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Brief Report: Assessment Experiences of Children with Neurogenetic Syndromes: Caregivers' Perceptions and Suggestions for Improvement / Bridgette KELLEHER in Journal of Autism and Developmental Disorders, 50-4 (April 2020)
[article]
Titre : Brief Report: Assessment Experiences of Children with Neurogenetic Syndromes: Caregivers' Perceptions and Suggestions for Improvement Type de document : Texte imprimé et/ou numérique Auteurs : Bridgette KELLEHER, Auteur ; Taylor HALLIGAN, Auteur ; Tessa GARWOOD, Auteur ; Samantha HOWELL, Auteur ; Breanna MARTIN-O'DELL, Auteur ; Amber SWINT, Auteur ; Liberty-Ann SHELTON, Auteur ; Joey SHIN, Auteur Article en page(s) : p.1443-1450 Langues : Anglais (eng) Mots-clés : Autism Caregivers Clinical assessment Neurogenetic syndromes Outcome measures Index. décimale : PER Périodiques Résumé : It is well-recognized that measurement options for diagnosing and monitoring children with neurogenetic syndromes (NGS) associated with moderate to severe intellectual impairment are limited (Berry-Kravis, Dev Med Child Neurol https://doi.org/10.1111/dmcn.13018, 2016), and caregivers experience significant concerns regarding the assessment process. However to date, these concerns have not been summarized into actionable steps for clinicians and test-makers. As such, we used a mixed methods approach to assess caregiver-derived perceptions and suggestions for improving assessments in NGS. Results indicated many shared challenges and suggestions for improvement, particularly in the domains of testing procedures and examiner communication. Integrating these suggestions into future protocols is an important next step toward improving the quality of assessment procedures for children with NGS and their families across both clinical and research contexts. En ligne : http://dx.doi.org/10.1007/s10803-020-04363-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421
in Journal of Autism and Developmental Disorders > 50-4 (April 2020) . - p.1443-1450[article] Brief Report: Assessment Experiences of Children with Neurogenetic Syndromes: Caregivers' Perceptions and Suggestions for Improvement [Texte imprimé et/ou numérique] / Bridgette KELLEHER, Auteur ; Taylor HALLIGAN, Auteur ; Tessa GARWOOD, Auteur ; Samantha HOWELL, Auteur ; Breanna MARTIN-O'DELL, Auteur ; Amber SWINT, Auteur ; Liberty-Ann SHELTON, Auteur ; Joey SHIN, Auteur . - p.1443-1450.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-4 (April 2020) . - p.1443-1450
Mots-clés : Autism Caregivers Clinical assessment Neurogenetic syndromes Outcome measures Index. décimale : PER Périodiques Résumé : It is well-recognized that measurement options for diagnosing and monitoring children with neurogenetic syndromes (NGS) associated with moderate to severe intellectual impairment are limited (Berry-Kravis, Dev Med Child Neurol https://doi.org/10.1111/dmcn.13018, 2016), and caregivers experience significant concerns regarding the assessment process. However to date, these concerns have not been summarized into actionable steps for clinicians and test-makers. As such, we used a mixed methods approach to assess caregiver-derived perceptions and suggestions for improving assessments in NGS. Results indicated many shared challenges and suggestions for improvement, particularly in the domains of testing procedures and examiner communication. Integrating these suggestions into future protocols is an important next step toward improving the quality of assessment procedures for children with NGS and their families across both clinical and research contexts. En ligne : http://dx.doi.org/10.1007/s10803-020-04363-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421 A Game-Based Repeated Assessment for Cognitive Monitoring: Initial Usability and Adherence Study in a Summer Camp Setting / R. M. FLYNN in Journal of Autism and Developmental Disorders, 49-5 (May 2019)
[article]
Titre : A Game-Based Repeated Assessment for Cognitive Monitoring: Initial Usability and Adherence Study in a Summer Camp Setting Type de document : Texte imprimé et/ou numérique Auteurs : R. M. FLYNN, Auteur ; N. COLON-ACOSTA, Auteur ; J. ZHOU, Auteur ; J. BOWER, Auteur Article en page(s) : p.2003-2014 Langues : Anglais (eng) Mots-clés : Attention deficit hyperactivity disorder Autism spectrum disorders Clinical assessment Cognition Learning disorders Video game Index. décimale : PER Périodiques Résumé : The current feasibility study examined the adherence, reliability, and assessment potential of an evidence-based game-like mobile Monitoring Tool (Akili Interactive Labs), to monitor 100 participants' cognition for eight sessions at a summer camp for children with special needs. A validated measure of attention was administered at baseline. In the last session, participants completed an exit questionnaire. The Monitoring Tool was found to be enjoyable, and showed a high rate of adherence. No Monitor-related adverse events were reported. Monitor metrics showed good reliability across repeated measurements, indicating it is stable over long-term cognitive monitoring. There was evidence that the Monitoring Tool was able to detect differences in cognition between the children diagnosed with attention deficit hyperactivity disorder and autism spectrum disorders. En ligne : http://dx.doi.org/10.1007/s10803-019-03881-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=393
