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Support Group Value and Design for Parents of Children with Severe or Profound Intellectual and Developmental Disabilities / J. B. JACKSON in Journal of Autism and Developmental Disorders, 48-12 (December 2018)
[article]
Titre : Support Group Value and Design for Parents of Children with Severe or Profound Intellectual and Developmental Disabilities Type de document : Texte imprimé et/ou numérique Auteurs : J. B. JACKSON, Auteur ; S. R. STEWARD, Auteur ; Susanne Olsen ROPER, Auteur ; B. A. MURUTHI, Auteur Article en page(s) : p.4207-4221 Langues : Anglais (eng) Mots-clés : Children with developmental disabilities Children with intellectual disability Parents Support group Index. décimale : PER Périodiques Résumé : The purpose of this study was to interview parents of children with severe or profound intellectual and developmental disabilities to determine the perceived value of support groups and identify recommendations for support group design based on their experiences and feedback. Despite varied experiences with support groups, most parents indicated the value of support groups is in providing a place where parents can feel understood and both share and gather information. Parents recommended support groups be targeted for parents of children with similar disabilities and needs, have flexible structures and qualified leaders, and offer a wide variety of content in various formats. Given parental recommendations for support group design varied, summary recommendations addressing a wide range of preferences are provided. En ligne : http://dx.doi.org/10.1007/s10803-018-3665-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371
in Journal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4207-4221[article] Support Group Value and Design for Parents of Children with Severe or Profound Intellectual and Developmental Disabilities [Texte imprimé et/ou numérique] / J. B. JACKSON, Auteur ; S. R. STEWARD, Auteur ; Susanne Olsen ROPER, Auteur ; B. A. MURUTHI, Auteur . - p.4207-4221.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4207-4221
Mots-clés : Children with developmental disabilities Children with intellectual disability Parents Support group Index. décimale : PER Périodiques Résumé : The purpose of this study was to interview parents of children with severe or profound intellectual and developmental disabilities to determine the perceived value of support groups and identify recommendations for support group design based on their experiences and feedback. Despite varied experiences with support groups, most parents indicated the value of support groups is in providing a place where parents can feel understood and both share and gather information. Parents recommended support groups be targeted for parents of children with similar disabilities and needs, have flexible structures and qualified leaders, and offer a wide variety of content in various formats. Given parental recommendations for support group design varied, summary recommendations addressing a wide range of preferences are provided. En ligne : http://dx.doi.org/10.1007/s10803-018-3665-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371 Randomized controlled trial of a sibling support group: Mental health outcomes for siblings of children with autism / Emily A. JONES in Autism, 24-6 (August 2020)
[article]
Titre : Randomized controlled trial of a sibling support group: Mental health outcomes for siblings of children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Emily A. JONES, Auteur ; Theresa FIANI, Auteur ; Jennifer L. STEWART, Auteur ; Nicole NEIL, Auteur ; Susan MCHUGH, Auteur ; Daniel M. FIENUP, Auteur Article en page(s) : p.1468-1481 Langues : Anglais (eng) Mots-clés : autism spectrum disorder mental health sibling adjustment support group typically developing siblings Index. décimale : PER Périodiques Résumé : Typically developing siblings of a child with autism spectrum disorder may show mental health difficulties. A support group is one approach to help typically developing siblings. During support groups, typically developing siblings discuss their feelings, learn coping strategies and problem-solving skills, and develop a peer network. We compared a support group to participation in a similar group without a focus on the sibling with autism spectrum disorder. Some areas of mental health improved. Improvements were also impacted by autism spectrum disorder symptom severity in the sibling with autism spectrum disorder. Findings suggest continuing to examine how support groups can help typically developing siblings and for which siblings support groups might be particularly effective. En ligne : http://dx.doi.org/10.1177/1362361320908979 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428
in Autism > 24-6 (August 2020) . - p.1468-1481[article] Randomized controlled trial of a sibling support group: Mental health outcomes for siblings of children with autism [Texte imprimé et/ou numérique] / Emily A. JONES, Auteur ; Theresa FIANI, Auteur ; Jennifer L. STEWART, Auteur ; Nicole NEIL, Auteur ; Susan MCHUGH, Auteur ; Daniel M. FIENUP, Auteur . - p.1468-1481.
Langues : Anglais (eng)
in Autism > 24-6 (August 2020) . - p.1468-1481
Mots-clés : autism spectrum disorder mental health sibling adjustment support group typically developing siblings Index. décimale : PER Périodiques Résumé : Typically developing siblings of a child with autism spectrum disorder may show mental health difficulties. A support group is one approach to help typically developing siblings. During support groups, typically developing siblings discuss their feelings, learn coping strategies and problem-solving skills, and develop a peer network. We compared a support group to participation in a similar group without a focus on the sibling with autism spectrum disorder. Some areas of mental health improved. Improvements were also impacted by autism spectrum disorder symptom severity in the sibling with autism spectrum disorder. Findings suggest continuing to examine how support groups can help typically developing siblings and for which siblings support groups might be particularly effective. En ligne : http://dx.doi.org/10.1177/1362361320908979 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428