‘Above and beyond’: The perceptions of mothers of children with autism about ‘good practice’ by professionals and services / Catherine E. STANFORD in Research in Autism Spectrum Disorders, 77 (September 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 77 (September 2020) . - 101615 Titre : ‘Above and beyond’: The perceptions of mothers of children with autism about ‘good practice’ by professionals and services Type de document : Texte imprimé et/ou numérique Auteurs : Catherine E. STANFORD, Auteur ; Vaso TOTSIKA, Auteur ; Richard P. HASTINGS, Auteur Article en page(s) : 101615 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Good practice  Best practice  Maternal experiences  Service use  Thematic analysis Index. décimale : PER Périodiques Résumé : The aim of the present study was to investigate positive experiences with professionals and services, from the perspective of mothers of children with autism. Parents’ negative experiences with services are well documented, but the experiences of ‘good practice’ have been less well researched. Seventeen mothers of children with autism aged between 5 and 10 years old were interviewed regarding their experiences of accessing services for their child, and in particular their experiences of good practice. Using inductive thematic analysis, three core themes were identified. These related to mothers valuing aspects of professionals’ engagement, manner, and interactions with mothers; elements of professional and services provision (such as knowledge, community building, and hands-on skill development); and the ways services delivered their provision (e.g., through personalisation and adaptation, and ease of access). The findings of this study illustrate that these are clearly aspects of good practice valued by mothers of children with autism, which could be generalised to other neurodevelopmental conditions. Future research should consider establishing directional links between good practice concepts, for example using grounded theory. En ligne : https://doi.org/10.1016/j.rasd.2020.101615 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] ‘Above and beyond’: The perceptions of mothers of children with autism about ‘good practice’ by professionals and services [Texte imprimé et/ou numérique] / Catherine E. STANFORD, Auteur ; Vaso TOTSIKA, Auteur ; Richard P. HASTINGS, Auteur . - 101615. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 77 (September 2020) . - 101615 Mots-clés : Autism spectrum disorders  Good practice  Best practice  Maternal experiences  Service use  Thematic analysis Index. décimale : PER Périodiques Résumé : The aim of the present study was to investigate positive experiences with professionals and services, from the perspective of mothers of children with autism. Parents’ negative experiences with services are well documented, but the experiences of ‘good practice’ have been less well researched. Seventeen mothers of children with autism aged between 5 and 10 years old were interviewed regarding their experiences of accessing services for their child, and in particular their experiences of good practice. Using inductive thematic analysis, three core themes were identified. These related to mothers valuing aspects of professionals’ engagement, manner, and interactions with mothers; elements of professional and services provision (such as knowledge, community building, and hands-on skill development); and the ways services delivered their provision (e.g., through personalisation and adaptation, and ease of access). The findings of this study illustrate that these are clearly aspects of good practice valued by mothers of children with autism, which could be generalised to other neurodevelopmental conditions. Future research should consider establishing directional links between good practice concepts, for example using grounded theory. En ligne : https://doi.org/10.1016/j.rasd.2020.101615 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Assessing competencies in applied behavior analysis for tutors working with children with autism in a school-based setting / Louise D. DENNE in Research in Autism Spectrum Disorders, 20 (December 2015)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 20 (December 2015) . - p.67-77 Titre : Assessing competencies in applied behavior analysis for tutors working with children with autism in a school-based setting Type de document : Texte imprimé et/ou numérique Auteurs : Louise D. DENNE, Auteur ; Esther THOMAS, Auteur ; Richard P. HASTINGS, Auteur ; J. Carl HUGHES, Auteur Article en page(s) : p.67-77 Langues : Anglais (eng) Mots-clés : Competence framework  Competencies  Autism  Performance measurement  York Measure of Quality of Intensive Behavioural Intervention (YMQI) Index. décimale : PER Périodiques Résumé : With an increase in large scale Applied Behavior Analysis (ABA) services for children with autism, the need to define and measure quality is essential. Staff competence is key and identifying and measuring this accurately is critical. ABA service providers typically measure competence by direct observation, video analysis, and written examination. However, apart from the York Measure of Quality of Intensive Behavioural Intervention (YMQI) there is an interesting lack of direct links between defining competencies and developing assessment tools. In this study we used three measures of competencies developed from the UK ABA Autism Education Competence Framework Level 1. Along with the YMQI we assessed their construct validity by comparing the performance of two groups of tutors working in a school for children with autism (“experienced” vs. “inexperienced”) and performance of the “inexperienced” group at baseline (T1) and following one year of competence based training (T2). Results revealed that the more experienced group in both the between group and longitudinal comparisons achieved higher scores supporting the construct validity of the measures. There were few associations between the different methods of assessing competence, suggesting that no measure should be used in isolation if competence is to be comprehensively assessed. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.08.008 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 [article] Assessing competencies in applied behavior analysis for tutors working with children with autism in a school-based setting [Texte imprimé et/ou numérique] / Louise D. DENNE, Auteur ; Esther THOMAS, Auteur ; Richard P. HASTINGS, Auteur ; J. Carl HUGHES, Auteur . - p.67-77. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 20 (December 2015) . - p.67-77 Mots-clés : Competence framework  Competencies  Autism  Performance measurement  York Measure of Quality of Intensive Behavioural Intervention (YMQI) Index. décimale : PER Périodiques Résumé : With an increase in large scale Applied Behavior Analysis (ABA) services for children with autism, the need to define and measure quality is essential. Staff competence is key and identifying and measuring this accurately is critical. ABA service providers typically measure competence by direct observation, video analysis, and written examination. However, apart from the York Measure of Quality of Intensive Behavioural Intervention (YMQI) there is an interesting lack of direct links between defining competencies and developing assessment tools. In this study we used three measures of competencies developed from the UK ABA Autism Education Competence Framework Level 1. Along with the YMQI we assessed their construct validity by comparing the performance of two groups of tutors working in a school for children with autism (“experienced” vs. “inexperienced”) and performance of the “inexperienced” group at baseline (T1) and following one year of competence based training (T2). Results revealed that the more experienced group in both the between group and longitudinal comparisons achieved higher scores supporting the construct validity of the measures. There were few associations between the different methods of assessing competence, suggesting that no measure should be used in isolation if competence is to be comprehensively assessed. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.08.008 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270

