AutInsight: A Pilot Randomised Controlled Trial (RCT) of a Consumer-Informed Parent Support Program for Parents of Autistic Children / Jia Ying Sarah LEE in Journal of Autism and Developmental Disorders, 56-7 (July 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-7 (July 2026) . - p.2588-2605 Titre : AutInsight: A Pilot Randomised Controlled Trial (RCT) of a Consumer-Informed Parent Support Program for Parents of Autistic Children Type de document : texte imprimé Auteurs : Jia Ying Sarah LEE, Auteur ; Koa WHITTINGHAM, Auteur ; Amy E. MITCHELL, Auteur Article en page(s) : p.2588-2605 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : AutInsight is an innovative, consumer-informed parent support program for parents of autistic children grounded in perspectives from qualitative research with autistic adults. The current study outlines the development and evaluation of AutInsight through a pilot randomised controlled trial. Parents (N = 41) of autistic children (10 years and younger) were randomly allocated to AutInsight (n = 20) or care-as-usual (n = 21) and completed online questionnaires across three timepoints (baseline, post-program and 3-month follow-up). Measures include parental sensitivity, parental acceptance and understanding, psychological flexibility, mindful parenting, parental mental health, overall family experience, quality of life, and child behaviours. Intent-to-treat analyses indicated greater rates of improvement for parents allocated to the AutInsight program, with small- to medium-sized effects for parent-reported parental sensitivity (EA-SR mutual attunement d = 0.84, EA-SR child involvement d = 0.50), as well as overall autism family experience (AFEQtotal d = 0.38, AFEQfamily life d = 0.29). Greater rates of improvement were also found in parent-reported child conduct problems (SDQ d = 0.62) and prosocial behaviours (SDQ d = 0.48). No significant results were found in observed parental sensitivity or any other measure. Results suggest preliminary evidence of effectiveness, feasibility and acceptability of the AutInsight program. A larger, fully powered trial is warranted. This trial was prospectively registered with the Australian and New Zealand Clinical Trials Registry (Trial ID: ACTRN12623000806662). En ligne : https://doi.org/10.1007/s10803-025-06764-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590 [article] AutInsight: A Pilot Randomised Controlled Trial (RCT) of a Consumer-Informed Parent Support Program for Parents of Autistic Children [texte imprimé] / Jia Ying Sarah LEE, Auteur ; Koa WHITTINGHAM, Auteur ; Amy E. MITCHELL, Auteur . - p.2588-2605. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-7 (July 2026) . - p.2588-2605 Index. décimale : PER Périodiques Résumé : AutInsight is an innovative, consumer-informed parent support program for parents of autistic children grounded in perspectives from qualitative research with autistic adults. The current study outlines the development and evaluation of AutInsight through a pilot randomised controlled trial. Parents (N = 41) of autistic children (10 years and younger) were randomly allocated to AutInsight (n = 20) or care-as-usual (n = 21) and completed online questionnaires across three timepoints (baseline, post-program and 3-month follow-up). Measures include parental sensitivity, parental acceptance and understanding, psychological flexibility, mindful parenting, parental mental health, overall family experience, quality of life, and child behaviours. Intent-to-treat analyses indicated greater rates of improvement for parents allocated to the AutInsight program, with small- to medium-sized effects for parent-reported parental sensitivity (EA-SR mutual attunement d = 0.84, EA-SR child involvement d = 0.50), as well as overall autism family experience (AFEQtotal d = 0.38, AFEQfamily life d = 0.29). Greater rates of improvement were also found in parent-reported child conduct problems (SDQ d = 0.62) and prosocial behaviours (SDQ d = 0.48). No significant results were found in observed parental sensitivity or any other measure. Results suggest preliminary evidence of effectiveness, feasibility and acceptability of the AutInsight program. A larger, fully powered trial is warranted. This trial was prospectively registered with the Australian and New Zealand Clinical Trials Registry (Trial ID: ACTRN12623000806662). En ligne : https://doi.org/10.1007/s10803-025-06764-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590

Maximizing the Quality and Reporting Standards of Autism Intervention Science / Shannon LAPOINT in Autism Research, 18-11 (November 2025)  

