Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study / Mark S. SALZER ; Alec BECKER ; David J. VANNESS ; Brian K. LEE ; Dylan COOPER ; Jonas VENTIMIGLIA ; Lindsay L. SHEA in Research in Autism Spectrum Disorders, 109 (November 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 109 (November 2023) . - 102278 Titre : Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study Type de document : Texte imprimé et/ou numérique Auteurs : Mark S. SALZER, Auteur ; Alec BECKER, Auteur ; David J. VANNESS, Auteur ; Brian K. LEE, Auteur ; Dylan COOPER, Auteur ; Jonas VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 102278 Langues : Anglais (eng) Mots-clés : Autism  COVID-19  Community participation  Autistic adults Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has resulted in a continuum of changes in communities that have impacted the lives and health of millions of autistic people. Method To identify community participation changes during COVID-19, we conducted a two-timepoint (2018 and 2022) longitudinal quantitative study involving 116 autistic adults in Pennsylvania to investigate the impact of the pandemic on their community participation. Community participation was measured by the Temple University Community Participation Measure, and the impact of the pandemic was measured by a series of factors related to the COVID-19 pandemic (e.g., healthcare access, transportation, safety, etc.). Results Results of paired sample t-tests did not show changes in participants' total days of participation over the last 30 days, the total number of activities, or percentages of all activities participants considered important and participated in (i.e., breadth ratio) between the timepoints. However, the percentage of activities that were important to participants and in which they reported engaging as much as they wanted to (i.e., sufficiency ratio) reduced significantly. When examining participation outcomes and COVID-19 impact, we found that multiple participation outcomes (i.e., number of activities, breadth ratio, and sufficiency ratio) were negatively associated with the COVID-19 impact. Conclusion Results suggest that the COVID-19 impacts on autistic adults are variable, with those reporting a more significant impact also reporting a significantly lower level of participation. These findings emphasize the importance of individualized planning to support autistic adults to maintain or regain participation in their preferred activities during the pandemic and beyond. En ligne : https://doi.org/10.1016/j.rasd.2023.102278 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517 [article] Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study [Texte imprimé et/ou numérique] / Mark S. SALZER, Auteur ; Alec BECKER, Auteur ; David J. VANNESS, Auteur ; Brian K. LEE, Auteur ; Dylan COOPER, Auteur ; Jonas VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur . - 102278. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 109 (November 2023) . - 102278 Mots-clés : Autism  COVID-19  Community participation  Autistic adults Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has resulted in a continuum of changes in communities that have impacted the lives and health of millions of autistic people. Method To identify community participation changes during COVID-19, we conducted a two-timepoint (2018 and 2022) longitudinal quantitative study involving 116 autistic adults in Pennsylvania to investigate the impact of the pandemic on their community participation. Community participation was measured by the Temple University Community Participation Measure, and the impact of the pandemic was measured by a series of factors related to the COVID-19 pandemic (e.g., healthcare access, transportation, safety, etc.). Results Results of paired sample t-tests did not show changes in participants' total days of participation over the last 30 days, the total number of activities, or percentages of all activities participants considered important and participated in (i.e., breadth ratio) between the timepoints. However, the percentage of activities that were important to participants and in which they reported engaging as much as they wanted to (i.e., sufficiency ratio) reduced significantly. When examining participation outcomes and COVID-19 impact, we found that multiple participation outcomes (i.e., number of activities, breadth ratio, and sufficiency ratio) were negatively associated with the COVID-19 impact. Conclusion Results suggest that the COVID-19 impacts on autistic adults are variable, with those reporting a more significant impact also reporting a significantly lower level of participation. These findings emphasize the importance of individualized planning to support autistic adults to maintain or regain participation in their preferred activities during the pandemic and beyond. En ligne : https://doi.org/10.1016/j.rasd.2023.102278 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517

