Community and Social Participation Among Individuals with Autism Spectrum Disorder Transitioning to Adulthood / Emily MYERS in Journal of Autism and Developmental Disorders, 45-8 (August 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2373-2381 Titre : Community and Social Participation Among Individuals with Autism Spectrum Disorder Transitioning to Adulthood Type de document : texte imprimé Auteurs : Emily MYERS, Auteur ; Beth Ellen DAVIS, Auteur ; Gary STOBBE, Auteur ; Kristie BJORNSON, Auteur Année de publication : 2015 Article en page(s) : p.2373-2381 Langues : Anglais (eng) Mots-clés : Autism  Adulthood  Adolescence  Case management  Community participation  Social participation Index. décimale : PER Périodiques Résumé : Individuals with Autism Spectrum Disorders (ASDs) are at increased risk for poor psychosocial outcomes as adults. We described community and social participation in adolescents with ASDs as they transitioned from adolescence to adulthood, and identified adolescent factors associated with community and social participation outcomes in adulthood. We performed a secondary data analysis of a nationally representative cohort using the National Longitudinal Transition Study 2 and observed a significant decrease in community participation from adolescence to adulthood (63 to 46 %); social participation remained stable. The presence of case management in adolescence was associated with increased community and social participation in adulthood. Case management may be crucial for optimal levels of participation among adults with ASDs. En ligne : http://dx.doi.org/10.1007/s10803-015-2403-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263 [article] Community and Social Participation Among Individuals with Autism Spectrum Disorder Transitioning to Adulthood [texte imprimé] / Emily MYERS, Auteur ; Beth Ellen DAVIS, Auteur ; Gary STOBBE, Auteur ; Kristie BJORNSON, Auteur . - 2015 . - p.2373-2381. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2373-2381 Mots-clés : Autism  Adulthood  Adolescence  Case management  Community participation  Social participation Index. décimale : PER Périodiques Résumé : Individuals with Autism Spectrum Disorders (ASDs) are at increased risk for poor psychosocial outcomes as adults. We described community and social participation in adolescents with ASDs as they transitioned from adolescence to adulthood, and identified adolescent factors associated with community and social participation outcomes in adulthood. We performed a secondary data analysis of a nationally representative cohort using the National Longitudinal Transition Study 2 and observed a significant decrease in community participation from adolescence to adulthood (63 to 46 %); social participation remained stable. The presence of case management in adolescence was associated with increased community and social participation in adulthood. Case management may be crucial for optimal levels of participation among adults with ASDs. En ligne : http://dx.doi.org/10.1007/s10803-015-2403-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263

Exploratory analyses of sleep intraindividual variability and fatigue in parents of children on the autism spectrum / Braden HAYSE in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.958-974 Titre : Exploratory analyses of sleep intraindividual variability and fatigue in parents of children on the autism spectrum Type de document : texte imprimé Auteurs : Braden HAYSE, Auteur ; Melanie A. STEARNS, Auteur ; Micah O MAZUREK, Auteur ; Ashley F. CURTIS, Auteur ; Neetu NAIR, Auteur ; Wai Sze CHAN, Auteur ; Melissa MUNOZ, Auteur ; Kevin D. MCGOVNEY, Auteur ; David Q. BEVERSDORF, Auteur ; Mojgan GOLZY, Auteur ; Kristin A. SOHL, Auteur ; Zarah H NER, Auteur ; Beth Ellen DAVIS, Auteur ; Nicole TAKAHASHI, Auteur ; Christina S MCCRAE, Auteur Article en page(s) : p.958-974 Langues : Anglais (eng) Mots-clés : actigraphy  autism spectrum disorders (ASD)  fatigue  intraindividual variability  sleep Index. décimale : PER Périodiques Résumé : Fatigue is associated with numerous harmful physical and mental health outcomes. Despite the established relationship between sleep and fatigue, research examining sleep variability within a person (i.e. intraindividual variability; IIV) and fatigue is limited. In addition, the associations between child and parent sleep regarding parent fatigue have not been explicitly explored, which could be relevant for parents of autistic children with increased sleep disturbance likelihood. The current study used two weeks of objective sleep (actigraphy) and subjective fatigue data from 81 parents and their children to explore associations among child sleep IIV, parent sleep IIV, and parent average daily fatigue, including evaluating evidence for mediation. Sleep IIV was estimated using a validated Bayesian model. Linear regression analyses indicated that greater parent total sleep time IIV predicted significantly higher fatigue levels. Child sleep IIV was unrelated to parent sleep IIV and fatigue, unsupportive of hypothesized mediation. Similarly, post hoc analyses examining child sleep averages, parent total sleep time IIV, and average parent fatigue were insignificant. Findings cautiously support the uniqueness