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Searching for What Really Matters: A Thematic Analysis of Quality of Life among Preschool Children on the Autism Spectrum / Jérôme LICHTLE in Journal of Autism and Developmental Disorders, 52-5 (May 2022)
[article]
Titre : Searching for What Really Matters: A Thematic Analysis of Quality of Life among Preschool Children on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Jérôme LICHTLE, Auteur ; Kristopher LAMORE, Auteur ; Amandine PEDOUX, Auteur ; Naomi DOWNES, Auteur ; Laurent MOTTRON, Auteur ; Emilie CAPPE, Auteur Article en page(s) : p.2098-2111 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/diagnosis Autistic Disorder Child Child Development Disorders, Pervasive Child, Preschool Early Intervention, Educational Humans Quality of Life Autism spectrum disorder Children Preschool Thematic analysis Index. décimale : PER Périodiques Résumé : Quality of life (QoL) is an essential measure when assessing health interventions. Most early interventions for preschool children on the spectrum evaluate the effects on autism symptoms. However, researchers increasingly believe that good interventions should also improve the QoL of these children. Domains of QoL among preschool children on the autism spectrum have not previously been researched. We interviewed adults on the spectrum to explore early childhood experiences that made their lives satisfying. Our data revealed four major themes: interests, environmental regularity, sensory differences and social interactions. This study provides the first insights on aspects of life important to pre-schoolers on the spectrum. Findings will contribute to developing items for a measure of QoL among this population. En ligne : http://dx.doi.org/10.1007/s10803-021-05097-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476
in Journal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2098-2111[article] Searching for What Really Matters: A Thematic Analysis of Quality of Life among Preschool Children on the Autism Spectrum [Texte imprimé et/ou numérique] / Jérôme LICHTLE, Auteur ; Kristopher LAMORE, Auteur ; Amandine PEDOUX, Auteur ; Naomi DOWNES, Auteur ; Laurent MOTTRON, Auteur ; Emilie CAPPE, Auteur . - p.2098-2111.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2098-2111
Mots-clés : Adult Autism Spectrum Disorder/diagnosis Autistic Disorder Child Child Development Disorders, Pervasive Child, Preschool Early Intervention, Educational Humans Quality of Life Autism spectrum disorder Children Preschool Thematic analysis Index. décimale : PER Périodiques Résumé : Quality of life (QoL) is an essential measure when assessing health interventions. Most early interventions for preschool children on the spectrum evaluate the effects on autism symptoms. However, researchers increasingly believe that good interventions should also improve the QoL of these children. Domains of QoL among preschool children on the autism spectrum have not previously been researched. We interviewed adults on the spectrum to explore early childhood experiences that made their lives satisfying. Our data revealed four major themes: interests, environmental regularity, sensory differences and social interactions. This study provides the first insights on aspects of life important to pre-schoolers on the spectrum. Findings will contribute to developing items for a measure of QoL among this population. En ligne : http://dx.doi.org/10.1007/s10803-021-05097-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476 The experience and impact of anxiety in autistic adults: A thematic analysis / Ashley E. ROBERTSON in Research in Autism Spectrum Disorders, 46 (February 2018)
[article]
Titre : The experience and impact of anxiety in autistic adults: A thematic analysis Type de document : Texte imprimé et/ou numérique Auteurs : Ashley E. ROBERTSON, Auteur ; Andrew C. STANFIELD, Auteur ; Jane WATT, Auteur ; Fiona BARRY, Auteur ; Matthew DAY, Auteur ; Magnus CORMACK, Auteur ; Craig MELVILLE, Auteur Article en page(s) : p.8-18 Langues : Anglais (eng) Mots-clés : Anxiety Thematic analysis Qualitative Autism spectrum disorders Mental ill health Index. décimale : PER Périodiques Résumé : AbstractBackground A high proportion of individuals with Autism Spectrum Disorder (ASD) also meet criteria for anxiety disorders. Few studies have explored the experience and impact of anxiety in autistic adults using qualitative methods. Methods Seventeen semi-structured interviews with either autistic adults (n = 10) or the supporters of adults with a diagnosis of ASD (n = 7) were conducted. The data were analysed using thematic analysis. Results Three main themes were identified: ‘contributing and mitigating factors to anxiety’, ‘consequences of anxiety’, and ‘management of anxiety’. Discussion Findings highlighted the role that uncertainty plays in anxiety in autism, supporting existing theoretical accounts. Implications for clinical practice were discussed. These included ensuring that communication differences are minimised, and highlighting the importance of meaningfully including autistic people throughout the development and evaluation process of interventions for mental health. En ligne : https://doi.org/10.1016/j.rasd.2017.11.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=327
