Associations among sensory hyperresponsiveness, restricted and repetitive behaviors, and anxiety in autism: An integrated systematic review / Kathryn L. WILLIAMS in Research in Autism Spectrum Disorders, 83 (May 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 83 (May 2021) . - 101763 Titre : Associations among sensory hyperresponsiveness, restricted and repetitive behaviors, and anxiety in autism: An integrated systematic review Type de document : texte imprimé Auteurs : Kathryn L. WILLIAMS, Auteur ; Emily CAMPI, Auteur ; Grace T. BARANEK, Auteur Article en page(s) : 101763 Langues : Anglais (eng) Mots-clés : Autism  Anxiety  Hyperresponsiveness  Restricted  Repetitive behaviors  Systematic review  Mixed methods Index. décimale : PER Périodiques Résumé : Background Autistic individuals exhibit core and co-occurring features that can be disabling to daily functioning and impede quality of life. The combined expression of three closely related features: sensory hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety, may be a sign to practitioners that experiences in the environment are particularly challenging. These are investigated through many approaches, including animal modelling, neurological or physiological measures, behavioral observation, and first-hand accounts. However, little work has been done to review evidence across approaches to better understand their expression. Method This study was an integrated systematic review to identify factors that contribute to the collective expression of three constructs of interests (COIs; hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety). Twenty-two articles were analyzed for both structural and thematic patterns. This review is unique in its inclusion of articles from a variety of disciplines and grouping of studies based on similarities over methodological techniques (i.e. quantitative, qualitative, or mixed methods). Results Three overall structural approaches relating the constructs of interest were identified (parallel, relational, and contingent). Three overarching themes also emerged: 1) the broader social context, 2) predictability of environmental factors, and 3) overlap with cognitive and behavioral coping strategies. Conclusions Results highlight clinically relevant information about the combined expression of the three COIs and demonstrate possibilities for increased collaboration across disciplines through common themes and study structures to further understand the experiences of autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101763 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 [article] Associations among sensory hyperresponsiveness, restricted and repetitive behaviors, and anxiety in autism: An integrated systematic review [texte imprimé] / Kathryn L. WILLIAMS, Auteur ; Emily CAMPI, Auteur ; Grace T. BARANEK, Auteur . - 101763. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101763 Mots-clés : Autism  Anxiety  Hyperresponsiveness  Restricted  Repetitive behaviors  Systematic review  Mixed methods Index. décimale : PER Périodiques Résumé : Background Autistic individuals exhibit core and co-occurring features that can be disabling to daily functioning and impede quality of life. The combined expression of three closely related features: sensory hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety, may be a sign to practitioners that experiences in the environment are particularly challenging. These are investigated through many approaches, including animal modelling, neurological or physiological measures, behavioral observation, and first-hand accounts. However, little work has been done to review evidence across approaches to better understand their expression. Method This study was an integrated systematic review to identify factors that contribute to the collective expression of three constructs of interests (COIs; hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety). Twenty-two articles were analyzed for both structural and thematic patterns. This review is unique in its inclusion of articles from a variety of disciplines and grouping of studies based on similarities over methodological techniques (i.e. quantitative, qualitative, or mixed methods). Results Three overall structural approaches relating the constructs of interest were identified (parallel, relational, and contingent). Three overarching themes also emerged: 1) the broader social context, 2) predictability of environmental factors, and 3) overlap with cognitive and behavioral coping strategies. Conclusions Results highlight clinically relevant information about the combined expression of the three COIs and demonstrate possibilities for increased collaboration across disciplines through common themes and study structures to further understand the experiences of autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101763 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445

'Building our own house' as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production / Gemma L. WILLIAMS in Autism, 29-9 (September 2025)  

