Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders / Leslie A. MARKOWITZ in Autism, 20-7 (October 2016)  

Public ISBD [article]  inAutism > 20-7 (October 2016) . - p.832-844 Titre : Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders Type de document : texte imprimé Auteurs : Leslie A. MARKOWITZ, Auteur ; Charina REYES, Auteur ; Rebecca EMBACHER, Auteur ; Leslie L. SPEER, Auteur ; Nancy ROIZEN, Auteur ; Thomas W. FRAZIER, Auteur Article en page(s) : p.832-844 Langues : Anglais (eng) Mots-clés : autism  behavior problems  child functioning  developmental disabilities  family functioning  quality of life Index. décimale : PER Périodiques Résumé : This study investigated the psychometric properties of the Child and Family Quality of Life scale, a measure of psychosocial quality of life in those with autism and related developmental disorders. Parents of 212 children suspected of autism spectrum disorder completed the Child and Family Quality of Life prior to a diagnostic evaluation. Results indicated that the Child and Family Quality of Life measured six unique quality-of-life constructs (child, family/caregiver, financial, external support, partner relationship, and coping), had good reliability across score ranges and exhibited expected patterns of convergent validity. Caregivers of autism spectrum disorder–affected children reported reduced family quality of life prior to the time of diagnosis relative to caregivers of children with other developmental disabilities. The Child and Family Quality of Life is a brief, reliable measure for assessing psychosocial quality of life in families affected by developmental disability. This study is the first to demonstrate impairments in family quality of life early in the developmental course of autism spectrum disorder, prior to formal diagnosis. In addition to traditional child-focused intervention strategies, families with autism spectrum disorder–affected children require early, broad intervention strategies that positively impact the whole family. En ligne : http://dx.doi.org/10.1177/1362361315611382 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=293 [article] Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders [texte imprimé] / Leslie A. MARKOWITZ, Auteur ; Charina REYES, Auteur ; Rebecca EMBACHER, Auteur ; Leslie L. SPEER, Auteur ; Nancy ROIZEN, Auteur ; Thomas W. FRAZIER, Auteur . - p.832-844. Langues : Anglais (eng) in Autism > 20-7 (October 2016) . - p.832-844 Mots-clés : autism  behavior problems  child functioning  developmental disabilities  family functioning  quality of life Index. décimale : PER Périodiques Résumé : This study investigated the psychometric properties of the Child and Family Quality of Life scale, a measure of psychosocial quality of life in those with autism and related developmental disorders. Parents of 212 children suspected of autism spectrum disorder completed the Child and Family Quality of Life prior to a diagnostic evaluation. Results indicated that the Child and Family Quality of Life measured six unique quality-of-life constructs (child, family/caregiver, financial, external support, partner relationship, and coping), had good reliability across score ranges and exhibited expected patterns of convergent validity. Caregivers of autism spectrum disorder–affected children reported reduced family quality of life prior to the time of diagnosis relative to caregivers of children with other developmental disabilities. The Child and Family Quality of Life is a brief, reliable measure for assessing psychosocial quality of life in families affected by developmental disability. This study is the first to demonstrate impairments in family quality of life early in the developmental course of autism spectrum disorder, prior to formal diagnosis. In addition to traditional child-focused intervention strategies, families with autism spectrum disorder–affected children require early, broad intervention strategies that positively impact the whole family. En ligne : http://dx.doi.org/10.1177/1362361315611382 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=293

Developmental Profiles of Young Children Referred for Concern for Autism Spectrum Disorder: DBPNet Study / Nancy ROIZEN in Journal of Autism and Developmental Disorders, 56-8 (August 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-8 (August 2026) . - p.3288-3294 Titre : Developmental Profiles of Young Children Referred for Concern for Autism Spectrum Disorder: DBPNet Study Type de document : texte imprimé Auteurs : Nancy ROIZEN, Auteur ; Sandra FRIEDMAN, Auteur ; Douglas VANDERBILT, Auteur ; Jaclyn CACIA, Auteur ; Jill FUSSELL, Auteur ; Robin HANSEN, Auteur ; Johannes HOFER, Auteur ; Georgio SIDERIDIS, Auteur ; Ruth E. K. STEIN, Auteur ; William BARBARESI, Auteur Article en page(s) : p.3288-3294 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The aim of this study was to compare differences in cognitive, adaptive, and language function in young children referred for concerns for autism spectrum disorder (ASD) who are diagnosed with ASD vs those not diagnosed with ASD (no ASD). This prospective diagnostic study of 349 children < 6 years of age, with 250 diagnosed with ASD and 99 with no ASD, was conducted at 8 diagnostic centers. There were no differences in cognition between those diagnosed with ASD and those with no ASD. As compared to those with no ASD, children with ASD had significantly lower language and adaptive functioning. Children with no ASD had language and adaptive functioning similar to their cognitive function. Differences between developmental domains were also compared within the ASD and no ASD groups. There were no differences between any 2 areas of function in the no ASD group. However, there were significant differences within the ASD group, with cognitive function significantly higher than both language function and adaptive function. This study suggests that a discrepancy between adaptive and language skills beyond that expected based on cognitive function should heighten concern for ASD. Beyond the categorical diagnosis of ASD, it is important to assess all these developmental domains to develop comprehensive plans for interventions. En ligne : https://doi.org/10.1007/s10803-025-06777-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591 [article] Developmental Profiles of Young Children Referred for Concern for Autism Spectrum Disorder: DBPNet Study [texte imprimé] / Nancy ROIZEN, Auteur ; Sandra FRIEDMAN, Auteur ; Douglas VANDERBILT, Auteur ; Jaclyn CACIA, Auteur ; Jill FUSSELL, Auteur ; Robin HANSEN, Auteur ; Johannes HOFER, Auteur ; Georgio SIDERIDIS, Auteur ; Ruth E. K. STEIN, Auteur ; William BARBARESI, Auteur . - p.3288-3294. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-8 (August 2026) . - p.3288-3294 Index. décimale : PER Périodiques Résumé : The aim of this study was to compare differences in cognitive, adaptive, and language function in young children referred for concerns for autism spectrum disorder (ASD) who are diagnosed with ASD vs those not diagnosed with ASD (no ASD). This prospective diagnostic study of 349 children < 6 years of age, with 250 diagnosed with ASD and 99 with no ASD, was conducted at 8 diagnostic centers. There were no differences in cognition between those diagnosed with ASD and those with no ASD. As compared to those with no ASD, children with ASD had significantly lower language and adaptive functioning. Children with no ASD had language and adaptive functioning similar to their cognitive function. Differences between developmental domains were also compared within the ASD and no ASD groups. There were no differences between any 2 areas of function in the no ASD group. However, there were significant differences within the ASD group, with cognitive function significantly higher than both language function and adaptive function. This study suggests that a discrepancy between adaptive and language skills beyond that expected based on cognitive function should heighten concern for ASD. Beyond the categorical diagnosis of ASD, it is important to assess all these developmental domains to develop comprehensive plans for interventions. En ligne : https://doi.org/10.1007/s10803-025-06777-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591

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