Pulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families / M. M. BURKE in Autism, 23-2 (February 2019)  

Public ISBD [article]  inAutism > 23-2 (February 2019) . - p.514-523 Titre : Pulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families Type de document : Texte imprimé et/ou numérique Auteurs : M. M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; C. RABIDEAU, Auteur ; Julie LOUNDS TAYLOR, Auteur ; R. M. HODAPP, Auteur Article en page(s) : p.514-523 Langues : Anglais (eng) Mots-clés : family  intervention research  services  transition Index. décimale : PER Périodiques Résumé : The transition from high school to adulthood is difficult for youth with autism spectrum disorder and their families. Recognizing these challenges, there is a small but emerging body of literature testing interventions to improve the transition process. But there are many challenges in performing intervention research that have yet to be fully addressed. We discuss issues that should be considered when conducting interventions with individuals with autism spectrum disorder to improve the transition to adulthood, drawing from our study of a parent training to facilitate access to adult services during the transition years. Issues covered include (1) timing (when is an intervention most effective?), (2) mode of delivery (what is the best way to present information?), (3) outcomes (how can intervention outcomes be accurately measured?), (4) target population (who is the intervention designed to help?), and (5) level of intervention (who should the intervention target?). Our answers, though preliminary, show the need to be flexible, to adopt a trial-and-error stance, and to listen to the needs-both explicit and implicit-of youth with autism spectrum disorder and their parents as they navigate the difficult transition from adolescence to adulthood. En ligne : http://dx.doi.org/10.1177/1362361317753016 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 [article] Pulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families [Texte imprimé et/ou numérique] / M. M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; C. RABIDEAU, Auteur ; Julie LOUNDS TAYLOR, Auteur ; R. M. HODAPP, Auteur . - p.514-523. Langues : Anglais (eng) in Autism > 23-2 (February 2019) . - p.514-523 Mots-clés : family  intervention research  services  transition Index. décimale : PER Périodiques Résumé : The transition from high school to adulthood is difficult for youth with autism spectrum disorder and their families. Recognizing these challenges, there is a small but emerging body of literature testing interventions to improve the transition process. But there are many challenges in performing intervention research that have yet to be fully addressed. We discuss issues that should be considered when conducting interventions with individuals with autism spectrum disorder to improve the transition to adulthood, drawing from our study of a parent training to facilitate access to adult services during the transition years. Issues covered include (1) timing (when is an intervention most effective?), (2) mode of delivery (what is the best way to present information?), (3) outcomes (how can intervention outcomes be accurately measured?), (4) target population (who is the intervention designed to help?), and (5) level of intervention (who should the intervention target?). Our answers, though preliminary, show the need to be flexible, to adopt a trial-and-error stance, and to listen to the needs-both explicit and implicit-of youth with autism spectrum disorder and their parents as they navigate the difficult transition from adolescence to adulthood. En ligne : http://dx.doi.org/10.1177/1362361317753016 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383

Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial / Julie LOUNDS TAYLOR in Journal of Autism and Developmental Disorders, 47-3 (March 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-3 (March 2017) . - p.846-857 Titre : Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial Type de document : Texte imprimé et/ou numérique Auteurs : Julie LOUNDS TAYLOR, Auteur ; Robert M. HODAPP, Auteur ; Meghan M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; Carol RABIDEAU, Auteur Article en page(s) : p.846-857 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Parents Intervention  Transition to adulthood  Services  Advocacy  Empowerment  Randomized controlled trial Index. décimale : PER Périodiques Résumé : This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services—the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N?=?20) or wait-list control (N?=?21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered. En ligne : http://dx.doi.org/10.1007/s10803-016-2994-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304 [article] Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial [Texte imprimé et/ou numérique] / Julie LOUNDS TAYLOR, Auteur ; Robert M. HODAPP, Auteur ; Meghan M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; Carol RABIDEAU, Auteur . - p.846-857. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-3 (March 2017) . - p.846-857 Mots-clés : Autism spectrum disorder  Parents Intervention  Transition to adulthood  Services  Advocacy  Empowerment  Randomized controlled trial Index. décimale : PER Périodiques Résumé : This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services—the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N?=?20) or wait-list control (N?=?21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered. En ligne : http://dx.doi.org/10.1007/s10803-016-2994-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304

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