Public ISBD [article]  inAutism Research > 18-11 (November 2025) . - p.2166-2173 Titre : Maximizing the Quality and Reporting Standards of Autism Intervention Science Type de document : texte imprimé Auteurs : Shannon LAPOINT, Auteur ; Claire Brito KLEIN, Auteur ; Micheal SANDBANK, Auteur ; Kristen BOTTEMA-BEUTEL, Auteur ; Sue FLETCHER-WATSON, Auteur ; Gauri DIVAN, Auteur ; Dagmara DIMITRIOU, Auteur ; Evdokia ANAGNOSTOU, Auteur ; Mette Elmose ANDERSEN, Auteur ; Amanda BINNS, Auteur ; Tony CHARMAN, Auteur ; Jasper A. ESTABILLO, Auteur ; Stephanie M. FECTEAU, Auteur ; Anna FERRARI, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Lauren H. HAMPTON, Auteur ; Sabri HERGUNER, Auteur ; Emily S. KUSCHNER, Auteur ; Jia Ying Sarah LEE, Auteur ; Julie SEGERS, Auteur ; Deanna SWAIN, Auteur ; Sarah VEJNOSKA, Auteur ; Giacomo VIVANTI, Auteur ; Chongying WANG, Auteur ; Jonathan GREEN, Auteur Article en page(s) : p.2166-2173 Langues : Anglais (eng) Mots-clés : autism  INSAR  intervention  reporting standards  special interest group  trial Index. décimale : PER Périodiques Résumé : ABSTRACT Although there are clear international standards for intervention science and reporting in healthcare, implementation and uptake have been limited within autism intervention research. To address this concern, a Special Interest Group (SIG) was convened at the International Society for Autism Research (INSAR) Annual Meetings in May 2023 and May 2024. This SIG comprised members of the autistic community, senior clinical scientists, clinicians, advanced researchers, and early career researchers, who discussed and debated quality standards for autism intervention trials. This commentary summarizes relevant literature highlighted by SIG panelists and recommendations generated from small breakout groups and larger group discussions with SIG attendees. We recommend that all journals publishing autism intervention findings, especially autism-focused journals, institute mandatory reporting practices (e.g., trial registration, protocol, analysis plan) to facilitate transparency and rigorous autism intervention science, as well as related education initiatives in support of this goal. Findings from the SIG offer practical, actionable recommendations that we advocate be systematically adopted across autism-focused journals. En ligne : https://doi.org/10.1002/aur.70126 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=571 [article] Maximizing the Quality and Reporting Standards of Autism Intervention Science [texte imprimé] / Shannon LAPOINT, Auteur ; Claire Brito KLEIN, Auteur ; Micheal SANDBANK, Auteur ; Kristen BOTTEMA-BEUTEL, Auteur ; Sue FLETCHER-WATSON, Auteur ; Gauri DIVAN, Auteur ; Dagmara DIMITRIOU, Auteur ; Evdokia ANAGNOSTOU, Auteur ; Mette Elmose ANDERSEN, Auteur ; Amanda BINNS, Auteur ; Tony CHARMAN, Auteur ; Jasper A. ESTABILLO, Auteur ; Stephanie M. FECTEAU, Auteur ; Anna FERRARI, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Lauren H. HAMPTON, Auteur ; Sabri HERGUNER, Auteur ; Emily S. KUSCHNER, Auteur ; Jia Ying Sarah LEE, Auteur ; Julie SEGERS, Auteur ; Deanna SWAIN, Auteur ; Sarah VEJNOSKA, Auteur ; Giacomo VIVANTI, Auteur ; Chongying WANG, Auteur ; Jonathan GREEN, Auteur . - p.2166-2173. Langues : Anglais (eng) in Autism Research > 18-11 (November 2025) . - p.2166-2173 Mots-clés : autism  INSAR  intervention  reporting standards  special interest group  trial Index. décimale : PER Périodiques Résumé : ABSTRACT Although there are clear international standards for intervention science and reporting in healthcare, implementation and uptake have been limited within autism intervention research. To address this concern, a Special Interest Group (SIG) was convened at the International Society for Autism Research (INSAR) Annual Meetings in May 2023 and May 2024. This SIG comprised members of the autistic community, senior clinical scientists, clinicians, advanced researchers, and early career researchers, who discussed and debated quality standards for autism intervention trials. This commentary summarizes relevant literature highlighted by SIG panelists and recommendations generated from small breakout groups and larger group discussions with SIG attendees. We recommend that all journals publishing autism intervention findings, especially autism-focused journals, institute mandatory reporting practices (e.g., trial registration, protocol, analysis plan) to facilitate transparency and rigorous autism intervention science, as well as related education initiatives in support of this goal. Findings from the SIG offer practical, actionable recommendations that we advocate be systematically adopted across autism-focused journals. En ligne : https://doi.org/10.1002/aur.70126 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=571

