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Brief Report: The Medical Care of Adults with Autism Spectrum Disorders: Identifying the Needs / Mary BRUDER in Journal of Autism and Developmental Disorders, 42-11 (November 2012)
[article]
Titre : Brief Report: The Medical Care of Adults with Autism Spectrum Disorders: Identifying the Needs Type de document : Texte imprimé et/ou numérique Auteurs : Mary BRUDER, Auteur ; Gerard KERINS, Auteur ; Cynthia MAZZARELLA, Auteur ; Jessica SIMS, Auteur ; Neil STEIN, Auteur Article en page(s) : p.2498-2504 Langues : Anglais (eng) Mots-clés : Adults with autism Medical needs Characteristics of adults with ASD Training of physicians Index. décimale : PER Périodiques Résumé : There is a lack of information concerning adults with autism spectrum disorder (ASD), especially with regards to their access to health care. A paper and electronic survey was sent to 1,580 primary care physicians in Connecticut. 346 respondents returned a survey and provided care to adults with an ASD. This physician survey provides data on adults with ASD such as: reasons for physician visits, living arrangements, employment status, and any services they are receiving. Responses revealed inadequate training in the care of adults with an ASD and physicians interest in obtaining additional training. The ability to provide a medical home for adults with autism will need to address effective strategies to train current and future physicians. En ligne : http://dx.doi.org/10.1007/s10803-012-1496-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=183
in Journal of Autism and Developmental Disorders > 42-11 (November 2012) . - p.2498-2504[article] Brief Report: The Medical Care of Adults with Autism Spectrum Disorders: Identifying the Needs [Texte imprimé et/ou numérique] / Mary BRUDER, Auteur ; Gerard KERINS, Auteur ; Cynthia MAZZARELLA, Auteur ; Jessica SIMS, Auteur ; Neil STEIN, Auteur . - p.2498-2504.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 42-11 (November 2012) . - p.2498-2504
Mots-clés : Adults with autism Medical needs Characteristics of adults with ASD Training of physicians Index. décimale : PER Périodiques Résumé : There is a lack of information concerning adults with autism spectrum disorder (ASD), especially with regards to their access to health care. A paper and electronic survey was sent to 1,580 primary care physicians in Connecticut. 346 respondents returned a survey and provided care to adults with an ASD. This physician survey provides data on adults with ASD such as: reasons for physician visits, living arrangements, employment status, and any services they are receiving. Responses revealed inadequate training in the care of adults with an ASD and physicians interest in obtaining additional training. The ability to provide a medical home for adults with autism will need to address effective strategies to train current and future physicians. En ligne : http://dx.doi.org/10.1007/s10803-012-1496-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=183 Neural mechanisms of behavioral change in young adults with high?functioning autism receiving virtual reality social cognition training: A pilot study / Y. J. Daniel YANG in Autism Research, 11-5 (May 2018)
[article]
Titre : Neural mechanisms of behavioral change in young adults with high?functioning autism receiving virtual reality social cognition training: A pilot study Type de document : Texte imprimé et/ou numérique Auteurs : Y. J. Daniel YANG, Auteur ; Tandra T. ALLEN, Auteur ; Sebiha M. ABDULLAHI, Auteur ; Kevin A. PELPHREY, Auteur ; Fred R. VOLKMAR, Auteur ; Sandra B. CHAPMAN, Auteur Article en page(s) : p.713-725 Langues : Anglais (eng) Mots-clés : neuroplasticity adults with autism emotion recognition theory of mind clinical trials computerized treatment virtual reality Index. décimale : PER Périodiques Résumé : Measuring treatment efficacy in individuals with Autism Spectrum Disorder (ASD) relies primarily on behaviors, with limited evidence as to the neural mechanisms underlying these behavioral gains. This pilot study addresses this void by investigating neural and behavioral changes in a Phase I trial in young adults with high?functioning ASD who received an evidence?based behavioral intervention, Virtual Reality?Social Cognition Training over 5 weeks for a total of 10 hr. The participants were tested pre? and post?training with a validated biological/social versus scrambled/nonsocial motion neuroimaging task, previously shown to activate regions within the social brain networks. Three significant brain?behavior changes were identified. First, the right posterior superior temporal sulcus, a hub for socio?cognitive processing, showed