'I just rolled up my sleeves': Mothers' perspectives on raising girls on the autism spectrum / Karen FOWLER in Autism, 25-1 (January 2021)  

Public ISBD [article]  inAutism > 25-1 (January 2021) . - p.275-287 Titre : 'I just rolled up my sleeves': Mothers' perspectives on raising girls on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Karen FOWLER, Auteur ; Cliodhna O'CONNOR, Auteur Article en page(s) : p.275-287 Langues : Anglais (eng) Mots-clés : autism  diagnosis  family functioning and support  qualitative research  social stigma  women and girls Index. décimale : PER Périodiques Résumé : Autism in boys has been well researched but very little is known about the everyday experiences of autistic girls or their families. Mothers' views and insights can be very helpful in increasing knowledge around the unique demands of raising a daughter with autism. This study conducted interviews with Irish mothers to examine their own experiences regarding (a) getting an autism diagnosis for their daughter, (b) their daughters' personal characteristics and (c) the impact of caring for a daughter with autism. The study suggests that the route to an autism diagnosis for girls in Ireland is made more difficult by delays and missed diagnoses, and often followed by inadequate supports. Mothers described autistic girls as presenting with social challenges and mental health difficulties. Many mothers experienced judgement from other parents and family members, acute stress and mental health struggles. However, these challenges were offset by mothers' resilience, pride in their daughters and support from other women. The findings of this study highlight the importance of specific support for autistic girls and their families. En ligne : http://dx.doi.org/10.1177/1362361320956876 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437 [article] 'I just rolled up my sleeves': Mothers' perspectives on raising girls on the autism spectrum [Texte imprimé et/ou numérique] / Karen FOWLER, Auteur ; Cliodhna O'CONNOR, Auteur . - p.275-287. Langues : Anglais (eng) in Autism > 25-1 (January 2021) . - p.275-287 Mots-clés : autism  diagnosis  family functioning and support  qualitative research  social stigma  women and girls Index. décimale : PER Périodiques Résumé : Autism in boys has been well researched but very little is known about the everyday experiences of autistic girls or their families. Mothers' views and insights can be very helpful in increasing knowledge around the unique demands of raising a daughter with autism. This study conducted interviews with Irish mothers to examine their own experiences regarding (a) getting an autism diagnosis for their daughter, (b) their daughters' personal characteristics and (c) the impact of caring for a daughter with autism. The study suggests that the route to an autism diagnosis for girls in Ireland is made more difficult by delays and missed diagnoses, and often followed by inadequate supports. Mothers described autistic girls as presenting with social challenges and mental health difficulties. Many mothers experienced judgement from other parents and family members, acute stress and mental health struggles. However, these challenges were offset by mothers' resilience, pride in their daughters and support from other women. The findings of this study highlight the importance of specific support for autistic girls and their families. En ligne : http://dx.doi.org/10.1177/1362361320956876 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437

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