Public ISBD [article]  inAutism > 29-9 (September 2025) . - p.2205-2215 Titre : 'Building our own house' as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production Type de document : texte imprimé Auteurs : Gemma L. WILLIAMS, Auteur ; Rebecca ELLIS, Auteur ; Willow HOLLOWAY, Auteur ; Selena CAEMAWR, Auteur ; Monique CRAINE, Auteur ; Kathryn WILLIAMS, Auteur ; Aimee GRANT, Auteur Article en page(s) : p.2205-2215 Langues : Anglais (eng) Mots-clés : action research  autism  community-based participatory research  participatory action research  participatory research  qualitative research Index. décimale : PER Périodiques Résumé : This article describes and reflects on the first six meetings of a newly established Autistic community council, founded to steer a participatory, longitudinal qualitative study investigating the reproductive health of Autistic people with wombs. The two key aims of these initial six meetings - involving four Autistic community leader members and three Autistic researchers - was to (1) guide the start of the project and the development of accessible recruitment materials for the future eight lay members and (2) establish a safe space and a model of accessible communication. We draw on extracts from transcripts made during meetings, member 'field' notes and a reflexive co-writing practice to identify the ways in which a sense of safety was built during these first community council meetings. We explore what it means to be an insider-only Community Partnered Participatory Research Council and reflect on the praxis we developed to facilitate Autistic knowledge production.Lay Abstract In recent years, there has been a growing call for participatory Autism research (i.e. research that meaningfully involves Autistic people in its design and delivery). Community Partnered Participatory Research is a research methodology that aims to share power between researchers and members of the researched community. There is some precedent for Community Partnered Participatory Research in Autism research, but it is still quite uncommon. At the start of our new research study (called Autism: From Menstruation to Menopause), we created a community council. For the first six meetings, our council was made up of four Autistic community members who were experienced in Autism advocacy and activism and three Autistic researchers. We seven are the authors of this article. In these first six meetings, we made plans for recruiting a larger number of lay community members who would join us later for the rest of the project (8 years in total). In this article, we describe and reflect what it felt like during these first six meetings to be part of a community research council where everybody is Autistic. We discuss how we co-created a safe space, how we helped each other feel valued and how we worked together to support each other?s sometimes-differing access needs so that everyone could fully participate. We provide recommendations for how to support Autistic people to lead research on their own terms with their unique insights. En ligne : https://dx.doi.org/10.1177/13623613241253014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566 [article] 'Building our own house' as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production [texte imprimé] / Gemma L. WILLIAMS, Auteur ; Rebecca ELLIS, Auteur ; Willow HOLLOWAY, Auteur ; Selena CAEMAWR, Auteur ; Monique CRAINE, Auteur ; Kathryn WILLIAMS, Auteur ; Aimee GRANT, Auteur . - p.2205-2215. Langues : Anglais (eng) in Autism > 29-9 (September 2025) . - p.2205-2215 Mots-clés : action research  autism  community-based participatory research  participatory action research  participatory research  qualitative research Index. décimale : PER Périodiques Résumé : This article describes and reflects on the first six meetings of a newly established Autistic community council, founded to steer a participatory, longitudinal qualitative study investigating the reproductive health of Autistic people with wombs. The two key aims of these initial six meetings - involving four Autistic community leader members and three Autistic researchers - was to (1) guide the start of the project and the development of accessible recruitment materials for the future eight lay members and (2) establish a safe space and a model of accessible communication. We draw on extracts from transcripts made during meetings, member 'field' notes and a reflexive co-writing practice to identify the ways in which a sense of safety was built during these first community council meetings. We explore what it means to be an insider-only Community Partnered Participatory Research Council and reflect on the praxis we developed to facilitate Autistic knowledge production.Lay Abstract In recent years, there has been a growing call for participatory Autism research (i.e. research that meaningfully involves Autistic people in its design and delivery). Community Partnered Participatory Research is a research methodology that aims to share power between researchers and members of the researched community. There is some precedent for Community Partnered Participatory Research in Autism research, but it is still quite uncommon. At the start of our new research study (called Autism: From Menstruation to Menopause), we created a community council. For the first six meetings, our council was made up of four Autistic community members who were experienced in Autism advocacy and activism and three Autistic researchers. We seven are the authors of this article. In these first six meetings, we made plans for recruiting a larger number of lay community members who would join us later for the rest of the project (8 years in total). In this article, we describe and reflect what it felt like during these first six meetings to be part of a community research council where everybody is Autistic. We discuss how we co-created a safe space, how we helped each other feel valued and how we worked together to support each other?s sometimes-differing access needs so that everyone could fully participate. We provide recommendations for how to support Autistic people to lead research on their own terms with their unique insights. En ligne : https://dx.doi.org/10.1177/13623613241253014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566

Longitudinal assessment of stability of sensory features in children with autism spectrum disorder or other developmental disabilities / Grace T. BARANEK in Autism Research, 12-1 (January 2019)  