The Periodic Risk Evaluation: A new tool to link Medicaid-enrolled autistic adults to services and support / Lindsay SHEA in Research in Autism Spectrum Disorders, 98 (October 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 98 (October 2022) . - 102037 Titre : The Periodic Risk Evaluation: A new tool to link Medicaid-enrolled autistic adults to services and support Type de document : Texte imprimé et/ou numérique Auteurs : Lindsay SHEA, Auteur ; Kaitlin H. KOFFER MILLER, Auteur ; Stacy L. NONNEMACHER, Auteur ; Alec BECKER, Auteur ; Pamela TREADWAY, Auteur ; Amy ALFORD, Auteur ; Craig NEWSCHAFFER, Auteur ; Brian K. LEE, Auteur Article en page(s) : 102037 Langues : Anglais (eng) Mots-clés : Autism  Medicaid  Risk  Tool  Adult  Service use Index. décimale : PER Périodiques Résumé : Background The Periodic Risk Evaluation (PRE) is a new questionnaire-based tool to identify autistic adults enrolled in Medicaid programs who are at risk for adverse outcomes including mental health and medical conditions, law enforcement interaction, stressful life events, substance use, presence of natural supports, and suboptimal living conditions. The PRE is completed by direct service providers and informs case conceptualization to drive changes in needed supports. Method The PRE was tested in a sample of 674 autistic adults with a mean age of 31 years across a large, northeastern state. A random forest model was developed to predict complex case status using the PRE items. Sensitivity, specificity, positive predictive value, and negative predictive value for different PRE score cutoffs were evaluated as the performance measures of interest. Expert clinical assessment, the gold standard for case status, identified 131 individuals (19.4 %) as complex cases in need of modified services and supports. Results The final PRE model identified complex cases in unseen data with 75.5 % accuracy, 71.9 % sensitivity, 76.3 % specificity, 41.8 % positive predictive value, and 92.0 % negative predictive value. Conclusions The PRE may be a useful tool for triaging service needs and delivery to adults on the spectrum. The use of the PRE in the Medicaid system is critical because Medicaid is among the only insurers available during the transition to and throughout adulthood for autistic individuals. Adequate planning and assessment of risk can assist direct support staff in triaging and mitigating risk to minimize adverse outcomes. En ligne : https://doi.org/10.1016/j.rasd.2022.102037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490 [article] The Periodic Risk Evaluation: A new tool to link Medicaid-enrolled autistic adults to services and support [Texte imprimé et/ou numérique] / Lindsay SHEA, Auteur ; Kaitlin H. KOFFER MILLER, Auteur ; Stacy L. NONNEMACHER, Auteur ; Alec BECKER, Auteur ; Pamela TREADWAY, Auteur ; Amy ALFORD, Auteur ; Craig NEWSCHAFFER, Auteur ; Brian K. LEE, Auteur . - 102037. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 98 (October 2022) . - 102037 Mots-clés : Autism  Medicaid  Risk  Tool  Adult  Service use Index. décimale : PER Périodiques Résumé : Background The Periodic Risk Evaluation (PRE) is a new questionnaire-based tool to identify autistic adults enrolled in Medicaid programs who are at risk for adverse outcomes including mental health and medical conditions, law enforcement interaction, stressful life events, substance use, presence of natural supports, and suboptimal living conditions. The PRE is completed by direct service providers and informs case conceptualization to drive changes in needed supports. Method The PRE was tested in a sample of 674 autistic adults with a mean age of 31 years across a large, northeastern state. A random forest model was developed to predict complex case status using the PRE items. Sensitivity, specificity, positive predictive value, and negative predictive value for different PRE score cutoffs were evaluated as the performance measures of interest. Expert clinical assessment, the gold standard for case status, identified 131 individuals (19.4 %) as complex cases in need of modified services and supports. Results The final PRE model identified complex cases in unseen data with 75.5 % accuracy, 71.9 % sensitivity, 76.3 % specificity, 41.8 % positive predictive value, and 92.0 % negative predictive value. Conclusions The PRE may be a useful tool for triaging service needs and delivery to adults on the spectrum. The use of the PRE in the Medicaid system is critical because Medicaid is among the only insurers available during the transition to and throughout adulthood for autistic individuals. Adequate planning and assessment of risk can assist direct support staff in triaging and mitigating risk to minimize adverse outcomes. En ligne : https://doi.org/10.1016/j.rasd.2022.102037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490

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