Healthcare service utilization and cost among transition-age youth with autism spectrum disorder and other special healthcare needs / Jennifer L. AMES in Autism, 25-3 (April 2021)  

Public ISBD [article]  inAutism > 25-3 (April 2021) . - p.705-718 Titre : Healthcare service utilization and cost among transition-age youth with autism spectrum disorder and other special healthcare needs Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer L. AMES, Auteur ; Maria L. MASSOLO, Auteur ; Meghan N. DAVIGNON, Auteur ; Yinge QIAN, Auteur ; Lisa A. CROEN, Auteur Article en page(s) : p.705-718 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  health services  transition Index. décimale : PER Périodiques Résumé : Youth with autism spectrum disorder often have complex medical needs. Disruptions of healthcare during the transition from pediatric to adult healthcare may put youth with autism spectrum disorder at higher risk of medical emergencies and high medical costs. To understand healthcare utilization during the transition years, we conducted a study among transition-age youth (14-25?years old) receiving healthcare at Kaiser Permanente Northern California during 2014-2015. We examined differences in healthcare utilization and costs among youth with autism spectrum disorder (n?=?4123), attention deficit and hyperactivity disorder (n?=?20,6015), diabetes mellitus (n?=?2156), and general population controls (n?=?20,615). Analyses were also stratified by age and sex. Youth with autism spectrum disorder had the highest utilization of outpatient primary care, mental health, and psychotropic medications and the lowest utilization of obstetrics/gynecology and urgent care. Costs for youth with autism spectrum disorder were higher than those for attention deficit and hyperactivity disorder and general population peers and lower than for diabetes mellitus. Healthcare utilization patterns varied by age. Transition-age youth with autism spectrum disorder generally used healthcare at higher rates relative to attention deficit and hyperactivity disorder and general population peers but at similar or lower rates than diabetes mellitus peers, indicating this group's complex combination of psychiatric and medical healthcare needs. The relatively high utilization of psychiatric services and low utilization of women's health services in transition-age youth with autism spectrum disorder may have implications for long-term health and warrants additional research. En ligne : http://dx.doi.org/10.1177/1362361320931268 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Healthcare service utilization and cost among transition-age youth with autism spectrum disorder and other special healthcare needs [Texte imprimé et/ou numérique] / Jennifer L. AMES, Auteur ; Maria L. MASSOLO, Auteur ; Meghan N. DAVIGNON, Auteur ; Yinge QIAN, Auteur ; Lisa A. CROEN, Auteur . - p.705-718. Langues : Anglais (eng) in Autism > 25-3 (April 2021) . - p.705-718 Mots-clés : autism spectrum disorders  health services  transition Index. décimale : PER Périodiques Résumé : Youth with autism spectrum disorder often have complex medical needs. Disruptions of healthcare during the transition from pediatric to adult healthcare may put youth with autism spectrum disorder at higher risk of medical emergencies and high medical costs. To understand healthcare utilization during the transition years, we conducted a study among transition-age youth (14-25?years old) receiving healthcare at Kaiser Permanente Northern California during 2014-2015. We examined differences in healthcare utilization and costs among youth with autism spectrum disorder (n?=?4123), attention deficit and hyperactivity disorder (n?=?20,6015), diabetes mellitus (n?=?2156), and general population controls (n?=?20,615). Analyses were also stratified by age and sex. Youth with autism spectrum disorder had the highest utilization of outpatient primary care, mental health, and psychotropic medications and the lowest utilization of obstetrics/gynecology and urgent care. Costs for youth with autism spectrum disorder were higher than those for attention deficit and hyperactivity disorder and general population peers and lower than for diabetes mellitus. Healthcare utilization patterns varied by age. Transition-age youth with autism spectrum disorder generally used healthcare at higher rates relative to attention deficit and hyperactivity disorder and general population peers but at similar or lower rates than diabetes mellitus peers, indicating this group's complex combination of psychiatric and medical healthcare needs. The relatively high utilization of psychiatric services and low utilization of women's health services in transition-age youth with autism spectrum disorder may have implications for long-term health and warrants additional research. En ligne : http://dx.doi.org/10.1177/1362361320931268 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Medical Conditions in the First Years of Life Associated with Future Diagnosis of ASD in Children / Stacey E. ALEXEEFF in Journal of Autism and Developmental Disorders, 47-7 (July 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-7 (July 2017) . - p.2067-2079 Titre : Medical Conditions in the First Years of Life Associated with Future Diagnosis of ASD in Children Type de document : Texte imprimé et/ou numérique Auteurs : Stacey E. ALEXEEFF, Auteur ; Vincent YAU, Auteur ; Yinge QIAN, Auteur ; Meghan N. DAVIGNON, Auteur ; Frances LYNCH, Auteur ; Phillip M. CRAWFORD, Auteur ; Robert DAVIS, Auteur ; Lisa A. CROEN, Auteur Article en page(s) : p.2067-2079 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Comorbidity  Medical conditions Index. décimale : PER Périodiques Résumé : This study examines medical conditions diagnosed prior to the diagnosis of autism spectrum disorder (ASD). Using a matched case control design with 3911 ASD cases and 38,609 controls, we found that 38 out of 79 medical conditions were associated with increased ASD risk. Developmental delay, mental health, and neurology conditions had the strongest associations (ORs 2.0–23.3). Moderately strong associations were observed for nutrition, genetic, ear nose and throat, and sleep conditions (ORs 2.1–3.2). Using machine learning methods, we clustered children based on their medical conditions prior to ASD diagnosis and demonstrated ASD risk stratification. Our findings provide new evidence indicating that children with ASD have a disproportionate burden of certain medical conditions preceding ASD diagnosis. En ligne : https://doi.org/10.1007/s10803-017-3130-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=313 [article] Medical Conditions in the First Years of Life Associated with Future Diagnosis of ASD in Children [Texte imprimé et/ou numérique] / Stacey E. ALEXEEFF, Auteur ; Vincent YAU, Auteur ; Yinge QIAN, Auteur ; Meghan N. DAVIGNON, Auteur ; Frances LYNCH, Auteur ; Phillip M. CRAWFORD, Auteur ; Robert DAVIS, Auteur ; Lisa A. CROEN, Auteur . - p.2067-2079. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-7 (July 2017) . - p.2067-2079 Mots-clés : Autism spectrum disorder  Comorbidity  Medical conditions Index. décimale : PER Périodiques Résumé : This study examines medical conditions diagnosed prior to the diagnosis of autism spectrum disorder (ASD). Using a matched case control design with 3911 ASD cases and 38,609 controls, we found that 38 out of 79 medical conditions were associated with increased ASD risk. Developmental delay, mental health, and neurology conditions had the strongest associations (ORs 2.0–23.3). Moderately strong associations were observed for nutrition, genetic, ear nose and throat, and sleep conditions (ORs 2.1–3.2). Using machine learning methods, we clustered children based on their medical conditions prior to ASD diagnosis and demonstrated ASD risk stratification. Our findings provide new evidence indicating that children with ASD have a disproportionate burden of certain medical conditions preceding ASD diagnosis. En ligne : https://doi.org/10.1007/s10803-017-3130-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=313

