Are the diagnostic rates of autistic females increasing? An examination of state-wide trends / Brianne TOMASZEWSKI ; Orla C. PUTNAM ; Claire B. KLEIN ; Elena LAMARCHE ; Laura G. KLINGER in Journal of Child Psychology and Psychiatry, 65-7 (July 2024)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 65-7 (July 2024) . - p.973-983 Titre : Are the diagnostic rates of autistic females increasing? An examination of state-wide trends Type de document : texte imprimé Auteurs : Brianne TOMASZEWSKI, Auteur ; Orla C. PUTNAM, Auteur ; Claire B. KLEIN, Auteur ; Elena LAMARCHE, Auteur ; Laura G. KLINGER, Auteur Article en page(s) : p.973-983 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Background Autism has been considered a 'male-dominant' condition. However, recent research suggests that autistic females are underdiagnosed, misdiagnosed, and later diagnosed. Females may also have different and more nuanced behavioral profiles. To examine diagnosis rates of females, we used 20 years of state-wide data to characterize historical trends in the diagnosis of autism in females to determine whether the proportion of females diagnosed with autism has changed over time. Methods Data were drawn from 10,247 participants (males = 8,319, females = 1928) who received an autism diagnosis between 2000 and 2021 from state-wide autism centers associated with the University of North Carolina TEACCH Autism Program. Results The rates of females diagnosed with autism increased at a greater rate compared with males. Age of diagnosis remained consistently higher for females. Late diagnosis (defined as 13+) increased over time across both males and females, however, was more commonly associated with females, particularly those with co-occurring intellectual disability. Conclusions Our results indicate that the proportion of females diagnosed with autism has increased steadily over a 20-year period, which likely reflects greater societal knowledge of how autism may manifest differentially in females. En ligne : https://doi.org/10.1111/jcpp.13939 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=532 [article] Are the diagnostic rates of autistic females increasing? An examination of state-wide trends [texte imprimé] / Brianne TOMASZEWSKI, Auteur ; Orla C. PUTNAM, Auteur ; Claire B. KLEIN, Auteur ; Elena LAMARCHE, Auteur ; Laura G. KLINGER, Auteur . - p.973-983. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 65-7 (July 2024) . - p.973-983 Index. décimale : PER Périodiques Résumé : Background Autism has been considered a 'male-dominant' condition. However, recent research suggests that autistic females are underdiagnosed, misdiagnosed, and later diagnosed. Females may also have different and more nuanced behavioral profiles. To examine diagnosis rates of females, we used 20 years of state-wide data to characterize historical trends in the diagnosis of autism in females to determine whether the proportion of females diagnosed with autism has changed over time. Methods Data were drawn from 10,247 participants (males = 8,319, females = 1928) who received an autism diagnosis between 2000 and 2021 from state-wide autism centers associated with the University of North Carolina TEACCH Autism Program. Results The rates of females diagnosed with autism increased at a greater rate compared with males. Age of diagnosis remained consistently higher for females. Late diagnosis (defined as 13+) increased over time across both males and females, however, was more commonly associated with females, particularly those with co-occurring intellectual disability. Conclusions Our results indicate that the proportion of females diagnosed with autism has increased steadily over a 20-year period, which likely reflects greater societal knowledge of how autism may manifest differentially in females. En ligne : https://doi.org/10.1111/jcpp.13939 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=532

Assessing the convergence of self-report and informant measures for adults with autism spectrum disorder / Rachel K. SANDERCOCK in Autism, 24-8 (November 2020)  

Public ISBD [article]  inAutism > 24-8 (November 2020) . - p.2256-2268 Titre : Assessing the convergence of self-report and informant measures for adults with autism spectrum disorder Type de document : texte imprimé Auteurs : Rachel K. SANDERCOCK, Auteur ; Elena LAMARCHE, Auteur ; Mark R. KLINGER, Auteur ; Laura G. KLINGER, Auteur Article en page(s) : p.2256-2268 Langues : Anglais (eng) Mots-clés : *adults  *assessment  *autism spectrum disorder  *self-report Index. décimale : PER Périodiques Résumé : Self-report measures are frequently used for research and clinical assessments of adults with autism spectrum disorder. However, there has been little research examining agreement between self-report and informant-report in this population. Valid self-report measures are essential for conducting research with and providing high quality clinical services for adults with autism spectrum