Behavior Problems, Psychiatric Symptoms, and Quality of Life for Older Adults With Intellectual Disability With and Without Autism / Vasiliki TOTSIKA in Journal of Autism and Developmental Disorders, 40-10 (October 2010)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 40-10 (October 2010) . - p.1171-1178 Titre : Behavior Problems, Psychiatric Symptoms, and Quality of Life for Older Adults With Intellectual Disability With and Without Autism Type de document : Texte imprimé et/ou numérique Auteurs : Vasiliki TOTSIKA, Auteur ; Richard P. HASTINGS, Auteur ; David FELCE, Auteur ; Michael KERR, Auteur Année de publication : 2010 Article en page(s) : p.1171-1178 Langues : Anglais (eng) Mots-clés : Older-adults Autism-spectrum-disorders Intellectual-disability Ageing Index. décimale : PER Périodiques Résumé : The evidence base on outcomes associated with autism in older adulthood is limited. The expected increase in the prevalence of older adults with autism highlights the need to describe their profiles and service needs. Adults 50 years or older with an intellectual disability (ID) and the triad of impairments characteristic of autism spectrum disorders (ASD) were compared to peers with ID only, and younger adults with ASD and ID. After accounting for ability differences, older adults with ASD did not differ from those with ID in terms of behavior problems, psychiatric disorder, and quality of life. Any differences in the skills of adults with ASD were associated with decreased adaptive skills, and not the presence of ASD per se. En ligne : http://dx.doi.org/10.1007/s10803-010-0975-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=110 [article] Behavior Problems, Psychiatric Symptoms, and Quality of Life for Older Adults With Intellectual Disability With and Without Autism [Texte imprimé et/ou numérique] / Vasiliki TOTSIKA, Auteur ; Richard P. HASTINGS, Auteur ; David FELCE, Auteur ; Michael KERR, Auteur . - 2010 . - p.1171-1178. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 40-10 (October 2010) . - p.1171-1178 Mots-clés : Older-adults Autism-spectrum-disorders Intellectual-disability Ageing Index. décimale : PER Périodiques Résumé : The evidence base on outcomes associated with autism in older adulthood is limited. The expected increase in the prevalence of older adults with autism highlights the need to describe their profiles and service needs. Adults 50 years or older with an intellectual disability (ID) and the triad of impairments characteristic of autism spectrum disorders (ASD) were compared to peers with ID only, and younger adults with ASD and ID. After accounting for ability differences, older adults with ASD did not differ from those with ID in terms of behavior problems, psychiatric disorder, and quality of life. Any differences in the skills of adults with ASD were associated with decreased adaptive skills, and not the presence of ASD per se. En ligne : http://dx.doi.org/10.1007/s10803-010-0975-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=110