in Research in Autism Spectrum Disorders > 46 (February 2018) . - p.8-18[article] The experience and impact of anxiety in autistic adults: A thematic analysis [Texte imprimé et/ou numérique] / Ashley E. ROBERTSON, Auteur ; Andrew C. STANFIELD, Auteur ; Jane WATT, Auteur ; Fiona BARRY, Auteur ; Matthew DAY, Auteur ; Magnus CORMACK, Auteur ; Craig MELVILLE, Auteur . - p.8-18.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 46 (February 2018) . - p.8-18
Mots-clés : Anxiety Thematic analysis Qualitative Autism spectrum disorders Mental ill health Index. décimale : PER Périodiques Résumé : AbstractBackground A high proportion of individuals with Autism Spectrum Disorder (ASD) also meet criteria for anxiety disorders. Few studies have explored the experience and impact of anxiety in autistic adults using qualitative methods. Methods Seventeen semi-structured interviews with either autistic adults (n = 10) or the supporters of adults with a diagnosis of ASD (n = 7) were conducted. The data were analysed using thematic analysis. Results Three main themes were identified: ‘contributing and mitigating factors to anxiety’, ‘consequences of anxiety’, and ‘management of anxiety’. Discussion Findings highlighted the role that uncertainty plays in anxiety in autism, supporting existing theoretical accounts. Implications for clinical practice were discussed. These included ensuring that communication differences are minimised, and highlighting the importance of meaningfully including autistic people throughout the development and evaluation process of interventions for mental health. En ligne : https://doi.org/10.1016/j.rasd.2017.11.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=327 What parents want: A qualitative analysis of a parent-implemented intervention for autistic children / Laura DE LA ROCHE in Autism & Developmental Language Impairments, 8 (January-December 2023)
[article]
Titre : What parents want: A qualitative analysis of a parent-implemented intervention for autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Laura DE LA ROCHE, Auteur Langues : Anglais (eng) Mots-clés : Autism social communication skills thematic analysis qualitative research parent-implemented intervention Index. décimale : PER Périodiques Résumé : Background and aimsGuidelines regarding social cognitive interventions for autistic children suggest incorporating a holistic approach. This includes increasing the family?s understanding of difficulties associated with autism, integrations of natural environments, and parents as active agents in the intervention while being supported for their well-being. The current availability of holistic parent-implemented interventions for autistic children is limited, with no qualitative understanding of how parents view the benefits for themselves or their children.MethodThe current study expands the literature regarding holistic approaches through a qualitative understanding of parent perceptions of a parent-implemented social communication intervention for autistic children (TalkAbility?), which incorporates a 6-month follow-up. This study sought to gain a deeper understanding from parents on their perceptions of a holistic approach, including the impact on themselves, their families, and their autistic child.ResultsFollowing Braun and Clarke?s model of thematic analysis, data was coded into four themes: (a) communication difficulties, frustrations, and progress, (b) social relationships and concerns, (c) communication strategies, and (d) thoughts and emotions surrounding TalkAbility?.ConclusionsParents report that many components of a holistic approach are instrumental in encouraging social communication in their autistic child. Results highlight the importance of considering parent experiences regarding interventions for their child?s social communication skills through a qualitative viewpoint.ImplicationsKnowing the intervention aspects that parents view as most valuable allows targeted program modifications that reflect actual parent needs. Further understanding regarding the influence of holistic parent-implemented social communication interventions on child communication skills, parenting frustrations, and parent-child relationships is needed. En ligne : https://dx.doi.org/10.1177/23969415231189606 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=518
in Autism & Developmental Language Impairments > 8 (January-December 2023)[article] What parents want: A qualitative analysis of a parent-implemented intervention for autistic children [Texte imprimé et/ou numérique] / Laura DE LA ROCHE, Auteur.