Opportunities for Inclusion and Engagement in the Transition of Autistic Youth from Pediatric to Adult Healthcare: A Qualitative Study / Jennifer L. AMES in Journal of Autism and Developmental Disorders, 53-5 (May 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1850-1861 Titre : Opportunities for Inclusion and Engagement in the Transition of Autistic Youth from Pediatric to Adult Healthcare: A Qualitative Study Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer L. AMES, Auteur ; Arjun MAHAJAN, Auteur ; Meghan N. DAVIGNON, Auteur ; Maria L. MASSOLO, Auteur ; Lisa A. CROEN, Auteur Article en page(s) : p.1850-1861 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Transitioning autistic youth from pediatric to adult healthcare requires coordination of multiple stakeholders, including youth, caregivers, and pediatric and adult care providers, whose interests at times overlap but often differ. To understand barriers and facilitators to inclusive transition experiences, we conducted thematic analysis of interviews with 39 stakeholders from the same large, integrated healthcare system. We identified three major themes: (1) Navigating the healthcare transition without guidance, (2) Health consequences of a passive healthcare transition, and (3) Strategies for inclusion and continuous engagement. Facilitators included gradual transition planning, a warm handoff between providers, and support of shared healthcare decision-making. Providers also sought clinical tools and logistical supports such as care coordinators and longer transition-specific visit types to enhance patient-centered care. En ligne : https://doi.org/10.1007/s10803-022-05476-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] Opportunities for Inclusion and Engagement in the Transition of Autistic Youth from Pediatric to Adult Healthcare: A Qualitative Study [Texte imprimé et/ou numérique] / Jennifer L. AMES, Auteur ; Arjun MAHAJAN, Auteur ; Meghan N. DAVIGNON, Auteur ; Maria L. MASSOLO, Auteur ; Lisa A. CROEN, Auteur . - p.1850-1861. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1850-1861 Index. décimale : PER Périodiques Résumé : Transitioning autistic youth from pediatric to adult healthcare requires coordination of multiple stakeholders, including youth, caregivers, and pediatric and adult care providers, whose interests at times overlap but often differ. To understand barriers and facilitators to inclusive transition experiences, we conducted thematic analysis of interviews with 39 stakeholders from the same large, integrated healthcare system. We identified three major themes: (1) Navigating the healthcare transition without guidance, (2) Health consequences of a passive healthcare transition, and (3) Strategies for inclusion and continuous engagement. Facilitators included gradual transition planning, a warm handoff between providers, and support of shared healthcare decision-making. Providers also sought clinical tools and logistical supports such as care coordinators and longer transition-specific visit types to enhance patient-centered care. En ligne : https://doi.org/10.1007/s10803-022-05476-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

