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Commentary: PDA – public display of affection or pathological demand avoidance? – reflections on O'Nions et al. (2014) / Christopher GILLBERG in Journal of Child Psychology and Psychiatry, 55-7 (July 2014)
[article]
Titre : Commentary: PDA – public display of affection or pathological demand avoidance? – reflections on O'Nions et al. (2014) Type de document : Texte imprimé et/ou numérique Auteurs : Christopher GILLBERG, Auteur Article en page(s) : p.769-770 Langues : Anglais (eng) Mots-clés : Demand avoidance PDA EDA child-onset trait measure oppositional behaviours pervasive developmental disorders Index. décimale : PER Périodiques Résumé : A group of children presents with a rather peculiar type of oppositional behaviours, sometimes now subsumed under the label of ‘pathological demand avoidance’ syndrome, also increasingly referred to as PDA. Boys and girls with ‘this kind of PDA’ will do anything to avoid meeting demands of adults and children alike. The behaviours ‘used’ in maintaining avoidance range from openly oppositional or manipulative to ‘extreme shyness’, passivity and muteness. These behaviours in terms of expression of affection are rather the opposite of those associated with the commonly used meaning of PDA. However, the avoidant behaviour is quite often ‘publicly displayed’ and with no feeling for the inappropriateness of the, sometimes even, exhibitionist style of extreme demand avoidance (EDA). The ‘disorder’ was first heard of in 1980, when Elisabeth Newson presented the first 12 cases of what she believed to be a ‘new’ and separate syndrome and that she referred to as PDA. Even though PDA has attracted quite a bit of clinical attention in the United Kingdom and other parts of Europe (including Scandinavia), virtually no research has been published in the field so far (Newson, Le Maréchal, David, ). Experienced clinicians throughout child psychiatry, child neurology and paediatrics testify to its existence and the very major problems encountered when it comes to intervention and treatment. It is therefore a major step forward that O?Nions and co-workers (this issue) have developed a new ‘trait measure’ for PDA (‘the EDA-Q’), a measure that appears to hold considerable promise for research, and eventually for clinical practice. En ligne : http://dx.doi.org/10.1111/jcpp.12275 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=235
in Journal of Child Psychology and Psychiatry > 55-7 (July 2014) . - p.769-770[article] Commentary: PDA – public display of affection or pathological demand avoidance? – reflections on O'Nions et al. (2014) [Texte imprimé et/ou numérique] / Christopher GILLBERG, Auteur . - p.769-770.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 55-7 (July 2014) . - p.769-770
Mots-clés : Demand avoidance PDA EDA child-onset trait measure oppositional behaviours pervasive developmental disorders Index. décimale : PER Périodiques Résumé : A group of children presents with a rather peculiar type of oppositional behaviours, sometimes now subsumed under the label of ‘pathological demand avoidance’ syndrome, also increasingly referred to as PDA. Boys and girls with ‘this kind of PDA’ will do anything to avoid meeting demands of adults and children alike. The behaviours ‘used’ in maintaining avoidance range from openly oppositional or manipulative to ‘extreme shyness’, passivity and muteness. These behaviours in terms of expression of affection are rather the opposite of those associated with the commonly used meaning of PDA. However, the avoidant behaviour is quite often ‘publicly displayed’ and with no feeling for the inappropriateness of the, sometimes even, exhibitionist style of extreme demand avoidance (EDA). The ‘disorder’ was first heard of in 1980, when Elisabeth Newson presented the first 12 cases of what she believed to be a ‘new’ and separate syndrome and that she referred to as PDA. Even though PDA has attracted quite a bit of clinical attention in the United Kingdom and other parts of Europe (including Scandinavia), virtually no research has been published in the field so far (Newson, Le Maréchal, David, ). Experienced clinicians throughout child psychiatry, child neurology and paediatrics testify to its existence and the very major problems encountered when it comes to intervention and treatment. It is therefore a major step forward that O?Nions and co-workers (this issue) have developed a new ‘trait measure’ for PDA (‘the EDA-Q’), a measure that appears to hold considerable promise for research, and eventually for clinical practice. En ligne : http://dx.doi.org/10.1111/jcpp.12275 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=235 Development of the ‘Extreme Demand Avoidance Questionnaire’ (EDA-Q): preliminary observations on a trait measure for Pathological Demand Avoidance / Elizabeth O'NIONS in Journal of Child Psychology and Psychiatry, 55-7 (July 2014)
