Treatments for Neurodevelopmental Disorders: Evidence, Advocacy, and the Internet / Nina C. DI PIETRO in Journal of Autism and Developmental Disorders, 43-1 (January 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-1 (January 2013) . - p.122-133 Titre : Treatments for Neurodevelopmental Disorders: Evidence, Advocacy, and the Internet Type de document : Texte imprimé et/ou numérique Auteurs : Nina C. DI PIETRO, Auteur ; Louise WHITELEY, Auteur ; Ania MIZGALEWICZ, Auteur ; Judy ILLES, Auteur Article en page(s) : p.122-133 Langues : Anglais (eng) Mots-clés : Autism cerebral palsy  Foetal alcohol spectrum disorder  Advocacy  Internet  Treatment information  Science communication  Ethics  Content analysis Index. décimale : PER Périodiques Résumé : The Internet is a major source of health-related information for parents of sick children despite concerns surrounding quality. For neurodevelopmental disorders, the websites of advocacy groups are a largely unexamined source of information. We evaluated treatment information posted on nine highly-trafficked advocacy websites for autism, cerebral palsy, and fetal alcohol spectrum disorder. We found that the majority of claims about treatment safety and efficacy were unsubstantiated. Instead, a range of rhetorical strategies were used to imply scientific support. When peer-reviewed publications were cited, 20 % were incorrect or irrelevant. We call for new partnerships between advocacy and experts in developmental disorders to ensure better accuracy and higher transparency about how treatment information is selected and evidenced on advocacy websites. En ligne : http://dx.doi.org/10.1007/s10803-012-1551-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=187 [article] Treatments for Neurodevelopmental Disorders: Evidence, Advocacy, and the Internet [Texte imprimé et/ou numérique] / Nina C. DI PIETRO, Auteur ; Louise WHITELEY, Auteur ; Ania MIZGALEWICZ, Auteur ; Judy ILLES, Auteur . - p.122-133. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-1 (January 2013) . - p.122-133 Mots-clés : Autism cerebral palsy  Foetal alcohol spectrum disorder  Advocacy  Internet  Treatment information  Science communication  Ethics  Content analysis Index. décimale : PER Périodiques Résumé : The Internet is a major source of health-related information for parents of sick children despite concerns surrounding quality. For neurodevelopmental disorders, the websites of advocacy groups are a largely unexamined source of information. We evaluated treatment information posted on nine highly-trafficked advocacy websites for autism, cerebral palsy, and fetal alcohol spectrum disorder. We found that the majority of claims about treatment safety and efficacy were unsubstantiated. Instead, a range of rhetorical strategies were used to imply scientific support. When peer-reviewed publications were cited, 20 % were incorrect or irrelevant. We call for new partnerships between advocacy and experts in developmental disorders to ensure better accuracy and higher transparency about how treatment information is selected and evidenced on advocacy websites. En ligne : http://dx.doi.org/10.1007/s10803-012-1551-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=187

Trends in US Autism Research Funding / Jennifer SINGH in Journal of Autism and Developmental Disorders, 39-5 (May 2009)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 39-5 (May 2009) . - p.788-795 Titre : Trends in US Autism Research Funding Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer SINGH, Auteur ; Joachim F. HALLMAYER, Auteur ; Judy ILLES, Auteur ; Laura LAZZERONI, Auteur Année de publication : 2009 Article en page(s) : p.788-795 Langues : Anglais (eng) Mots-clés : Autism-spectrum-disorder Funding Neurogenetics Treatment Diagnosis Index. décimale : PER Périodiques Résumé : This study shows that the number of autism research grants funded in the US from 1997 to 2006 significantly increased 15% per year. Although the majority of projects were concentrated in basic science (65%) compared to clinical (15%) and translational research (20%), there is a significant decrease in the proportion of basic research grants per year and a significant increase in the proportion of translational projects per year. The number of translational projects funded by the National Alliance for Autism Research and Cure Autism Now increased significantly, whereas the number of clinical projects significantly increased for the National Institutes of Health. In conclusion, this study demonstrates the shifting landscape of autism research from basic science to clinical and translational research. En ligne : http://dx.doi.org/10.1007/s10803-008-0685-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=733 [article] Trends in US Autism Research Funding [Texte imprimé et/ou numérique] / Jennifer SINGH, Auteur ; Joachim F. HALLMAYER, Auteur ; Judy ILLES, Auteur ; Laura LAZZERONI, Auteur . - 2009 . - p.788-795. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 39-5 (May 2009) . - p.788-795 Mots-clés : Autism-spectrum-disorder Funding Neurogenetics Treatment Diagnosis Index. décimale : PER Périodiques Résumé : This study shows that the number of autism research grants funded in the US from 1997 to 2006 significantly increased 15% per year. Although the majority of projects were concentrated in basic science (65%) compared to clinical (15%) and translational research (20%), there is a significant decrease in the proportion of basic research grants per year and a significant increase in the proportion of translational projects per year. The number of translational projects funded by the National Alliance for Autism Research and Cure Autism Now increased significantly, whereas the number of clinical projects significantly increased for the National Institutes of Health. In conclusion, this study demonstrates the shifting landscape of autism research from basic science to clinical and translational research. En ligne : http://dx.doi.org/10.1007/s10803-008-0685-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=733

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