Brief Report: Recruitment and Retention of Minority Children for Autism Research / Irina ZAMORA in Journal of Autism and Developmental Disorders, 46-2 (February 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.698-703 Titre : Brief Report: Recruitment and Retention of Minority Children for Autism Research Type de document : Texte imprimé et/ou numérique Auteurs : Irina ZAMORA, Auteur ; Marian E. WILLIAMS, Auteur ; Marcia HIGAREDA, Auteur ; Barbara Y. WHEELER, Auteur ; Pat LEVITT, Auteur Année de publication : 2016 Article en page(s) : p.698-703 Langues : Anglais (eng) Mots-clés : Minorités  Autism spectrum disorder  Recruitment  Latino  Genetic research Index. décimale : PER Périodiques Résumé : Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1–17, 2002; Kelly et al. in J Nat Med Assoc 97:777–783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. http://orwh.od.nih.gov/research/inclusion/reports.asp , 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5–17 years, with ASD; 82.5 % of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing. En ligne : http://dx.doi.org/10.1007/s10803-015-2603-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280 [article] Brief Report: Recruitment and Retention of Minority Children for Autism Research [Texte imprimé et/ou numérique] / Irina ZAMORA, Auteur ; Marian E. WILLIAMS, Auteur ; Marcia HIGAREDA, Auteur ; Barbara Y. WHEELER, Auteur ; Pat LEVITT, Auteur . - 2016 . - p.698-703. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.698-703 Mots-clés : Minorités  Autism spectrum disorder  Recruitment  Latino  Genetic research Index. décimale : PER Périodiques Résumé : Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1–17, 2002; Kelly et al. in J Nat Med Assoc 97:777–783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. http://orwh.od.nih.gov/research/inclusion/reports.asp , 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5–17 years, with ASD; 82.5 % of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing. En ligne : http://dx.doi.org/10.1007/s10803-015-2603-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280

Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents / Clara M. LAJONCHERE in Journal of Autism and Developmental Disorders, 46-3 (March 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.1038-1050 Titre : Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents Type de document : Texte imprimé et/ou numérique Auteurs : Clara M. LAJONCHERE, Auteur ; Barbara Y. WHEELER, Auteur ; Thomas W. VALENTE, Auteur ; Cary KREUTZER, Auteur ; Aron MUNSON, Auteur ; Shrikanth NARAYANAN, Auteur ; Abe KAZEMZADEH, Auteur ; Roxana CRUZ, Auteur ; Irene MARTINEZ, Auteur ; Sheree M. SCHRAGER, Auteur ; Lisa SCHWEITZER, Auteur ; Tara CHKLOVSKI, Auteur ; Darryl HWANG, Auteur Article en page(s) : p.1038-1050 Langues : Anglais (eng) Mots-clés : Biomedical research on Autism  Hispanic/Latino  Health literacy  Racial disparities Index. décimale : PER Périodiques Résumé : Low income Hispanic families experience multiple barriers to accessing evidence-based information on Autism Spectrum Disorders (ASD). This study utilized a mixed-strategy intervention to create access to information in published bio-medical research articles on ASD by distilling the content into parent-friendly English- and Spanish-language ASD Science Briefs and presenting them to participants using two socially-oriented dissemination methods. There was a main effect for short-term knowledge gains associated with the Science Briefs but no effect for the dissemination method. After 5 months, participants reported utilizing the information learned and 90 % wanted to read more Science Briefs. These preliminary findings highlight the potential benefits of distilling biomedical research articles on ASD into parent-friendly educational products for currently underserved Hispanic parents. En ligne : http://dx.doi.org/10.1007/s10803-015-2649-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281 [article] Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents [Texte imprimé et/ou numérique] / Clara M. LAJONCHERE, Auteur ; Barbara Y. WHEELER, Auteur ; Thomas W. VALENTE, Auteur ; Cary KREUTZER, Auteur ; Aron MUNSON, Auteur ; Shrikanth NARAYANAN, Auteur ; Abe KAZEMZADEH, Auteur ; Roxana CRUZ, Auteur ; Irene MARTINEZ, Auteur ; Sheree M. SCHRAGER, Auteur ; Lisa SCHWEITZER, Auteur ; Tara CHKLOVSKI, Auteur ; Darryl HWANG, Auteur . - p.1038-1050. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.1038-1050 Mots-clés : Biomedical research on Autism  Hispanic/Latino  Health literacy  Racial disparities Index. décimale : PER Périodiques Résumé : Low income Hispanic families experience multiple barriers to accessing evidence-based information on Autism Spectrum Disorders (ASD). This study utilized a mixed-strategy intervention to create access to information in published bio-medical research articles on ASD by distilling the content into parent-friendly English- and Spanish-language ASD Science Briefs and presenting them to participants using two socially-oriented dissemination methods. There was a main effect for short-term knowledge gains associated with the Science Briefs but no effect for the dissemination method. After 5 months, participants reported utilizing the information learned and 90 % wanted to read more Science Briefs. These preliminary findings highlight the potential benefits of distilling biomedical research articles on ASD into parent-friendly educational products for currently underserved Hispanic parents. En ligne : http://dx.doi.org/10.1007/s10803-015-2649-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281

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