Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults / R. HERREMA in Journal of Autism and Developmental Disorders, 47-11 (November 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3659-3668 Titre : Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : R. HERREMA, Auteur ; D. GARLAND, Auteur ; M. OSBORNE, Auteur ; M. FREESTON, Auteur ; E. HONEY, Auteur ; J. RODGERS, Auteur Article en page(s) : p.3659-3668 Langues : Anglais (eng) Mots-clés : Adults  Autism  Family members  Future  Support  Worry Index. décimale : PER Périodiques Résumé : Very little is known about autism and adulthood. Family members are often the primary support for autistic adults and frequently express concerns about what the future will hold and what support will be available for their relative. 120 family members of autistic adults completed an online survey exploring concerns about the future for their relative. The most endorsed concerns were "their needs won't be met" (77% worried weekly), "whether they will be happy" (72% worried weekly) and "who will care for them" (58% worried weekly). The results highlight the importance of implementing structured and timely support through collaboration with governmental policy, local commissioning and communication with charities to help prepare family members and their autistic relative for the future. En ligne : http://dx.doi.org/10.1007/s10803-017-3254-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325 [article] Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults [Texte imprimé et/ou numérique] / R. HERREMA, Auteur ; D. GARLAND, Auteur ; M. OSBORNE, Auteur ; M. FREESTON, Auteur ; E. HONEY, Auteur ; J. RODGERS, Auteur . - p.3659-3668. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3659-3668 Mots-clés : Adults  Autism  Family members  Future  Support  Worry Index. décimale : PER Périodiques Résumé : Very little is known about autism and adulthood. Family members are often the primary support for autistic adults and frequently express concerns about what the future will hold and what support will be available for their relative. 120 family members of autistic adults completed an online survey exploring concerns about the future for their relative. The most endorsed concerns were "their needs won't be met" (77% worried weekly), "whether they will be happy" (72% worried weekly) and "who will care for them" (58% worried weekly). The results highlight the importance of implementing structured and timely support through collaboration with governmental policy, local commissioning and communication with charities to help prepare family members and their autistic relative for the future. En ligne : http://dx.doi.org/10.1007/s10803-017-3254-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325

Mental Wellbeing of Family Members of Autistic Adults / R. HERREMA in Journal of Autism and Developmental Disorders, 47-11 (November 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3589-3599 Titre : Mental Wellbeing of Family Members of Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : R. HERREMA, Auteur ; D. GARLAND, Auteur ; M. OSBORNE, Auteur ; M. FREESTON, Auteur ; E. HONEY, Auteur ; J. RODGERS, Auteur Article en page(s) : p.3589-3599 Langues : Anglais (eng) Mots-clés : Adults  Autism  Family members  Mental health  Wellbeing Index. décimale : PER Périodiques Résumé : Family members are often the primary caregiver for autistic adults and this responsibility may impact on the carer's wellbeing and quality of life. 109 family members of autistic adults completed an online survey assessing their wellbeing relating to their caring role for their autistic relative. Family members who were supporting an autistic relative with co-occurring mental health difficulties and who they reported as unprepared for the future, self-reported higher levels of worry, depression, anxiety and stress, and poorer quality of life. These findings emphasise the importance of support for family members of autistic adults, whether through external services to support their relative or individual mental health support for the carer. En ligne : http://dx.doi.org/10.1007/s10803-017-3269-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325 [article] Mental Wellbeing of Family Members of Autistic Adults [Texte imprimé et/ou numérique] / R. HERREMA, Auteur ; D. GARLAND, Auteur ; M. OSBORNE, Auteur ; M. FREESTON, Auteur ; E. HONEY, Auteur ; J. RODGERS, Auteur . - p.3589-3599. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3589-3599 Mots-clés : Adults  Autism  Family members  Mental health  Wellbeing Index. décimale : PER Périodiques Résumé : Family members are often the primary caregiver for autistic adults and this responsibility may impact on the carer's wellbeing and quality of life. 109 family members of autistic adults completed an online survey assessing their wellbeing relating to their caring role for their autistic relative. Family members who were supporting an autistic relative with co-occurring mental health difficulties and who they reported as unprepared for the future, self-reported higher levels of worry, depression, anxiety and stress, and poorer quality of life. These findings emphasise the importance of support for family members of autistic adults, whether through external services to support their relative or individual mental health support for the carer. En ligne : http://dx.doi.org/10.1007/s10803-017-3269-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325