in Journal of Autism and Developmental Disorders > 49-5 (May 2019) . - p.2003-2014[article] A Game-Based Repeated Assessment for Cognitive Monitoring: Initial Usability and Adherence Study in a Summer Camp Setting [Texte imprimé et/ou numérique] / R. M. FLYNN, Auteur ; N. COLON-ACOSTA, Auteur ; J. ZHOU, Auteur ; J. BOWER, Auteur . - p.2003-2014.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-5 (May 2019) . - p.2003-2014
Mots-clés : Attention deficit hyperactivity disorder Autism spectrum disorders Clinical assessment Cognition Learning disorders Video game Index. décimale : PER Périodiques Résumé : The current feasibility study examined the adherence, reliability, and assessment potential of an evidence-based game-like mobile Monitoring Tool (Akili Interactive Labs), to monitor 100 participants' cognition for eight sessions at a summer camp for children with special needs. A validated measure of attention was administered at baseline. In the last session, participants completed an exit questionnaire. The Monitoring Tool was found to be enjoyable, and showed a high rate of adherence. No Monitor-related adverse events were reported. Monitor metrics showed good reliability across repeated measurements, indicating it is stable over long-term cognitive monitoring. There was evidence that the Monitoring Tool was able to detect differences in cognition between the children diagnosed with attention deficit hyperactivity disorder and autism spectrum disorders. En ligne : http://dx.doi.org/10.1007/s10803-019-03881-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=393 Does a social self-perceptual bias mask internalizing symptoms in children with attention-deficit/hyperactivity disorder? / C. P. MARTIN in Journal of Child Psychology and Psychiatry, 60-6 (June 2019)
[article]
Titre : Does a social self-perceptual bias mask internalizing symptoms in children with attention-deficit/hyperactivity disorder? Type de document : Texte imprimé et/ou numérique Auteurs : C. P. MARTIN, Auteur ; V. PEISCH, Auteur ; E. K. SHOULBERG, Auteur ; N. KAISER, Auteur ; B. HOZA, Auteur Article en page(s) : p.630-637 Langues : Anglais (eng) Mots-clés : Attention-deficit/hyperactivity disorder clinical assessment self-perceptual bias youth self-report Index. décimale : PER Périodiques Résumé : BACKGROUND: Children with attention-deficit/hyperactivity disorder (ADHD) often present with additional psychiatric conditions. Comorbidity is associated with poorer long-term outcomes, highlighting the need for effective assessment and intervention. However, self-perceptual biases may mask the presence of symptoms for a subgroup of children with ADHD. This study examined the role of social self-perceptual biases in children with ADHD versus control children on self-reports of loneliness, and depressive and anxious symptoms. METHODS: The research question was examined in two samples. Sample 1 consisted of 7.7-12.8-year-old boys with ADHD (n = 199) and control boys (n = 74); Sample 2 consisted of 7.7-11.4-year-old boys and girls with ADHD (n = 178) and control children (n = 86). Across samples, children reported social competence and symptoms of anxiety and depression. Child-reported loneliness was examined in Sample 1. A social competence discrepancy score (difference between self-report and teacher-report) was used as an indicator of social self-perceptual bias. RESULTS: Hierarchical multiple regression analyses tested social self-perceptual bias as a suppressor variable. The magnitude of the associations between ADHD and self-reported feelings of depression, anxiety and loneliness was greater when social self-perceptual bias was included in models as compared to models that did not include social self-perceptual bias (DeltaR(2) s range = 0.04-0.19). CONCLUSIONS: Findings across both samples suggest that social self-perceptual biases may mask internalizing symptom severity on self-reports for individuals who overestimate their social competence. More research is needed to determine the best approach to assessing internalizing problems among children with ADHD. En ligne : http://dx.doi.org/10.1111/jcpp.13024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=397
in Journal of Child Psychology and Psychiatry > 60-6 (June 2019) . - p.630-637[article] Does a social self-perceptual bias mask internalizing symptoms in children with attention-deficit/hyperactivity disorder? [Texte imprimé et/ou numérique] / C. P. MARTIN, Auteur ; V. PEISCH, Auteur ; E. K. SHOULBERG, Auteur ; N. KAISER, Auteur ; B. HOZA, Auteur . - p.630-637.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 60-6 (June 2019) . - p.630-637
