Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders / Rahul KHANNA in Journal of Autism and Developmental Disorders, 41-9 (September 2011)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 41-9 (September 2011) . - p.1214-1227 Titre : Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Julie H. PATRICK, Auteur ; Cindy TWOREK, Auteur ; Barbara BECKER-COTTRILL, Auteur Année de publication : 2011 Article en page(s) : p.1214-1227 Langues : Anglais (eng) Mots-clés : Autism  Caregiver  Health-related quality of life  Burden Index. décimale : PER Périodiques Résumé : The impact of caring for a child with autism on caregivers’ health-related quality of life (HRQOL) is not fully understood. The objective of this study was to compare the HRQOL scores of caregivers of children with autism to those of the general US population and to identify the factors that influence HRQOL. Caregivers of children with autism had lower HRQOL scores than the general population. Care recipient level of functional impairment, social support, use of maladaptive coping, and burden influenced caregiver mental HRQOL. Care recipient extent of behavioral problems and social support influenced caregiver physical HRQOL. Findings emphasize the use of multi-pronged intervention approach that incorporates components aimed at improving family functioning, increasing support services, and assisting caregivers in developing healthy coping skills. En ligne : http://dx.doi.org/10.1007/s10803-010-1140-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=142 [article] Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Julie H. PATRICK, Auteur ; Cindy TWOREK, Auteur ; Barbara BECKER-COTTRILL, Auteur . - 2011 . - p.1214-1227. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 41-9 (September 2011) . - p.1214-1227 Mots-clés : Autism  Caregiver  Health-related quality of life  Burden Index. décimale : PER Périodiques Résumé : The impact of caring for a child with autism on caregivers’ health-related quality of life (HRQOL) is not fully understood. The objective of this study was to compare the HRQOL scores of caregivers of children with autism to those of the general US population and to identify the factors that influence HRQOL. Caregivers of children with autism had lower HRQOL scores than the general population. Care recipient level of functional impairment, social support, use of maladaptive coping, and burden influenced caregiver mental HRQOL. Care recipient extent of behavioral problems and social support influenced caregiver physical HRQOL. Findings emphasize the use of multi-pronged intervention approach that incorporates components aimed at improving family functioning, increasing support services, and assisting caregivers in developing healthy coping skills. En ligne : http://dx.doi.org/10.1007/s10803-010-1140-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=142

Health-related quality of life and its determinants among adults with autism / Rahul KHANNA in Research in Autism Spectrum Disorders, 8-3 (March 2014)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 8-3 (March 2014) . - p.157-167 Titre : Health-related quality of life and its determinants among adults with autism Type de document : Texte imprimé et/ou numérique Auteurs : Rahul KHANNA, Auteur ; Krutika JARIWALA-PARIKH, Auteur ; Donna WEST-STRUM, Auteur ; Rohan MAHABALESHWARKAR, Auteur Article en page(s) : p.157-167 Langues : Anglais (eng) Mots-clés : Autism  Adults  Health-related quality of life  Social support  Coping Index. décimale : PER Périodiques Résumé : Abstract The purpose of this study was to determine health-related quality of life (HRQOL) among adults with autism, and compare it to the HRQOL of the general adult population in the United States (US). Factors predicting HRQOL of adults with autism were also identified. A cross-sectional online survey was conducted to gather study information. From adults with autism registered with the Interactive Autism Network (IAN), those aged 18 years and above and having the capacity to self-report were identified and approached for study participation. The final sample included 291 adults with autism. One-way t-test revealed adults with autism to have significantly lower physical and mental HRQOL than their counterparts in the US population. Using linear regression analysis, modifiable factors including social support and coping along with other socio-demographic and medial characteristics were identified as significant predictors of physical and mental HRQOL. Greater perceived adequacy of social support from friends and family was associated with better HRQOL, while greater use of maladaptive coping was associated with lower HRQOL. Clinicians and other health interventionist should consider assessing these factors among adults with autism, and provide necessary capabilities to these adults with the aim of improving their HRQOL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.11.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224 [article] Health-related quality of life and its determinants among adults with autism [Texte imprimé et/ou numérique] / Rahul KHANNA, Auteur ; Krutika JARIWALA-PARIKH, Auteur ; Donna WEST-STRUM, Auteur ; Rohan MAHABALESHWARKAR, Auteur . - p.157-167. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 8-3 (March 2014) . - p.157-167 Mots-clés : Autism  Adults  Health-related quality of life  Social support  Coping Index. décimale : PER Périodiques Résumé : Abstract The purpose of this study was to determine health-related quality of life (HRQOL) among adults with autism, and compare it to the HRQOL of the general adult population in the United States (US). Factors predicting HRQOL of adults with autism were also identified. A cross-sectional online survey was conducted to gather study information. From adults with autism registered with the Interactive Autism Network (IAN), those aged 18 years and above and having the capacity to self-report were identified and approached for study participation. The final sample included 291 adults with autism. One-way t-test revealed adults with autism to have significantly lower physical and mental HRQOL than their counterparts in the US population. Using linear regression analysis, modifiable factors including social support and coping along with other socio-demographic and medial characteristics were identified as significant predictors of physical and mental HRQOL. Greater perceived adequacy of social support from friends and family was associated with better HRQOL, while greater use of maladaptive coping was associated with lower HRQOL. Clinicians and other health interventionist should consider assessing these factors among adults with autism, and provide necessary capabilities to these adults with the aim of improving their HRQOL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.11.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224