disorder. This study collected measures from 40 pairs of adults with autism spectrum disorder and their caregivers on measures of symptom severity, daily living skills, quality of life, and unmet service needs. Caregiver and self-report responses were highly associated with one another on all measures, though there were significant gaps between scores on the measures of daily living skills and quality of life. It is also important to understand how each informant's responses relate to outcomes in the areas of employment and independent living. Using self-report and caregiver-report together better predicted outcomes for the adult with autism spectrum disorder than scores from either individual reporter alone. These findings show that there is unique and valuable information provided by both adults with autism spectrum disorder and their caregivers; a multi-informant approach is important for obtaining the most comprehensive picture of current functioning, identifying unmet service needs, and creating treatment plans. This research also highlights the importance of including and prioritizing self-report perspectives in shaping service planning. En ligne : http://dx.doi.org/10.1177/1362361320942981 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] Assessing the convergence of self-report and informant measures for adults with autism spectrum disorder [texte imprimé] / Rachel K. SANDERCOCK, Auteur ; Elena LAMARCHE, Auteur ; Mark R. KLINGER, Auteur ; Laura G. KLINGER, Auteur . - p.2256-2268. Langues : Anglais (eng) in Autism > 24-8 (November 2020) . - p.2256-2268 Mots-clés : *adults  *assessment  *autism spectrum disorder  *self-report Index. décimale : PER Périodiques Résumé : Self-report measures are frequently used for research and clinical assessments of adults with autism spectrum disorder. However, there has been little research examining agreement between self-report and informant-report in this population. Valid self-report measures are essential for conducting research with and providing high quality clinical services for adults with autism spectrum disorder. This study collected measures from 40 pairs of adults with autism spectrum disorder and their caregivers on measures of symptom severity, daily living skills, quality of life, and unmet service needs. Caregiver and self-report responses were highly associated with one another on all measures, though there were significant gaps between scores on the measures of daily living skills and quality of life. It is also important to understand how each informant's responses relate to outcomes in the areas of employment and independent living. Using self-report and caregiver-report together better predicted outcomes for the adult with autism spectrum disorder than scores from either individual reporter alone. These findings show that there is unique and valuable information provided by both adults with autism spectrum disorder and their caregivers; a multi-informant approach is important for obtaining the most comprehensive picture of current functioning, identifying unmet service needs, and creating treatment plans. This research also highlights the importance of including and prioritizing self-report perspectives in shaping service planning. En ligne : http://dx.doi.org/10.1177/1362361320942981 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Mental health Project ECHO Autism: Increasing access to community mental health services for autistic individuals / Nicole Ginn DREILING in Autism, 26-2 (February 2022)  

Public ISBD [article]  inAutism > 26-2 (February 2022) . - p.434-445 Titre : Mental health Project ECHO Autism: Increasing access to community mental health services for autistic individuals Type de document : texte imprimé Auteurs : Nicole Ginn DREILING, Auteur ; Michal L. COOK, Auteur ; Elena LAMARCHE, Auteur ; Laura G. KLINGER, Auteur Article en page(s) : p.434-445 Langues : Anglais (eng) Mots-clés : Project ECHO  autism  mental health  professional development  teleconsultation  of interest with respect to the research, authorship, and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Although many autistic individuals have additional mental health conditions, most have a hard time getting services from mental health providers. One reason why these services can be hard to access is that many mental health providers do not feel confident in their ability to provide services to autistic individuals. To share autism expertise with local community providers and boost their confidence in working with autistic individuals, we created a mental health version of the Extension for Community Healthcare Outcomes (Project ECHO) Autism virtual teleconsultation program. In this pilot study, we recruited 51 community mental health providers to participate in Project ECHO Autism. During each biweekly session, providers received information from autism experts about how to tailor mental health interventions (e.g. attention-deficit hyperactivity