Assess the Fidelity, Validity and Responsiveness of the Brief Observation of Social Communication Change (BOSCC) to Measure Changes in the Social Interactions of Preschool Children With Autism Spectrum Disorder / Agathe JAY in Autism, 30-7 (July 2026)  

Public ISBD [article]  inAutism > 30-7 (July 2026) . - p.1863-1878 Titre : Assess the Fidelity, Validity and Responsiveness of the Brief Observation of Social Communication Change (BOSCC) to Measure Changes in the Social Interactions of Preschool Children With Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Agathe JAY, Auteur ; Lucie JUREK, Auteur ; Riham HAMADEH, Auteur ; Marie-Joëlle OREVE, Auteur ; Carmen M. SCHRÖDER, Auteur ; Véronique DELVENNE, Auteur ; Sandrine SONIE, Auteur ; Bruno FALISSARD, Auteur ; Olivia FEBVEY-COMBES, Auteur ; Mario SPERANZA, Auteur ; Marie-Maude GEOFFRAY, Auteur ; null NULL, Auteur Article en page(s) : p.1863-1878 Langues : Anglais (eng) Mots-clés : assess  autism spectrum disorder  fidelity  responsiveness  validity Index. décimale : PER Périodiques Résumé : Accurately measuring changes in core autism symptoms following early intervention is challenging. The Brief Observation of Social Communication Change (BOSCC) is a promising tool for assessing social interactions in preschoolers with autism spectrum disorder (ASD). However, data on its responsiveness remain limited, warranting validation to support its use in evaluating treatment-related changes. This study aimed to assess the reliability, validity, and sensitivity to change of the BOSCC based on international recommendations from the COSMIN expert group. The BOSCC was rated using 414 video observations from a large multicenter randomized controlled trial including 177 preschoolers with ASD between 19 and 36 months. Videos were coded using the original BOSCC protocol by trained, blinded raters. Analyses addressed reliability, structural and convergent validity, and responsiveness over a 2-year follow-up. Interrater, intrarater, and test–retest reliability were consistently high, with good internal consistency (Cronbach’s α = 0.88–0.98). Factor analysis supported a three-factor structure. Convergent validity was modest with Autism Diagnostic Observation Scale (ADOS) change scores (r = 0.05–0.20) but stronger with global ratings of improvement on the Clinical Global Impression–Improvement (CGI-I; r = 0.40–0.60, p < 0.001). ROC analyses confirmed acceptable to good responsiveness when anchored to the CGI-I, but poor discrimination relative to the ADOS. The BOSCC is a reliable and responsive measure of change in preschoolers with ASD. Its naturalistic format supports its use as an outcome measure in early intervention trials. Establishing thresholds for clinically meaningful change will be a critical next step for both research and clinical practice.Lay Abstract Early intervention may improve social interaction and communication in young children with autism spectrum disorder (ASD). However, it is often difficult to measure changes in core autism symptoms over time. Many commonly used assessment tools were developed for diagnosis and are not always sensitive to treatment-related change. The Brief Observation of Social Communication Change (BOSCC) was specifically designed to address this gap by using short, naturalistic observations of children’s social communication. This study examined how well the BOSCC works as a tool to capture change. We assessed its reliability (whether it gives consistent results), validity (whether it measures what it is intended to measure), and responsiveness (whether it can detect change over time). The study included 414 video observations from a large multicenter randomized controlled trial involving 177 preschool children with ASD, aged 19–36 months, followed up for over a 2-year period. Videos were rated by trained, independent observers using the original BOSCC coding system. Results showed that BOSCC is a highly reliable measure, with strong agreement between different raters and good consistency over time. The structure of the scale was supported, and BOSCC scores were meaningfully related to clinicians’ overall judgments of improvement. In contrast, changes in BOSCC scores were less closely related to changes measured by standard diagnostic tools. Overall, these findings support the BOSCC as a useful and sensitive outcome measure for evaluating change in early autism interventions. Future research should define thresholds for clinically meaningful change to strengthen its use in research, clinical