Applying a public health approach to autism research: A framework for action / Diana SCHENDEL in Autism Research, 15-4 (April 2022)  

Public ISBD [article]  inAutism Research > 15-4 (April 2022) . - p.592-601 Titre : Applying a public health approach to autism research: A framework for action Type de document : Texte imprimé et/ou numérique Auteurs : Diana SCHENDEL, Auteur ; Anne M. ROUX, Auteur ; Elizabeth MCGHEE HASSRICK, Auteur ; Kristen LYALL, Auteur ; Lindsay SHEA, Auteur ; Giacomo VIVANTI, Auteur ; Andrea WIECKOWSKI TRUBANOVA, Auteur ; Craig NEWSCHAFFER, Auteur ; Diana L. ROBINS, Auteur Article en page(s) : p.592-601 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Humans  Public Health  Quality of Life  autism spectrum disorder  communication  knowledge Index. décimale : PER Périodiques Résumé : Most published autism research, and the funding that supports it, remains focused on basic and clinical science. However, the public health impact of autism drives a compelling argument for utilizing a public health approach to autism research. Fundamental to the public health perspective is a focus on health determinants to improve quality of life and to reduce the potential for adverse outcomes across the general population, including in vulnerable subgroups. While the public health research process can be conceptualized as a linear, 3-stage path consisting of discovery - testing - translation/dissemination/implementation, in this paper we propose an integrated, cyclical research framework to advance autism public health objectives in a more comprehensive manner. This involves discovery of primary, secondary and tertiary determinants of health in autism; and use of this evidence base to develop and test detection, intervention, and dissemination strategies and the means to implement them in 'real world' settings. The proposed framework serves to facilitate identification of knowledge gaps, translational barriers, and shortfalls in implementation; guides an iterative research cycle; facilitates purposeful integration of stakeholders and interdisciplinary researchers; and may yield more efficient achievement of improved health and well-being among persons on the autism spectrum at the population-level. LAY SUMMARY: Scientists need better ways to identify and address gaps in autism research, conduct research with stakeholders, and use findings to improve the lives of autistic people. We recommend an approach, based in public health science, to guide research in ways that might impact lives more quickly. En ligne : https://dx.doi.org/10.1002/aur.2689 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Applying a public health approach to autism research: A framework for action [Texte imprimé et/ou numérique] / Diana SCHENDEL, Auteur ; Anne M. ROUX, Auteur ; Elizabeth MCGHEE HASSRICK, Auteur ; Kristen LYALL, Auteur ; Lindsay SHEA, Auteur ; Giacomo VIVANTI, Auteur ; Andrea WIECKOWSKI TRUBANOVA, Auteur ; Craig NEWSCHAFFER, Auteur ; Diana L. ROBINS, Auteur . - p.592-601. Langues : Anglais (eng) in Autism Research > 15-4 (April 2022) . - p.592-601 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Humans  Public Health  Quality of Life  autism spectrum disorder  communication  knowledge Index. décimale : PER Périodiques Résumé : Most published autism research, and the funding that supports it, remains focused on basic and clinical science. However, the public health impact of autism drives a compelling argument for utilizing a public health approach to autism research. Fundamental to the public health perspective is a focus on health determinants to improve quality of life and to reduce the potential for adverse outcomes across the general population, including in vulnerable subgroups. While the public health research process can be conceptualized as a linear, 3-stage path consisting of discovery - testing - translation/dissemination/implementation, in this paper we propose an integrated, cyclical research framework to advance autism public health objectives in a more comprehensive manner. This involves discovery of primary, secondary and tertiary determinants of health in autism; and use of this evidence base to develop and test detection, intervention, and dissemination strategies and the means to implement them in 'real world' settings. The proposed framework serves to facilitate identification of knowledge gaps, translational barriers, and shortfalls in implementation; guides an iterative research cycle; facilitates purposeful integration of stakeholders and interdisciplinary researchers; and may yield more efficient achievement of improved health and well-being among persons on the autism spectrum at the population-level. LAY SUMMARY: Scientists need better ways to identify and address gaps in autism research, conduct research with stakeholders, and use findings to improve the lives of autistic people. We recommend an approach, based in public health science, to guide research in ways that might impact lives more quickly. En ligne : https://dx.doi.org/10.1002/aur.2689 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population / Wei SONG in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1610-1621 Titre : Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population Type de document : Texte imprimé et/ou numérique Auteurs : Wei SONG, Auteur ; Lindsay SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur Article en page(s) : p.1610-1621 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  Community Participation  Humans  Personal Satisfaction  Autism spectrum disorder  Community activities  Group comparison  Participation Index. décimale : PER Périodiques Résumé : Little research has examined the full-range of participation among adults on the autism spectrum. The current study addresses this knowledge gap by comparing the frequency, importance, breadth, and sufficiency of participation between autistic adults and adults in the general population. Autistic adults participated less, had fewer areas that were important to them, participated in fewer areas that were important to them, and were less satisfied with their participation even after controlling for demographic characteristics. Moreover, this study raises questions about what influences their perceptions about the breadth of activities that are important to them and the degree to which they desire to participate in those areas. Suggestions for future interventions and research are offered. En ligne : http://dx.doi.org/10.1007/s10803-021-05059-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population [Texte imprimé et/ou numérique] / Wei SONG, Auteur ; Lindsay SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur . - p.1610-1621. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1610-1621 Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  Community Participation  Humans  Personal Satisfaction  Autism spectrum disorder  Community activities  Group comparison  Participation Index. décimale : PER Périodiques Résumé : Little research has examined the full-range of participation among adults on the autism spectrum. The current study addresses this knowledge gap by comparing the frequency, importance, breadth, and sufficiency of participation between autistic adults and adults in the general population. Autistic adults participated less, had fewer areas that were important to them, participated in fewer areas that were important to them, and were less satisfied with their participation even after controlling for demographic characteristics. Moreover, this study raises questions about what influences their perceptions about the breadth of activities that are important to them and the degree to which they desire to participate in those areas. Suggestions for future interventions and research are offered. En ligne : http://dx.doi.org/10.1007/s10803-021-05059-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Correction to: Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population / Wei SONG in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1622 Titre : Correction to: Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population Type de document : Texte imprimé et/ou numérique Auteurs : Wei SONG, Auteur ; Lindsay SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur Article en page(s) : p.1622 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-021-05108-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Correction to: Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population [Texte imprimé et/ou numérique] / Wei SONG, Auteur ; Lindsay SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur . - p.1622. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1622 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-021-05108-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

