A cross-cultural comparison of a measure of parent perceptions among families of children with autism in Vietnam / Dieu M. TRUONG in Autism, 27-4 (May 2023)  

Public ISBD [article]  inAutism > 27-4 (May 2023) . - p.997-1010 Titre : A cross-cultural comparison of a measure of parent perceptions among families of children with autism in Vietnam Type de document : texte imprimé Auteurs : Dieu M. TRUONG, Auteur ; Sarah S. MIRE, Auteur ; Susan X. DAY, Auteur ; Lan NI, Auteur ; Milena A. KELLER-MARGULIS, Auteur Article en page(s) : p.997-1010 Langues : Anglais (eng) Mots-clés : autism,cross-cultural comparison,parent perceptions,Vietnam Index. décimale : PER Périodiques Résumé : Most current autism research focuses on Western countries, where service availability and cultural experiences differ from those of individuals living in Asian countries, where collectivistic cultural values prevail and understanding of autism is emerging. By gathering data from Vietnamese parents of autistic children (N=339), the current measurement study examined measure variance and invariance between the English version of the Illness Perception Questionnaire- Revised for Autism Spectrum Disorder (IPQ-R-ASD) and a Vietnamese translation of it, at the item, scalar, and factor levels. Results indicated measurement variance for only three of 37 items and highlighted different perceptions of autism between Vietnamese and North American parents, based on responses to the IPQ-R-ASD. Responses indicated that Vietnamese parents may have a different interpretation of the questions. Seven factors emerged on both the Vietnamese and English instruments, but items loaded differently, and a distinct factor emerged on the Vietnamese version. In sum, the current findings suggest that the IPQ-R-ASD can be useful for better understanding Vietnamese parents' perceptions of their children s autism, but the interpretation is somewhat different than on the English version, highlighting the importance of cross-cultural considerations in the study of autism in Western versus Eastern cultures.Lay abstractRaising an autistic child can affect many aspects of families' lives. Parents are responsible for many decisions, from initiating evaluation to selecting and implementing treatments. How parents conceptualize the course and nature of their child?s diagnosis influences these processes and parents' own well-being. Parents' perceptions about their children s autism are also affected by cultural contexts and understanding of autism. The Illness Perception Questionnaire-Revised (IPQ-R) is widely used to study cognitions in chronic health research and has been adapted and validated to measure parents' perceptions and beliefs about their children s ASD (IPQ-R-ASD). However, such studies are mostly conducted in high-income countries (HICs) with western, individualistic cultural values (e.g. United States, Canada). Therefore, it is unclear whether the IPQ-R-ASD is a useful instrument in understanding parents' perceptions of autism in Vietnam, a lower- and middle-income country (LMIC) with collectivistic Asian cultural values. These differences suggest that parents in Vietnam may have cognitive representations of their children s autism that differ from those of parents living in HIC, western countries. The purpose of this study was to examine the usability of the translated Vietnamese IPQ-R-ASD that may, ultimately, help explore Vietnamese parents' autism perceptions. While the study?s result indicated the usability of the translated measure in Vietnam, when interpreted with Vietnamese norms, results also highlighted notable differences between Vietnamese and North American parents' perceptions of autism that warrant further research. En ligne : https://doi.org/10.1177/13623613221141262 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 [article] A cross-cultural comparison of a measure of parent perceptions among families of children with autism in Vietnam [texte imprimé] / Dieu M. TRUONG, Auteur ; Sarah S. MIRE, Auteur ; Susan X. DAY, Auteur ; Lan NI, Auteur ; Milena A. KELLER-MARGULIS, Auteur . - p.997-1010. Langues : Anglais (eng) in Autism > 27-4 (May 2023) . - p.997-1010 Mots-clés : autism,cross-cultural comparison,parent perceptions,Vietnam Index. décimale : PER Périodiques Résumé : Most current autism research focuses on Western countries, where service availability and cultural experiences differ from those of individuals living in Asian countries, where collectivistic cultural values prevail and understanding of autism is emerging. By gathering data from Vietnamese parents of autistic children (N=339), the current measurement study examined measure variance and invariance between the English version of the Illness Perception Questionnaire- Revised for Autism Spectrum Disorder (IPQ-R-ASD) and a Vietnamese translation of it, at the item, scalar, and factor levels. Results indicated