practice, and service evaluation. En ligne : https://dx.doi.org/10.1177/13623613261442618 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590 [article] Assess the Fidelity, Validity and Responsiveness of the Brief Observation of Social Communication Change (BOSCC) to Measure Changes in the Social Interactions of Preschool Children With Autism Spectrum Disorder [texte imprimé] / Agathe JAY, Auteur ; Lucie JUREK, Auteur ; Riham HAMADEH, Auteur ; Marie-Joëlle OREVE, Auteur ; Carmen M. SCHRÖDER, Auteur ; Véronique DELVENNE, Auteur ; Sandrine SONIE, Auteur ; Bruno FALISSARD, Auteur ; Olivia FEBVEY-COMBES, Auteur ; Mario SPERANZA, Auteur ; Marie-Maude GEOFFRAY, Auteur ; null NULL, Auteur . - p.1863-1878. Langues : Anglais (eng) in Autism > 30-7 (July 2026) . - p.1863-1878 Mots-clés : assess  autism spectrum disorder  fidelity  responsiveness  validity Index. décimale : PER Périodiques Résumé : Accurately measuring changes in core autism symptoms following early intervention is challenging. The Brief Observation of Social Communication Change (BOSCC) is a promising tool for assessing social interactions in preschoolers with autism spectrum disorder (ASD). However, data on its responsiveness remain limited, warranting validation to support its use in evaluating treatment-related changes. This study aimed to assess the reliability, validity, and sensitivity to change of the BOSCC based on international recommendations from the COSMIN expert group. The BOSCC was rated using 414 video observations from a large multicenter randomized controlled trial including 177 preschoolers with ASD between 19 and 36 months. Videos were coded using the original BOSCC protocol by trained, blinded raters. Analyses addressed reliability, structural and convergent validity, and responsiveness over a 2-year follow-up. Interrater, intrarater, and test–retest reliability were consistently high, with good internal consistency (Cronbach’s α = 0.88–0.98). Factor analysis supported a three-factor structure. Convergent validity was modest with Autism Diagnostic Observation Scale (ADOS) change scores (r = 0.05–0.20) but stronger with global ratings of improvement on the Clinical Global Impression–Improvement (CGI-I; r = 0.40–0.60, p < 0.001). ROC analyses confirmed acceptable to good responsiveness when anchored to the CGI-I, but poor discrimination relative to the ADOS. The BOSCC is a reliable and responsive measure of change in preschoolers with ASD. Its naturalistic format supports its use as an outcome measure in early intervention trials. Establishing thresholds for clinically meaningful change will be a critical next step for both research and clinical practice.Lay Abstract Early intervention may improve social interaction and communication in young children with autism spectrum disorder (ASD). However, it is often difficult to measure changes in core autism symptoms over time. Many commonly used assessment tools were developed for diagnosis and are not always sensitive to treatment-related change. The Brief Observation of Social Communication Change (BOSCC) was specifically designed to address this gap by using short, naturalistic observations of children’s social communication. This study examined how well the BOSCC works as a tool to capture change. We assessed its reliability (whether it gives consistent results), validity (whether it measures what it is intended to measure), and responsiveness (whether it can detect change over time). The study included 414 video observations from a large multicenter randomized controlled trial involving 177 preschool children with ASD, aged 19–36 months, followed up for over a 2-year period. Videos were rated by trained, independent observers using the original BOSCC coding system. Results showed that BOSCC is a highly reliable measure, with strong agreement between different raters and good consistency over time. The structure of the scale was supported, and BOSCC scores were meaningfully related to clinicians’ overall judgments of improvement. In contrast, changes in BOSCC scores were less closely related to changes measured by standard diagnostic tools. Overall, these findings support the BOSCC as a useful and sensitive outcome measure for evaluating change in early autism interventions. Future research should define thresholds for clinically meaningful change to strengthen its use in research, clinical practice, and service evaluation. En ligne : https://dx.doi.org/10.1177/13623613261442618 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590