disorder or anxiety interventions) for use with autistic individuals. They also had the opportunity to ask questions and get advice on their current cases. At the end of the 6-month study, mental health providers showed improvements in their confidence, in their knowledge of autism, and in their problem-solving skills. Nearly half (45%) of these providers participated from rural counties, suggesting that the Project ECHO Autism teleconsultation model was able to reach mental health providers who might not have been able to get training otherwise. This study supports the feasibility of using Project ECHO Autism to share autism knowledge with mental health providers, consequently expanding mental health service options for autistic individuals with co-occurring mental health conditions. En ligne : http://dx.doi.org/10.1177/13623613211028000 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 [article] Mental health Project ECHO Autism: Increasing access to community mental health services for autistic individuals [texte imprimé] / Nicole Ginn DREILING, Auteur ; Michal L. COOK, Auteur ; Elena LAMARCHE, Auteur ; Laura G. KLINGER, Auteur . - p.434-445. Langues : Anglais (eng) in Autism > 26-2 (February 2022) . - p.434-445 Mots-clés : Project ECHO  autism  mental health  professional development  teleconsultation  of interest with respect to the research, authorship, and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Although many autistic individuals have additional mental health conditions, most have a hard time getting services from mental health providers. One reason why these services can be hard to access is that many mental health providers do not feel confident in their ability to provide services to autistic individuals. To share autism expertise with local community providers and boost their confidence in working with autistic individuals, we created a mental health version of the Extension for Community Healthcare Outcomes (Project ECHO) Autism virtual teleconsultation program. In this pilot study, we recruited 51 community mental health providers to participate in Project ECHO Autism. During each biweekly session, providers received information from autism experts about how to tailor mental health interventions (e.g. attention-deficit hyperactivity disorder or anxiety interventions) for use with autistic individuals. They also had the opportunity to ask questions and get advice on their current cases. At the end of the 6-month study, mental health providers showed improvements in their confidence, in their knowledge of autism, and in their problem-solving skills. Nearly half (45%) of these providers participated from rural counties, suggesting that the Project ECHO Autism teleconsultation model was able to reach mental health providers who might not have been able to get training otherwise. This study supports the feasibility of using Project ECHO Autism to share autism knowledge with mental health providers, consequently expanding mental health service options for autistic individuals with co-occurring mental health conditions. En ligne : http://dx.doi.org/10.1177/13623613211028000 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452

Suicide risk in transition-aged autistic youth: The link among executive function, depression, and autistic traits / Brianne TOMASZEWSKI ; Elena LAMARCHE ; Karrah BOWMAN ; Claire B. KLEIN ; Sara STAHL ; Laura G. KLINGER in Autism, 28-9 (September 2024)  

Public ISBD [article]  inAutism > 28-9 (September 2024) . - p.2311-2321 Titre : Suicide risk in transition-aged autistic youth: The link among executive function, depression, and autistic traits Type de document : texte imprimé Auteurs : Brianne TOMASZEWSKI, Auteur ; Elena LAMARCHE, Auteur ; Karrah BOWMAN, Auteur ; Claire B. KLEIN, Auteur ; Sara STAHL, Auteur ; Laura G. KLINGER, Auteur Article en page(s) : p.2311-2321 Langues : (en) Mots-clés : autism spectrum disorder (ASD)  depression  executive function  suicide risk  transition-aged youth Index. décimale : PER Périodiques Résumé : Autistic individuals are at significantly higher risk of suicide than non-autistic individuals, with transition-aged youth at potentially the highest risk. While lower executive function (EF) skills have been significantly associated with suicide risk in other clinical samples, the link between EF and suicidality has not yet been examined for autistic individuals. In this study, 183 transition-aged autistic youths completed routine suicide risk assessments and self- and informant-reports of autistic traits, depression, and EF skills. On the P4 Suicide Screener, approximately one-third of the sample (33.3%) endorsed having thoughts of hurting themselves with the intent to end their lives (i.e., suicidal ideation) in their lifetime. In addition to depressive symptoms, EF impairment independently predicted endorsement of suicidal ideation, indicating that both are crucial intervention goals to target suicidal risk for