measurement variance for only three of 37 items and highlighted different perceptions of autism between Vietnamese and North American parents, based on responses to the IPQ-R-ASD. Responses indicated that Vietnamese parents may have a different interpretation of the questions. Seven factors emerged on both the Vietnamese and English instruments, but items loaded differently, and a distinct factor emerged on the Vietnamese version. In sum, the current findings suggest that the IPQ-R-ASD can be useful for better understanding Vietnamese parents' perceptions of their children s autism, but the interpretation is somewhat different than on the English version, highlighting the importance of cross-cultural considerations in the study of autism in Western versus Eastern cultures.Lay abstractRaising an autistic child can affect many aspects of families' lives. Parents are responsible for many decisions, from initiating evaluation to selecting and implementing treatments. How parents conceptualize the course and nature of their child?s diagnosis influences these processes and parents' own well-being. Parents' perceptions about their children s autism are also affected by cultural contexts and understanding of autism. The Illness Perception Questionnaire-Revised (IPQ-R) is widely used to study cognitions in chronic health research and has been adapted and validated to measure parents' perceptions and beliefs about their children s ASD (IPQ-R-ASD). However, such studies are mostly conducted in high-income countries (HICs) with western, individualistic cultural values (e.g. United States, Canada). Therefore, it is unclear whether the IPQ-R-ASD is a useful instrument in understanding parents' perceptions of autism in Vietnam, a lower- and middle-income country (LMIC) with collectivistic Asian cultural values. These differences suggest that parents in Vietnam may have cognitive representations of their children s autism that differ from those of parents living in HIC, western countries. The purpose of this study was to examine the usability of the translated Vietnamese IPQ-R-ASD that may, ultimately, help explore Vietnamese parents' autism perceptions. While the study?s result indicated the usability of the translated measure in Vietnam, when interpreted with Vietnamese norms, results also highlighted notable differences between Vietnamese and North American parents' perceptions of autism that warrant further research. En ligne : https://doi.org/10.1177/13623613221141262 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499

Policing Black autistic children: A qualitative approach to understanding Black caregivers' concerns / Ashlee YATES FLANAGAN in Autism, 29-5 (May 2025)  

Public ISBD [article]  inAutism > 29-5 (May 2025) . - p.1303-1317 Titre : Policing Black autistic children: A qualitative approach to understanding Black caregivers' concerns Type de document : texte imprimé Auteurs : Ashlee YATES FLANAGAN, Auteur ; Meredith L. COLA, Auteur ; Naomi YU, Auteur ; Haley PEELE, Auteur ; Keeana DICETTE, Auteur ; Grace HICKS, Auteur ; Maggie Rose PELELLA, Auteur ; Ayana KING-POINTER, Auteur ; Jamiel OWENS, Auteur ; Dieu M. TRUONG, Auteur ; Aili HAUPTMANN, Auteur ; Juan PACHECO, Auteur ; Alison RUSSELL, Auteur ; Amanda LEE, Auteur ; Sarah SCHILLINGER, Auteur ; Maxine COVELLO, Auteur ; Meg LYONS, Auteur ; Rita SOLORZANO, Auteur ; Sinan TURNACIOGLU, Auteur ; Vijay RAVINDRAN, Auteur ; Joseph P. MCCLEERY, Auteur ; Judith S. MILLER, Auteur ; Julia PARISH-MORRIS, Auteur Article en page(s) : p.1303-1317 Langues : Anglais (eng) Mots-clés : autism  Black  caregivers  law enforcement  police  qualitative Index. décimale : PER Périodiques Résumé : In the United States, Black autistic youth face elevated risk of negative outcomes during police interactions. Although the outcomes of these interactions are well-documented, less is known about Black autistic youths' experiences during police encounters, as the current literature has largely examined the experiences of autistic adults, mostly White American samples, and/or autistic youth abroad. This study utilizes qualitative methods to examine the perceptions and concerns of 43 Black caregivers (N = 43; 98% parents; 2% legal guardians; 93% mothers) of Black autistic children (mean age: 16.5; 79% male) regarding police interactions with their autistic children. Four themes emerged: concerns regarding the Quality of police officers' training, children s Autistic behaviors being inappropriately policed, the explicit Threat of harm and murder, and the hope for Mindful Policing. These findings demonstrate that caregivers' concerns about police behaviors are inextricably linked to their concerns about the quality of police officers' training. The results of this study highlight (1) the importance of including racially and ethnically diverse individuals in research exploring autistic individuals' police