Mots-clés : Attention-deficit/hyperactivity disorder clinical assessment self-perceptual bias youth self-report Index. décimale : PER Périodiques Résumé : BACKGROUND: Children with attention-deficit/hyperactivity disorder (ADHD) often present with additional psychiatric conditions. Comorbidity is associated with poorer long-term outcomes, highlighting the need for effective assessment and intervention. However, self-perceptual biases may mask the presence of symptoms for a subgroup of children with ADHD. This study examined the role of social self-perceptual biases in children with ADHD versus control children on self-reports of loneliness, and depressive and anxious symptoms. METHODS: The research question was examined in two samples. Sample 1 consisted of 7.7-12.8-year-old boys with ADHD (n = 199) and control boys (n = 74); Sample 2 consisted of 7.7-11.4-year-old boys and girls with ADHD (n = 178) and control children (n = 86). Across samples, children reported social competence and symptoms of anxiety and depression. Child-reported loneliness was examined in Sample 1. A social competence discrepancy score (difference between self-report and teacher-report) was used as an indicator of social self-perceptual bias. RESULTS: Hierarchical multiple regression analyses tested social self-perceptual bias as a suppressor variable. The magnitude of the associations between ADHD and self-reported feelings of depression, anxiety and loneliness was greater when social self-perceptual bias was included in models as compared to models that did not include social self-perceptual bias (DeltaR(2) s range = 0.04-0.19). CONCLUSIONS: Findings across both samples suggest that social self-perceptual biases may mask internalizing symptom severity on self-reports for individuals who overestimate their social competence. More research is needed to determine the best approach to assessing internalizing problems among children with ADHD. En ligne : http://dx.doi.org/10.1111/jcpp.13024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=397 Do Parents and Clinicians Agree on Ratings of Autism-Related Behaviors at 12 Months of Age? A Study of Infants at High and Low Risk for ASD / S. L. MACARI in Journal of Autism and Developmental Disorders, 48-4 (April 2018)
[article]
Titre : Do Parents and Clinicians Agree on Ratings of Autism-Related Behaviors at 12 Months of Age? A Study of Infants at High and Low Risk for ASD Type de document : Texte imprimé et/ou numérique Auteurs : S. L. MACARI, Auteur ; G. C. WU, Auteur ; Kelly POWELL, Auteur ; S. th FONTENELLE, Auteur ; D. M. MACRIS, Auteur ; Katarzyna CHAWARSKA, Auteur Article en page(s) : p.1069-1080 Langues : Anglais (eng) Mots-clés : Ados-t Asd Clinical assessment Fyi High-risk infants Infancy Parent questionnaires Screening Index. décimale : PER Périodiques Résumé : Given the emphasis on early screening for ASD, it is crucial to examine the concordance between parent report and clinician observation of autism-related behaviors. Similar items were compared from the First Year Inventory (Baranek et al. First-Year Inventory (FYI) 2.0. University of North Carolina, Chapel Hill, 2003), a parent screener for ASD, and the ADOS-2 Toddler Module (Lord et al. 2013), a standardized ASD diagnostic tool. Measures were administered concurrently to 12-month-olds at high and low risk for ASD. Results suggest that clinicians and parents rated behaviors similarly. In addition, both informants rated high-risk infants as more impaired in several social-communication behaviors. Furthermore, the format of questions impacted agreement across observers. These findings have implications for the development of a new generation of screening instruments for ASD. En ligne : http://dx.doi.org/10.1007/s10803-017-3410-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351
in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1069-1080[article] Do Parents and Clinicians Agree on Ratings of Autism-Related Behaviors at 12 Months of Age? A Study of Infants at High and Low Risk for ASD [Texte imprimé et/ou numérique] / S. L. MACARI, Auteur ; G. C. WU, Auteur ; Kelly POWELL, Auteur ; S. th FONTENELLE, Auteur ; D. M. MACRIS, Auteur ; Katarzyna CHAWARSKA, Auteur . - p.1069-1080.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1069-1080
Mots-clés : Ados-t Asd Clinical assessment Fyi High-risk infants Infancy Parent questionnaires Screening Index. décimale : PER Périodiques Résumé : Given the emphasis on early screening for ASD, it is crucial to examine the concordance between parent report and clinician observation of autism-related behaviors. Similar items were compared from the First Year Inventory (Baranek et al. First-Year Inventory (FYI) 2.0. University of North Carolina, Chapel Hill, 2003), a parent screener for ASD, and the ADOS-2 Toddler Module (Lord et al. 2013), a standardized ASD diagnostic tool. Measures were administered concurrently to 12-month-olds at high and low risk for ASD. Results suggest that clinicians and parents rated behaviors similarly. In addition, both informants rated high-risk infants as more impaired in several social-communication behaviors. Furthermore, the format of questions impacted agreement across observers. These findings have implications for the development of a new generation of screening instruments for ASD. En ligne : http://dx.doi.org/10.1007/s10803-017-3410-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351