Couples' Experiences of Parenting a Child After an Autism Diagnosis: A Qualitative Study / Naomi DOWNES in Journal of Autism and Developmental Disorders, 51-8 (August 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-8 (August 2021) . - p.2697-2710 Titre : Couples' Experiences of Parenting a Child After an Autism Diagnosis: A Qualitative Study Type de document : texte imprimé Auteurs : Naomi DOWNES, Auteur ; Jérôme LICHTLE, Auteur ; Kristopher LAMORE, Auteur ; Marie-Joëlle OREVE, Auteur ; Emilie CAPPE, Auteur Article en page(s) : p.2697-2710 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child  Communication  Humans  Interpersonal Relations  Male  Middle Aged  Parent-Child Relations  Parenting/psychology  Parents  Qualitative Research  Autism  Coparenting  Couples  Diagnosis  Qualitative analysis Index. décimale : PER Périodiques Résumé : After a child is diagnosed with autism, parents' relationships are impacted as they reorganize their daily lives to support their child's specific needs. A better understanding of parenting couples' adaptation is needed to accompany them during this period. This qualitative study explored couples' experiences after their child's autism diagnosis. An inductive thematic analysis among ten couple interviews (N = 20) revealed three key themes: emotional experiences, external support, and adaptation. Overall, the quality of couples' relationships before having a child influenced their relationship after the diagnosis. In general, parents presented complementary coparenting roles, while different opinions about how to raise the child strained their relationship. Helping parents adapt to a diagnosis together could prove to be important for future interventions and research. En ligne : http://dx.doi.org/10.1007/s10803-020-04744-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] Couples' Experiences of Parenting a Child After an Autism Diagnosis: A Qualitative Study [texte imprimé] / Naomi DOWNES, Auteur ; Jérôme LICHTLE, Auteur ; Kristopher LAMORE, Auteur ; Marie-Joëlle OREVE, Auteur ; Emilie CAPPE, Auteur . - p.2697-2710. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-8 (August 2021) . - p.2697-2710 Mots-clés : Adaptation, Psychological  Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child  Communication  Humans  Interpersonal Relations  Male  Middle Aged  Parent-Child Relations  Parenting/psychology  Parents  Qualitative Research  Autism  Coparenting  Couples  Diagnosis  Qualitative analysis Index. décimale : PER Périodiques Résumé : After a child is diagnosed with autism, parents' relationships are impacted as they reorganize their daily lives to support their child's specific needs. A better understanding of parenting couples' adaptation is needed to accompany them during this period. This qualitative study explored couples' experiences after their child's autism diagnosis. An inductive thematic analysis among ten couple interviews (N = 20) revealed three key themes: emotional experiences, external support, and adaptation. Overall, the quality of couples' relationships before having a child influenced their relationship after the diagnosis. In general, parents presented complementary coparenting roles, while different opinions about how to raise the child strained their relationship. Helping parents adapt to a diagnosis together could prove to be important for future interventions and research. En ligne : http://dx.doi.org/10.1007/s10803-020-04744-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