of total sleep time IIV within parental sleep?s relationship with fatigue, independent of child sleep. Objective sleep IIV should continue to be examined in addition to average levels.Lay abstract Fatigue is associated with numerous harmful physical and mental health outcomes. Despite research indicating a relationship between fatigue and sleep, there has been a limited focus on how the variability of a person s sleep may be associated with fatigue. In addition, previous studies have not explicitly explored relationships among child sleep, parent sleep, and parent fatigue. Increasing knowledge about this area of research could be particularly relevant for families with autistic children with an increased likelihood of sleep disturbances. The current study used two weeks of objective sleep (actigraphy) data and subjective ratings of parent fatigue from 81 parents and their autistic children to examine associations among child and parent within-person sleep variability regarding average parent fatigue levels. Evidence was assessed for the role of parent sleep variability in hypothesized connections between child sleep variability and parent fatigue. We found that only greater variability in parents' total sleep time was associated with higher levels of parents' average daily fatigue rating over the two weeks. Child sleep variability was not significantly associated with parent sleep variability or average daily fatigue. In addition, average levels of child sleep were unrelated to parent total sleep time variability and fatigue. Although cautious interpretation is required, findings support the idea that variability in total sleep time may be a unique aspect of parental sleep?s association with fatigue, independent of child sleep. In addition, sleep variability could be important to consider when examining sleep in addition to average levels of parameters like total sleep time. En ligne : https://dx.doi.org/10.1177/13623613241292691 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Exploratory analyses of sleep intraindividual variability and fatigue in parents of children on the autism spectrum [texte imprimé] / Braden HAYSE, Auteur ; Melanie A. STEARNS, Auteur ; Micah O MAZUREK, Auteur ; Ashley F. CURTIS, Auteur ; Neetu NAIR, Auteur ; Wai Sze CHAN, Auteur ; Melissa MUNOZ, Auteur ; Kevin D. MCGOVNEY, Auteur ; David Q. BEVERSDORF, Auteur ; Mojgan GOLZY, Auteur ; Kristin A. SOHL, Auteur ; Zarah H NER, Auteur ; Beth Ellen DAVIS, Auteur ; Nicole TAKAHASHI, Auteur ; Christina S MCCRAE, Auteur . - p.958-974. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.958-974 Mots-clés : actigraphy  autism spectrum disorders (ASD)  fatigue  intraindividual variability  sleep Index. décimale : PER Périodiques Résumé : Fatigue is associated with numerous harmful physical and mental health outcomes. Despite the established relationship between sleep and fatigue, research examining sleep variability within a person (i.e. intraindividual variability; IIV) and fatigue is limited. In addition, the associations between child and parent sleep regarding parent fatigue have not been explicitly explored, which could be relevant for parents of autistic children with increased sleep disturbance likelihood. The current study used two weeks of objective sleep (actigraphy) and subjective fatigue data from 81 parents and their children to explore associations among child sleep IIV, parent sleep IIV, and parent average daily fatigue, including evaluating evidence for mediation. Sleep IIV was estimated using a validated Bayesian model. Linear regression analyses indicated that greater parent total sleep time IIV predicted significantly higher fatigue levels. Child sleep IIV was unrelated to parent sleep IIV and fatigue, unsupportive of hypothesized mediation. Similarly, post hoc analyses examining child sleep averages, parent total sleep time IIV, and average parent fatigue were insignificant. Findings cautiously support the uniqueness of total sleep time IIV within parental sleep?s relationship with fatigue, independent of child sleep. Objective sleep IIV should continue to be examined in addition to average levels.Lay abstract Fatigue is associated with numerous harmful physical and mental health outcomes. Despite research indicating a relationship between fatigue and sleep, there has been a limited focus on how the variability of a person s sleep may be associated with fatigue. In addition, previous studies have not explicitly explored relationships among child sleep, parent sleep, and parent fatigue. Increasing knowledge about this area of research could be particularly relevant for families with autistic children with an increased likelihood of sleep disturbances. The current study used two weeks of objective sleep (actigraphy) data and subjective ratings of parent fatigue from 81 parents and their autistic children to examine associations among child and parent within-person sleep variability regarding average parent fatigue levels. Evidence was assessed for the role of parent sleep variability in hypothesized connections between child sleep variability and parent fatigue. We found that only greater variability in parents' total sleep time was associated with higher levels of parents' average