Public ISBD [article]  inAutism Research > 12-1 (January 2019) . - p.100-111 Titre : Longitudinal assessment of stability of sensory features in children with autism spectrum disorder or other developmental disabilities Type de document : texte imprimé Auteurs : Grace T. BARANEK, Auteur ; Mary CARLSON, Auteur ; John SIDERIS, Auteur ; Anne V. KIRBY, Auteur ; Linda R. WATSON, Auteur ; Kathryn L. WILLIAMS, Auteur ; John C. BULLUCK, Auteur Article en page(s) : p.100-111 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  developmental changes  longitudinal data analysis  sensory processing  stability Index. décimale : PER Périodiques Résumé : Prior research on the stability of sensory processing problems in children with autism spectrum disorder (ASD) or other developmental disabilities (DD) has produced inconsistent results. We employed a longitudinal study design to assess the stability of three clinical sensory response patterns: hyporesponsiveness; hyperresponsiveness; and sensory interests, repetitions, and seeking behaviors (SIRS). Parents of children with ASD (n = 55) or DD (n = 35) responded to sensory questionnaires at two time points (T1 and T2) separated by 3.3 years on average, with the children aged 2-12 years (M = 5.69 +/- 2.46) at the first assessment. For each sensory response pattern, regression analysis revealed that, for both ASD and DD groups, scores at T1 were strong predictors of scores at T2. Over the longitudinal assessment interval, there was a significant mean decline in severity for SIRS in both groups and for hyporesponsiveness in the ASD group. Parental estimates of the amount of therapy services received were positively associated with the severity of sensory features at T2, an outcome that may result from increased intervention dosages being administered to children who fail to improve over time. The results are discussed in terms of person-centered and environmental considerations, which, in combination, have the capacity to affect stability outcomes for sensory features. Autism Research 2019, 12: 100-111. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Children with autism spectrum disorder (ASD) and other developmental disabilities (DD) may process sensory information differently from those who do not have ASD. For example, some children may be over-responsive or under-responsive to sound or touch. In this study, we showed that sensory features in preschool/school-aged children with ASD and DD tend to decrease on average over a several year period. However, individual children tend to retain their ranking (low or high in sensory features) in comparison to other children over time. En ligne : http://dx.doi.org/10.1002/aur.2008 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=376 [article] Longitudinal assessment of stability of sensory features in children with autism spectrum disorder or other developmental disabilities [texte imprimé] / Grace T. BARANEK, Auteur ; Mary CARLSON, Auteur ; John SIDERIS, Auteur ; Anne V. KIRBY, Auteur ; Linda R. WATSON, Auteur ; Kathryn L. WILLIAMS, Auteur ; John C. BULLUCK, Auteur . - p.100-111. Langues : Anglais (eng) in Autism Research > 12-1 (January 2019) . - p.100-111 Mots-clés : autism spectrum disorder  developmental changes  longitudinal data analysis  sensory processing  stability Index. décimale : PER Périodiques Résumé : Prior research on the stability of sensory processing problems in children with autism spectrum disorder (ASD) or other developmental disabilities (DD) has produced inconsistent results. We employed a longitudinal study design to assess the stability of three clinical sensory response patterns: hyporesponsiveness; hyperresponsiveness; and sensory interests, repetitions, and seeking behaviors (SIRS). Parents of children with ASD (n = 55) or DD (n = 35) responded to sensory questionnaires at two time points (T1 and T2) separated by 3.3 years on average, with the children aged 2-12 years (M = 5.69 +/- 2.46) at the first assessment. For each sensory response pattern, regression analysis revealed that, for both ASD and DD groups, scores at T1 were strong predictors of scores at T2. Over the longitudinal assessment interval, there was a significant mean decline in severity for SIRS in both groups and for hyporesponsiveness in the ASD group. Parental estimates of the amount of therapy services received were positively associated with the severity of sensory features at T2, an outcome that may result from increased intervention dosages being administered to children who fail to improve over time. The results are discussed in terms of person-centered and environmental considerations, which, in combination, have the capacity to affect stability outcomes for sensory features. Autism Research 2019, 12: 100-111. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Children with autism spectrum disorder (ASD) and other developmental disabilities (DD) may process sensory information differently from those who do not have ASD. For example, some children may be over-responsive or under-responsive to sound or touch. In this study, we showed that sensory features in preschool/school-aged children with ASD and DD tend to decrease on average over a several year period. However, individual children tend to retain their ranking (low or high in sensory features) in comparison to other children over time. En ligne : http://dx.doi.org/10.1002/aur.2008 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=376