increased brain activation to social versus nonsocial stimuli in individuals with greater gains on a theory?of?mind measure. Second, the left inferior frontal gyrus, a region for socio?emotional processing, tracked individual gains in emotion recognition with decreased activation to social versus nonsocial stimuli. Finally, the left superior parietal lobule, a region for visual attention, showed significantly decreased activation to nonsocial versus social stimuli across all participants, where heightened attention to nonsocial contingencies has been considered a disabling aspect of ASD. This study provides, albeit preliminary, some of the first evidence of the harnessable neuroplasticity in adults with ASD through an age?appropriate intervention in brain regions tightly linked to social abilities. This pilot trial motivates future efforts to develop and test social interventions to improve behaviors and supporting brain networks in adults with ASD. Autism Res 2018, 11: 713?725. ? 2018 The Authors Autism Research published by International Society for Autism Research and Wiley Periodicals, Inc. Lay Summary This study addresses how the behavioral changes after treatment for ASD reflect underlying brain changes. Before and after receiving VR?SCT, young adults with high?functioning ASD passively viewed biological motion stimuli in a MRI scanner, tapping changes in the social brain network. The results reveal neuroplasticity in this age population, extending the window of opportunity for interventions to impact social competency in adults with ASD. En ligne : https://doi.org/10.1002/aur.1941 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=363
in Autism Research > 11-5 (May 2018) . - p.713-725[article] Neural mechanisms of behavioral change in young adults with high?functioning autism receiving virtual reality social cognition training: A pilot study [Texte imprimé et/ou numérique] / Y. J. Daniel YANG, Auteur ; Tandra T. ALLEN, Auteur ; Sebiha M. ABDULLAHI, Auteur ; Kevin A. PELPHREY, Auteur ; Fred R. VOLKMAR, Auteur ; Sandra B. CHAPMAN, Auteur . - p.713-725.
Langues : Anglais (eng)
in Autism Research > 11-5 (May 2018) . - p.713-725
Mots-clés : neuroplasticity adults with autism emotion recognition theory of mind clinical trials computerized treatment virtual reality Index. décimale : PER Périodiques Résumé : Measuring treatment efficacy in individuals with Autism Spectrum Disorder (ASD) relies primarily on behaviors, with limited evidence as to the neural mechanisms underlying these behavioral gains. This pilot study addresses this void by investigating neural and behavioral changes in a Phase I trial in young adults with high?functioning ASD who received an evidence?based behavioral intervention, Virtual Reality?Social Cognition Training over 5 weeks for a total of 10 hr. The participants were tested pre? and post?training with a validated biological/social versus scrambled/nonsocial motion neuroimaging task, previously shown to activate regions within the social brain networks. Three significant brain?behavior changes were identified. First, the right posterior superior temporal sulcus, a hub for socio?cognitive processing, showed increased brain activation to social versus nonsocial stimuli in individuals with greater gains on a theory?of?mind measure. Second, the left inferior frontal gyrus, a region for socio?emotional processing, tracked individual gains in emotion recognition with decreased activation to social versus nonsocial stimuli. Finally, the left superior parietal lobule, a region for visual attention, showed significantly decreased activation to nonsocial versus social stimuli across all participants, where heightened attention to nonsocial contingencies has been considered a disabling aspect of ASD. This study provides, albeit preliminary, some of the first evidence of the harnessable neuroplasticity in adults with ASD through an age?appropriate intervention in brain regions tightly linked to social abilities. This pilot trial motivates future efforts to develop and test social interventions to improve behaviors and supporting brain networks in adults with ASD. Autism Res 2018, 11: 713?725. ? 2018 The Authors Autism Research published by International Society for Autism Research and Wiley Periodicals, Inc. Lay Summary This study addresses how the behavioral changes after treatment for ASD reflect underlying brain changes. Before and after receiving VR?SCT, young adults with high?functioning ASD passively viewed biological motion stimuli in a MRI scanner, tapping changes in the social brain network. The results reveal neuroplasticity in this age population, extending the window of opportunity for interventions to impact social competency in adults with ASD. En ligne : https://doi.org/10.1002/aur.1941 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=363 Service Use and Unmet Needs Among Adults with Autism Awaiting Home- and Community-Based Medicaid Services / Whitney SCHOTT in Journal of Autism and Developmental Disorders, 51-4 (April 2021)
