From first concern to autism diagnosis: Parental experiences and satisfaction in autism identification in China / Qiaoyun LIU ; Shuting ZHENG ; AiRan ZHOU ; Tongxin YIN ; Yuqi ZHANG ; Xiuqing WANG ; Costanza COLOMBI ; Dale ULRICH in Research in Autism, 123 (May 2025)  

Public ISBD [article]  inResearch in Autism > 123 (May 2025) . - 202544 Titre : From first concern to autism diagnosis: Parental experiences and satisfaction in autism identification in China Type de document : Texte imprimé et/ou numérique Auteurs : Qiaoyun LIU, Auteur ; Shuting ZHENG, Auteur ; AiRan ZHOU, Auteur ; Tongxin YIN, Auteur ; Yuqi ZHANG, Auteur ; Xiuqing WANG, Auteur ; Costanza COLOMBI, Auteur ; Dale ULRICH, Auteur Article en page(s) : 202544 Langues : Anglais (eng) Mots-clés : Autism  Diagnostic delays  Family experience  Healthcare satisfaction  Parents Index. décimale : PER Périodiques Résumé : Aims The study aimed to analyze the autism diagnosis process in China. We investigated parents' experiences and healthcare satisfaction in obtaining an autism diagnosis for their children, examined predictors associated with the age of diagnosis, and identified child, family, and service-level factors that contributed to delays in autism diagnosis. Methods A cross-sectional survey was distributed via a Qualtrics link. Participants included 239 parents whose children underwent an autism diagnosis within past three years. Participants were from 25 out of 34 province-level divisions in mainland China. Results On average, children were diagnosed at the age of 2.79 years, with a mean of 13-month delay between parents' initial concerns and the formal diagnosis. Parents' healthcare satisfaction was strongly correlated with providers' proactive responses, such as recommending developmental testing and suggesting services. The regression analysis revealed that initial concerns in sensory domain(b = ?0.197, p < 0.01), older age that parents first sought help(b = 0.293, p < 0.01), and visited a hospital(b = 0.501, p < 0.001), and a greater number of hospitals visited (b = 0.169, p < 0.001) predicted an older age at diagnosis. Higher maternal education level (b = 1.685, p < 0.05), was associated with a longer parental delay between initial concerns and the first hospital visit. Single-parent families (b = 13.084, p < 0.001) experienced significantly longer diagnostic delays between the first hospital visit and age of diagnosis. Parents' initial concerns in motor domain were linked to longer parental delay (b = 7.95, p < 0.000) and total delay (b = 9.959, p < 0.000), while initial concerns in language were associated with shorter parental delay (b = ?5.19, p < 0.000) and total delay (b = ?3.72, p < 0.01). Conclusion These findings emphasize the importance of parental involvement in the autism diagnosis and highlight the need for professional education to reduce diagnostic delays. Public health services should provide parents with additional support and education so that they can effectively navigate the system and take prompt actions to accelerate the diagnostic process. En ligne : https://doi.org/10.1016/j.reia.2025.202544 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] From first concern to autism diagnosis: Parental experiences and satisfaction in autism identification in China [Texte imprimé et/ou numérique] / Qiaoyun LIU, Auteur ; Shuting ZHENG, Auteur ; AiRan ZHOU, Auteur ; Tongxin YIN, Auteur ; Yuqi ZHANG, Auteur ; Xiuqing WANG, Auteur ; Costanza COLOMBI, Auteur ; Dale ULRICH, Auteur . - 202544. Langues : Anglais (eng) in Research in Autism > 123 (May 2025) . - 202544 Mots-clés : Autism  Diagnostic delays  Family experience  Healthcare satisfaction  Parents Index. décimale : PER Périodiques Résumé : Aims The study aimed to analyze the autism diagnosis process in China. We investigated parents' experiences and healthcare satisfaction in obtaining an autism diagnosis for their children, examined predictors associated with the age of diagnosis, and identified child, family, and service-level factors that contributed to delays in autism diagnosis. Methods A cross-sectional survey was distributed via a Qualtrics link. Participants included 239 parents whose children underwent an autism diagnosis within past three years. Participants were from 25 out of 34 province-level divisions in mainland China. Results On average, children were diagnosed at the age of 2.79 years, with a mean of 13-month delay between parents' initial concerns and the formal diagnosis. Parents' healthcare satisfaction was strongly correlated with providers' proactive responses, such as recommending developmental testing and suggesting services. The regression analysis revealed that initial concerns in sensory domain(b = ?0.197, p < 0.01), older age that parents first sought help(b = 0.293, p < 0.01), and visited a hospital(b = 0.501, p < 0.001), and a greater number of hospitals visited (b = 0.169, p < 0.001) predicted an older age at diagnosis. Higher maternal education level (b = 1.685, p < 0.05), was associated with a longer parental delay between initial concerns and the first hospital visit. Single-parent families (b = 13.084, p < 0.001) experienced significantly longer diagnostic delays between the first hospital visit and age of diagnosis. Parents' initial concerns in motor domain were linked to longer parental delay (b = 7.95, p < 0.000) and total delay (b = 9.959, p < 0.000), while initial concerns in language were associated with shorter parental delay (b = ?5.19, p < 0.000) and total delay (b = ?3.72, p < 0.01). Conclusion These findings emphasize the importance of parental involvement in the autism diagnosis and highlight the need for professional education to reduce diagnostic delays. Public health services should provide parents with additional support and education so that they can effectively navigate the system and take prompt actions to accelerate the diagnostic process. En ligne : https://doi.org/10.1016/j.reia.2025.202544 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