[article]
Titre : Development of the ‘Extreme Demand Avoidance Questionnaire’ (EDA-Q): preliminary observations on a trait measure for Pathological Demand Avoidance Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth O'NIONS, Auteur ; Phil CHRISTIE, Auteur ; Judith GOULD, Auteur ; Essi VIDING, Auteur ; Francesca HAPPE, Auteur Article en page(s) : p.758-768 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder ASD pathological demand avoidance PDA pervasive developmental disorder conduct problems oppositional defiant disorder ODD disruptive behaviour Index. décimale : PER Périodiques Résumé : Background Pathological Demand Avoidance (PDA) is a term increasingly used in the United Kingdom to describe children who obsessively resist everyday demands, going to extreme lengths to avoid these. There is debate about its relationship with both autism spectrum disorder (ASD) and oppositional defiant disorder (ODD). Unlike ASD, children with PDA are said to use socially manipulative avoidance strategies; and unlike ODD, they resort to extreme, embarrassing or age-inappropriate behaviour. To date, there has been little research into PDA, and it remains contentious. Currently, there are no questionnaire instruments available to aid consistency in description. This study reports the development and preliminary validation of the ‘Extreme Demand Avoidance Questionnaire’ (EDA-Q), designed to quantify PDA traits based on parent-reported information. Methods The validation study involved data from 326 parents of children aged 5-17 allocated to six groups based on information reported by parents about received diagnoses and behavioural difficulties: (a) typically developing children (N = 102), (b) children with ASD without disruptive behaviour (N = 36), (c) children with ASD with disruptive behaviour (N = 48), (d) children for whom PDA was suspected by parents (irrespective of other diagnoses) (N = 67), (e) children who had, according to parents, been identified as having PDA by a health professional, irrespective of other diagnoses (N = 50), and (6) disruptive behaviour or behavioural problems without suspected/identified ASD or PDA (N = 23). Results Although the Strengths and Difficulties Questionnaire (SDQ) did not differentiate PDA from those with ASD plus disruptive behaviour; score on the EDA-Q was significantly higher in PDA than all comparison groups. ROC analysis indicated good sensitivity (.80) and specificity (.85). Across all case groups, females scored higher than males on the EDA-Q. Separate cut-off scores were identified for older and younger age-groups. Conclusions Our findings highlight the potential utility of the EDA-Q to assist the identification of this unusual profile for future research. En ligne : http://dx.doi.org/10.1111/jcpp.12149 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=235
in Journal of Child Psychology and Psychiatry > 55-7 (July 2014) . - p.758-768[article] Development of the ‘Extreme Demand Avoidance Questionnaire’ (EDA-Q): preliminary observations on a trait measure for Pathological Demand Avoidance [Texte imprimé et/ou numérique] / Elizabeth O'NIONS, Auteur ; Phil CHRISTIE, Auteur ; Judith GOULD, Auteur ; Essi VIDING, Auteur ; Francesca HAPPE, Auteur . - p.758-768.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 55-7 (July 2014) . - p.758-768
