Considerations from the 2017 IMFAR Preconference on Measuring Meaningful Outcomes from School-Age to Adulthood / Vanessa H. BAL in Autism Research, 11-11 (November 2018)  

Public ISBD [article]  inAutism Research > 11-11 (November 2018) . - p.1446-1454 Titre : Considerations from the 2017 IMFAR Preconference on Measuring Meaningful Outcomes from School-Age to Adulthood Type de document : texte imprimé Auteurs : Vanessa H. BAL, Auteur ; Robert L. HENDREN, Auteur ; Tony CHARMAN, Auteur ; Leonard ABBEDUTO, Auteur ; Connie KASARI, Auteur ; Laura G. KLINGER, Auteur ; Whitney ENCE, Auteur ; Tara GLAVIN, Auteur ; Gregory L. LYONS, Auteur ; Erin ROSENBERG, Auteur Article en page(s) : p.1446-1454 Langues : Anglais (eng) Mots-clés : lifespan  outcome  stakeholders  strengths Index. décimale : PER Périodiques Résumé : The autism spectrum disorder (ASD) research community is increasingly considering the importance of measuring outcomes that are meaningful to individuals with ASD and their families. The 2017 IMFAR preconference aimed to gain the perspectives of how to define and measure "meaningful outcomes" from 280 participants, including people with ASD and their families, service providers, and researchers. Six themes were identified: (a) the definition of "outcome" varies by context and perspective; (b) the need to broaden the scope of what researchers measure; (c) the need for new assessment tools; (d) the need to expand data analytic methods; (e) where to focus (with emphasis on considering different developmental stages and aspects of diversity); and (f) a need for community partnerships to bridge research and daily practice. The challenge that the research community now faces is how to move the evidence base for clinical practice forward while keeping alive the divergence of views and considerations that are relevant for thinking about complex outcomes for the highly heterogeneous group of individuals with ASD. This commentary provides recommendations, with an emphasis on lifespan viewpoints that encompass individual strengths and preferences. Autism Research 2018, 11: 1446-1454. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: The 2017 IMFAR preconference aimed to gain the perspectives of how to define and measure "meaningful outcomes" from a variety of stakeholders. This commentary outlines the six themes identified from keynote and panel presentations and audience-participated discussions. Recommendations are made to emphasize perspectives that look across the lifespan and encompass individual strengths and preferences. En ligne : http://dx.doi.org/10.1002/aur.2034 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Considerations from the 2017 IMFAR Preconference on Measuring Meaningful Outcomes from School-Age to Adulthood [texte imprimé] / Vanessa H. BAL, Auteur ; Robert L. HENDREN, Auteur ; Tony CHARMAN, Auteur ; Leonard ABBEDUTO, Auteur ; Connie KASARI, Auteur ; Laura G. KLINGER, Auteur ; Whitney ENCE, Auteur ; Tara GLAVIN, Auteur ; Gregory L. LYONS, Auteur ; Erin ROSENBERG, Auteur . - p.1446-1454. Langues : Anglais (eng) in Autism Research > 11-11 (November 2018) . - p.1446-1454 Mots-clés : lifespan  outcome  stakeholders  strengths Index. décimale : PER Périodiques Résumé : The autism spectrum disorder (ASD) research community is increasingly considering the importance of measuring outcomes that are meaningful to individuals with ASD and their families. The 2017 IMFAR preconference aimed to gain the perspectives of how to define and measure "meaningful outcomes" from 280 participants, including people with ASD and their families, service providers, and researchers. Six themes were identified: (a) the definition of "outcome" varies by context and perspective; (b) the need to broaden the scope of what researchers measure; (c) the need for new assessment tools; (d) the need to expand data analytic methods; (e) where to focus (with emphasis on considering different developmental stages and aspects of diversity); and (f) a need for community partnerships to bridge research and daily practice. The challenge that the research community now faces is how to move the evidence base for clinical practice forward while keeping alive the divergence of views and considerations that are relevant for thinking about complex outcomes for the highly heterogeneous group of individuals with ASD. This commentary provides recommendations, with an emphasis on lifespan viewpoints that encompass individual strengths and preferences. Autism Research 2018, 11: 1446-1454. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: The 2017 IMFAR preconference aimed to gain the perspectives of how to define and measure "meaningful outcomes" from a variety of stakeholders. This commentary outlines the six themes identified from keynote and panel presentations and audience-participated discussions. Recommendations are made to emphasize perspectives that look across the lifespan and encompass individual strengths and preferences. En ligne : http://dx.doi.org/10.1002/aur.2034 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

Expert Clinician Certainty in Diagnosing Autism Spectrum Disorder in 16?30-Month-Olds: A Multi-site Trial Secondary Analysis / Stormi WHITE ; Shana RICHARDSON ; Emma MCQUEEN ; Hasse WALUM ; Christa AOKI ; Christopher SMITH ; Mendy B. MINJAREZ ; Raphael A. BERNIER ; Ernest V. PEDAPATI ; Somer L. BISHOP ; Whitney ENCE ; Allison WAINER ; Jennifer MORIUCHI ; Sew-Wah TAY ; Yiming DENG ; Warren JONES ; Scott E. GILLESPIE ; Ami KLIN in Journal of Autism and Developmental Disorders, 54-2 (February 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-2 (February 2024) . - p.393-408 Titre : Expert Clinician Certainty in Diagnosing Autism Spectrum Disorder in 16?30-Month-Olds: A Multi-site Trial Secondary Analysis Type de document : texte imprimé Auteurs : Stormi WHITE, Auteur ; Shana RICHARDSON, Auteur ; Emma MCQUEEN, Auteur ; Hasse WALUM, Auteur ; Christa AOKI, Auteur ; Christopher SMITH, Auteur ; Mendy B. MINJAREZ, Auteur ; Raphael A. BERNIER, Auteur ; Ernest V. PEDAPATI, Auteur ; Somer L. BISHOP, Auteur ; Whitney ENCE, Auteur ; Allison WAINER, Auteur ; Jennifer MORIUCHI, Auteur ; Sew-Wah TAY, Auteur ; Yiming DENG, Auteur ; Warren JONES, Auteur ; Scott E. GILLESPIE, Auteur ; Ami KLIN, Auteur Article en page(s) : p.393-408 Index. décimale : PER Périodiques Résumé : Differential diagnosis of young children with suspected autism spectrum disorder (ASD) is challenging, and clinician uncertainty about a child?s diagnosis may contribute to misdiagnosis and subsequent delays in access to early treatment. The current study was designed to replicate and expand a recent report in this Journal (McDonnell et al. in J Autism Dev Disord 49:1391 1401, https://doi.org/10.1080/15374416.2020.1823850, 2019), in which only 60% of diagnoses were made with complete certainty by clinicians evaluating 478 toddlers and preschool children referred for possible ASD to specialized clinics. In this study, secondary analyses were performed on diagnostic, demographic and clinical data for 496 16 30-month-old children who were consecutive referrals to a 6-site clinical trial executed by specialized centers with experienced clinicians following best-practice procedures for the diagnosis of ASD. Overall, 70.2% of diagnoses were made with complete certainty. The most important factor associated with clinician uncertainty was mid-level autism-related symptomatology. Mid-level verbal age equivalents were also associated with clinician uncertainty, but measures of symptomatology were stronger predictors. None of the socio-demographic variables, including sex of the child, was significantly associated with clinician certainty. Close to one third of early diagnoses of ASD are made with a degree of uncertainty. The delineation of specific ranges on the ADOS-2 most likely to result in clinician uncertainty identified in this study may provide an opportunity to reduce random subjectivity in diagnostic decision-making via calibration of young-child diagnostic thresholds based on later-age longitudinal diagnostic outcome data, and via standardization of decision-making in regard to clinical scenarios frequently encountered by clinicians. En ligne : https://doi.org/10.1007/s10803-022-05812-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520 [article] Expert Clinician Certainty in Diagnosing Autism Spectrum Disorder in 16?30-Month-Olds: A Multi-site Trial Secondary Analysis [texte imprimé] / Stormi WHITE, Auteur ; Shana RICHARDSON, Auteur ; Emma MCQUEEN, Auteur ; Hasse WALUM, Auteur ; Christa AOKI, Auteur ; Christopher SMITH, Auteur ; Mendy B. MINJAREZ, Auteur ; Raphael A. BERNIER, Auteur ; Ernest V. PEDAPATI, Auteur ; Somer L. BISHOP, Auteur ; Whitney ENCE, Auteur ; Allison WAINER, Auteur ; Jennifer MORIUCHI, Auteur ; Sew-Wah TAY, Auteur ; Yiming DENG, Auteur ; Warren JONES, Auteur ; Scott E. GILLESPIE, Auteur ; Ami KLIN, Auteur . - p.393-408. in Journal of Autism and Developmental Disorders > 54-2 (February 2024) . - p.393-408 Index. décimale : PER Périodiques Résumé : Differential diagnosis of young children with suspected autism spectrum disorder (ASD) is challenging, and clinician uncertainty about a child?s diagnosis may contribute to misdiagnosis and subsequent delays in access to early treatment. The current study was designed to replicate and expand a recent report in this Journal (McDonnell et al. in J Autism Dev Disord 49:1391 1401, https://doi.org/10.1080/15374416.2020.1823850, 2019), in which only 60% of diagnoses were made with complete certainty by clinicians evaluating 478 toddlers and preschool children referred for possible ASD to specialized clinics. In this study, secondary analyses were performed on diagnostic, demographic and clinical data for 496 16 30-month-old children who were consecutive referrals to a 6-site clinical trial executed by specialized centers with experienced clinicians following best-practice procedures for the diagnosis of ASD. Overall, 70.2% of diagnoses were made with complete certainty. The most important factor associated with clinician uncertainty was mid-level autism-related symptomatology. Mid-level verbal age equivalents were also associated with clinician uncertainty, but measures of symptomatology were stronger predictors. None of the socio-demographic variables, including sex of the child, was significantly associated with clinician certainty. Close to one third of early diagnoses of ASD are made with a degree of uncertainty. The delineation of specific ranges on the ADOS-2 most likely to result in clinician uncertainty identified in this study may provide an opportunity to reduce random subjectivity in diagnostic decision-making via calibration of young-child diagnostic thresholds based on later-age longitudinal diagnostic outcome data, and via standardization of decision-making in regard to clinical scenarios frequently encountered by clinicians. En ligne : https://doi.org/10.1007/s10803-022-05812-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520

Issues and Theoretical Constructs Regarding Parent Education for Autism Spectrum Disorders / Amanda MOSSMAN STEINER in Journal of Autism and Developmental Disorders, 42-6 (June 2012)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 42-6 (June 2012) . - p.1218-1227 Titre : Issues and Theoretical Constructs Regarding Parent Education for Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Amanda MOSSMAN STEINER, Auteur ; Lynn KERN KOEGEL, Auteur ; Robert L. KOEGEL, Auteur ; Whitney ENCE, Auteur Année de publication : 2012 Article en page(s) : p.1218-1227 Langues : Anglais (eng) Mots-clés : Parent education  Parenting  Parent stress Index. décimale : PER Périodiques Résumé : Participation of parents of children with autism is commonplace in most comprehensive intervention programs, yet, there is limited research relating to the best practices in this area. This article provides an overview of parent education programs for young children with autism and details data-driven procedures which are associated with improved parent and child outcomes. In addition, we provide a troubleshooting guide based on the literature for professionals regarding a variety of complex issues which may arise during parent education. En ligne : http://dx.doi.org/10.1007/s10803-011-1194-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=157 [article] Issues and Theoretical Constructs Regarding Parent Education for Autism Spectrum Disorders [texte imprimé] / Amanda MOSSMAN STEINER, Auteur ; Lynn KERN KOEGEL, Auteur ; Robert L. KOEGEL, Auteur ; Whitney ENCE, Auteur . - 2012 . - p.1218-1227. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 42-6 (June 2012) . - p.1218-1227 Mots-clés : Parent education  Parenting  Parent stress Index. décimale : PER Périodiques Résumé : Participation of parents of children with autism is commonplace in most comprehensive intervention programs, yet, there is limited research relating to the best practices in this area. This article provides an overview of parent education programs for young children with autism and details data-driven procedures which are associated with improved parent and child outcomes. In addition, we provide a troubleshooting guide based on the literature for professionals regarding a variety of complex issues which may arise during parent education. En ligne : http://dx.doi.org/10.1007/s10803-011-1194-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=157