COVID-19 risk: Adult Medicaid beneficiaries with autism, intellectual disability, and mental health conditions / Whitney SCHOTT in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.975-987 Titre : COVID-19 risk: Adult Medicaid beneficiaries with autism, intellectual disability, and mental health conditions Type de document : Texte imprimé et/ou numérique Auteurs : Whitney SCHOTT, Auteur ; Sha TAO, Auteur ; Lindsay SHEA, Auteur Article en page(s) : p.975-987 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  COVID-19/epidemiology  Humans  Intellectual Disability/epidemiology  Medicaid  Mental Health  United States/epidemiology  COVID-19 risk  autism  comorbidities  intellectual disability Index. décimale : PER Périodiques Résumé : Autistic adults, adults with intellectual disability, and adults with other mental health conditions may have higher risk of contracting COVID-19 or experiencing more severe illness from COVID-19 if infected. We used data from Medicaid to look at whether autistic adults and other adults with intellectual disability and other mental health conditions were more likely to have risk factors for COVID-19, such as living in a residential facility, receiving services regularly in the home from outside caregivers, having had a long hospitalization, having had avoidable hospitalizations, and having high-risk health conditions. We found that autistic adults had higher odds of living in a residential facility, receiving in-home services from outside caregivers, having had an avoidable hospitalization, and having a high-risk health condition, compared to neurotypical adults without mental health conditions. Adults with intellectual disability had similar odds of having these conditions. Adults with other mental health conditions were also more likely to live in a residential facility, receive services from outside caregivers, and have had avoidable hospitalizations compared to the neurotypical population without mental health conditions. They had three times higher odds of having a high-risk health condition. High risk of COVID-19 among autistic adults and adults with intellectual disability and mental health conditions should be recognized by clinicians, and these groups should be prioritized for vaccine outreach. En ligne : https://dx.doi.org/10.1177/13623613211039662 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] COVID-19 risk: Adult Medicaid beneficiaries with autism, intellectual disability, and mental health conditions [Texte imprimé et/ou numérique] / Whitney SCHOTT, Auteur ; Sha TAO, Auteur ; Lindsay SHEA, Auteur . - p.975-987. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.975-987 Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  COVID-19/epidemiology  Humans  Intellectual Disability/epidemiology  Medicaid  Mental Health  United States/epidemiology  COVID-19 risk  autism  comorbidities  intellectual disability Index. décimale : PER Périodiques Résumé : Autistic adults, adults with intellectual disability, and adults with other mental health conditions may have higher risk of contracting COVID-19 or experiencing more severe illness from COVID-19 if infected. We used data from Medicaid to look at whether autistic adults and other adults with intellectual disability and other mental health conditions were more likely to have risk factors for COVID-19, such as living in a residential facility, receiving services regularly in the home from outside caregivers, having had a long hospitalization, having had avoidable hospitalizations, and having high-risk health conditions. We found that autistic adults had higher odds of living in a residential facility, receiving in-home services from outside caregivers, having had an avoidable hospitalization, and having a high-risk health condition, compared to neurotypical adults without mental health conditions. Adults with intellectual disability had similar odds of having these conditions. Adults with other mental health conditions were also more likely to live in a residential facility, receive services from outside caregivers, and have had avoidable hospitalizations compared to the neurotypical population without mental health conditions. They had three times higher odds of having a high-risk health condition. High risk of COVID-19 among autistic adults and adults with intellectual disability and mental health conditions should be recognized by clinicians, and these groups should be prioritized for vaccine outreach. En ligne : https://dx.doi.org/10.1177/13623613211039662 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Heterogeneity in Autism Spectrum Disorder Case-Finding Algorithms in United States Health Administrative Database Analyses / Scott D. GROSSE in Journal of Autism and Developmental Disorders, 52-9 (September 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4150-4163 Titre : Heterogeneity in Autism Spectrum Disorder Case-Finding Algorithms in United States Health Administrative Database Analyses Type de document : Texte imprimé et/ou numérique Auteurs : Scott D. GROSSE, Auteur ; Phyllis NICHOLS, Auteur ; Kwame NYARKO, Auteur ; Matthew MAENNER, Auteur ; Melissa L. DANIELSON, Auteur ; Lindsay SHEA, Auteur Article en page(s) : p.4150-4163 Langues : Anglais (eng) Mots-clés : Algorithms  Autism Spectrum Disorder/diagnosis/epidemiology  Databases, Factual  Humans  Insurance Coverage  United States/epidemiology  Autism spectrum disorder  Case-finding algorithms  Claims data  Health services research  article to disclose. Index. décimale : PER Périodiques Résumé : Strengthening systems of care to meet the needs of individuals with autism spectrum disorder (ASD) is of growing importance. Administrative data provide advantages for research and planning purposes, including large sample sizes and the ability to identify enrollment in insurance coverage and service utilization of individuals with ASD. Researchers have employed varying strategies to identify individuals with ASD in administrative data. Differences in these strategies can limit the comparability of results across studies. This review describes implications of the varying strategies that have been employed to identify individuals with ASD in US claims databases, with consideration of the strengths and limitations of each approach. En ligne : http://dx.doi.org/10.1007/s10803-021-05269-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 [article] Heterogeneity in Autism Spectrum Disorder Case-Finding Algorithms in United States Health Administrative Database Analyses [Texte imprimé et/ou numérique] / Scott D. GROSSE, Auteur ; Phyllis NICHOLS, Auteur ; Kwame NYARKO, Auteur ; Matthew MAENNER, Auteur ; Melissa L. DANIELSON, Auteur ; Lindsay SHEA, Auteur . - p.4150-4163. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4150-4163 Mots-clés : Algorithms  Autism Spectrum Disorder/diagnosis/epidemiology  Databases, Factual  Humans  Insurance Coverage  United States/epidemiology  Autism spectrum disorder  Case-finding algorithms  Claims data  Health services research  article to disclose. Index. décimale : PER Périodiques Résumé : Strengthening systems of care to meet the needs of individuals with autism spectrum disorder (ASD) is of growing importance. Administrative data provide advantages for research and planning purposes, including large sample sizes and the ability to identify enrollment in insurance coverage and service utilization of individuals with ASD. Researchers have employed varying strategies to identify individuals with ASD in administrative data. Differences in these strategies can limit the comparability of results across studies. This review describes implications of the varying strategies that have been employed to identify individuals with ASD in US claims databases, with consideration of the strengths and limitations of each approach. En ligne : http://dx.doi.org/10.1007/s10803-021-05269-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486