Langues : Anglais (eng)
in Autism & Developmental Language Impairments > 8 (January-December 2023)
Mots-clés : Autism social communication skills thematic analysis qualitative research parent-implemented intervention Index. décimale : PER Périodiques Résumé : Background and aimsGuidelines regarding social cognitive interventions for autistic children suggest incorporating a holistic approach. This includes increasing the family?s understanding of difficulties associated with autism, integrations of natural environments, and parents as active agents in the intervention while being supported for their well-being. The current availability of holistic parent-implemented interventions for autistic children is limited, with no qualitative understanding of how parents view the benefits for themselves or their children.MethodThe current study expands the literature regarding holistic approaches through a qualitative understanding of parent perceptions of a parent-implemented social communication intervention for autistic children (TalkAbility?), which incorporates a 6-month follow-up. This study sought to gain a deeper understanding from parents on their perceptions of a holistic approach, including the impact on themselves, their families, and their autistic child.ResultsFollowing Braun and Clarke?s model of thematic analysis, data was coded into four themes: (a) communication difficulties, frustrations, and progress, (b) social relationships and concerns, (c) communication strategies, and (d) thoughts and emotions surrounding TalkAbility?.ConclusionsParents report that many components of a holistic approach are instrumental in encouraging social communication in their autistic child. Results highlight the importance of considering parent experiences regarding interventions for their child?s social communication skills through a qualitative viewpoint.ImplicationsKnowing the intervention aspects that parents view as most valuable allows targeted program modifications that reflect actual parent needs. Further understanding regarding the influence of holistic parent-implemented social communication interventions on child communication skills, parenting frustrations, and parent-child relationships is needed. En ligne : https://dx.doi.org/10.1177/23969415231189606 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=518 ‘Above and beyond’: The perceptions of mothers of children with autism about ‘good practice’ by professionals and services / Catherine E. STANFORD in Research in Autism Spectrum Disorders, 77 (September 2020)
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Titre : ‘Above and beyond’: The perceptions of mothers of children with autism about ‘good practice’ by professionals and services Type de document : Texte imprimé et/ou numérique Auteurs : Catherine E. STANFORD, Auteur ; Vaso TOTSIKA, Auteur ; Richard P. HASTINGS, Auteur Article en page(s) : 101615 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders Good practice Best practice Maternal experiences Service use Thematic analysis Index. décimale : PER Périodiques Résumé : The aim of the present study was to investigate positive experiences with professionals and services, from the perspective of mothers of children with autism. Parents’ negative experiences with services are well documented, but the experiences of ‘good practice’ have been less well researched. Seventeen mothers of children with autism aged between 5 and 10 years old were interviewed regarding their experiences of accessing services for their child, and in particular their experiences of good practice. Using inductive thematic analysis, three core themes were identified. These related to mothers valuing aspects of professionals’ engagement, manner, and interactions with mothers; elements of professional and services provision (such as knowledge, community building, and hands-on skill development); and the ways services delivered their provision (e.g., through personalisation and adaptation, and ease of access). The findings of this study illustrate that these are clearly aspects of good practice valued by mothers of children with autism, which could be generalised to other neurodevelopmental conditions. Future research should consider establishing directional links between good practice concepts, for example using grounded theory. En ligne : https://doi.org/10.1016/j.rasd.2020.101615 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432
in Research in Autism Spectrum Disorders > 77 (September 2020) . - 101615[article] ‘Above and beyond’: The perceptions of mothers of children with autism about ‘good practice’ by professionals and services [Texte imprimé et/ou numérique] / Catherine E. STANFORD, Auteur ; Vaso TOTSIKA, Auteur ; Richard P. HASTINGS, Auteur . - 101615.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 77 (September 2020) . - 101615
Mots-clés : Autism spectrum disorders Good practice Best practice Maternal experiences Service use Thematic analysis Index. décimale : PER Périodiques Résumé : The aim of the present study was to investigate positive experiences with professionals and services, from the perspective of mothers of children with autism. Parents’ negative experiences with services are well documented, but the experiences of ‘good practice’ have been less well researched. Seventeen mothers of children with autism aged between 5 and 10 years old were interviewed regarding their experiences of accessing services for their child, and in particular their experiences of good practice. Using inductive thematic analysis, three core themes were identified. These related to mothers valuing aspects of professionals’ engagement, manner, and interactions with mothers; elements of professional and services provision (such as knowledge, community building, and hands-on skill development); and the ways services delivered their provision (e.g., through personalisation and adaptation, and ease of access). The findings of this study illustrate that these are clearly aspects of good practice valued by mothers of children with autism, which could be generalised to other neurodevelopmental conditions. Future research should consider establishing directional links between good practice concepts, for example using grounded theory. En ligne : https://doi.org/10.1016/j.rasd.2020.101615 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 Anxiety in adults with autism: Perspectives from practitioners / Kirsty AINSWORTH in Research in Autism Spectrum Disorders, 69 (January 2020)