The effects of an early motor skill intervention on motor skills, levels of physical activity, and socialization in young children with autism spectrum disorder: A pilot study / Leah KETCHESON in Autism, 21-4 (May 2017)  

Public ISBD [article]  inAutism > 21-4 (May 2017) . - p.481-492 Titre : The effects of an early motor skill intervention on motor skills, levels of physical activity, and socialization in young children with autism spectrum disorder: A pilot study Type de document : Texte imprimé et/ou numérique Auteurs : Leah KETCHESON, Auteur ; Janet HAUCK, Auteur ; Dale ULRICH, Auteur Article en page(s) : p.481-492 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  dosage  interventions—psychosocial/behavioral  motor skills  physical activity  preschoolers Index. décimale : PER Périodiques Résumé : Despite evidence suggesting one of the earliest indicators of an eventual autism spectrum disorder diagnoses is an early motor delay, there remain very few interventions targeting motor behavior as the primary outcome for young children with autism spectrum disorder. The aim of this pilot study was to measure the efficacy of an intensive motor skill intervention on motor skills (Test of Gross Motor Development-2), physical activity (accelerometers), and socialization (Playground Observation of Peer Engagement) in young children with autism spectrum disorder. A total of 20 children with autism spectrum disorder aged 4–6?years participated. The experimental group (n?=?11) participated in an 8-week intervention consisting of motor skill instruction for 4?h/day, 5?days/week. The control group (n?=?9) did not receive the intervention. A repeated-measures analysis of covariance revealed statistically significant differences between groups in all three motor outcomes, locomotor (F(1, 14)?=?10.07, p? En ligne : http://dx.doi.org/10.1177/1362361316650611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305 [article] The effects of an early motor skill intervention on motor skills, levels of physical activity, and socialization in young children with autism spectrum disorder: A pilot study [Texte imprimé et/ou numérique] / Leah KETCHESON, Auteur ; Janet HAUCK, Auteur ; Dale ULRICH, Auteur . - p.481-492. Langues : Anglais (eng) in Autism > 21-4 (May 2017) . - p.481-492 Mots-clés : autism spectrum disorders  dosage  interventions—psychosocial/behavioral  motor skills  physical activity  preschoolers Index. décimale : PER Périodiques Résumé : Despite evidence suggesting one of the earliest indicators of an eventual autism spectrum disorder diagnoses is an early motor delay, there remain very few interventions targeting motor behavior as the primary outcome for young children with autism spectrum disorder. The aim of this pilot study was to measure the efficacy of an intensive motor skill intervention on motor skills (Test of Gross Motor Development-2), physical activity (accelerometers), and socialization (Playground Observation of Peer Engagement) in young children with autism spectrum disorder. A total of 20 children with autism spectrum disorder aged 4–6?years participated. The experimental group (n?=?11) participated in an 8-week intervention consisting of motor skill instruction for 4?h/day, 5?days/week. The control group (n?=?9) did not receive the intervention. A repeated-measures analysis of covariance revealed statistically significant differences between groups in all three motor outcomes, locomotor (F(1, 14)?=?10.07, p? En ligne : http://dx.doi.org/10.1177/1362361316650611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305