Physical exercise and individuals with autism spectrum disorders: A systematic review / Russell B. LANG in Research in Autism Spectrum Disorders, 4-4 (October-December 2010)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 4-4 (October-December 2010) . - p.565-576 Titre : Physical exercise and individuals with autism spectrum disorders: A systematic review Type de document : texte imprimé Auteurs : Russell B. LANG, Auteur ; April REGESTER, Auteur ; Lynn KERN KOEGEL, Auteur ; Kristen ASHBAUGH, Auteur ; Whitney ENCE, Auteur ; Whitney SMITH, Auteur Année de publication : 2010 Article en page(s) : p.565-576 Langues : Anglais (eng) Mots-clés : Exercise Physical-activity Autism Aerobic Asperger's PDD-NOS Review Index. décimale : PER Périodiques Résumé : Studies involving physical exercise and individuals with autism spectrum disorders (ASD) were reviewed. Systematic search procedures identified 18 studies meeting predetermined inclusion criteria. These studies were evaluated in terms of: (a) participant characteristics, (b) type of exercise, (c) procedures used to increase exercise, (d) outcomes, and (e) research methodology. Across the corpus of studies, exercise was implemented with 64 participants with ASD aged 3–41 years. A variety of exercise activities were employed (e.g., jogging, weight training, bike riding). Following the exercise interventions decreases in stereotypy, aggression, off-task behavior and elopement were reported. Fatigue was not likely the cause of decreases in maladaptive behavior because on-task behavior, academic responding, and appropriate motor behavior (e.g., playing catch) increased following physical exercise. Results suggest that programs for individuals with ASD may benefit from including components designed to incorporate regular and specific types of physical activity. Areas in need of further research are discussed. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.01.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=102 [article] Physical exercise and individuals with autism spectrum disorders: A systematic review [texte imprimé] / Russell B. LANG, Auteur ; April REGESTER, Auteur ; Lynn KERN KOEGEL, Auteur ; Kristen ASHBAUGH, Auteur ; Whitney ENCE, Auteur ; Whitney SMITH, Auteur . - 2010 . - p.565-576. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 4-4 (October-December 2010) . - p.565-576 Mots-clés : Exercise Physical-activity Autism Aerobic Asperger's PDD-NOS Review Index. décimale : PER Périodiques Résumé : Studies involving physical exercise and individuals with autism spectrum disorders (ASD) were reviewed. Systematic search procedures identified 18 studies meeting predetermined inclusion criteria. These studies were evaluated in terms of: (a) participant characteristics, (b) type of exercise, (c) procedures used to increase exercise, (d) outcomes, and (e) research methodology. Across the corpus of studies, exercise was implemented with 64 participants with ASD aged 3–41 years. A variety of exercise activities were employed (e.g., jogging, weight training, bike riding). Following the exercise interventions decreases in stereotypy, aggression, off-task behavior and elopement were reported. Fatigue was not likely the cause of decreases in maladaptive behavior because on-task behavior, academic responding, and appropriate motor behavior (e.g., playing catch) increased following physical exercise. Results suggest that programs for individuals with ASD may benefit from including components designed to incorporate regular and specific types of physical activity. Areas in need of further research are discussed. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.01.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=102

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