[article]
Titre : Anxiety in adults with autism: Perspectives from practitioners Type de document : Texte imprimé et/ou numérique Auteurs : Kirsty AINSWORTH, Auteur ; Ashley E. ROBERTSON, Auteur ; Heather WELSH, Auteur ; Matthew DAY, Auteur ; Jane WATT, Auteur ; Fiona BARRY, Auteur ; Andrew STANFIELD, Auteur ; Craig MELVILLE, Auteur Article en page(s) : p.101457 Langues : Anglais (eng) Mots-clés : Autism Adults Anxiety Thematic analysis Practitioners Index. décimale : PER Périodiques Résumé : Background Autism is a neurodevelopmental condition, characterized by differences in social communication and social interaction as well as restricted interests and repetitive behaviours (American Psychiatric Association, 2013). Research has suggested that 50% of adults with autism meet criteria for an anxiety disorder diagnosis (Russell et al., 2013). Despite a call for multidisciplinary insights (White et al., 2018), few studies have included perspectives of practitioners in this field. Method We conducted interviews with eight practitioners (6 Clinical Psychologists, 1 Consultant Clinical Psychologist and 1 Nurse Practitioner) who work with adults with autism and anxiety on a regular basis. Results Via thematic analysis, four key themes were identified: 1. Modifications to psychological therapy 2. Thinking outside the box 3. Continued support 4. Issues with anxiety measures. Conclusion Modification of standard anxiety interventions are common in practice but the course and nature of these modifications are inconsistent and may depend on practitioner experience. Practitioners may consistently have to think inventively in order to best serve adults with autism and anxiety. Current anxiety measures could be improved in order to accurately gauge anxiety, specific to adults with autism. These findings are discussed in relation to practice and future research. En ligne : https://doi.org/10.1016/j.rasd.2019.101457 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=412
in Research in Autism Spectrum Disorders > 69 (January 2020) . - p.101457[article] Anxiety in adults with autism: Perspectives from practitioners [Texte imprimé et/ou numérique] / Kirsty AINSWORTH, Auteur ; Ashley E. ROBERTSON, Auteur ; Heather WELSH, Auteur ; Matthew DAY, Auteur ; Jane WATT, Auteur ; Fiona BARRY, Auteur ; Andrew STANFIELD, Auteur ; Craig MELVILLE, Auteur . - p.101457.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 69 (January 2020) . - p.101457
Mots-clés : Autism Adults Anxiety Thematic analysis Practitioners Index. décimale : PER Périodiques Résumé : Background Autism is a neurodevelopmental condition, characterized by differences in social communication and social interaction as well as restricted interests and repetitive behaviours (American Psychiatric Association, 2013). Research has suggested that 50% of adults with autism meet criteria for an anxiety disorder diagnosis (Russell et al., 2013). Despite a call for multidisciplinary insights (White et al., 2018), few studies have included perspectives of practitioners in this field. Method We conducted interviews with eight practitioners (6 Clinical Psychologists, 1 Consultant Clinical Psychologist and 1 Nurse Practitioner) who work with adults with autism and anxiety on a regular basis. Results Via thematic analysis, four key themes were identified: 1. Modifications to psychological therapy 2. Thinking outside the box 3. Continued support 4. Issues with anxiety measures. Conclusion Modification of standard anxiety interventions are common in practice but the course and nature of these modifications are inconsistent and may depend on practitioner experience. Practitioners may consistently have to think inventively in order to best serve adults with autism and anxiety. Current anxiety measures could be improved in order to accurately gauge anxiety, specific to adults with autism. These findings are discussed in relation to practice and future research. En ligne : https://doi.org/10.1016/j.rasd.2019.101457 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=412 Exploring the nature of anxiety in young adults on the autism spectrum: A qualitative study / Andrew T. HALIM in Research in Autism Spectrum Disorders, 55 (November 2018)
Permalink"I Met Someone Like Me!": Autistic Adolescents and Their Parents' Experience of the KONTAKT® Social Skills Group Training / Bahareh AFSHARNEJAD in Journal of Autism and Developmental Disorders, 52-4 (April 2022)
PermalinkParental descriptions of sensory processing in Autism / Sandra BROUCHE in Research in Autism Spectrum Disorders, 118 (October 2024)
Permalink'No idea of time': Parents report differences in autistic children's behaviour relating to time in a mixed-methods study / D. POOLE in Autism, 25-6 (August 2021)
Permalink'No idea of time': Parents report differences in autistic children's behaviour relating to time in a mixed-methods study / Daniel POOLE in Autism, 26-6 (August 2022)
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