Brief Report: Fathers’ and Mothers’ Ratings of Behavioral and Emotional Problems in Siblings of Children with Autism Spectrum Disorder / Gemma Maria GRIFFITH in Journal of Autism and Developmental Disorders, 44-5 (May 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-5 (May 2014) . - p.1230-1235 Titre : Brief Report: Fathers’ and Mothers’ Ratings of Behavioral and Emotional Problems in Siblings of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Gemma Maria GRIFFITH, Auteur ; Richard P. HASTINGS, Auteur ; Michael A. PETALAS, Auteur Année de publication : 2014 Article en page(s) : p.1230-1235 Langues : Anglais (eng) Mots-clés : Autism  ASD  Sibling  SDQ  Mother  Father  Behavior Index. décimale : PER Périodiques Résumé : Debate is ongoing about whether typically developing siblings of children with autism spectrum disorder (ASD) are at greater risk of behavioral or emotional problems than siblings of children without ASD. Most data on behavior is provided by mothers, and we do not know whether fathers’ reports differ. The strengths and difficulties questionnaire (Goodman in J Child Psychol Psychiatry 38(5):581–586, 1997) was completed by 168 mothers and 130 fathers. Parents were more likely to rate siblings as having ‘abnormal’ behavior when compared to a normative population. We found moderate correlations between mother–father ratings. More research may be needed to understand any clinical benefits of gathering data about sibling adjustment from more than one parent in the family. Implications for clinical practice and future research are discussed. En ligne : http://dx.doi.org/10.1007/s10803-013-1969-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232 [article] Brief Report: Fathers’ and Mothers’ Ratings of Behavioral and Emotional Problems in Siblings of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Gemma Maria GRIFFITH, Auteur ; Richard P. HASTINGS, Auteur ; Michael A. PETALAS, Auteur . - 2014 . - p.1230-1235. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-5 (May 2014) . - p.1230-1235 Mots-clés : Autism  ASD  Sibling  SDQ  Mother  Father  Behavior Index. décimale : PER Périodiques Résumé : Debate is ongoing about whether typically developing siblings of children with autism spectrum disorder (ASD) are at greater risk of behavioral or emotional problems than siblings of children without ASD. Most data on behavior is provided by mothers, and we do not know whether fathers’ reports differ. The strengths and difficulties questionnaire (Goodman in J Child Psychol Psychiatry 38(5):581–586, 1997) was completed by 168 mothers and 130 fathers. Parents were more likely to rate siblings as having ‘abnormal’ behavior when compared to a normative population. We found moderate correlations between mother–father ratings. More research may be needed to understand any clinical benefits of gathering data about sibling adjustment from more than one parent in the family. Implications for clinical practice and future research are discussed. En ligne : http://dx.doi.org/10.1007/s10803-013-1969-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232

Correction: Predictors of Access to Early Support in Families of Children with Suspected or Diagnosed Developmental Disabilities in the United Kingdom / Suzi J. SAPIETS in Journal of Autism and Developmental Disorders, 54-4 (April 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-4 (April 2024) . - p.1642-1642 Titre : Correction: Predictors of Access to Early Support in Families of Children with Suspected or Diagnosed Developmental Disabilities in the United Kingdom Type de document : Texte imprimé et/ou numérique Auteurs : Suzi J. SAPIETS, Auteur ; Richard P. HASTINGS, Auteur ; Vasiliki TOTSIKA, Auteur Article en page(s) : p.1642-1642 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06237-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526 [article] Correction: Predictors of Access to Early Support in Families of Children with Suspected or Diagnosed Developmental Disabilities in the United Kingdom [Texte imprimé et/ou numérique] / Suzi J. SAPIETS, Auteur ; Richard P. HASTINGS, Auteur ; Vasiliki TOTSIKA, Auteur . - p.1642-1642. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-4 (April 2024) . - p.1642-1642 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06237-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526

Emotional and behavioural adjustment in siblings of children with intellectual disability with and without autism / Michael A. PETALAS in Autism, 13-5 (September 2009)  

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Emotional and behavioural problems in children and young people with autism spectrum disorder in specialist autism schools / Erica SALOMONE in Research in Autism Spectrum Disorders, 8-6 (June 2014)  

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Gender Differences When Parenting Children with Autism Spectrum Disorders: A Multilevel Modeling Approach / Leah JONES in Journal of Autism and Developmental Disorders, 43-9 (September 2013)  

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“I just don’t fit anywhere”: support experiences and future support needs of individuals with Asperger syndrome in middle adulthood / Gemma Maria GRIFFITH in Autism, 16-5 (September 2012)  

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Is There a Bidirectional Relationship Between Maternal Well-Being and Child Behavior Problems in Autism Spectrum Disorders? Longitudinal Analysis of a Population-Defined Sample of Young Children / Vasiliki TOTSIKA in Autism Research, 6-3 (June 2013)  

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Knowledge and reported use of evidence-based practices by early intervention professionals working with autistic children in Saudi Arabia / Nouf M. ALATIFI in Research in Autism Spectrum Disorders, 105 (July 2023)  

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Longitudinal Relationships Between Sibling Behavioral Adjustment and Behavior Problems of Children with Developmental Disabilities / Richard P. HASTINGS in Journal of Autism and Developmental Disorders, 37-8 (September 2007)  

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Meta-Analysis of Early Intensive Behavioral Intervention for Children With Autism / Sigmund ELDEVIK in Journal of Clinical Child & Adolescent Psychology, 38-3 (May 2009)  

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A national UK census of Applied Behavior Analysis school provision for children with autism / Gemma Maria GRIFFITH in Research in Autism Spectrum Disorders, 6-2 (April-June 2012)  

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Outcomes of Behavioral Intervention for Children with Autism in Mainstream Pre-School Settings / Sigmund ELDEVIK in Journal of Autism and Developmental Disorders, 42-2 (February 2012)  

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