transition-aged youth on the spectrum. Findings suggest that executive functioning, a prevalent area of difficulty and common intervention target for the autistic community, is an important indicator of suicide risk in this population. Lay Abstract Autistic people are more likely to consider suicide than non-autistic people, with transition-aged youth (ages 16-21 years) at potentially the highest risk. Research has also shown that difficulties with executive functioning (e.g., difficulties with organization, sequencing, and decision-making) may heighten suicide risk among non-autistic people, but it is not clear whether this is also true for autistic people. This study explored this question by asking 183 transition-aged autistic youth about their experience with suicidal behavior and examining the relationship between their responses and additional measures of depression, autistic traits, and executive function skills. About one-third of autistic transition-aged youth (33.3%) said that they had experienced thoughts of hurting themselves with the intent to end their lives (i.e., suicidal ideation). Both depression and executive function challenges predicted suicide risk (i.e., participants who experienced depression were more likely to have had suicidal thoughts than those who had not, and participants who had more difficulty with executive function skills were more likely to have had suicidal thoughts than those who had less difficulty). These findings suggest that executive functioning, a common area of difficulty among autistic people, is an important indicator of suicide risk in this population. En ligne : https://dx.doi.org/10.1177/13623613241227983 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535 [article] Suicide risk in transition-aged autistic youth: The link among executive function, depression, and autistic traits [texte imprimé] / Brianne TOMASZEWSKI, Auteur ; Elena LAMARCHE, Auteur ; Karrah BOWMAN, Auteur ; Claire B. KLEIN, Auteur ; Sara STAHL, Auteur ; Laura G. KLINGER, Auteur . - p.2311-2321. Langues : (en) in Autism > 28-9 (September 2024) . - p.2311-2321 Mots-clés : autism spectrum disorder (ASD)  depression  executive function  suicide risk  transition-aged youth Index. décimale : PER Périodiques Résumé : Autistic individuals are at significantly higher risk of suicide than non-autistic individuals, with transition-aged youth at potentially the highest risk. While lower executive function (EF) skills have been significantly associated with suicide risk in other clinical samples, the link between EF and suicidality has not yet been examined for autistic individuals. In this study, 183 transition-aged autistic youths completed routine suicide risk assessments and self- and informant-reports of autistic traits, depression, and EF skills. On the P4 Suicide Screener, approximately one-third of the sample (33.3%) endorsed having thoughts of hurting themselves with the intent to end their lives (i.e., suicidal ideation) in their lifetime. In addition to depressive symptoms, EF impairment independently predicted endorsement of suicidal ideation, indicating that both are crucial intervention goals to target suicidal risk for transition-aged youth on the spectrum. Findings suggest that executive functioning, a prevalent area of difficulty and common intervention target for the autistic community, is an important indicator of suicide risk in this population. Lay Abstract Autistic people are more likely to consider suicide than non-autistic people, with transition-aged youth (ages 16-21 years) at potentially the highest risk. Research has also shown that difficulties with executive functioning (e.g., difficulties with organization, sequencing, and decision-making) may heighten suicide risk among non-autistic people, but it is not clear whether this is also true for autistic people. This study explored this question by asking 183 transition-aged autistic youth about their experience with suicidal behavior and examining the relationship between their responses and additional measures of depression, autistic traits, and executive function skills. About one-third of autistic transition-aged youth (33.3%) said that they had experienced thoughts of hurting themselves with the intent to end their lives (i.e., suicidal ideation). Both depression and executive function challenges predicted suicide risk (i.e., participants who experienced depression were more likely to have had suicidal thoughts than those who had not, and participants who had more difficulty with executive function skills were more likely to have had suicidal thoughts than those who had less difficulty). These findings suggest that executive functioning, a common area of difficulty among autistic people, is an important indicator of suicide risk in this population. En ligne : https://dx.doi.org/10.1177/13623613241227983 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535

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