The relationship of motor skills and adaptive behavior skills in young children with autism spectrum disorders / Megan MACDONALD in Research in Autism Spectrum Disorders, 7-11 (November 2013)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 7-11 (November 2013) . - p.1383-1390 Titre : The relationship of motor skills and adaptive behavior skills in young children with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Megan MACDONALD, Auteur ; Catherine LORD, Auteur ; Dale ULRICH, Auteur Article en page(s) : p.1383-1390 Langues : Anglais (eng) Mots-clés : Autism  Motor skills  Young children  Adaptive behavior Index. décimale : PER Périodiques Résumé : AbstractObjective To determine the relationship of motor skills and adaptive behavior skills in young children with autism. Design A multiple regression analysis tested the relationship of motor skills on the adaptive behavior composite, daily living, adaptive social and adaptive communicative skills holding constant age, non-verbal problem solving, and calibrated autism severity. Setting Majority of the data collected took place in an autism clinic. Participants A cohort of 233 young children with ASD (n = 172), PDD-NOS (n = 22) and non-ASD (developmental delay, n = 39) between the ages of 14–49 months were recruited from early intervention studies and clinical referrals. Children with non-ASD (developmental delay) were included in this study to provide a range of scores indicted through calibrated autism severity. Interventions Not applicable. Main outcome measures The primary outcome measures in this study were adaptive behavior skills. Results Fine motor skills significantly predicted all adaptive behavior skills (p lt; 0.01). Gross motor skills were predictive of daily living skills (p lt; 0.05). Children with weaker motor skills displayed greater deficits in adaptive behavior skills. Conclusions The fine and gross motor skills are significantly related to adaptive behavior skills in young children with autism spectrum disorder. There is more to focus on and new avenues to explore in the realm of discovering how to implement early intervention and rehabilitation for young children with autism and motor skills need to be a part of the discussion. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.07.020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=215 [article] The relationship of motor skills and adaptive behavior skills in young children with autism spectrum disorders [Texte imprimé et/ou numérique] / Megan MACDONALD, Auteur ; Catherine LORD, Auteur ; Dale ULRICH, Auteur . - p.1383-1390. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 7-11 (November 2013) . - p.1383-1390 Mots-clés : Autism  Motor skills  Young children  Adaptive behavior Index. décimale : PER Périodiques Résumé : AbstractObjective To determine the relationship of motor skills and adaptive behavior skills in young children with autism. Design A multiple regression analysis tested the relationship of motor skills on the adaptive behavior composite, daily living, adaptive social and adaptive communicative skills holding constant age, non-verbal problem solving, and calibrated autism severity. Setting Majority of the data collected took place in an autism clinic. Participants A cohort of 233 young children with ASD (n = 172), PDD-NOS (n = 22) and non-ASD (developmental delay, n = 39) between the ages of 14–49 months were recruited from early intervention studies and clinical referrals. Children with non-ASD (developmental delay) were included in this study to provide a range of scores indicted through calibrated autism severity. Interventions Not applicable. Main outcome measures The primary outcome measures in this study were adaptive behavior skills. Results Fine motor skills significantly predicted all adaptive behavior skills (p lt; 0.01). Gross motor skills were predictive of daily living skills (p lt; 0.05). Children with weaker motor skills displayed greater deficits in adaptive behavior skills. Conclusions The fine and gross motor skills are significantly related to adaptive behavior skills in young children with autism spectrum disorder. There is more to focus on and new avenues to explore in the realm of discovering how to implement early intervention and rehabilitation for young children with autism and motor skills need to be a part of the discussion. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.07.020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=215

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