Parental Acceptance and Understanding of Autistic Children (PAUACS) – an Instrument Development Study / Jia Ying Sarah LEE in Journal of Autism and Developmental Disorders, 56-4 (April 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-4 (April 2026) . - p.1309-1324 Titre : Parental Acceptance and Understanding of Autistic Children (PAUACS) – an Instrument Development Study Type de document : texte imprimé Auteurs : Jia Ying Sarah LEE, Auteur ; Koa WHITTINGHAM, Auteur ; Amy E. MITCHELL, Auteur Article en page(s) : p.1309-1324 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Currently there are no instruments designed to assess parents’ acceptance and understanding of their autistic child. We aimed to develop and evaluate the reliability and validity of a parent-report scale assessing parents’ acceptance and understanding of their autistic child – the Parental Acceptance and Understanding of Autistic Children Scale (PAUACS). A total of 158 parents (74 non-autistic, 42 autistic, 42 questioning; mean age 42.69 years) of autistic children (mean age 10.80 years) completed an online survey comprising the prototype PAUACS as well as validated measures of parental sensitivity, neurodiversity affirming attitudes, autistic traits, mental health, and child adjustment and family experience. A subsample of participants (n = 97; 61.4%) completed the PAUACS questionnaire a second time, 2 weeks later, to assess for test-retest reliability. The final 30-item scale demonstrated excellent internal reliability (α = 0.89) and test-retest reliability (intraclass correlation = 0.92). Exploratory factor analysis revealed a clean structure comprising four distinct factors: Understanding (α = 0.86), Innate (α = 0.74), Acceptance (α = 0.82), and Expectations (α = 0.73). Overall, the PAUACS demonstrates good construct validity. Preliminary evidence of convergent validity and divergent validity was demonstrated. Preliminary evidence suggests PAUACS is a reliable and valid tool in assessing parents’ acceptance and understanding of autistic children. En ligne : https://doi.org/10.1007/s10803-024-06630-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=582 [article] Parental Acceptance and Understanding of Autistic Children (PAUACS) – an Instrument Development Study [texte imprimé] / Jia Ying Sarah LEE, Auteur ; Koa WHITTINGHAM, Auteur ; Amy E. MITCHELL, Auteur . - p.1309-1324. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-4 (April 2026) . - p.1309-1324 Index. décimale : PER Périodiques Résumé : Currently there are no instruments designed to assess parents’ acceptance and understanding of their autistic child. We aimed to develop and evaluate the reliability and validity of a parent-report scale assessing parents’ acceptance and understanding of their autistic child – the Parental Acceptance and Understanding of Autistic Children Scale (PAUACS). A total of 158 parents (74 non-autistic, 42 autistic, 42 questioning; mean age 42.69 years) of autistic children (mean age 10.80 years) completed an online survey comprising the prototype PAUACS as well as validated measures of parental sensitivity, neurodiversity affirming attitudes, autistic traits, mental health, and child adjustment and family experience. A subsample of participants (n = 97; 61.4%) completed the PAUACS questionnaire a second time, 2 weeks later, to assess for test-retest reliability. The final 30-item scale demonstrated excellent internal reliability (α = 0.89) and test-retest reliability (intraclass correlation = 0.92). Exploratory factor analysis revealed a clean structure comprising four distinct factors: Understanding (α = 0.86), Innate (α = 0.74), Acceptance (α = 0.82), and Expectations (α = 0.73). Overall, the PAUACS demonstrates good construct validity. Preliminary evidence of convergent validity and divergent validity was demonstrated. Preliminary evidence suggests PAUACS is a reliable and valid tool in assessing parents’ acceptance and understanding of autistic children. En ligne : https://doi.org/10.1007/s10803-024-06630-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=582

"Their Happiness, Not Neurotypical Success": Autistic Adults Reflect on the Parenting of Autistic Children / Jia Ying Sarah LEE ; Koa WHITTINGHAM ; Rebecca OLSON ; Amy E. MITCHELL in Journal of Autism and Developmental Disorders, 55-1 (January 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.339-352 Titre : "Their Happiness, Not Neurotypical Success": Autistic Adults Reflect on the Parenting of Autistic Children : Journal of Autism and Developmental Disorders Type de document : texte imprimé Auteurs : Jia Ying Sarah LEE, Auteur ; Koa WHITTINGHAM, Auteur ; Rebecca OLSON, Auteur ; Amy E. MITCHELL, Auteur Article en page(s) : p.339-352 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Parenting has implications for psychosocial adjustment well into adulthood. While much is known about the parenting behaviors that influence adjustment in autistic children, little is known about how the effects of parenting persist in autistic adults. Further, autistic adults' perspectives on how they were parented have not been investigated to date. This study aimed to examine autistic adults' perspectives on their experiences of being parented in childhood and the advice they would like to offer to parents of autistic children in the context of their lived experience. En ligne : https://doi.org/10.1007/s10803-023-06188-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546 [article] "Their Happiness, Not Neurotypical Success": Autistic Adults Reflect on the Parenting of Autistic Children : Journal of Autism and Developmental Disorders [texte imprimé] / Jia Ying Sarah LEE, Auteur ; Koa WHITTINGHAM, Auteur ; Rebecca OLSON, Auteur ; Amy E. MITCHELL, Auteur . - p.339-352. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.339-352 Index. décimale : PER Périodiques Résumé : Parenting has implications for psychosocial adjustment well into adulthood. While much is known about the parenting behaviors that influence adjustment in autistic children, little is known about how the effects of parenting persist in autistic adults. Further, autistic adults' perspectives on how they were parented have not been investigated to date. This study aimed to examine autistic adults' perspectives on their experiences of being parented in childhood and the advice they would like to offer to parents of autistic children in the context of their lived experience. En ligne : https://doi.org/10.1007/s10803-023-06188-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546

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