Examining the Efficacy of a Family Peer Advocate Model for Black and Hispanic Caregivers of Children with Autism Spectrum Disorder / J.M. JAMISON in Journal of Autism and Developmental Disorders, 47-5 (May 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-5 (May 2017) . - p.1314-1322 Titre : Examining the Efficacy of a Family Peer Advocate Model for Black and Hispanic Caregivers of Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : J.M. JAMISON, Auteur ; Emily FOURIE, Auteur ; Paige M. SIPER, Auteur ; Maria Del Pilar TRELLES, Auteur ; Julia GEORGE-JONES, Auteur ; A. BUXBAUM GRICE, Auteur ; J. KRATA, Auteur ; E. HOLL, Auteur ; J. SHAOUL, Auteur ; B. HERNANDEZ, Auteur ; L. MITCHELL, Auteur ; Renée M. MCKAY, Auteur ; Joseph D. BUXBAUM, Auteur ; Alexander KOLEVZON, Auteur Article en page(s) : p.1314-1322 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Family peer advocate  Minority  Caregiver stress Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) affects individuals across all racial and ethnic groups, yet rates of diagnosis are disproportionately higher for Black and Hispanic children. Caregivers of children with ASD experience significant stressors, which have been associated with parental strain, inadequate utilization of mental health services and lower quality of life. The family peer advocate (FPA) model has been utilized across service delivery systems to provide family-to-family support, facilitate engagement, and increase access to care. This study used a randomized controlled design to examine the efficacy of FPAs in a racially and ethnically diverse sample. Results demonstrate significantly increased knowledge of ASD and reduced levels of stress for caregivers who received the FPA intervention as compared to treatment as usual. En ligne : http://dx.doi.org/10.1007/s10803-017-3045-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305 [article] Examining the Efficacy of a Family Peer Advocate Model for Black and Hispanic Caregivers of Children with Autism Spectrum Disorder [texte imprimé] / J.M. JAMISON, Auteur ; Emily FOURIE, Auteur ; Paige M. SIPER, Auteur ; Maria Del Pilar TRELLES, Auteur ; Julia GEORGE-JONES, Auteur ; A. BUXBAUM GRICE, Auteur ; J. KRATA, Auteur ; E. HOLL, Auteur ; J. SHAOUL, Auteur ; B. HERNANDEZ, Auteur ; L. MITCHELL, Auteur ; Renée M. MCKAY, Auteur ; Joseph D. BUXBAUM, Auteur ; Alexander KOLEVZON, Auteur . - p.1314-1322. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-5 (May 2017) . - p.1314-1322 Mots-clés : Autism spectrum disorder  Family peer advocate  Minority  Caregiver stress Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) affects individuals across all racial and ethnic groups, yet rates of diagnosis are disproportionately higher for Black and Hispanic children. Caregivers of children with ASD experience significant stressors, which have been associated with parental strain, inadequate utilization of mental health services and lower quality of life. The family peer advocate (FPA) model has been utilized across service delivery systems to provide family-to-family support, facilitate engagement, and increase access to care. This study used a randomized controlled design to examine the efficacy of FPAs in a racially and ethnically diverse sample. Results demonstrate significantly increased knowledge of ASD and reduced levels of stress for caregivers who received the FPA intervention as compared to treatment as usual. En ligne : http://dx.doi.org/10.1007/s10803-017-3045-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305

Language ENvironment Analysis (LENA) in Phelan-McDermid Syndrome: Validity and Suggestions for Use in Minimally Verbal Children with Autism Spectrum Disorder / Jacquelin RANKINE in Journal of Autism and Developmental Disorders, 47-6 (June 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-6 (June 2017) . - p.1605-1617 Titre : Language ENvironment Analysis (LENA) in Phelan-McDermid Syndrome: Validity and Suggestions for Use in Minimally Verbal Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Jacquelin RANKINE, Auteur ; Erin LI, Auteur ; Stacey LURIE, Auteur ; Hillary RIEGER, Auteur ; Emily FOURIE, Auteur ; Paige M. SIPER, Auteur ; A. Ting WANG, Auteur ; Joseph D. BUXBAUM, Auteur ; Alexander KOLEVZON, Auteur Article en page(s) : p.1605-1617 Langues : Anglais (eng) Mots-clés : Phelan-McDermid syndrome  22q13 deletion syndrome  Autism spectrum disorder  Automated vocal analysis  Language ENvironment  Analysis  Minimally verbal Index. décimale : PER Périodiques Résumé : Phelan-McDermid syndrome (PMS) is a single-locus cause of developmental delay, autism spectrum disorder, and minimal verbal abilities. There is an urgent need to identify objective outcome measures of expressive language for use in this and other minimally verbal populations. One potential tool is an automated language processor called Language ENvironment Analysis (LENA). LENA was used to obtain over 542 h of audio in 18 children with PMS. LENA performance was adequate in a subset of children with PMS, specifically younger children and those with fewer stereotypic vocalizations. One LENA-derived language measure, Vocalization Ratio, had improved accuracy in this sample and may represent a novel expressive language measure for use in severely affected populations. En ligne : http://dx.doi.org/10.1007/s10803-017-3082-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308 [article] Language ENvironment Analysis (LENA) in Phelan-McDermid Syndrome: Validity and Suggestions for Use in Minimally Verbal Children with Autism Spectrum Disorder [texte imprimé] / Jacquelin RANKINE, Auteur ; Erin LI, Auteur ; Stacey LURIE, Auteur ; Hillary RIEGER, Auteur ; Emily FOURIE, Auteur ; Paige M. SIPER, Auteur ; A. Ting WANG, Auteur ; Joseph D. BUXBAUM, Auteur ; Alexander KOLEVZON, Auteur . - p.1605-1617. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-6 (June 2017) . - p.1605-1617 Mots-clés : Phelan-McDermid syndrome  22q13 deletion syndrome  Autism spectrum disorder  Automated vocal analysis  Language ENvironment  Analysis  Minimally verbal Index. décimale : PER Périodiques Résumé : Phelan-McDermid syndrome (PMS) is a single-locus cause of developmental delay, autism spectrum disorder, and minimal verbal abilities. There is an urgent need to identify objective outcome measures of expressive language for use in this and other minimally verbal populations. One potential tool is an automated language processor called Language ENvironment Analysis (LENA). LENA was used to obtain over 542 h of audio in 18 children with PMS. LENA performance was adequate in a subset of children with PMS, specifically younger children and those with fewer stereotypic vocalizations. One LENA-derived language measure, Vocalization Ratio, had improved accuracy in this sample and may represent a novel expressive language measure for use in severely affected populations. En ligne : http://dx.doi.org/10.1007/s10803-017-3082-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308