daily fatigue rating over the two weeks. Child sleep variability was not significantly associated with parent sleep variability or average daily fatigue. In addition, average levels of child sleep were unrelated to parent total sleep time variability and fatigue. Although cautious interpretation is required, findings support the idea that variability in total sleep time may be a unique aspect of parental sleep?s association with fatigue, independent of child sleep. In addition, sleep variability could be important to consider when examining sleep in addition to average levels of parameters like total sleep time. En ligne : https://dx.doi.org/10.1177/13623613241292691 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities / Micah O. MAZUREK in Journal of Autism and Developmental Disorders, 55-10 (October 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3553-3564 Titre : Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities Type de document : texte imprimé Auteurs : Micah O. MAZUREK, Auteur ; Rose E. NEVILL, Auteur ; Karen ORLANDO, Auteur ; Keith PAGE, Auteur ; Mya HOWARD, Auteur ; Beth Ellen DAVIS, Auteur Article en page(s) : p.3553-3564 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Children with autism from underserved communities face complex system-, provider-, and family-level barriers to accessing timely diagnosis and early intervention. The current study evaluated the preliminary effects and feasibility of a new program (ECHO Autism LINKS) that integrated pediatric primary care provider (PCP) training with family navigation (FN) to bridge the gaps between screening, referral, and service access. Three cohorts of PCPs (n = 42) participated in the program, which consisted of 60-minute sessions delivered by Zoom twice per month for 12 months. Each session included didactics, case-based learning, and collaborative discussion with participants and an interdisciplinary team of experts. Family navigators were members of the expert team and provided FN services to families referred by PCP participants. Program attendance and engagement were strong, with 40 cases presented and 258 families referred for FN services, most of whom (83%) needed help accessing and connecting with services, and 13% required ongoing support due to complex needs. PCPs demonstrated significant improvements in self-efficacy in providing best-practice care for children with autism, reported high satisfaction, and observed improved knowledge and practice as a result of the program. The results of this initial pilot provide support for the feasibility, acceptability, and preliminary efficacy of the ECHO Autism LINKS program. The model holds promise in addressing complex barriers to healthcare access by providing both PCPs and families with the knowledge and support they need. Future research is needed to evaluate the efficacy and effectiveness of the program in improving child and family outcomes. En ligne : https://doi.org/10.1007/s10803-024-06445-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568 [article] Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities [texte imprimé] / Micah O. MAZUREK, Auteur ; Rose E. NEVILL, Auteur ; Karen ORLANDO, Auteur ; Keith PAGE, Auteur ; Mya HOWARD, Auteur ; Beth Ellen DAVIS, Auteur . - p.3553-3564. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3553-3564 Index. décimale : PER Périodiques Résumé : Children with autism from underserved communities face complex system-, provider-, and family-level barriers to accessing timely diagnosis and early intervention. The current study evaluated the preliminary effects and feasibility of a new program (ECHO Autism LINKS) that integrated pediatric primary care provider (PCP) training with family navigation (FN) to bridge the gaps between screening, referral, and service access. Three cohorts of PCPs (n = 42) participated in the program, which consisted of 60-minute sessions delivered by Zoom twice per month for 12 months. Each session included didactics, case-based learning, and collaborative discussion with participants and an interdisciplinary team of experts. Family navigators were members of the expert team and provided FN services to families referred by PCP participants. Program attendance and engagement were strong, with 40 cases presented and 258 families referred for FN services, most of whom (83%) needed help accessing and connecting with services, and 13% required ongoing support due to complex needs. PCPs demonstrated significant improvements in self-efficacy in providing best-practice care for children with autism, reported high satisfaction, and observed improved knowledge and practice as a result of the program. The results of this initial pilot provide support for the feasibility, acceptability, and preliminary efficacy of the ECHO Autism LINKS program. The model holds promise in addressing complex barriers to healthcare access by providing both PCPs and families with the knowledge and support they need. Future research is needed to evaluate the efficacy and effectiveness of the program in improving child and family outcomes. En ligne : https://doi.org/10.1007/s10803-024-06445-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568

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