Transitioning youth with autism spectrum disorders and other special health care needs into adult primary care: A provider survey / Jennifer L. AMES in Autism, 25-3 (April 2021)  

Public ISBD [article]  inAutism > 25-3 (April 2021) . - p.731-743 Titre : Transitioning youth with autism spectrum disorders and other special health care needs into adult primary care: A provider survey Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer L. AMES, Auteur ; Maria L. MASSOLO, Auteur ; Meghan N. DAVIGNON, Auteur ; Yinge QIAN, Auteur ; Hilda J. CERROS, Auteur ; Lisa A. CROEN, Auteur Article en page(s) : p.731-743 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  health services  transition Index. décimale : PER Périodiques Résumé : The transition from pediatric to adult care is a critical inflection point for the long-term health of youth with autism spectrum disorders and other special health care needs. However, for many patients, their caregivers, and providers, the transition lacks coordination. This survey study demonstrates that pediatric and adult providers struggle to implement many components of transition best practices for youth with autism and other chronic conditions, highlighting the urgent need for enhanced medical coordination and additional transition training and resources. En ligne : http://dx.doi.org/10.1177/1362361320926318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Transitioning youth with autism spectrum disorders and other special health care needs into adult primary care: A provider survey [Texte imprimé et/ou numérique] / Jennifer L. AMES, Auteur ; Maria L. MASSOLO, Auteur ; Meghan N. DAVIGNON, Auteur ; Yinge QIAN, Auteur ; Hilda J. CERROS, Auteur ; Lisa A. CROEN, Auteur . - p.731-743. Langues : Anglais (eng) in Autism > 25-3 (April 2021) . - p.731-743 Mots-clés : autism spectrum disorders  health services  transition Index. décimale : PER Périodiques Résumé : The transition from pediatric to adult care is a critical inflection point for the long-term health of youth with autism spectrum disorders and other special health care needs. However, for many patients, their caregivers, and providers, the transition lacks coordination. This survey study demonstrates that pediatric and adult providers struggle to implement many components of transition best practices for youth with autism and other chronic conditions, highlighting the urgent need for enhanced medical coordination and additional transition training and resources. En ligne : http://dx.doi.org/10.1177/1362361320926318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

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