SOLACE: A Psychosocial Stigma Protection Intervention to Improve the Mental Health of Parents of Autistic Children-A Feasibility Randomised Controlled Trial / Annemarie LODDER in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4477-4491 Titre : SOLACE: A Psychosocial Stigma Protection Intervention to Improve the Mental Health of Parents of Autistic Children-A Feasibility Randomised Controlled Trial Type de document : texte imprimé Auteurs : Annemarie LODDER, Auteur ; Chris PAPADOPOULOS, Auteur ; Gurch RANDHAWA, Auteur Article en page(s) : p.4477-4491 Langues : Anglais (eng) Mots-clés : Autism  Feasibility  Intervention  Mental health  Parents/carers  Rct  Stigma Index. décimale : PER Périodiques Résumé : This study presents findings from a feasibility trial, testing an 8-week psychosocial stigma protection intervention (SOLACE) designed to improve the mental health of parents of autistic children. Seventeen parents were stratified then randomly assigned to either SOLACE (n = 9) or control group (n = 8). Retention and adherence rates were excellent with minimal missing data suggesting SOLACE had good acceptability and feasibility. Quantitative analysis revealed that mental health scores had significantly improved for those who took part in SOLACE compared to no significant changes for control group participants. In addition, changes in secondary outcome measures (e.g. stigma, self-esteem and self-compassion) were in favour of SOLACE. Focus group interviews revealed that SOLACE was acceptable to parents. Results suggest that a full randomised controlled trial is warranted. En ligne : http://dx.doi.org/10.1007/s10803-020-04498-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 [article] SOLACE: A Psychosocial Stigma Protection Intervention to Improve the Mental Health of Parents of Autistic Children-A Feasibility Randomised Controlled Trial [texte imprimé] / Annemarie LODDER, Auteur ; Chris PAPADOPOULOS, Auteur ; Gurch RANDHAWA, Auteur . - p.4477-4491. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4477-4491 Mots-clés : Autism  Feasibility  Intervention  Mental health  Parents/carers  Rct  Stigma Index. décimale : PER Périodiques Résumé : This study presents findings from a feasibility trial, testing an 8-week psychosocial stigma protection intervention (SOLACE) designed to improve the mental health of parents of autistic children. Seventeen parents were stratified then randomly assigned to either SOLACE (n = 9) or control group (n = 8). Retention and adherence rates were excellent with minimal missing data suggesting SOLACE had good acceptability and feasibility. Quantitative analysis revealed that mental health scores had significantly improved for those who took part in SOLACE compared to no significant changes for control group participants. In addition, changes in secondary outcome measures (e.g. stigma, self-esteem and self-compassion) were in favour of SOLACE. Focus group interviews revealed that SOLACE was acceptable to parents. Results suggest that a full randomised controlled trial is warranted. En ligne : http://dx.doi.org/10.1007/s10803-020-04498-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434

Systematic Review of the Relationship Between Autism Stigma and Informal Caregiver Mental Health / Chris PAPADOPOULOS in Journal of Autism and Developmental Disorders, 49-4 (April 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1665-1685 Titre : Systematic Review of the Relationship Between Autism Stigma and Informal Caregiver Mental Health Type de document : texte imprimé Auteurs : Chris PAPADOPOULOS, Auteur ; Annemarie LODDER, Auteur ; Georgina CONSTANTINOU, Auteur ; Gurch RANDHAWA, Auteur Article en page(s) : p.1665-1685 Langues : Anglais (eng) Mots-clés : Autism  Caregiver  Carer  Mental health  Stigma  Theoretical framework Index. décimale : PER Périodiques Résumé : Families play a crucial role in determining the mental health of the autistic individual(s) they are caring for. However, the stigma associated with autism can impair caregiver health. To investigate this, empirical evidence pertaining to stigma's impact on informal caregivers' mental health was systematically reviewed. All twelve included studies (n = 1442 informal caregivers) consistently reported the impact of autism related stigma upon caregiver mental health to be significant, meaningful and complex. A new theoretical framework describing the relationship between stigma and caregiver mental health is constructed. Moderating variables include those both changeable through intervention (e.g. hopelessness, self-esteem, self-compassion) and not changeable (gender, culture, financial burden and time since diagnosis). Implications and recommendations for professionals, interventions and future research are proposed. En ligne : https://dx.doi.org/10.1007/s10803-018-3835-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388 [article] Systematic Review of the Relationship Between Autism Stigma and Informal Caregiver Mental Health [texte imprimé] / Chris PAPADOPOULOS, Auteur ; Annemarie LODDER, Auteur ; Georgina CONSTANTINOU, Auteur ; Gurch RANDHAWA, Auteur . - p.1665-1685. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1665-1685 Mots-clés : Autism  Caregiver  Carer  Mental health  Stigma  Theoretical framework Index. décimale : PER Périodiques Résumé : Families play a crucial role in determining the mental health of the autistic individual(s) they are caring for. However, the stigma associated with autism can impair caregiver health. To investigate this, empirical evidence pertaining to stigma's impact on informal caregivers' mental health was systematically reviewed. All twelve included studies (n = 1442 informal caregivers) consistently reported the impact of autism related stigma upon caregiver mental health to be significant, meaningful and complex. A new theoretical framework describing the relationship between stigma and caregiver mental health is constructed. Moderating variables include those both changeable through intervention (e.g. hopelessness, self-esteem, self-compassion) and not changeable (gender, culture, financial burden and time since diagnosis). Implications and recommendations for professionals, interventions and future research are proposed. En ligne : https://dx.doi.org/10.1007/s10803-018-3835-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388

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