Self-Compassion in Mothers of Children with Autism Spectrum Disorder: A Qualitative Analysis / Gal BOHADANA in Journal of Autism and Developmental Disorders, 51-4 (April 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-4 (April 2021) . - p.1290-1303 Titre : Self-Compassion in Mothers of Children with Autism Spectrum Disorder: A Qualitative Analysis Type de document : Texte imprimé et/ou numérique Auteurs : Gal BOHADANA, Auteur ; Shirley MORRISSEY, Auteur ; Jessica PAYNTER, Auteur Article en page(s) : p.1290-1303 Langues : Anglais (eng) Mots-clés : Mothers of children with ASD  Parent stress  Parenting  Qualitative  Self-compassion Index. décimale : PER Périodiques Résumé : Emerging quantitative research found self-compassion to be a unique predictor of parental stress in parents of children with ASD above other predictors. However, research on the lived experience of self-compassion in families of children with ASD is limited. Using a qualitative thematic analysis approach, 19 mothers of children with ASD with a mean age of 39.19 years (SD?=?3.56, Range?=?31.00-50.00 years) were interviewed about their lived experiences of stress and self-compassion. Themes derived from interviews include: the impact and causes of stress, benefits of self-compassion, barriers to self-compassion, and aids to self-compassion. The findings deepen our understanding of the experience of self-compassion in this population. Limitations and future directions are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04612-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 [article] Self-Compassion in Mothers of Children with Autism Spectrum Disorder: A Qualitative Analysis [Texte imprimé et/ou numérique] / Gal BOHADANA, Auteur ; Shirley MORRISSEY, Auteur ; Jessica PAYNTER, Auteur . - p.1290-1303. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-4 (April 2021) . - p.1290-1303 Mots-clés : Mothers of children with ASD  Parent stress  Parenting  Qualitative  Self-compassion Index. décimale : PER Périodiques Résumé : Emerging quantitative research found self-compassion to be a unique predictor of parental stress in parents of children with ASD above other predictors. However, research on the lived experience of self-compassion in families of children with ASD is limited. Using a qualitative thematic analysis approach, 19 mothers of children with ASD with a mean age of 39.19 years (SD?=?3.56, Range?=?31.00-50.00 years) were interviewed about their lived experiences of stress and self-compassion. Themes derived from interviews include: the impact and causes of stress, benefits of self-compassion, barriers to self-compassion, and aids to self-compassion. The findings deepen our understanding of the experience of self-compassion in this population. Limitations and future directions are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04612-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445

Self-compassion: A Novel Predictor of Stress and Quality of Life in Parents of Children with Autism Spectrum Disorder / Gal BOHADANA in Journal of Autism and Developmental Disorders, 49-10 (October 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-10 (October 2019) . - p.4039-4052 Titre : Self-compassion: A Novel Predictor of Stress and Quality of Life in Parents of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Gal BOHADANA, Auteur ; S. MORRISSEY, Auteur ; J. PAYNTER, Auteur Article en page(s) : p.4039-4052 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Parents  Quality of life  Self-compassion  Stress Index. décimale : PER Périodiques Résumé : The double ABCX model of adaptation has been used to predict parental outcomes in parents of children with autism spectrum disorder (ASD), with predictors including child characteristics, pile up of demands, external resources, coping, parental perceptions, and internal resources. This study investigated whether self-compassion is a unique predictor of parental outcomes of stress and quality of life. One hundred and thirty-nine parents (120 mothers, 19 fathers) completed an online questionnaire investigating known predictors and self-compassion. It was found that higher scores on the positive dimension of self-compassion were associated with better quality of life, and higher scores on the negative dimension of self-compassion were associated with greater stress. This research has implications for developing self-compassion interventions for parents. En ligne : http://dx.doi.org/10.1007/s10803-019-04121-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Self-compassion: A Novel Predictor of Stress and Quality of Life in Parents of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Gal BOHADANA, Auteur ; S. MORRISSEY, Auteur ; J. PAYNTER, Auteur . - p.4039-4052. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-10 (October 2019) . - p.4039-4052 Mots-clés : Autism spectrum disorder  Parents  Quality of life  Self-compassion  Stress Index. décimale : PER Périodiques Résumé : The double ABCX model of adaptation has been used to predict parental outcomes in parents of children with autism spectrum disorder (ASD), with predictors including child characteristics, pile up of demands, external resources, coping, parental perceptions, and internal resources. This study investigated whether self-compassion is a unique predictor of parental outcomes of stress and quality of life. One hundred and thirty-nine parents (120 mothers, 19 fathers) completed an online questionnaire investigating known predictors and self-compassion. It was found that higher scores on the positive dimension of self-compassion were associated with better quality of life, and higher scores on the negative dimension of self-compassion were associated with greater stress. This research has implications for developing self-compassion interventions for parents. En ligne : http://dx.doi.org/10.1007/s10803-019-04121-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Systematic review of factors that may influence the outcomes and generalizability of parent-mediated interventions for young children with autism spectrum disorder / D. TREMBATH in Autism Research, 12-9 (September 2019)  