Inextricably tied: Nonbinary autistic individuals' views on how their gender identity and autism are connected / Hillary STEINBERG ; Tamara GARFIELD ; Kyle CHVASTA ; Katherine ARDELEANU ; Maci BROWN ; Lindsay SHEA in Autism, 28-12 (December 2024)  

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Physical health needs and self-reported health status among adults with autism / Paul TURCOTTE in Autism, 25-3 (April 2021)  

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Prevalence of high-risk conditions for severe COVID-19 among Medicaid-enrolled children with autism and mental health diagnoses in the United States / Whitney SCHOTT in Autism, 27-7 (October 2023)  

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A response to and caution of "Language is a critical mediator of autistic experiences within the criminal justice system" / Lindsay SHEA in Autism Research, 17-3 (March 2024)  

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Service Use and Unmet Needs Among Adults with Autism Awaiting Home- and Community-Based Medicaid Services / Whitney SCHOTT in Journal of Autism and Developmental Disorders, 51-4 (April 2021)  

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The Periodic Risk Evaluation: A new tool to link Medicaid-enrolled autistic adults to services and support / Lindsay SHEA in Research in Autism Spectrum Disorders, 98 (October 2022)  

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What do we know about autism and policing globally? Preliminary findings from an international effort to examine autism and the criminal justice system / Dylan COOPER in Autism Research, 17-10 (October 2024)  

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