Brief Report: Participation of Black and African-American Families in Autism Research / Wendy E SHAIA in Journal of Autism and Developmental Disorders, 50-5 (May 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-5 (May 2020) . - p.1841-1846 Titre : Brief Report: Participation of Black and African-American Families in Autism Research Type de document : Texte imprimé et/ou numérique Auteurs : Wendy E SHAIA, Auteur ; Helen M. NICHOLS, Auteur ; Sarah DABABNAH, Auteur ; Karen CAMPION, Auteur ; Nicole GARBARINO, Auteur Article en page(s) : p.1841-1846 Langues : Anglais (eng) Mots-clés : African-American  Autism spectrum disorder  Black  Caregivers  Research methods  Sample recruitment Index. décimale : PER Périodiques Résumé : Black and African-American families are underrepresented in research on autism spectrum disorder (ASD) and few studies have explored how to increase their involvement. To address this gap in the literature, this study explored the perspectives of 22 Black families raising children with ASD in order to identify facilitators and barriers to research participation; as well as suggestions to increase their involvement in ASD studies. Facilitators to research involvement included a desire to contribute to ASD research inclusive of Black families; to seek information and support for child and/or caregiver; and, to engage with culturally responsive research team members. Barriers to research involvement included stigma; denial, shame, and/or embarrassment; distrust of the research process; lack of time/interest; and research material inaccessibility or literacy issues. En ligne : http://dx.doi.org/10.1007/s10803-019-03926-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422 [article] Brief Report: Participation of Black and African-American Families in Autism Research [Texte imprimé et/ou numérique] / Wendy E SHAIA, Auteur ; Helen M. NICHOLS, Auteur ; Sarah DABABNAH, Auteur ; Karen CAMPION, Auteur ; Nicole GARBARINO, Auteur . - p.1841-1846. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-5 (May 2020) . - p.1841-1846 Mots-clés : African-American  Autism spectrum disorder  Black  Caregivers  Research methods  Sample recruitment Index. décimale : PER Périodiques Résumé : Black and African-American families are underrepresented in research on autism spectrum disorder (ASD) and few studies have explored how to increase their involvement. To address this gap in the literature, this study explored the perspectives of 22 Black families raising children with ASD in order to identify facilitators and barriers to research participation; as well as suggestions to increase their involvement in ASD studies. Facilitators to research involvement included a desire to contribute to ASD research inclusive of Black families; to seek information and support for child and/or caregiver; and, to engage with culturally responsive research team members. Barriers to research involvement included stigma; denial, shame, and/or embarrassment; distrust of the research process; lack of time/interest; and research material inaccessibility or literacy issues. En ligne : http://dx.doi.org/10.1007/s10803-019-03926-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422

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