interactions, (2) the need for culturally responsive adaptations to existing policing interventions designed for autistic people, and (3) the urgency of integrating Black caregivers' concerns into law enforcement training efforts.Lay abstract In the United States, Black autistic youth face elevated risk of negative outcomes during police interactions. Although the outcomes of these interactions are well-documented, less is known about Black autistic youths' experiences during police encounters, as the current literature has largely examined the experiences of autistic adults, mostly White American samples, and/or autistic youth abroad. This study utilizes qualitative methods to examine the perceptions and concerns of 43 Black caregivers (N = 43; 98% parents; 2% legal guardians; 93% mothers) of Black autistic children (mean age: 16.5; 79% male) regarding police interactions with their autistic children. Through phenomenological analysis, four dominant themes emerged: concerns regarding the Quality of police officers' training, children s Autistic behaviors being inappropriately policed, the explicit Threat of harm and murder, and the hope for Mindful Policing. These findings demonstrate that caregivers' perceptions of police behavior are inextricably linked to their concerns about the quality of police officers' training. This study highlights (1) the importance of including racially and ethnically diverse individuals in research exploring autistic individuals' police interactions, (2) the need for culturally responsive and neuro-affirming adaptations to existing policing interventions designed for autistic people, and (3) the urgency of integrating Black caregivers' concerns into law enforcement training efforts. En ligne : https://dx.doi.org/10.1177/13623613241303549 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] Policing Black autistic children: A qualitative approach to understanding Black caregivers' concerns [texte imprimé] / Ashlee YATES FLANAGAN, Auteur ; Meredith L. COLA, Auteur ; Naomi YU, Auteur ; Haley PEELE, Auteur ; Keeana DICETTE, Auteur ; Grace HICKS, Auteur ; Maggie Rose PELELLA, Auteur ; Ayana KING-POINTER, Auteur ; Jamiel OWENS, Auteur ; Dieu M. TRUONG, Auteur ; Aili HAUPTMANN, Auteur ; Juan PACHECO, Auteur ; Alison RUSSELL, Auteur ; Amanda LEE, Auteur ; Sarah SCHILLINGER, Auteur ; Maxine COVELLO, Auteur ; Meg LYONS, Auteur ; Rita SOLORZANO, Auteur ; Sinan TURNACIOGLU, Auteur ; Vijay RAVINDRAN, Auteur ; Joseph P. MCCLEERY, Auteur ; Judith S. MILLER, Auteur ; Julia PARISH-MORRIS, Auteur . - p.1303-1317. Langues : Anglais (eng) in Autism > 29-5 (May 2025) . - p.1303-1317 Mots-clés : autism  Black  caregivers  law enforcement  police  qualitative Index. décimale : PER Périodiques Résumé : In the United States, Black autistic youth face elevated risk of negative outcomes during police interactions. Although the outcomes of these interactions are well-documented, less is known about Black autistic youths' experiences during police encounters, as the current literature has largely examined the experiences of autistic adults, mostly White American samples, and/or autistic youth abroad. This study utilizes qualitative methods to examine the perceptions and concerns of 43 Black caregivers (N = 43; 98% parents; 2% legal guardians; 93% mothers) of Black autistic children (mean age: 16.5; 79% male) regarding police interactions with their autistic children. Four themes emerged: concerns regarding the Quality of police officers' training, children s Autistic behaviors being inappropriately policed, the explicit Threat of harm and murder, and the hope for Mindful Policing. These findings demonstrate that caregivers' concerns about police behaviors are inextricably linked to their concerns about the quality of police officers' training. The results of this study highlight (1) the importance of including racially and ethnically diverse individuals in research exploring autistic individuals' police interactions, (2) the need for culturally responsive adaptations to existing policing interventions designed for autistic people, and (3) the urgency of integrating Black caregivers' concerns into law enforcement training efforts.Lay abstract In the United States, Black autistic youth face elevated risk of negative outcomes during police interactions. Although the outcomes of these interactions are well-documented, less is known about Black autistic youths' experiences during police encounters, as the current literature has largely examined the experiences of autistic adults, mostly White American samples, and/or autistic youth abroad. This study utilizes qualitative methods to examine the perceptions and concerns of 43 Black caregivers (N = 43; 98% parents; 2% legal guardians; 93% mothers) of Black autistic children (mean age: 16.5; 79% male) regarding police interactions with their autistic children. Through phenomenological