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Titre : Service Use and Unmet Needs Among Adults with Autism Awaiting Home- and Community-Based Medicaid Services Type de document : Texte imprimé et/ou numérique Auteurs : Whitney SCHOTT, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay SHEA, Auteur Article en page(s) : p.1188-1200 Langues : Anglais (eng) Mots-clés : Adults with autism Medicaid Unmet needs Waiting list Index. décimale : PER Périodiques Résumé : Autistic adults in need of long-term services and supports spend months on waiting lists before receiving such services through Medicaid. Data from a state-wide survey of adults and their caregivers on a waiting list for autism waivers suggest that the majority have unmet needs for functional skills services (63.6%), employment or vocation services (62.1%), and mental and behavioral health services (52.8%). Almost a third require case management services (28.3%). Predictors of greater service need are African American race and the number of physical and behavioral health diagnoses. Predictors of greater service receipt were employment status, housing type, and school enrollment; there was lower service receipt for African American race, Hispanic ethnicity, over age 21 years, and college completion. En ligne : http://dx.doi.org/10.1007/s10803-020-04593-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445
in Journal of Autism and Developmental Disorders > 51-4 (April 2021) . - p.1188-1200[article] Service Use and Unmet Needs Among Adults with Autism Awaiting Home- and Community-Based Medicaid Services [Texte imprimé et/ou numérique] / Whitney SCHOTT, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay SHEA, Auteur . - p.1188-1200.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-4 (April 2021) . - p.1188-1200
Mots-clés : Adults with autism Medicaid Unmet needs Waiting list Index. décimale : PER Périodiques Résumé : Autistic adults in need of long-term services and supports spend months on waiting lists before receiving such services through Medicaid. Data from a state-wide survey of adults and their caregivers on a waiting list for autism waivers suggest that the majority have unmet needs for functional skills services (63.6%), employment or vocation services (62.1%), and mental and behavioral health services (52.8%). Almost a third require case management services (28.3%). Predictors of greater service need are African American race and the number of physical and behavioral health diagnoses. Predictors of greater service receipt were employment status, housing type, and school enrollment; there was lower service receipt for African American race, Hispanic ethnicity, over age 21 years, and college completion. En ligne : http://dx.doi.org/10.1007/s10803-020-04593-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 A Snapshot of Social Support Networks Among Parental Caregivers of Adults with Autism / Christina N. MARSACK-TOPOLEWSKI in Journal of Autism and Developmental Disorders, 50-4 (April 2020)
[article]
Titre : A Snapshot of Social Support Networks Among Parental Caregivers of Adults with Autism Type de document : Texte imprimé et/ou numérique Auteurs : Christina N. MARSACK-TOPOLEWSKI, Auteur Article en page(s) : p.1111-1122 Langues : Anglais (eng) Mots-clés : Adults with autism Aging parental caregivers Caregiver burden Formal social support Informal social support Index. décimale : PER Périodiques Résumé : This study provided a description of types and dimensions of informal and formal social support among aging parental caregivers of adult children diagnosed with autism spectrum disorder (ASD). Parents participated in a web-based survey regarding use of and satisfaction with social support services for parents or their adult children. Results indicated that many parents participated in autism support groups (27.5%), with psychiatric services (48.8%), counseling (40.6%), and financial assistance (39.7%) the most commonly used formal social supports. Emotional support (88.8%) and informational support (67.5%) were the most common informal social supports used. Professionals who are working with parental caregivers and their adult children diagnosed with ASD should be aware of available social support services to help them find needed services. En ligne : http://dx.doi.org/10.1007/s10803-019-04285-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421
