Brief Report: Parent's Assessments of Their Care-Related Stress and Child's ASD Symptoms in Relation to Their child's Intervention History / Daniel SHEPHERD in Journal of Autism and Developmental Disorders, 48-8 (August 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2879-2885 Titre : Brief Report: Parent's Assessments of Their Care-Related Stress and Child's ASD Symptoms in Relation to Their child's Intervention History Type de document : texte imprimé Auteurs : Daniel SHEPHERD, Auteur ; Rita CSAKO, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur Article en page(s) : p.2879-2885 Langues : Anglais (eng) Mots-clés : Asd  Autism  Interventions  Parenting stress Index. décimale : PER Périodiques Résumé : Parenting a child with autism spectrum disorder (ASD) can be stressful. Understanding parent's perceptions of their stress and their child's ASD-related symptoms is important for both the well-being of parent and child and for other reasons, such as intervention adherence and diagnostic accuracy. We report parent (N = 570) ratings of both their ASD Care-Related Stress scores and their child's symptoms in relation to the child's exposure to five mainstream ASD interventions. Differences across intervention history in the way parents perceive their child's symptoms and rate the stressfulness of performing ASD-related parenting duties were found. En ligne : http://dx.doi.org/10.1007/s10803-018-3543-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367 [article] Brief Report: Parent's Assessments of Their Care-Related Stress and Child's ASD Symptoms in Relation to Their child's Intervention History [texte imprimé] / Daniel SHEPHERD, Auteur ; Rita CSAKO, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur . - p.2879-2885. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2879-2885 Mots-clés : Asd  Autism  Interventions  Parenting stress Index. décimale : PER Périodiques Résumé : Parenting a child with autism spectrum disorder (ASD) can be stressful. Understanding parent's perceptions of their stress and their child's ASD-related symptoms is important for both the well-being of parent and child and for other reasons, such as intervention adherence and diagnostic accuracy. We report parent (N = 570) ratings of both their ASD Care-Related Stress scores and their child's symptoms in relation to the child's exposure to five mainstream ASD interventions. Differences across intervention history in the way parents perceive their child's symptoms and rate the stressfulness of performing ASD-related parenting duties were found. En ligne : http://dx.doi.org/10.1007/s10803-018-3543-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367

Documenting and Understanding Parent's Intervention Choices for Their Child with Autism Spectrum Disorder / Daniel SHEPHERD in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.988-1001 Titre : Documenting and Understanding Parent's Intervention Choices for Their Child with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Daniel SHEPHERD, Auteur ; Rita CSAKO, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur Article en page(s) : p.988-1001 Langues : Anglais (eng) Mots-clés : Asd  Autism  Intervention choice  Parent decision making Index. décimale : PER Périodiques Résumé : Understanding why parents choose some interventions but not others for their child with autism is important for a number of reasons. Estimating the proportion of evidence-based interventions engaged, identifying the agencies influencing parental decisions, and elucidating the barriers or reasons leading to intervention rejection or discontinuation can result in better service provision. New Zealand parents (n = 570) of a child with autism reported what interventions were being engaged, and why some interventions were engaged but not others. Funding was a major determinant of intervention engagement, while medical professionals exerted the most influence. Sources of support were not related to intervention engagement, but parental perceptions of their child's symptom severity were. Finally, non-engagement does not necessarily reflect parental opposition to an intervention, but rather the existence of barriers. En ligne : http://dx.doi.org/10.1007/s10803-017-3395-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351 [article] Documenting and Understanding Parent's Intervention Choices for Their Child with Autism Spectrum Disorder [texte imprimé] / Daniel SHEPHERD, Auteur ; Rita CSAKO, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur . - p.988-1001. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.988-1001 Mots-clés : Asd  Autism  Intervention choice  Parent decision making Index. décimale : PER Périodiques Résumé : Understanding why parents choose some interventions but not others for their child with autism is important for a number of reasons. Estimating the proportion of evidence-based interventions engaged, identifying the agencies influencing parental decisions, and elucidating the barriers or reasons leading to intervention rejection or discontinuation can result in better service provision. New Zealand parents (n = 570) of a child with autism reported what interventions were being engaged, and why some interventions were engaged but not others. Funding was a major determinant of intervention engagement, while medical professionals exerted the most influence. Sources of support were not related to intervention engagement, but parental perceptions of their child's symptom severity were. Finally, non-engagement does not necessarily reflect parental opposition to an intervention, but rather the existence of barriers. En ligne : http://dx.doi.org/10.1007/s10803-017-3395-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351

Parents’ assessments of their child’s autism-related interventions / Daniel SHEPHERD in Research in Autism Spectrum Disorders, 50 (June 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 50 (June 2018) . - p.1-10 Titre : Parents’ assessments of their child’s autism-related interventions Type de document : texte imprimé Auteurs : Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur ; Rita CSAKO, Auteur Année de publication : 2018 Article en page(s) : p.1-10 Langues : Anglais (eng) Mots-clés : Parent report  Autism spectrum disorder  Intervention effectiveness  Parenting stress Index. décimale : PER Périodiques Résumé : Background Interventions for autism spectrum disorders (ASD) are typically evaluated on the basis of symptom-focused outcome measures. These measures tend to be clinician rated and derived in clinical studies, whilst broader parental experiences are often neglected. Method Here we report a study of 585 parents of children diagnosed with ASD, focusing on their assessments of their child’s ASD Interventions, and how they are perceived to impact parental stress. Results Overall, high proportions of parents reported disengagement with treatment. The highest completion rates were evident with speech-language therapy, and the lowest with intensive applied behaviour analysis (iABA). However, parents reported the highest expectations, satisfaction and stress reduction with iABA. These paradoxical findings are perhaps due to the relative cost and lack of funding directed towards iABA. Conclusions Our research suggests that parental expectations and the factors influencing them are worthy of further investigation. More pertinently, parental ratings of intervention effectiveness along with current intervention engagement are a vital and often overlooked component of understanding the effects of interventions on children with ASD and their families. En ligne : https://doi.org/10.1016/j.rasd.2018.02.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=356 [article] Parents’ assessments of their child’s autism-related interventions [texte imprimé] / Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur ; Rita CSAKO, Auteur . - 2018 . - p.1-10. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 50 (June 2018) . - p.1-10 Mots-clés : Parent report  Autism spectrum disorder  Intervention effectiveness  Parenting stress Index. décimale : PER Périodiques Résumé : Background Interventions for autism spectrum disorders (ASD) are typically evaluated on the basis of symptom-focused outcome measures. These measures tend to be clinician rated and derived in clinical studies, whilst broader parental experiences are often neglected. Method Here we report a study of 585 parents of children diagnosed with ASD, focusing on their assessments of their child’s ASD Interventions, and how they are perceived to impact parental stress. Results Overall, high proportions of parents reported disengagement with treatment. The highest completion rates were evident with speech-language therapy, and the lowest with intensive applied behaviour analysis (iABA). However, parents reported the highest expectations, satisfaction and stress reduction with iABA. These paradoxical findings are perhaps due to the relative cost and lack of funding directed towards iABA. Conclusions Our research suggests that parental expectations and the factors influencing them are worthy of further investigation. More pertinently, parental ratings of intervention effectiveness along with current intervention engagement are a vital and often overlooked component of understanding the effects of interventions on children with ASD and their families. En ligne : https://doi.org/10.1016/j.rasd.2018.02.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=356

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