their perceptions of their family’s functioning during this period. Method Six university students gave informed consent for audio-taping group discussions by the first author, a participant researcher. The support group, titled-Sibling Allies, met 5 times in Fall 2017; qualitative data from the meetings were analyzed using multi-grounded (MGT) theory analysis (Goldkuhl & Cronholm, 2010). Results Results show that sharing experiences was highly meaningful; participants' openness and comfort led to deep revelations and real friendships. Major themes were able to be identified using Multi Grounded Theory (MGT): lifelong responsibility, strong dedication to their families even as they become independent, and resilience to chronic challenges. Three theory categories emerged: Individual Experience, Family Life in Private, and Family Functioning in Public. Using MGT, thematic action paradigm models were constructed to illustrate researchable relationships among identified conditions, actions, and consequences in these domains. Conclusions In conclusion, this project shows the feasibility and value of developing intervention and research goals simultaneously. The participants reported the peer-led structured support group was meaningful and useful. MGT analysis of the recorded discussions substantiated previous findings and elaborated on themes such as the pervasive role that stigma plays in family decisions and how inseparable the sibling relationship is from the typically developing sibling’s (TDS’s) personal identity and development. En ligne : https://doi.org/10.1016/j.rasd.2021.101857 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458
in Research in Autism Spectrum Disorders > 88 (October 2021) . - 101857[article] “It’s really unexplainable, but everyone here got it:” Analysis of an ASD sibling support group for emerging adults [Texte imprimé et/ou numérique] / Caitlin CALIO, Auteur ; Ann HIGGINS-D’ALESSANDRO, Auteur . - 101857.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 88 (October 2021) . - 101857
Mots-clés : Autism Siblings TDS Family life Stigma Isolation Responsibility Index. décimale : PER Périodiques Résumé : Background While the basic and applied literature on people with autism continues to expand in helpful ways, including substantial research on their families, less research exists focused specifically on siblings, and little on older siblings during emerging adulthood. This study's intervention goal was to create a support group for emerging adults with siblings with autism and share their experiences, and then to determine whether they found the group meaningful and useful. The study's research goal was to gain a better understanding of the TDS’s perspectives on their own identity and development and their perceptions of their family’s functioning during this period. Method Six university students gave informed consent for audio-taping group discussions by the first author, a participant researcher. The support group, titled-Sibling Allies, met 5 times in Fall 2017; qualitative data from the meetings were analyzed using multi-grounded (MGT) theory analysis (Goldkuhl & Cronholm, 2010). Results Results show that sharing experiences was highly meaningful; participants' openness and comfort led to deep revelations and real friendships. Major themes were able to be identified using Multi Grounded Theory (MGT): lifelong responsibility, strong dedication to their families even as they become independent, and resilience to chronic challenges. Three theory categories emerged: Individual Experience, Family Life in Private, and Family Functioning in Public. Using MGT, thematic action paradigm models were constructed to illustrate researchable relationships among identified conditions, actions, and consequences in these domains. Conclusions In conclusion, this project shows the feasibility and value of developing intervention and research goals simultaneously. The participants reported the peer-led structured support group was meaningful and useful. MGT analysis of the recorded discussions substantiated previous findings and elaborated on themes such as the pervasive role that stigma plays in family decisions and how inseparable the sibling relationship is from the typically developing sibling’s (TDS’s) personal identity and development. En ligne : https://doi.org/10.1016/j.rasd.2021.101857 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 Home Sweet Home? Families’ Experiences With Aggression in Children With Autism Spectrum Disorders / Sandra HODGETTS in Focus on Autism and Other Developmental Disabilities, 28-3 (September 2013)
[article]
Titre : Home Sweet Home? Families’ Experiences With Aggression in Children With Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Sandra HODGETTS, Auteur ; David B NICHOLAS, Auteur ; Lonnie ZWAIGENBAUM, Auteur Article en page(s) : p.166-174 Langues : Anglais (eng) Mots-clés : autism aggression family life Index. décimale : PER Périodiques Résumé : Although not inherent to the diagnosis, many individuals with autism spectrum disorders (ASD) display aggressive behavior. This study examined the experiences of families living with individuals with ASD who also demonstrate aggressive behaviors. Using a qualitative approach, semistructured interviews were conducted with parents of nine males with autism and aggression. Eight families’ homes also were observed. Through constant-comparison analysis of interview data, triangulated with home observations, three central processes were identified: deleterious impact on daily routines and well-being of family members, limited supports and services, and financial strain. Emergent themes included isolation, exhaustion, safety concerns, home expenses, respite needs, and limited professional supports and alternative housing. Examination of families’ experiences living with someone with ASD who is aggressive, and the impact of aggression on the supports and services that families receive, constitutes an important step in tailoring resources to best meet families’ needs. En ligne : http://dx.doi.org/10.1177/1088357612472932 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=210
in Focus on Autism and Other Developmental Disabilities > 28-3 (September 2013) . - p.166-174[article] Home Sweet Home? Families’ Experiences With Aggression in Children With Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Sandra HODGETTS, Auteur ; David B NICHOLAS, Auteur ; Lonnie ZWAIGENBAUM, Auteur . - p.166-174.
Langues : Anglais (eng)
in Focus on Autism and Other Developmental Disabilities > 28-3 (September 2013) . - p.166-174
Mots-clés : autism aggression family life Index. décimale : PER Périodiques Résumé : Although not inherent to the diagnosis, many individuals with autism spectrum disorders (ASD) display aggressive behavior. This study examined the experiences of families living with individuals with ASD who also demonstrate aggressive behaviors. Using a qualitative approach, semistructured interviews were conducted with parents of nine males with autism and aggression. Eight families’ homes also were observed. Through constant-comparison analysis of interview data, triangulated with home observations, three central processes were identified: deleterious impact on daily routines and well-being of family members, limited supports and services, and financial strain. Emergent themes included isolation, exhaustion, safety concerns, home expenses, respite needs, and limited professional supports and alternative housing. Examination of families’ experiences living with someone with ASD who is aggressive, and the impact of aggression on the supports and services that families receive, constitutes an important step in tailoring resources to best meet families’ needs. En ligne : http://dx.doi.org/10.1177/1088357612472932 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=210