Towards a Treatment for Intolerance of Uncertainty for Autistic Adults: A Single Case Experimental Design Study / J. RODGERS in Journal of Autism and Developmental Disorders, 48-8 (August 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2832-2845 Titre : Towards a Treatment for Intolerance of Uncertainty for Autistic Adults: A Single Case Experimental Design Study Type de document : Texte imprimé et/ou numérique Auteurs : J. RODGERS, Auteur ; R. HERREMA, Auteur ; E. HONEY, Auteur ; M. FREESTON, Auteur Article en page(s) : p.2832-2845 Langues : Anglais (eng) Mots-clés : Asd  Adult  Anxiety  Autism Spectrum Disorder  Intervention  Intolerance of uncertainty Index. décimale : PER Périodiques Résumé : Intolerance of uncertainty (IU) is indicated as an important transdiagnostic process variable in a range of anxiety disorders. Anxiety is very common in autistic adults. This study evaluates a manualised treatment programme for autistic adults, which focused on IU. An eight session programme (CUES-A(c)) was developed and delivered to four autistic adults on an individual basis. A single case experimental design was used to provide a preliminary evaluation of the feasibility, acceptability and preliminary effectiveness of the programme. Data regarding retention, acceptability and feasibility indicate that the participants valued the programme. Analyses of outcome measures indicate that the programme has promise as a treatment option for autistic adults experiencing IU. En ligne : http://dx.doi.org/10.1007/s10803-018-3550-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367 [article] Towards a Treatment for Intolerance of Uncertainty for Autistic Adults: A Single Case Experimental Design Study [Texte imprimé et/ou numérique] / J. RODGERS, Auteur ; R. HERREMA, Auteur ; E. HONEY, Auteur ; M. FREESTON, Auteur . - p.2832-2845. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2832-2845 Mots-clés : Asd  Adult  Anxiety  Autism Spectrum Disorder  Intervention  Intolerance of uncertainty Index. décimale : PER Périodiques Résumé : Intolerance of uncertainty (IU) is indicated as an important transdiagnostic process variable in a range of anxiety disorders. Anxiety is very common in autistic adults. This study evaluates a manualised treatment programme for autistic adults, which focused on IU. An eight session programme (CUES-A(c)) was developed and delivered to four autistic adults on an individual basis. A single case experimental design was used to provide a preliminary evaluation of the feasibility, acceptability and preliminary effectiveness of the programme. Data regarding retention, acceptability and feasibility indicate that the participants valued the programme. Analyses of outcome measures indicate that the programme has promise as a treatment option for autistic adults experiencing IU. En ligne : http://dx.doi.org/10.1007/s10803-018-3550-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367

Towards a Treatment for Intolerance of Uncertainty in Young People with Autism Spectrum Disorder: Development of the Coping with Uncertainty in Everyday Situations (CUES(c)) Programme / J. RODGERS in Journal of Autism and Developmental Disorders, 47-12 (December 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3959-3966 Titre : Towards a Treatment for Intolerance of Uncertainty in Young People with Autism Spectrum Disorder: Development of the Coping with Uncertainty in Everyday Situations (CUES(c)) Programme Type de document : Texte imprimé et/ou numérique Auteurs : J. RODGERS, Auteur ; A. HODGSON, Auteur ; K. SHIELDS, Auteur ; C. WRIGHT, Auteur ; E. HONEY, Auteur ; M. FREESTON, Auteur Année de publication : 2017 Article en page(s) : p.3959-3966 Langues : Anglais (eng) Mots-clés : Anxiety  Intervention  Intolerance of uncertainty  Parent group Index. décimale : PER Périodiques Résumé : Intolerance of uncertainty (IU) is indicated as an important transdiagnostic process variable in a range of anxiety disorders. Anxiety is very common in children with autism spectrum disorders (ASD). This study aimed to develop a parent group based manualised treatment programme for young people with ASD, which focused on IU. An eight session programme was developed and then delivered to 11 parents across three treatment groups, two recruited via a research data base and one via clinical services. Data regarding retention, acceptability and feasibility indicate that the parents valued the programme. Effect size analyses of outcome measures for potential use in larger trial indicate that the programme has promise as a treatment option of your people with ASD and IU. En ligne : http://dx.doi.org/10.1007/s10803-016-2924-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=326 [article] Towards a Treatment for Intolerance of Uncertainty in Young People with Autism Spectrum Disorder: Development of the Coping with Uncertainty in Everyday Situations (CUES(c)) Programme [Texte imprimé et/ou numérique] / J. RODGERS, Auteur ; A. HODGSON, Auteur ; K. SHIELDS, Auteur ; C. WRIGHT, Auteur ; E. HONEY, Auteur ; M. FREESTON, Auteur . - 2017 . - p.3959-3966. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3959-3966 Mots-clés : Anxiety  Intervention  Intolerance of uncertainty  Parent group Index. décimale : PER Périodiques Résumé : Intolerance of uncertainty (IU) is indicated as an important transdiagnostic process variable in a range of anxiety disorders. Anxiety is very common in children with autism spectrum disorders (ASD). This study aimed to develop a parent group based manualised treatment programme for young people with ASD, which focused on IU. An eight session programme was developed and then delivered to 11 parents across three treatment groups, two recruited via a research data base and one via clinical services. Data regarding retention, acceptability and feasibility indicate that the parents valued the programme. Effect size analyses of outcome measures for potential use in larger trial indicate that the programme has promise as a treatment option of your people with ASD and IU. En ligne : http://dx.doi.org/10.1007/s10803-016-2924-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=326

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