in Journal of Autism and Developmental Disorders > 50-4 (April 2020) . - p.1111-1122[article] A Snapshot of Social Support Networks Among Parental Caregivers of Adults with Autism [Texte imprimé et/ou numérique] / Christina N. MARSACK-TOPOLEWSKI, Auteur . - p.1111-1122.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-4 (April 2020) . - p.1111-1122
Mots-clés : Adults with autism Aging parental caregivers Caregiver burden Formal social support Informal social support Index. décimale : PER Périodiques Résumé : This study provided a description of types and dimensions of informal and formal social support among aging parental caregivers of adult children diagnosed with autism spectrum disorder (ASD). Parents participated in a web-based survey regarding use of and satisfaction with social support services for parents or their adult children. Results indicated that many parents participated in autism support groups (27.5%), with psychiatric services (48.8%), counseling (40.6%), and financial assistance (39.7%) the most commonly used formal social supports. Emotional support (88.8%) and informational support (67.5%) were the most common informal social supports used. Professionals who are working with parental caregivers and their adult children diagnosed with ASD should be aware of available social support services to help them find needed services. En ligne : http://dx.doi.org/10.1007/s10803-019-04285-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421 Family Sexuality Communication: Parent Report for Autistic Young Adults Versus a Comparison Group / Laura GRAHAM HOLMES in Journal of Autism and Developmental Disorders, 50-8 (August 2020)
[article]
Titre : Family Sexuality Communication: Parent Report for Autistic Young Adults Versus a Comparison Group Type de document : Texte imprimé et/ou numérique Auteurs : Laura GRAHAM HOLMES, Auteur ; Donald S STRASSBERG, Auteur ; Michael B HIMLE, Auteur Article en page(s) : p.3018-3031 Langues : Anglais (eng) Mots-clés : Adults with autism Autistic adults Family sexuality communication Parent–child sexuality communication Sexual and reproductive health Index. décimale : PER Périodiques Résumé : Families are a critical context for healthy sexuality development. This study characterized family sexuality communication for autistic adults (age 18-30) without intellectual disability (n?=?117) versus a neurotypical comparison group (n?=?319). Parent-reported number of sexuality topics covered did not significantly differ by gender or autism/comparison group. Parents of autistic adults who covered few or no topics (31%) reported higher religiosity, lower comfort and self-efficacy, and were less likely to say that the adult expressed attraction or desire for relationships. Parents of autistic adults were more likely than comparison parents to perceive their young person as being uninterested or not ready to learn about sexuality topics. These results suggest that families of autistic people require support to convey sexuality-related knowledge and values. En ligne : http://dx.doi.org/10.1007/s10803-020-04398-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428
in Journal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.3018-3031[article] Family Sexuality Communication: Parent Report for Autistic Young Adults Versus a Comparison Group [Texte imprimé et/ou numérique] / Laura GRAHAM HOLMES, Auteur ; Donald S STRASSBERG, Auteur ; Michael B HIMLE, Auteur . - p.3018-3031.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.3018-3031
Mots-clés : Adults with autism Autistic adults Family sexuality communication Parent–child sexuality communication Sexual and reproductive health Index. décimale : PER Périodiques Résumé : Families are a critical context for healthy sexuality development. This study characterized family sexuality communication for autistic adults (age 18-30) without intellectual disability (n?=?117) versus a neurotypical comparison group (n?=?319). Parent-reported number of sexuality topics covered did not significantly differ by gender or autism/comparison group. Parents of autistic adults who covered few or no topics (31%) reported higher religiosity, lower comfort and self-efficacy, and were less likely to say that the adult expressed attraction or desire for relationships. Parents of autistic adults were more likely than comparison parents to perceive their young person as being uninterested or not ready to learn about sexuality topics. These results suggest that families of autistic people require support to convey sexuality-related knowledge and values. En ligne : http://dx.doi.org/10.1007/s10803-020-04398-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428