analysis, four dominant themes emerged: concerns regarding the Quality of police officers' training, children s Autistic behaviors being inappropriately policed, the explicit Threat of harm and murder, and the hope for Mindful Policing. These findings demonstrate that caregivers' perceptions of police behavior are inextricably linked to their concerns about the quality of police officers' training. This study highlights (1) the importance of including racially and ethnically diverse individuals in research exploring autistic individuals' police interactions, (2) the need for culturally responsive and neuro-affirming adaptations to existing policing interventions designed for autistic people, and (3) the urgency of integrating Black caregivers' concerns into law enforcement training efforts. En ligne : https://dx.doi.org/10.1177/13623613241303549 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies / Sarah S. MIRE in Journal of Autism and Developmental Disorders, 54-6 (June 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2307-2321 Titre : A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies Type de document : texte imprimé Auteurs : Sarah S. MIRE, Auteur ; Dieu M. TRUONG, Auteur ; Georgina J. SAKYI, Auteur ; Mycah L. AYALA-BRITTAIN, Auteur ; Jelisa D. BOYKIN, Auteur ; Christian M. STEWART, Auteur ; Fre’Dasia DANIELS, Auteur ; Brenda DURAN, Auteur ; Scarlett GARDNER, Auteur ; Alexandra M. BARTH, Auteur ; Georgette RICHARDSON, Auteur ; Shannon L. MCKEE, Auteur Article en page(s) : p.2307-2321 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Underrepresentation of socioeconomically, culturally, and/or linguistically diverse (SCLD) children with neurodevelopmental disorders (NDD) and their families has become a focal point for researchers. This systematic review aimed to identify researchers' strategies for recruiting and retaining SCLD families of children with NDD, published between 1993 and 2018. One hundred twenty-six articles were included, and study samples were categorized as "High SCLD" and "Low SCLD". Chi-square tests of independence were used to determine associations between sample composition (i.e., High/Low SCLD sample) and study characteristics reported. Significant associations were found between sample composition and studies that explicitly stated intention to recruit SCLD families, 2(1) = 12.70, p < .001, Phi = 0.38 (moderate); and for studies that reported the following participant characteristics: language, 2(1) = 29.58, p < .001, Phi = 0.48 (moderate-to-large); and race/ethnicity+SES+language, 2(1) = 19.26, p <. 001, Phi = 0.39 (moderate). However, associations were not found between recruitment and retention approaches and whether studies included High SCLD or Low SCLD samples. Further study of NDD researchers' recruitment and retention approaches that successfully include SCLD families is needed. En ligne : https://doi.org/10.1007/s10803-023-05968-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies [texte imprimé] / Sarah S. MIRE, Auteur ; Dieu M. TRUONG, Auteur ; Georgina J. SAKYI, Auteur ; Mycah L. AYALA-BRITTAIN, Auteur ; Jelisa D. BOYKIN, Auteur ; Christian M. STEWART, Auteur ; Fre’Dasia DANIELS, Auteur ; Brenda DURAN, Auteur ; Scarlett GARDNER, Auteur ; Alexandra M. BARTH, Auteur ; Georgette RICHARDSON, Auteur ; Shannon L. MCKEE, Auteur . - p.2307-2321. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2307-2321 Index. décimale : PER Périodiques Résumé : Underrepresentation of socioeconomically, culturally, and/or linguistically diverse (SCLD) children with neurodevelopmental disorders (NDD) and their families has become a focal point for researchers. This systematic review aimed to identify researchers' strategies for recruiting and retaining SCLD families of children with NDD, published between 1993 and 2018. One hundred twenty-six articles were included, and study samples were categorized as "High SCLD" and "Low SCLD". Chi-square tests of independence were used to determine associations between sample composition (i.e., High/Low SCLD sample) and study characteristics reported. Significant associations were found between sample composition and studies that explicitly stated intention to recruit SCLD families, 2(1) = 12.70, p < .001, Phi = 0.38 (moderate); and for studies that reported the following participant characteristics: language, 2(1) = 29.58, p < .001, Phi = 0.48 (moderate-to-large); and race/ethnicity+SES+language, 2(1) = 19.26, p <. 001, Phi = 0.39 (moderate). However, associations were not found between recruitment and retention approaches and whether studies included High SCLD or Low SCLD samples. Further study of NDD researchers' recruitment and retention approaches that successfully include SCLD families is needed. En ligne : https://doi.org/10.1007/s10803-023-05968-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

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