Public ISBD [article]  inAutism Research > 12-9 (September 2019) . - p.1304-1321 Titre : Systematic review of factors that may influence the outcomes and generalizability of parent-mediated interventions for young children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : D. TREMBATH, Auteur ; M. GURM, Auteur ; N. E. SCHEERER, Auteur ; D. A. TREVISAN, Auteur ; J. PAYNTER, Auteur ; Gal BOHADANA, Auteur ; J. ROBERTS, Auteur ; G. IAROCCI, Auteur Article en page(s) : p.1304-1321 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  caregiver-mediated  intervention  parent-mediated Index. décimale : PER Périodiques Résumé : Parent mediated interventions have the potential to positively influence the interactions and developmental outcomes of children with autism spectrum disorder (ASD). However, a range of factors relating to children, parents and caregivers, and study design may impact on outcomes and thus the generalizability of these interventions to the broader community. The objective of this review was to examine factors that may influence the feasibility, appropriateness, effectiveness, and generalizability of parent mediated interventions for children with ASD. We conducted a systematic review, yielding 41 articles. There was substantial variability in the intervention type, intensity, and study quality. Notably, 46 different inclusion/exclusion criteria were reported across studies including factors relating to children's development, access to other services, comorbidities, parental factors, and access to the intervention. Fifteen articles included examination of 45 different factors potentially associated with, or influencing, intervention outcomes including child (e.g., language skills, ASD severity, cognition) and parent (e.g., adherence and fidelity, education) factors. Although there is clear evidence for an increasingly sophisticated (e.g., systematic phased research for some interventions) and diverse (e.g., studies in geographical diverse contexts including low-resource communities) approach to research examining parent mediated interventions, there remains a need for improved study quality and measurement consistency in research, including a detailed examination of factors that may predict, moderate, and mediate intervention effectiveness for children and their parents. Autism Res 2019, 12: 1304-1321. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Parent mediated interventions-in which parents adapt their own behavior or deliver interventions to help their children learn-appear to be effective for some children with autism spectrum disorder. In this review, we identified a range of child, parent, and study design factors that may influence intervention outcomes and ultimately the uptake of these approaches in the community. We suggest that research in this area could be further improved by ensuring that studies include diverse groups of children and parents, and by using study designs that help to establish not only if interventions work, but for whom they work best and why. En ligne : http://dx.doi.org/10.1002/aur.2168 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406 [article] Systematic review of factors that may influence the outcomes and generalizability of parent-mediated interventions for young children with autism spectrum disorder [Texte imprimé et/ou numérique] / D. TREMBATH, Auteur ; M. GURM, Auteur ; N. E. SCHEERER, Auteur ; D. A. TREVISAN, Auteur ; J. PAYNTER, Auteur ; Gal BOHADANA, Auteur ; J. ROBERTS, Auteur ; G. IAROCCI, Auteur . - p.1304-1321. Langues : Anglais (eng) in Autism Research > 12-9 (September 2019) . - p.1304-1321 Mots-clés : autism spectrum disorder  caregiver-mediated  intervention  parent-mediated Index. décimale : PER Périodiques Résumé : Parent mediated interventions have the potential to positively influence the interactions and developmental outcomes of children with autism spectrum disorder (ASD). However, a range of factors relating to children, parents and caregivers, and study design may impact on outcomes and thus the generalizability of these interventions to the broader community. The objective of this review was to examine factors that may influence the feasibility, appropriateness, effectiveness, and generalizability of parent mediated interventions for children with ASD. We conducted a systematic review, yielding 41 articles. There was substantial variability in the intervention type, intensity, and study quality. Notably, 46 different inclusion/exclusion criteria were reported across studies including factors relating to children's development, access to other services, comorbidities, parental factors, and access to the intervention. Fifteen articles included examination of 45 different factors potentially associated with, or influencing, intervention outcomes including child (e.g., language skills, ASD severity, cognition) and parent (e.g., adherence and fidelity, education) factors. Although there is clear evidence for an increasingly sophisticated (e.g., systematic phased research for some interventions) and diverse (e.g., studies in geographical diverse contexts including low-resource communities) approach to research examining parent mediated interventions, there remains a need for improved study quality and measurement consistency in research, including a detailed examination of factors that may predict, moderate, and mediate intervention effectiveness for children and their parents. Autism Res 2019, 12: 1304-1321. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Parent mediated interventions-in which parents adapt their own behavior or deliver interventions to help their children learn-appear to be effective for some children with autism spectrum disorder. In this review, we identified a range of child, parent, and study design factors that may influence intervention outcomes and ultimately the uptake of these approaches in the community. We suggest that research in this area could be further improved by ensuring that studies include diverse groups of children and parents, and by using study designs that help to establish not only if interventions work, but for whom they work best and why. En ligne : http://dx.doi.org/10.1002/aur.2168 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406

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