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Auteur Perrin DATE |
Documents disponibles écrits par cet auteur (2)
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Leisure, community, workforce participation and quality of life in primary and secondary caregivers of autistic children / Gemma DAVY in Autism Research, 17-4 (April 2024)
[article]
Titre : Leisure, community, workforce participation and quality of life in primary and secondary caregivers of autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Gemma DAVY, Auteur ; Josephine BARBARO, Auteur ; Katy UNWIN, Auteur ; Megan CLARK, Auteur ; Rachel JELLETT, Auteur ; Perrin DATE, Auteur ; Melanie MUNIANDY, Auteur ; Cheryl DISSANAYAKE, Auteur Article en page(s) : p.799-811 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Parents of Autistic children often modify their participation in leisure, social, and employment activities to meet the caregiving needs of their child. However, few studies have examined the impact this has on caregiver quality of life (QoL). The aim in the current study was to examine the role of participation in a range of activities on QoL amongst primary and secondary caregivers of school-aged Autistic children. Eighty-eight primary (93% mothers) and 63 secondary (91% fathers) caregivers of Autistic children (aged 7- to 12-years) participated in this cross-sectional study, with time pressure, participation, social support, parenting stress, and QoL measured via an online questionnaire. Compared to secondary caregivers, primary caregivers reported fewer employment hours, increased time pressure, less participation in desired activities, and higher perceived responsibility of domestic and child-rearing tasks. Similar levels of leisure frequency, parenting stress, and QoL were identified by both caregivers. Hierarchical regression revealed caregiver participation as important for QoL in both primary and secondary caregivers. However, when measures of caregiver well-being were added to the model, the unique contribution of participation to QoL was reduced, particularly for secondary caregivers. Overall, the findings demonstrate that despite differences in caregiver roles and responsibilities, participation in meaningful activities was important for QoL in all caregivers. En ligne : https://doi.org/10.1002/aur.3113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526
in Autism Research > 17-4 (April 2024) . - p.799-811[article] Leisure, community, workforce participation and quality of life in primary and secondary caregivers of autistic children [Texte imprimé et/ou numérique] / Gemma DAVY, Auteur ; Josephine BARBARO, Auteur ; Katy UNWIN, Auteur ; Megan CLARK, Auteur ; Rachel JELLETT, Auteur ; Perrin DATE, Auteur ; Melanie MUNIANDY, Auteur ; Cheryl DISSANAYAKE, Auteur . - p.799-811.
Langues : Anglais (eng)
in Autism Research > 17-4 (April 2024) . - p.799-811
Index. décimale : PER Périodiques Résumé : Abstract Parents of Autistic children often modify their participation in leisure, social, and employment activities to meet the caregiving needs of their child. However, few studies have examined the impact this has on caregiver quality of life (QoL). The aim in the current study was to examine the role of participation in a range of activities on QoL amongst primary and secondary caregivers of school-aged Autistic children. Eighty-eight primary (93% mothers) and 63 secondary (91% fathers) caregivers of Autistic children (aged 7- to 12-years) participated in this cross-sectional study, with time pressure, participation, social support, parenting stress, and QoL measured via an online questionnaire. Compared to secondary caregivers, primary caregivers reported fewer employment hours, increased time pressure, less participation in desired activities, and higher perceived responsibility of domestic and child-rearing tasks. Similar levels of leisure frequency, parenting stress, and QoL were identified by both caregivers. Hierarchical regression revealed caregiver participation as important for QoL in both primary and secondary caregivers. However, when measures of caregiver well-being were added to the model, the unique contribution of participation to QoL was reduced, particularly for secondary caregivers. Overall, the findings demonstrate that despite differences in caregiver roles and responsibilities, participation in meaningful activities was important for QoL in all caregivers. En ligne : https://doi.org/10.1002/aur.3113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526 The Cost of Raising Individuals with Fragile X or Chromosome 15 Imprinting Disorders in Australia / Emma K. BAKER in Journal of Autism and Developmental Disorders, 53-4 (April 2023)
[article]
Titre : The Cost of Raising Individuals with Fragile X or Chromosome 15 Imprinting Disorders in Australia Type de document : Texte imprimé et/ou numérique Auteurs : Emma K. BAKER, Auteur ; Sheena ARORA, Auteur ; David J. AMOR, Auteur ; Perrin DATE, Auteur ; Meagan CROSS, Auteur ; James O?BRIEN, Auteur ; Chloe SIMONS, Auteur ; Carolyn ROGERS, Auteur ; Stephen GOODALL, Auteur ; Jennie SLEE, Auteur ; Chris CAHIR, Auteur ; David E. GODLER, Auteur Article en page(s) : p.1682-1692 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The study characterised differences in costs associated with raising a child between four rare disorders and examined the associations between these costs with clinical severity. Caregivers of 108 individuals with Prader-Willi, Angelman (AS), Chromosome 15q Duplication and fragile X (FXS) syndromes completed a modified Client Services Receipt Inventory and participants completed intellectual/developmental functioning and autism assessments. AS incurred the highest yearly costs per individual ($AUD96,994), while FXS had the lowest costs ($AUD33,221). Intellectual functioning negatively predicted total costs, after controlling for diagnosis. The effect of intellectual functioning on total costs for those with AS was significantly different to the other syndromes. The study highlights the significant costs associated with these syndromes, particularly AS, linked with severity of intellectual functioning. En ligne : https://doi.org/10.1007/s10803-021-05193-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500
in Journal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1682-1692[article] The Cost of Raising Individuals with Fragile X or Chromosome 15 Imprinting Disorders in Australia [Texte imprimé et/ou numérique] / Emma K. BAKER, Auteur ; Sheena ARORA, Auteur ; David J. AMOR, Auteur ; Perrin DATE, Auteur ; Meagan CROSS, Auteur ; James O?BRIEN, Auteur ; Chloe SIMONS, Auteur ; Carolyn ROGERS, Auteur ; Stephen GOODALL, Auteur ; Jennie SLEE, Auteur ; Chris CAHIR, Auteur ; David E. GODLER, Auteur . - p.1682-1692.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1682-1692
Index. décimale : PER Périodiques Résumé : The study characterised differences in costs associated with raising a child between four rare disorders and examined the associations between these costs with clinical severity. Caregivers of 108 individuals with Prader-Willi, Angelman (AS), Chromosome 15q Duplication and fragile X (FXS) syndromes completed a modified Client Services Receipt Inventory and participants completed intellectual/developmental functioning and autism assessments. AS incurred the highest yearly costs per individual ($AUD96,994), while FXS had the lowest costs ($AUD33,221). Intellectual functioning negatively predicted total costs, after controlling for diagnosis. The effect of intellectual functioning on total costs for those with AS was significantly different to the other syndromes. The study highlights the significant costs associated with these syndromes, particularly AS, linked with severity of intellectual functioning. En ligne : https://doi.org/10.1007/s10803-021-05193-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500