Hospitalization Burden Among Individuals with Autism / Tasneem LOKHANDWALA in Journal of Autism and Developmental Disorders, 42-1 (January 2012)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 42-1 (January 2012) . - p.95-104 Titre : Hospitalization Burden Among Individuals with Autism Type de document : Texte imprimé et/ou numérique Auteurs : Tasneem LOKHANDWALA, Auteur ; Rahul KHANNA, Auteur ; Donna WEST-STRUM, Auteur Année de publication : 2012 Article en page(s) : p.95-104 Langues : Anglais (eng) Mots-clés : Autism  Hospitalization  Cost Index. décimale : PER Périodiques Résumé : The objective of this study was to assess the inpatient care burden among individuals with autism using the 2007 Health Care Utilization Project Nationwide Inpatient Sample [HCUP-NIS]). There were ~26,000 hospitalizations among individuals with autism in 2007, with an overall rate of 65.6/100,000 admissions. Rates of hospitalizations were the highest among individuals with autism aged 10–20 years, males, having household income >$63,000, and with private insurance, respectively. In terms of hospital characteristics, rates were the highest in hospitals in large urban areas, located in the Northeast region, and with teaching status, respectively. Individuals with autism had significantly higher LOS (6.5 vs. 4.2; p < 0.0001) and total charges ($24,862 vs. $23,225; p < 0.0001) as compared to those without autism. En ligne : http://dx.doi.org/10.1007/s10803-011-1217-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=151 [article] Hospitalization Burden Among Individuals with Autism [Texte imprimé et/ou numérique] / Tasneem LOKHANDWALA, Auteur ; Rahul KHANNA, Auteur ; Donna WEST-STRUM, Auteur . - 2012 . - p.95-104. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 42-1 (January 2012) . - p.95-104 Mots-clés : Autism  Hospitalization  Cost Index. décimale : PER Périodiques Résumé : The objective of this study was to assess the inpatient care burden among individuals with autism using the 2007 Health Care Utilization Project Nationwide Inpatient Sample [HCUP-NIS]). There were ~26,000 hospitalizations among individuals with autism in 2007, with an overall rate of 65.6/100,000 admissions. Rates of hospitalizations were the highest among individuals with autism aged 10–20 years, males, having household income >$63,000, and with private insurance, respectively. In terms of hospital characteristics, rates were the highest in hospitals in large urban areas, located in the Northeast region, and with teaching status, respectively. Individuals with autism had significantly higher LOS (6.5 vs. 4.2; p < 0.0001) and total charges ($24,862 vs. $23,225; p < 0.0001) as compared to those without autism. En ligne : http://dx.doi.org/10.1007/s10803-011-1217-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=151

Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism / Rahul KHANNA in Autism, 16-2 (March 2012)  

Public ISBD [article]  inAutism > 16-2 (March 2012) . - p.179-199 Titre : Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Cindy TWOREK, Auteur ; Julie H. PATRICK, Auteur ; Barbara BECKER-COTTRILL, Auteur Année de publication : 2012 Article en page(s) : p.179-199 Langues : Anglais (eng) Mots-clés : psychometric properties: CGSQ  autism  caregivers Index. décimale : PER Périodiques Résumé : The purpose of this study was to test the psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism. The CGSQ was originally developed to assess burden experienced by parents of children and adolescents with serious emotional and behavioral disorders. Study data was collected from 304 primary caregivers ofchildren with autism using a cross-sectional survey design. We tested the one-, two-, and three-factor CGSQ model. Though the three-factor CGSQ model fit better than the one- and two-factor model, it was still short of an acceptable fit. Minor modifications were made to the three-factor model by correlating error terms. The modified three-factor CGSQ model with correlated error indicated reasonable fit with the data. The 21-item CGSQ had good convergent validity, as indicated by the correlation of its three subscales with constructs including mental health-related quality of life, maladaptive coping, social support, family functioning, and care recipient level of functional impairment and extent of behavioral problems, respectively. The internal consistency reliability of the instrument was also good, and there were no floor and ceiling effects. The CGSQ was found to be a reliable and valid instrument to assess burden among caregivers of children with autism. En ligne : http://dx.doi.org/10.1177/1362361311406143 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=155 [article] Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism [Texte imprimé et/ou numérique] / Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Cindy TWOREK, Auteur ; Julie H. PATRICK, Auteur ; Barbara BECKER-COTTRILL, Auteur . - 2012 . - p.179-199. Langues : Anglais (eng) in Autism > 16-2 (March 2012) . - p.179-199 Mots-clés : psychometric properties: CGSQ  autism  caregivers Index. décimale : PER Périodiques Résumé : The purpose of this study was to test the psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism. The CGSQ was originally developed to assess burden experienced by parents of children and adolescents with serious emotional and behavioral disorders. Study data was collected from 304 primary caregivers ofchildren with autism using a cross-sectional survey design. We tested the one-, two-, and three-factor CGSQ model. Though the three-factor CGSQ model fit better than the one- and two-factor model, it was still short of an acceptable fit. Minor modifications were made to the three-factor model by correlating error terms. The modified three-factor CGSQ model with correlated error indicated reasonable fit with the data. The 21-item CGSQ had good convergent validity, as indicated by the correlation of its three subscales with constructs including mental health-related quality of life, maladaptive coping, social support, family functioning, and care recipient level of functional impairment and extent of behavioral problems, respectively. The internal consistency reliability of the instrument was also good, and there were no floor and ceiling effects. The CGSQ was found to be a reliable and valid instrument to assess burden among caregivers of children with autism. En ligne : http://dx.doi.org/10.1177/1362361311406143 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=155

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