Dyadic coping and coparenting among couples after their child's recent autism diagnosis / Naomi DOWNES in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.121-134 Titre : Dyadic coping and coparenting among couples after their child's recent autism diagnosis Type de document : texte imprimé Auteurs : Naomi DOWNES, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Pascale ISNARD, Auteur ; Eric LEMONNIER, Auteur ; Marie-Joëlle OREVE, Auteur ; Emilie CAPPE, Auteur Article en page(s) : p.121-134 Langues : Anglais (eng) Mots-clés : autism  coparenting  couples  diagnosis  dyadic coping  parents Index. décimale : PER Périodiques Résumé : We investigated how couples support each other after their child's autism diagnosis and whether this affects the way they work together to raise their child. We recruited 70 couples raising a child on the autism spectrum. Both partners were asked to complete the same questionnaires measuring how they perceived the experience of having a child on the autism spectrum, how they used their relationship to support each other during stressful situations, how competent they felt completing their parenting tasks, and the coparenting relationship to explore how they worked together as a team when parenting their child. Parents participated in the study 1-36 months after their child's autism diagnosis. We used statistical techniques that allowed us to see the impact mothers and fathers had on each other. Overall, parents who felt more competent and supported by their partner worked better as a team to raise their child on the spectrum. Fathers invested in the coparenting relationship more when mothers felt more supported by fathers. Mothers invested in the coparenting relationship more when fathers felt more competent parenting their child. Further research is needed to better understand how we can support couples as their child gets older. En ligne : http://dx.doi.org/10.1177/13623613211020916 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Dyadic coping and coparenting among couples after their child's recent autism diagnosis [texte imprimé] / Naomi DOWNES, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Pascale ISNARD, Auteur ; Eric LEMONNIER, Auteur ; Marie-Joëlle OREVE, Auteur ; Emilie CAPPE, Auteur . - p.121-134. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.121-134 Mots-clés : autism  coparenting  couples  diagnosis  dyadic coping  parents Index. décimale : PER Périodiques Résumé : We investigated how couples support each other after their child's autism diagnosis and whether this affects the way they work together to raise their child. We recruited 70 couples raising a child on the autism spectrum. Both partners were asked to complete the same questionnaires measuring how they perceived the experience of having a child on the autism spectrum, how they used their relationship to support each other during stressful situations, how competent they felt completing their parenting tasks, and the coparenting relationship to explore how they worked together as a team when parenting their child. Parents participated in the study 1-36 months after their child's autism diagnosis. We used statistical techniques that allowed us to see the impact mothers and fathers had on each other. Overall, parents who felt more competent and supported by their partner worked better as a team to raise their child on the spectrum. Fathers invested in the coparenting relationship more when mothers felt more supported by fathers. Mothers invested in the coparenting relationship more when fathers felt more competent parenting their child. Further research is needed to better understand how we can support couples as their child gets older. En ligne : http://dx.doi.org/10.1177/13623613211020916 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Dyadic Effect of Coping on the Perceived Impact of ASD of Children on Parental Quality of Life: Report from the ELENA Cohort / Leïla BRILLET in Journal of Autism and Developmental Disorders, 53-1 (January 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-1 (January 2023) . - p.38-49 Titre : Dyadic Effect of Coping on the Perceived Impact of ASD of Children on Parental Quality of Life: Report from the ELENA Cohort Type de document : texte imprimé Auteurs : Leïla BRILLET, Auteur ; Marianne PERIES, Auteur ; Christelle VERNHET, Auteur ; Cécile RATTAZ, Auteur ; Cécile MICHELON, Auteur ; Amaria BAGHDADLI, Auteur ; Catherine CHABAUX, Auteur ; Clarisse CHATEL, Auteur ; David COHEN, Auteur ; Emmanuel DAMVILLE, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Ludovic GICQUEL, Auteur ; Renaud JARDRI, Auteur ; Thierry MAFFRE, Auteur ; Alexandre NOVO, Auteur ; Roxane ODOYER, Auteur ; Marie-Joëlle OREVE, Auteur ; Didier PERISSE, Auteur ; François POINSO, Auteur ; Julien POTTELETTE, Auteur ; Laurence ROBEL, Auteur ; Catherine ROLLAND, Auteur ; Marie SCHOENBERGER, Auteur ; Sandrine SONIE, Auteur ; Mario SPERANZA, Auteur ; Stéphanie VESPERINI, Auteur ; THE ELENA STUDY GROUP, Auteur Article en page(s) : p.38-49 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) has a significant impact on the quality of life (QoL) of families. This study aimed to examine, for parents of children with ASD, the dyadic effect of each parent’s coping strategy on the perception of the impact of ASD on their QoL. In total, 164 couples completed self-report questionnaires, including the Par-DD-QoL, to evaluate the parental perception of QoL. Results from the actor-partner interdependence model showed that, in addition to the effect of the mothers’ and fathers’ emotion-focused coping on their own perception of QoL, the mothers’ emotion-focused coping plays a key role in the fathers’ perception of QoL. These findings suggest that both parents of children with ASD would benefit from couple-focused interventions. En ligne : https://doi.org/10.1007/s10803-021-05414-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=492 [article] Dyadic Effect of Coping on the Perceived Impact of ASD of Children on Parental Quality of Life: Report from the ELENA Cohort [texte imprimé] / Leïla BRILLET, Auteur ; Marianne PERIES, Auteur ; Christelle VERNHET, Auteur ; Cécile RATTAZ, Auteur ; Cécile MICHELON, Auteur ; Amaria BAGHDADLI, Auteur ; Catherine CHABAUX, Auteur ; Clarisse CHATEL, Auteur ; David COHEN, Auteur ; Emmanuel DAMVILLE, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Ludovic GICQUEL, Auteur ; Renaud JARDRI, Auteur ; Thierry MAFFRE, Auteur ; Alexandre NOVO, Auteur ; Roxane ODOYER, Auteur ; Marie-Joëlle OREVE, Auteur ; Didier PERISSE, Auteur ; François POINSO, Auteur ; Julien POTTELETTE, Auteur ; Laurence ROBEL, Auteur ; Catherine ROLLAND, Auteur ; Marie SCHOENBERGER, Auteur ; Sandrine SONIE, Auteur ; Mario SPERANZA, Auteur ; Stéphanie VESPERINI, Auteur ; THE ELENA STUDY GROUP, Auteur . - p.38-49. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-1 (January 2023) . - p.38-49 Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) has a significant impact on the quality of life (QoL) of families. This study aimed to examine, for parents of children with ASD, the dyadic effect of each parent’s coping strategy on the perception of the impact of ASD on their QoL. In total, 164 couples completed self-report questionnaires, including the Par-DD-QoL, to evaluate the parental perception of QoL. Results from the actor-partner interdependence model showed that, in addition to the effect of the mothers’ and fathers’ emotion-focused coping on their own perception of QoL, the mothers’ emotion-focused coping plays a key role in the fathers’ perception of QoL. These findings suggest that both parents of children with ASD would benefit from couple-focused interventions. En ligne : https://doi.org/10.1007/s10803-021-05414-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=492