Longitudinal Relations Between Early Sensory Responsiveness and Later Communication in Infants with Autistic and Non-autistic Siblings / Varsha GARLA ; Kacie DUNHAM ; Jennifer E. MARKFELD ; Sarah M. BOWMAN ; Alexandra J. GOLDEN ; Claire DALY ; Sophia KAISER ; Nisha MAILAPUR ; Sweeya RAJ ; Pooja SANTAPURAM ; Evan SUZMAN ; Ashley E. AUGUSTINE ; Aine MUHUMUZA ; Carissa J. CASCIO ; Kathryn L. WILLIAMS ; Anne V. KIRBY ; Bahar KEÇELI-KAYSILI ; Tiffany G. WOYNAROSKI in Journal of Autism and Developmental Disorders, 54-2 (February 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-2 (February 2024) . - p.594-606 Titre : Longitudinal Relations Between Early Sensory Responsiveness and Later Communication in Infants with Autistic and Non-autistic Siblings Type de document : texte imprimé Auteurs : Varsha GARLA, Auteur ; Kacie DUNHAM, Auteur ; Jennifer E. MARKFELD, Auteur ; Sarah M. BOWMAN, Auteur ; Alexandra J. GOLDEN, Auteur ; Claire DALY, Auteur ; Sophia KAISER, Auteur ; Nisha MAILAPUR, Auteur ; Sweeya RAJ, Auteur ; Pooja SANTAPURAM, Auteur ; Evan SUZMAN, Auteur ; Ashley E. AUGUSTINE, Auteur ; Aine MUHUMUZA, Auteur ; Carissa J. CASCIO, Auteur ; Kathryn L. WILLIAMS, Auteur ; Anne V. KIRBY, Auteur ; Bahar KEÇELI-KAYSILI, Auteur ; Tiffany G. WOYNAROSKI, Auteur Article en page(s) : p.594-606 Index. décimale : PER Périodiques Résumé : Early differences in sensory responsiveness may contribute to difficulties with communication among autistic children; however, this theory has not been longitudinally assessed in infants at increased familial versus general population-level likelihood for autism (Sibs-autism vs. Sibs-NA) using a comprehensive battery of sensory responsiveness and communication. In a sample of 40 infants (20 Sibs-autism, of whom six were later diagnosed with autism; 20 Sibs-NA), we tested (a) associations between sensory responsiveness at 12 18 months and communication 9 months later and (b) evaluated whether such associations were moderated by sibling group, autism diagnosis, or age. We found negative zero-order correlations between sensory responsiveness (i.e., caregiver reported hyperresponsiveness and hyporesponsiveness; an observational measure of hyperresponsiveness) and later communication. Additionally, caregiver reported sensory seeking was negatively associated with later expressive communication only in Sibs-NA. Limitations include our relatively small sample size of infants diagnosed with autism. Implications for future research are discussed. En ligne : https://doi.org/10.1007/s10803-022-05817-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520 [article] Longitudinal Relations Between Early Sensory Responsiveness and Later Communication in Infants with Autistic and Non-autistic Siblings [texte imprimé] / Varsha GARLA, Auteur ; Kacie DUNHAM, Auteur ; Jennifer E. MARKFELD, Auteur ; Sarah M. BOWMAN, Auteur ; Alexandra J. GOLDEN, Auteur ; Claire DALY, Auteur ; Sophia KAISER, Auteur ; Nisha MAILAPUR, Auteur ; Sweeya RAJ, Auteur ; Pooja SANTAPURAM, Auteur ; Evan SUZMAN, Auteur ; Ashley E. AUGUSTINE, Auteur ; Aine MUHUMUZA, Auteur ; Carissa J. CASCIO, Auteur ; Kathryn L. WILLIAMS, Auteur ; Anne V. KIRBY, Auteur ; Bahar KEÇELI-KAYSILI, Auteur ; Tiffany G. WOYNAROSKI, Auteur . - p.594-606. in Journal of Autism and Developmental Disorders > 54-2 (February 2024) . - p.594-606 Index. décimale : PER Périodiques Résumé : Early differences in sensory responsiveness may contribute to difficulties with communication among autistic children; however, this theory has not been longitudinally assessed in infants at increased familial versus general population-level likelihood for autism (Sibs-autism vs. Sibs-NA) using a comprehensive battery of sensory responsiveness and communication. In a sample of 40 infants (20 Sibs-autism, of whom six were later diagnosed with autism; 20 Sibs-NA), we tested (a) associations between sensory responsiveness at 12 18 months and communication 9 months later and (b) evaluated whether such associations were moderated by sibling group, autism diagnosis, or age. We found negative zero-order correlations between sensory responsiveness (i.e., caregiver reported hyperresponsiveness and hyporesponsiveness; an observational measure of hyperresponsiveness) and later communication. Additionally, caregiver reported sensory seeking was negatively associated with later expressive communication only in Sibs-NA. Limitations include our relatively small sample size of infants diagnosed with autism. Implications for future research are discussed. En ligne : https://doi.org/10.1007/s10803-022-05817-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520

"Profound autism": The dire consequences of diagnostic overshadowing / Richard WOODS in Autism Research, 16-9 (September 2023)  

Public ISBD [article]  inAutism Research > 16-9 (September 2023) . - p.1656-1657 Titre : "Profound autism": The dire consequences of diagnostic overshadowing Type de document : texte imprimé Auteurs : Richard WOODS, Auteur ; Kathryn WILLIAMS, Auteur ; Courtney WATTS, Auteur Article en page(s) : p.1656-1657 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1002/aur.2985 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510 [article] "Profound autism": The dire consequences of diagnostic overshadowing [texte imprimé] / Richard WOODS, Auteur ; Kathryn WILLIAMS, Auteur ; Courtney WATTS, Auteur . - p.1656-1657. Langues : Anglais (eng) in Autism Research > 16-9 (September 2023) . - p.1656-1657 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1002/aur.2985 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510

Sensory and repetitive behaviors among children with autism spectrum disorder at home / Anne V. KIRBY in Autism, 21-2 (February 2017)  

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