Motor Control Adherence to the Two-thirds Power Law Differs in Autistic Development / Emily FOURIE in Journal of Autism and Developmental Disorders, 55-3 (March 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.873-890 Titre : Motor Control Adherence to the Two-thirds Power Law Differs in Autistic Development Type de document : texte imprimé Auteurs : Emily FOURIE, Auteur ; Szu-Ching LU, Auteur ; Jonathan DELAFIELD-BUTT, Auteur ; Susan M. RIVERA, Auteur Article en page(s) : p.873-890 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autistic individuals often exhibit motor atypicalities, which may relate to difficulties in social communication. This study utilized a smart tablet activity to computationally characterize motor control by testing adherence to the two-thirds power law (2/3 PL), which captures a systematic covariation between velocity and curvature in motor execution and governs many forms of human movement. Children aged 4-8 years old participated in this study, including 24 autistic children and 33 typically developing children. Participants drew and traced ellipses on an iPad. We extracted data from finger movements on the screen, and computed adherence to the 2/3 PL and other kinematic metrics. Measures of cognitive and motor functioning were also collected. In comparison to the typically developing group, the autistic group demonstrated greater velocity modulation between curved and straight sections of movement, increased levels of acceleration and jerk, and greater intra- and inter-individual variability across several kinematic variables. Further, significant motor control development was observed in typically developing children, but not in those with autism. This study is the first to examine motor control adherence to the 2/3 PL in autistic children, revealing overall diminished motor control. Less smooth, more varied movement and an indication of developmental stasis in autistic children were observed. This study offers a novel tool for computational characterization of the autism motor signature in children s development, demonstrating how smart tablet technology enables accessible assessment of children s motor performance in an objective, quantifiable and scalable manner. En ligne : https://doi.org/10.1007/s10803-024-06240-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548 [article] Motor Control Adherence to the Two-thirds Power Law Differs in Autistic Development [texte imprimé] / Emily FOURIE, Auteur ; Szu-Ching LU, Auteur ; Jonathan DELAFIELD-BUTT, Auteur ; Susan M. RIVERA, Auteur . - p.873-890. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.873-890 Index. décimale : PER Périodiques Résumé : Autistic individuals often exhibit motor atypicalities, which may relate to difficulties in social communication. This study utilized a smart tablet activity to computationally characterize motor control by testing adherence to the two-thirds power law (2/3 PL), which captures a systematic covariation between velocity and curvature in motor execution and governs many forms of human movement. Children aged 4-8 years old participated in this study, including 24 autistic children and 33 typically developing children. Participants drew and traced ellipses on an iPad. We extracted data from finger movements on the screen, and computed adherence to the 2/3 PL and other kinematic metrics. Measures of cognitive and motor functioning were also collected. In comparison to the typically developing group, the autistic group demonstrated greater velocity modulation between curved and straight sections of movement, increased levels of acceleration and jerk, and greater intra- and inter-individual variability across several kinematic variables. Further, significant motor control development was observed in typically developing children, but not in those with autism. This study is the first to examine motor control adherence to the 2/3 PL in autistic children, revealing overall diminished motor control. Less smooth, more varied movement and an indication of developmental stasis in autistic children were observed. This study offers a novel tool for computational characterization of the autism motor signature in children s development, demonstrating how smart tablet technology enables accessible assessment of children s motor performance in an objective, quantifiable and scalable manner. En ligne : https://doi.org/10.1007/s10803-024-06240-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548

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