L’Early Start Denver Model (ESDM) et le Pediatric Autism Communication Therapy (PACT) : deux méthodes validées pour la prise en charge précoce des Troubles du Spectre de l’Autisme / Marie-Joëlle OREVE

Public ISBD in Troubles du spectre de l’autisme / Sylvia TOPOUZKHANIAN Titre : L’Early Start Denver Model (ESDM) et le Pediatric Autism Communication Therapy (PACT) : deux méthodes validées pour la prise en charge précoce des Troubles du Spectre de l’Autisme Type de document : texte imprimé Auteurs : Marie-Joëlle OREVE, Auteur ; Mario SPERANZA, Auteur Année de publication : 2019 Importance : p.305-321 Langues : Français (fre) Index. décimale : COM-A COM-A - Communication - Langage - Orthophonie Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=436 in Troubles du spectre de l’autisme / Sylvia TOPOUZKHANIAN L’Early Start Denver Model (ESDM) et le Pediatric Autism Communication Therapy (PACT) : deux méthodes validées pour la prise en charge précoce des Troubles du Spectre de l’Autisme [texte imprimé] / Marie-Joëlle OREVE, Auteur ; Mario SPERANZA, Auteur . - 2019 . - p.305-321. Langues : Français (fre) Index. décimale : COM-A COM-A - Communication - Langage - Orthophonie Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=436

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Emotion, Intent and Voluntary Movement in Children with Autism. An Example: The Goal Directed Locomotion / Sophie LONGUET in Journal of Autism and Developmental Disorders, 42-7 (July 2012)  

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L'évaluation diagnostique de l'enfant avec trouble du spectre de l'autisme / Léa DORMOY

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Improving autism screening in French-speaking countries: Validation of the Autism Discriminative Tool, a teacher-rated questionnaire for clinicians’ use / Sophie CARLIER in Research in Autism Spectrum Disorders, 61 (May 2019)  

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Relations Emotion/mouvement volontaire chez le jeune enfant avec autisme / Sylvie VERNAZZA-MARTIN in Bulletin Scientifique de l'arapi (Le), 35 (Eté 2015)

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The Impact of Atypical Sensory Processing on Adaptive Functioning and Maladaptive Behaviors in Autism Spectrum Disorder During Childhood: Results From the ELENA Cohort / Florine DELLAPIAZZA in Journal of Autism and Developmental Disorders, 50-6 (June 2020)  

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Validation de l’Autism Discriminative Tool (ADT): quand le dépistage des TSA s’invite dans les écoles et s’adapte au DSM-5 / Sophie CARLIER

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