Mots-clés : Autism spectrum disorder ASD pathological demand avoidance PDA pervasive developmental disorder conduct problems oppositional defiant disorder ODD disruptive behaviour Index. décimale : PER Périodiques Résumé : Background Pathological Demand Avoidance (PDA) is a term increasingly used in the United Kingdom to describe children who obsessively resist everyday demands, going to extreme lengths to avoid these. There is debate about its relationship with both autism spectrum disorder (ASD) and oppositional defiant disorder (ODD). Unlike ASD, children with PDA are said to use socially manipulative avoidance strategies; and unlike ODD, they resort to extreme, embarrassing or age-inappropriate behaviour. To date, there has been little research into PDA, and it remains contentious. Currently, there are no questionnaire instruments available to aid consistency in description. This study reports the development and preliminary validation of the ‘Extreme Demand Avoidance Questionnaire’ (EDA-Q), designed to quantify PDA traits based on parent-reported information. Methods The validation study involved data from 326 parents of children aged 5-17 allocated to six groups based on information reported by parents about received diagnoses and behavioural difficulties: (a) typically developing children (N = 102), (b) children with ASD without disruptive behaviour (N = 36), (c) children with ASD with disruptive behaviour (N = 48), (d) children for whom PDA was suspected by parents (irrespective of other diagnoses) (N = 67), (e) children who had, according to parents, been identified as having PDA by a health professional, irrespective of other diagnoses (N = 50), and (6) disruptive behaviour or behavioural problems without suspected/identified ASD or PDA (N = 23). Results Although the Strengths and Difficulties Questionnaire (SDQ) did not differentiate PDA from those with ASD plus disruptive behaviour; score on the EDA-Q was significantly higher in PDA than all comparison groups. ROC analysis indicated good sensitivity (.80) and specificity (.85). Across all case groups, females scored higher than males on the EDA-Q. Separate cut-off scores were identified for older and younger age-groups. Conclusions Our findings highlight the potential utility of the EDA-Q to assist the identification of this unusual profile for future research. En ligne : http://dx.doi.org/10.1111/jcpp.12149 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=235 A Review of the Use of Touch-Screen Mobile Devices by People with Developmental Disabilities / Jennifer STEPHENSON in Journal of Autism and Developmental Disorders, 45-12 (December 2015)
[article]
Titre : A Review of the Use of Touch-Screen Mobile Devices by People with Developmental Disabilities Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer STEPHENSON, Auteur ; Lisa LIMBRICK, Auteur Année de publication : 2015 Article en page(s) : p.3777-3791 Langues : Anglais (eng) Mots-clés : Developmental disabilities PDA iPod iPad Smart phone Index. décimale : PER Périodiques Résumé : This article presents a review of the research on the use of mobile touch-screen devices such as PDAs, iPod Touches, iPads and smart phones by people with developmental disabilities. Most of the research has been on very basic use of the devices as speech generating devices, as a means of providing video, pictorial and/or audio self-prompting and for leisure activities such as listening to music and watching videos. Most research studies were small-n designs that provided a preponderant level of research evidence. There is a clear need for more research with younger participants and with a much wider range of apps, including educational apps. En ligne : http://dx.doi.org/10.1007/s10803-013-1878-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=273
in Journal of Autism and Developmental Disorders > 45-12 (December 2015) . - p.3777-3791[article] A Review of the Use of Touch-Screen Mobile Devices by People with Developmental Disabilities [Texte imprimé et/ou numérique] / Jennifer STEPHENSON, Auteur ; Lisa LIMBRICK, Auteur . - 2015 . - p.3777-3791.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-12 (December 2015) . - p.3777-3791
Mots-clés : Developmental disabilities PDA iPod iPad Smart phone Index. décimale : PER Périodiques Résumé : This article presents a review of the research on the use of mobile touch-screen devices such as PDAs, iPod Touches, iPads and smart phones by people with developmental disabilities. Most of the research has been on very basic use of the devices as speech generating devices, as a means of providing video, pictorial and/or audio self-prompting and for leisure activities such as listening to music and watching videos. Most research studies were small-n designs that provided a preponderant level of research evidence. There is a clear need for more research with younger participants and with a much wider range of apps, including educational apps. En ligne : http://dx.doi.org/10.1007/s10803-013-1878-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=273